J-Pouch ForumsHelp! Need advice now!
Topics
Sorted by last update
J-Pouch ForumsGeneral Discussion
Tori R2 says " is coming through my system ‘intact.’" If the pill is "intact", obviously the coating hasn't dissolved. "therefore, enteric coatings resist breakdown of medication before it reaches the small intestine" This merely says the coating will pass the stomach, but it does not say it will dissolve (fully or partially) in the small intestine. Obviously, as in the case of Tori R2, the coating did not dissolve. I once saw a whole coated mesalamine pill pass through my system intact... [ more ]
An enteric coating is a barrier that controls the location of oral medication in the digestive system where it is absorbed . The word “ enteric ” indicates small intestine; therefore enteric coatings prevent release of medication before it reaches the small intestine. An enteric coating , also known as gastro-resistant coating is a barrier applied to oral medication that controls the location in the digestive tract where it is absorbed . The term “ enteric ” refers to the small intestine;... [ more ]
I apologize for giving you the wrong advice regarding absorption, I never knew about absorption being reduced in us when it comes to time release medications. I wish doctors were more educated about things like that and in letting us know. We definitely do not need to be taking time release or extended release medications. I go 13-20x a day so I would extremely be in trouble taking that lol. [ more ]
See all 11 replies...
J-Pouch ForumsHelp! Need advice now!
Deb, Cipro is inexpensive, if you know a doctor who would be willing to prescribe it for you to try (without the expense of an office visit). It won’t do anything for the cyst, of course, but it could help a lot if pouchitis is a contributor to your trouble. [ more ]
I am sorry to hear that, I hope things get better; do not be afraid of taking out a bank loan if you need to. I wish we had free healthcare like Canada and UK. [ more ]
Sadly to report, no doctor. Because of the cyst and pain I'm experiencing, I can't work. Can't afford a doctor. I was denied Medicaid, disability, and denied help on the market place. Trying to deal with it the best way I can. [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
4-6 times??? Wow awesome! I go 13-20x a day, that is my norm lol. [ more ]
I had some notifications that this thread has come back to life again so I thought I'd provide an update on my situation. I haven't been around this forum for years now for the classic reason that everything has been going very well with me and I've been getting on with my life. I go 4-6 times a day depending on what I eat. I have ZERO issues with my J-Pouch, I can even eat peanuts and tikka masalas now. I have two golden rules: 1) Don't snack between meals and when you do eat, try to eat... [ more ]
❤️
See all 61 replies...
J-Pouch ForumsK-Pouch Korner
I actually learned about that today! I go 13-20x a day so I would be in trouble XD Thank-you for posting that! That is definitely important for colectomy people to know [ more ]
I use a patch for my Garcinia and B6 [ more ]
My pharmacy knows not to even fill caplets, hard coated tablets or time release medications. My doctors know not to prescribe them too. There just is not enough time for them to break down before getting stuck in the catheter. My pain medication is an oral film that dissolves inside my mouth. It works much better than pills. And I use a nasal spray called Nascabol that is vitamin B complex. Before I started using that I was always so tired. [ more ]
See all 9 replies...
J-Pouch ForumsGeneral Discussion
You will love it when you do! I am more than 5 years out [ more ]
I am not, though moving in that direction. [ more ]
❤️
See all 11 replies...
J-Pouch ForumsGeneral Discussion
That's supposed to say flat instead of 5 [ more ]
I also only pass gas when I lie down flat 5 night. During the day when I am on the pot I bend over and hug mythighs with my back flat. GAs will come even with more gusto than at night. [ more ]
I am soo happy you are at peace! Thanks for letting us know [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
That is great to hear!!! I am happy about that!!! [ more ]
Yes, that's the plan. [ more ]
❤️
See all 21 replies...
J-Pouch ForumsPouchitis
Sounds perfect!!! Me too [ more ]
I don't hold if i get some urge to go i go but when I'm out i know i can hold it if i need to [ more ]
I would not recommend holding it in, you should go whenever you need to; there are a lot of risks associated with holding poop in. I know its convenient to hold it in but its not safe. Glad you are doing better though [ more ]
See all 10 replies...
