J-Pouch ForumsGeneral Discussion
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J-Pouch ForumsGeneral Discussion
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My primary lesson was that I am more resilient than I ever imagined, but it is a blessing to find how much support I had that I never thought I would need. Another thing that I found out is that I need to be my own advocate. All the health professionals are great, but they are not infallible and they cannot read my mind. Some are better than others regarding picking up on nonverbal cues. Jan [ more ]
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J-Pouch ForumsHelp! Need advice now!
Lol! Totally makes sense. I wish they had Pediatric Gastros back then for you guys. I find that Pediatric gastros seem to be more sentimental. I see a adult gastro now, its not too bad but I definitely miss being in the Pediatric gastro office LOL [ more ]
Who me? No, I was 15 at the time and treated on the adult medical floor And treated by an adult gastroenterologist. Not sure they even had pediatric GIs in the early 1970s. I am older than dirt and they had not even invented fiberoptic scopes yet. Jan [ more ]
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J-Pouch ForumsPouchitis
Thanks for the update!!! Glad you are better What happened to your ovaries??? [ more ]
Hi everyone, thank you so much for ur support I appreciate it , so apparently it wasn’t pouchitis (thank god!) something was wrong with my ovaries and that cussed the issue , nothing serious and I’m all better 😋♥️ [ more ]
I think you should make an appointment with Gastro ASAP [ more ]
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J-Pouch ForumsGeneral Discussion
You are welcome, ask me anything and I will answer, good luck [ more ]
Thank you so much for the encouraging words it's great to have something to look forward to! [ more ]
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J-Pouch ForumsK-Pouch Korner
J-Pouch ForumsGeneral Discussion
My GI had a nutritionist who walked me through the FODMAPS diet to identify which sugars were my biggest culprits for gas. Knowing which sugars are worst for me helps me keep a mental tab on what I’m eating and then cut back or take calculated risks as needed/desired. I also used to buy a digestive enzyme supplement from the health food store. It was kind of pricey but it *claimed* to have a more broad spectrum of enzymes than just Lactaid or Gas-X. Could be worth a try? [ more ]
Regarding sugars... Please read ingredient labels carefully. If it contains any sugar substitutes (sucrose, sucralose, xylitol, erythritol, etc. {anything ending in "ol" is a sugar alcohol}) these can cause distress, increased BM's, extreme diarrhea. My GI took me off of all artificial sweeteners, except aspertame. These sugar alcohols can be found in SOOOO many foods. Even Stevia and/or Monk Fruit usually contain erythritol as well. I've learned that it is very important to read ingredient... [ more ]
Some people have an insufficiency of pancreatic digestive enzymes. Lactase deficiency is most common, but this is something to discuss with your GI doctor. Maybe it is something that will improve with time, maybe not. You could figure out if specific sugars are the culprit, such as fructose (a common bad actor). If it is a true pancreatic secretion disorder, there are prescription supplements for it. Jan [ more ]
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J-Pouch ForumsMen's Health
Interesting! I am glad you are okay though. [ more ]
Everything has been fine since I got out of the car. No I was not aroused. It was a very strange sensation. [ more ]
Oh my! Glad you are okay! Has it happened since you got home? I apologize for asking this but were you aroused at all? I hear some men just get like that sometimes randomly. [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
I had a partial blockage in 2005. It could be resolved by a contast agent used for an examination. But I often had pain after eating for several weeks after that. I got rid of it after 3 days of fluid nutrition. If you look out for a high caloric full nutrition drink to keep you going for some days without a lack of nutrients and without solid food, perhaps it can help you also. [ more ]
Are you drinking water: before, during, and after every meal??? That cured up my pain. [ more ]
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J-Pouch ForumsMen's Health
Hi Jake. I am actually 6 years post reversal. But prior to that, I had had numerous back surgeries and was on high levels of narcotic pain medications all the time. Eventually, a combination of nerve damage and weakness brought on by the pain medicines caused me to be unable to urinate. I had to learn how to catheterize myself when I needed to pee. I was fortunate after a month or so and my bladder started working again. I don't know if that's an option for you or not, but it may be... [ more ]
Also IF ur mind is not on savage discipline mode it NEEDS TOBE because ur in the TOUGHEST FIGHT of ur life... so with that being said u need to ALWAYS be on top of WHAT WORX ........THE MOST.. take it and MAKE IT ROUTINE... HABITUAL.... your mind is right Then..... U ...JUSTCANTLOSE💪🏻👊💣😠😏 [ more ]
Well ONLY u know ur body.iIF YOUR NOT eating a ton of VEGETABLES,GREENS, OATS ,FRUITS.then MAYBE portion control, fish, chicken or turkey. THEN START THERE FIRST... along side a top notch gastro AND surgeon... if u did ur homework and this is the team u want on ur side then IMMEDIATELY SEE THEM... hope all goes well.. [ more ]
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J-Pouch ForumsGeneral Discussion
I do not really have anything I want to fix to be honest, there is nothing to fix in my opinion. I am sure you look absolutely stunning the way you are but if this will make you happy, I am totally for it [ more ]
Definitely! There things that everyone wishes they could “fix” about themselves. Some may have smaller things compared to what I want, but at the end of the day I’d be doing this for me and me alone. I’m not a selfish person, and have practically given every part of me for my family, I think I deserve to have that banging body I’ve dreamt of. Here’s to hoping I find some answers and to prep myself. 🤞 to a new journey [ more ]
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J-Pouch ForumsGeneral Discussion
Hi Jan! The U of M has only has had 2 of us. Our Facebook group has discovered 4 total. That may be it. We are just curious to find out! I take Creon for digestive enzymes. My endocrine function was not compromised at all before surgery, but I knew eventually it would be. I am definitely glad I did it. There are just issues that go with it and the way it’s done and other organs that also need to be evicted with it...that create a unique set of challenges. Too much detail for this response,... [ more ]
SenoritaG, so sorry you are having to deal with so much autoimmune crap. There are many of us here who have had multiple autoimmune diseases (myself included), but you are correct that you are exceptionally rare with your combination. Have you inquired at U of Minnesota regarding contacting other patients that have been treated there to develop a support group? I bet they follow them long term. Anyway, you are certainly welcome here. We do have quite a few here with liver/bile duct disease,... [ more ]
I sent my fundraiser link to your email if you would like to check it out [ more ]
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J-Pouch ForumsGeneral Discussion
Oh, and to add - you can definitely still pursue MMA once you're all healed. That shouldn't stand in your way! [ more ]
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Hi. Please don't lose hope. You're so young and it will get better. I had my pouch surgeries (2 step) in 1993 at the age of 23. I have had no issues to speak of and now I'm 50. I have some minor things happening now due to the age of the pouch and I think I just have a stricture, which is easily treated. I was diagnosed with Colitis at age 18 and it was very difficult to finish my degree in English and Dance, but once finished I had my surgeries. I have had a child by planned c-section with... [ more ]
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J-Pouch ForumsGeneral Discussion
I also had rectal cancer...never had UC.... was diagnosed at age 42...colon had hundreds of polyps so it had to go...I am 8 months post takedown and have my first scope coming up soon....COVID has postponed all my check ups and so far things have been getting better....still can’t sleep more than 3 hours but I’m alive.....14+ BM’s a day gets exhausting.... [ more ]
hello. writing this from my hospital bed after an emergency surgery for an unknown tissue attached to my small intestine. 2 years ago, I had my colon removed and was lucky to have my surgeon here who walked to give me another chance with my j-pouch . I had rectum cancer because of FAP and the polyp was closing the way too much. I remember not being able to poop for two weeks and it was hell. I had a two step surgery with a two months long loop ileostomy. I remember crying when i first got my... [ more ]
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J-Pouch ForumsGeneral Discussion
Stumbled across this thread - I'm 53 yr. old male - I just had inguinal hernia mesh repair (3/26/21) diagonal incision and mesh repair placed between skin and abdominal muscle wall. Had full three stage J-pouch in OCT-2004 and FEB-2005 respectively - have been fine with bowel movement activity ever since - at lease 4X per day. I'm in incredible pain right after my hernia surgery, esp. when pushing to go poop. I'm panicked about bowel obstruction or any intestinal back-up esp. gas bloating... [ more ]
Thanks Scott - no not discussed it with him yet but seeing him soon - Good to hear attempt at repair not ruled out. Thanks again for getting back to me so swiftly Alec [ more ]
Yes, an inguinal hernia should be able to be repaired after J-pouch surgery. Have you talked to a surgeon yet? [ more ]
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J-Pouch ForumsGeneral Discussion
hello. Same age as you are here. When i got my two step surgery, i was 19. after my first surgery with the loop, i was bad- depressed hopeless and all that... now after almost 3 years, I’ve been feeling a lot better. If you don’t consider me being at the hospital for emergency right now, i’ve never had to come running to the hospital for constipation or anything. i had a lot of problems too of course but right now all i remember is the good memories because i’m alive and well. give yourself... [ more ]
Well I am way past that time. I just do whatever seem right. [ more ]
Yeah I remember now. We talked about you taking things easy and shortening workout times, Did you do so??? [ more ]
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J-Pouch ForumsGeneral Discussion
Thanks for that further information. I was on remicade but the side effects were too strong. Kept getting the flu and felt weak. [ more ]
I am not sure what you mean by “normal speed.” That said, let me tell you of my experience. After 15-20 years with my j-pouch and only occasional bouts of pouchitis, I developed what I would have sworn was signs of bowel obstruction or an inflamed gallbladder: serious crampy abdominal pain after eating. It did not. Seem to matter what I was eating; even yogurt caused this pain. Turns out I had chronic pouchitis. Antibiotics worked, but I could not get off of them. That was when my GI... [ more ]
Your welcome [ more ]
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J-Pouch ForumsHelp! Need advice now!