J-Pouch ForumsGeneral Discussion
Lauren, yes I had pouchitis. Chronic pouchitis actually. However, this was more than a decade post j-pouch surgery and had zero to do with what I did in those early months, and I never actively held back on pouch empyting, except to avoid soiling myself. Maybe what you are referring to is bacterial overgrowth which can result from pouch stasis, but that is more of an issue of not being able to empty well, not something you actively contribute to. If your doctor told you to never hold back on... [ more ]
Fair enough - it’s also important to listen to your body. That’s the best way to tell if anyone’s recommendation (whether doctor or forum participant) is right for you. [ more ]
❤️
See all 33 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
3 days. I was not given anything other than clear liquids and a ton of IV fluids until I passed gas. Actually on day 2 I passed a little gas, but they told me it has to be a “Prrrrrrrrrrrrrrrrt” like gas. That was funny. They did not give me food until I passed a long gas. [ more ]
I had surgery on a Wednesday, went home Thursday so didn't take long. I was sick over that weekend though, throwing up and very nauseous. I've had that problem every surgery though so I think for me it may have been anesthesia? Hopefully you're feeling good and have a problem free experience! [ more ]
I had the same issue as well after both surgeries. On the first surgery for the removal it took almost 7 days for everything to start moving.. I had to get the NG tube also after I started throwing up..After my second surgery for the take down it happened again it lasted for around 7 days and got the good ole NG tube again..Its a waiting game when its ready to wake up it will..The nurses and doctors told me walking helps as well which I did until things started moving. [ more ]
See all 10 replies...
J-Pouch ForumsHelp! Need advice now!
I'm so glad your ostomy is working out for you. I can tell you that things only get better. Keep us posted on this little setback. [ more ]
Yeah, do not overeat all of the time and do not do extensive exercise- try to keep it under an hour. Drink water: Before, during, and after every meal. [ more ]
Ok thanks all, that’s sort of what my gut tells me too (ha). I’ll see how it settles in the next day or two with rest. I guess I should know better and not push it, I’ve just been so happy to be able to do things after so long being incapacitated. Doug, to answer your question, my pouch ended up twisting in on itself, plus had bowel wrapped around it and another segment pinned underneath, and frozen pelvis from adhesions, but no one could figure it out for a very long time. I’ve had chronic... [ more ]
See all 7 replies...
J-Pouch ForumsHelp! Need advice now!
Thanks - I have a weird mast cell disease that makes me allergic to Imodium and Lomotil because they have a little hint of narcotic dna - and I am deathly allergic to narcotics. So much so, that after all of my surgeries I can only take extra strength Tylenol post op. I am praying that the J Pouch takes care of this. Thanks for the support. [ more ]
Stay the course, you will be better after takedown. There's more small intestine at work once you get the jpouch connected. Sometimes with the loop ileo I shot out water like a fountain (that made me think of those weird little boy peeing fountains) and could listen to the sound of the appliance filling up. Now I get a bad watery episode maybe once every week or two, much better. Have you tried immodium or lomotil? Do you get enough electrolytes - try pedialyte. [ more ]
Thanks guys! [ more ]
See all 6 replies...
J-Pouch ForumsGeneral Discussion
Its not worth it because of our delicate system. Delicate things need to be treated as such, delicately. [ more ]
For me, dry red wines are my friend. Beer makes me feel blergh (but draught beer used to clear me out; now I just feel totally bloated). And I *can* drink liquor, but I'm not a fan of many, and mixed drinks have too much other stuff in them for my taste. [ more ]
Similarly I have problems with red wine, but not many other liquors. I have never enjoyed the taste of beers. I prefer white wines, and spirits. My favorite alcoholic beverage is Evan Williams Egg Nog which is only sold in November and December. It has bourbon, brandy and rum in it and is 15% alcohol/30 proof. Made with real milk and fresh eggs. For shots of spirits I like Fireball. However I do not drink much, just on special occasions and holidays. [ more ]
See all 16 replies...
J-Pouch ForumsGeneral Discussion
I would not recommend us drinking at all. Since we have a delicate system, that is not a good idea. We as IBD patients already have a compromised system, alcohol can worsen that. Alcohol is never a good idea in our situation, even in IBD people that have their colon. [ more ]
Thank you all for your comments; I guess I'll just have to be patient [ more ]
VEGGIESCOTT hang in there!!!! I took a solid year for my body to completely adjust to my jpouch. I am able to drink whatever I want now (beer, wine,wiskey, etc), but had problems as you said for the first few months after surgery. My first week after surgery I kept crapping the bed and thought I had made a huge mistake!!! I just learned I have a new normal for my life, it means I poop 4-6 times a day, but compared to the UC I had.......I just think if I had been born 50 years ago I would... [ more ]
See all 13 replies...
J-Pouch ForumsGeneral Discussion
Are you doing better now??? [ more ]
❤️
I am so sorry Mary, My uncle had one of the 1st j pouches, due to FAP, done at the Mayo back in the 80's. In the late 90's was diagnosed with kidney disease and by 2000 was down to 30% function. They gave him 6 months. He burried 3 nephrologists...litterally...he passed at age 86 last year from diabetes related infection...over 16yrs after the diagnosis. His kidneys were still going strong. I was constantly after him to drink more fluids and water...he would drink highly diluted juices,... [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
yes which is why I eat fruits and veges, salads etc [ more ]
Soft digestible carbs may seem like fine meals short term, but you have to think long term pouch health. Having lots of carbs in your diet on the theory that those are comfortable meals to "go to" is a faulty long term strategy as you are potentially feeding a long term SIBO situation, especially if there is an inadequate fiber intake. In fact that's the usual predictable SIBO situation- too much carbs and sugars and not enough fiber spells SIBO City. [ more ]
❤️
See all 20 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsHelp! Need advice now!
I’m sorry to hear your going through so much. seems like your tried quite a bit of different therapies, have you tried switching doctors? I was at at my wits end with my pouch until I found a doctor that specialized in the J-pouch and wow what a difference it has made. ‘Hope you find something or someone that can help you. [ more ]
Hi Angieb and Mpale, Your stories are heart breaking. I am so sorry. I read these posts again. I pray your JPouch gets better. I am having tons of problems with my stage two recovery, loop, with tons of output and I am very worried about takedown. In my head - I was planning on giving the JPouch a year - and if I was unhappy with it - then go back to and end ileostomy. Now I have learned they could be a risky surgery. I hope your situations get better, but how are you guys evaluating taking... [ more ]
❤️
See all 15 replies...
J-Pouch ForumsHelp! Need advice now!
Could be ANXIETY to be honest or maybe the body tries to flush itself out to protect itself. [ more ]
Some folks have certainly reported that here, and I’ve noticed that it sometimes happens to me. It could be as simple as changes to our food and liquid intake, or it could be more systemic. [ more ]
See all 2 replies...
J-Pouch ForumsHelp! Need advice now!
Definitely see a GASTRO ASAP [ more ]
Changing your entire digestive system I feel is something that needs to be checked often, since cancer and other issues can arise in the pouch. I’ve had a scope test every year for the past 40yrs, sometime twice in a year. Thank god, I’ve never had cancer, but have had a bad case of pouchitis. [ more ]
Have you had a yearly scope test since you’ve had the jpouch? I think I may have had one done over the last 10 years. I don’t think it was to check out my pouch though, I believe it was for a stomach issue. [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
❤️
Around 5 or more I believe. I am always tired since I go to the bathroom 13-20X a day, so I am pretty active all throughout the day. You could try loperamide but it clogs me up to much; it might work for you. I just accept everything for what it is. I am just grateful my pouch gave me what I need which is PEACE [ more ]
Sorry...I take Loperamide, not Lomotil. I'm glad you are seeing some improvement! [ more ]
See all 12 replies...
J-Pouch ForumsGeneral Discussion
❤️
I never drank alcohol since having my pouch. I would not recommend drinking though, especially with a delicate system that we have. [ more ]
I get drunk very quickly and easily then sober up fairly quickly. I drink more now than I did before. No issues unless it's a super fruity drink. [ more ]
See all 5 replies...
J-Pouch ForumsHelp! Need advice now!
Yeah definitely agree with calling doctor. Are you doing better now??? [ more ]
Thanks @Doug K . I will call the Dr tomorrow. I have prednisone here but don't want to self medicate. Just need to feel normal! [ more ]
For me - the steroid knocked it out quickly - but some of it does absorb in the system. But maybe you can knock it down with the steroid and control it with the Canasa. [ more ]
See all 6 replies...
J-Pouch ForumsGeneral Discussion
Sorry about your hemorrhoid! Are you having any pain??? [ more ]
It’s critical to avoid straining with hemorrhoids. This enables them to heal, and helps prevent forming new ones. Keeping the stool soft (with psyllium, water consumption, etc.) makes it easier to avoid straining. [ more ]
I suffered from hemorrhoids soon after takedown. After a year of suffering, I finally got them under control. Ilex paste is great to alleviate itching and works better for me than any hemorrhoid specific ointment. There are special bath salts by Better Bath, Better Body that are meant to alleviate hemorrhoid discomfort. I just put some in my bath water. The third thing that helps is to use a barrier cream every time you empty your pouch. I use wipes to make sure I'm extra clean. I hope you... [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
I've read it's good for leaky gut, which I had never heard of. I'm thinking that's why it's helping. I hope you have a great Thanksgiving!! [ more ]
Wow, that sounds very promising. I’m happy you found something that is not a prescription meds to work for you. I’ve been wanting to try collagen for help with my joints but if it also helps the pouch it be a win win. Thanks for the info, Have a wonderful Holiday! [ more ]
Vital Proteins. I get it from Costco (but it's available lots of place--Costco has a good price). I didn't have to get up in the middle of the night AGAIN last night! I'm not sure I've ever had this many nights in a row without having to get up. Nothing else has changed so I have to believe the powder is helping. [ more ]
See all 10 replies...
J-Pouch ForumsHelp! Need advice now!
❤️
Liz- Thank you for your response. I keep eating certain fruits and vegetables and thus far so good. You should consult with your Gastro doctor. [ more ]
I definitely can not eat fruits, veggies, leafy greens or beans. I used to, about 5 years ago. But things have changed for me. From what I’ve been reading on these posts and Facebook from other jpouchers, it just depends. I just don’t know what it depends on. That’s what I’m trying to find out. Why the change for me and if there is anything I can do to change it back! I miss a good salad!! [ more ]
See all 14 replies...
J-Pouch ForumsGeneral Discussion
So far, all sources recommend continuing your regular IBD treatment. The basic notion is that being in remission is far better for you than risking relapse along with potential COVID-19 infection. https://www.crohnscolitisfound...ofessional-resources Also, there are studies underway for Humira as an actual treatment for COVID-19 to lessen disease severity. https://www.bmj.com/content/371/bmj.m3847 Jan [ more ]
Definitely keep taking your meds! Try to stay in as much as possible if you can. And when you leave the house use hand sanitizer, practice 6 feet, and wear a mask. When I am at the gas pump and finish filling up, I immediately use hand sanitizer. [ more ]
At most gas stations, you pump gas outside and are not within 10 feet of anyone else so I don't understand why this should be a specific concern, as long as you do not go inside. [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
I take a muscle relaxant (Baclofen) nightly which lists constipation as one of its side effects. I haven't noticed any particular bowel effect. I take a very low dose though. Jan, I'm curious what muscle relaxant you are taking? [ more ]
I took something with a name like Roboxin. It helped with kidney stone pain. [ more ]
I have been taking a muscle relaxer at bedtime for years for my arthritis and spinal stenosis symptoms. No problems at all. Jan [ more ]
See all 10 replies...
J-Pouch ForumsGeneral Discussion
Hellbuff, If you have pouchitis or SIBO the treatment would be the same, a course of antibiotics. Only a pouch scope would distinguish between the two, since the symptoms are pretty much the same. The gallstone could be an incidental finding and unless you also have an inflamed gallbladder (cholecystitis) or and obstructed bile duct, there would not be any likely surgery needed. Possible, just not likely. I have had a solitary gallstone for decades and also thought my gallbladder was toast. [ more ]
You are welcome And not at all, sorry lol. [ more ]
Thanks Lauren, do you know why pouchies often have gallbladder problems? Xx [ more ]
See all 8 replies...
J-Pouch ForumsHelp! Need advice now!
I hope so too dear [ more ]
CTBarrister, 2 capsules? Do you take the liquid or the pills of pepto bismol? lauren, I have not tried it and havent needed to yet. I really hope I can have my jpouch for life... [ more ]
Sorry about that honey. I hope it gets better. Have you tried the Cather option? I hear it works for a lot of people. If things do not get better, are you open to getting an ileostomy in the future? [ more ]
See all 44 replies...
J-Pouch ForumsGeneral Discussion
Thanks Kangaroo! I never thought I would have raised that much money! My message is never give up [ more ]
Wonderful news about all that money you raised! [ more ]
I removed your email from your post. Everyone, please do not post your personal email (or other personal info) on the public forums. This is for your safety. Please use private messaging to contact members. There are malicious actors out there who harvest this information to send you spam or computer viruses. Congratulations on your charity work! Jan [ more ]
See all 3 replies...
J-Pouch ForumsHelp! Need advice now!
Have you had your b12 levels checked? I had some similar symptoms over a year ago, saw a neurologist and had a bunch of testing. Then had my b12 checked and it was dangerously low. I now take a b12 shot once a month. [ more ]
Rose violet: That is interesting. I’m going to do a little research. Thanks! [ more ]
There is a condition called vestibular migraine where you feel like you're going to fall or the world is spinning around you. You can have these symptoms without actually having the headache. [ more ]
See all 20 replies...
J-Pouch ForumsGeneral Discussion
Wow! Sorry to hear that! I hope everything goes very well for you when you start Chemo and stay safe! Please keep up us updated Sending light your way [ more ]
Yeah, I am doing well Jeanne! My surgery to remove the cancer by taking out the thyroid and lymph nodes was in July 2015. I started Remicade November 2015. Thyroid cancer recurrence is pretty easy to monitor via blood tests, because thyroid cells produce a protein that gets picked up on blood tests in the event of recurrence or spread. Between blood tests and scans, I have been cancer free since. I was stage 3 because when they did surgery they found a metastasis into the 2 lymph nodes near... [ more ]
Thank you for your response. I hope you are doing well now. The oncologist recommends that I have an Entyvio infusion just prior to starting chemo. I have two separate rounds of chemo scheduled, and will hopefully be able to have another infusion of Entyvio in between. I guess it all depends on how well I tolerate the chemo. Again, thank you for your response! [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
Maybe you should voice your concerns with a doctor. I think they might be better. [ more ]
Paul, no one really knows if your very short courses of antibiotic are wise or unwise. If pouchitis were a conventional infection then very short courses would tend to lead to bacterial resistance, making the antibiotic less effective in the future. But pouchitis isn’t a conventional infection, so it’s possible that the reduced side effects (during a very short course) are worth the trade-off. You are making it up though - there’s no data to support your approach, whereas there’s a fair... [ more ]
❤️
See all 9 replies...
J-Pouch ForumsGeneral Discussion
Thanks! That is comforting [ more ]
I had the same problem before takedown after 2nd surgery, i'm now 5 months past takedown, it's much better now, i only have this problem when my pouch is full. [ more ]
❤️
See all 16 replies...
J-Pouch ForumsHelp! Need advice now!
PTL I've had no side effects from taking Entyvio and thankfully, it seems to be working for me. [ more ]
I took Entyvio with zero side effects, but also zero therapeutic effects. But worth a try, it certainly works for some people. [ more ]
Nope - gave it 2 years - never got me off prednisone. It works for about 40%. So give it a shot. Some have had great success. [ more ]
See all 10 replies...
J-Pouch ForumsHelp! Need advice now!
@amtrpt It’s hard to know from your description what you’ve actually already tried, and fissures can take a lot of patience. I assume you’re using warm sitz baths very regularly. In any case, in addition to the nitroglycerin JHendrix mentioned, some folks have success with nifedipine or diltiazem compounded into an ointment. If all else fails Botox is sometimes used to temporarily reduce anal sphincter pressure, which can give the fissure a chance to heal. Good luck! [ more ]
I think maybe it might be time for biologics like Remicade. MAybe you should suggest it to your Gastro or surgeon [ more ]
Did your ointments include nitroglycerin rectal ointment? [ more ]
See all 3 replies...
J-Pouch ForumsHelp! Need advice now!
Do you celebrate? [ more ]
I just realized that I am actually 18 years post op. Time flies. I rally haven't had any complications (except for pouchitis in the first month). I was actually in the Army when i had the procedure and did a further 5 years in the Army before I retired in 2006. [ more ]
12 years?! You should definitely celebrate! Have you had any complications??? [ more ]
See all 13 replies...
J-Pouch ForumsGeneral Discussion
Remzi has been at NYU Langone MEd Center for a couple of year now. He not only has an excellent reputation, his work is highly published in the medical science literature. [ more ]
Thank you [ more ]
❤️
See all 15 replies...
J-Pouch ForumsHelp! Need advice now!
Getting dehydrated at night is pretty common, you might want to start drinking water at night, not a lot but just enough to get you by. We are constantly losing water, every breath. I know it stinks but we need water throughout the day/night. In the hospital as I am sure you noticed, they give us IV fluids through out the day/night. Its very important. Maybe drinking water throughout the day and in the evening will solve your dizziness/lightheartedness. [ more ]
I drink about two liters of water a day, when i am at work. I don't drink too much in the evening. [ more ]
Do you drink fluids throughout the day??? [ more ]
See all 6 replies...
J-Pouch ForumsHelp! Need advice now!
I use Metamucil. One thing i do is to take the Metamucil with only a half glass of water, which seems to make the stools thicker. I usually take it in the morning, but sometimes take it again at supper. You don't want to take too much though, because it can give you gas pains. It is mainly trial and error. [ more ]
I agree with you, @Kmiller , the frequency needs to go down. I will try the cholestryamine, soon and maybe even Immodium. I just dont want to get backed up. [ more ]
@readann nothing so far thats a no, but I haven't tried too many veggies yet. Working to expand that. I really want a salad but trying to decide which day to ruin if that doesn't go well 😀. So this morning, went many times just a little. Hadn't eaten yet, so ate a chicken lunch meat sandwich and then was able to fully empty. I think sometimes the discomfort is gas causing pressure too. I've been fortunate with food that I don't get butt burn very often. I stick to water, coffee once a day. [ more ]
See all 12 replies...
J-Pouch ForumsHelp! Need advice now!
I had the total colectomy and take down surgery in 2002. I was told to do pelvic floor exercises prior to my surgeries, so I think I had a pretty strong pelvic floor once I had the take down. The three months that I had the ileostomy was pretty bad, with a lot of sensitive skin around the ileostomy. I was actually relieved to have the take down surgery. One thing I would say was that the first time real food passed through the pouch was pretty painful, but after that it wasn't so bad. [ more ]
You may or may not experience burning or skin irritation if you’re having diarrhea. Keep skin clean, Dan don’t wipe and use Calmoseptine cream ointment. It’s a lifesaver. The only one on market that had BOTH calming ingredients as well as moisture barrier. I swear by it. [ more ]
I’m really rooting for you. The packets are wonderful of the Konsyl , I use original formula. The pills are great to have on hand when you’re at a restaurant. In the end though, I take it 3 to 4 times a day so I get the round cylinder I believe it’s 12 ounces for Home And can just dip my teaspoon in, according to how much I think I need for that particular meal. I’m also now experimenting with a half teaspoon before meal and a half teaspoon after meal. It’s all trial and error. Some meals... [ more ]
See all 17 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsHelp! Need advice now!
You are soo lucky!!! Usually 9%ers go more overnight! I see you are a lucky 9%er lol. And yeah, I do not take loperamide anymore myself and I am 6 years out. Maybe you will not need it ever [ more ]
Lauren... I go 2 times each night. Sometimes I only go 1. I sleep really well and luckily feel really rested everyday. Scott.. I have found that lomotil and Imodium cause me to strain trying to empty. Maybe it will work for me later as I am only 3 months post take down, but for now I am staying away from them. [ more ]
❤️
See all 9 replies...
J-Pouch ForumsGeneral Discussion
Totally understand that! [ more ]
@Lauren Of Emerald City yes before my operation I was taking 9 a day . But being of work sick an din the house all day I have not had any in weeks , this is leading to increased toilet trips obviously . [ more ]
❤️
See all 13 replies...
J-Pouch ForumsGeneral Discussion
❤️
I am 12 years post take down and have always had an issue with waking up in the night. I do find it helpful if I avoid any food after 7pm; otherwise, i will wake up multiple times in the night. [ more ]
Sleep is a thing of the past for me now , I fondly remember the days where sleep was an actual thing lol . [ more ]
See all 34 replies...
Join Us!
Founder, Creative Director & Web Master
William J. Johnson
bjohnson@j-pouch.org
Bill Johnson founded the J-Pouch Group in 1997.
After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.
Forum moderator and advisor
Jan Dollar R.N.
General Disclaimer
- This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.
Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).
Confidentiality
Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.
The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100
National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440 800-343-3637
Already a member? Sign In