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Um, yes, surgical clips are left in place. Typically, they are often vascular clips and may not be inside the j-pouch. However, the body is an amazing thing. When it perceives something as a foreign body it will work to expel it, even if it takes years. It happens with sutures, orthopedic hardware, vascular grafts, etc.. Also, if you had a polyp removed a clip may have been put in to stop bleeding. These typically slough off in a few weeks. Hopefully, this clip was the source of your... [ more ]
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J-Pouch ForumsPouchitis
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I am now feeling constipated and nauseous again, though I haven't vomited. I called my colorectal surgeon's yesterday (they aren't the ones who performed the actual procedure though). They had me come in and took a look inside in the office and he said the pouch looks fine, and I should see a GI to maybe have my stomach looked at. He mentioned that I could have gastritis? I'm starting to get worried, not sure what is going on here. [ more ]
This could be great news, especially if you can avoid feeling bitter about 14 years of discomfort. Since the ER seems to know more about pouchitis than your surgeon, it might be time to find a good gastroenterologist. Hopefully your pouchitis stays cleared up after a 10-14 day course of antibiotics. The probiotics most likely to help keep pouchitis away (if used in adequate doses) are Visbiome and VSL #3, but they are very expensive. Some insurance companies cover the prescription-strength... [ more ]
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J-Pouch ForumsGeneral Discussion
Just reviving this thread with a summary article about using TAMIS for j-pouches with problems: https://academic.oup.com/ecco-...ement_1/S066/5705619 It's from the Netherlands. [ more ]
Solomon, the issue with adhesions isn't about forming new ones, it's about doing the surgery without being able to see them, and cut them safely. The pouch can potentially have many adhesions to whatever is next to it. [ more ]
7-9 Jpouch ops, I believe he meant 7-9 J pouch removals. He has done it. With a laparascopic approach (transanal or not) wouldn't the adhesions be somewhat less? I'm hoping it won't become an issue for me in future, but I really feel strongly that my QoL with a jpouch is and will be much lower than with an ileostomy. I also don't want to carry a defunctioned jpouch for many decades. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Sorry to hear that honey, glad you are better [ more ]
I had four abdominal surgeries prior to my first twisted small bowel blockage, just too much scar tissue [ more ]
How did you get a twisted blockage years ago??? Did you exercise intensely??? [ more ]
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J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsGeneral Discussion
like Jan stated, all pouches present with some inflammation on pathology. My past GI and jpouch guru always stated he does not treat that type of inflammation as all pouches have it to some degree. He only treats if he sees something visually himself or if the patient is exhibiting symptoms.. [ more ]
Gee, I don’t know if your surgeon is expressing wishful thinking or his patients are just luckier than typical. Either way, normal function in the early months can be very frustrating. Most people have gradually improving function over the first 6 months, with some noticeable improvement around 2-3 months. I personally experienced gradual improvement for a good 1-2 years post op. As an example, here is a link about typical post op j-pouch living. [ more ]
Thanks Lauren and Jan. Jan - you’re probably right...however I feel like I’ve gotten a different message from my surgeon. He’s very experienced creating J Pouches and has expressed that things should be better than they currently are. For now I’ll focus on diet and will work on that tincture! Probably not my strongest trait 😉 [ more ]
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J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsGeneral Discussion
It might be pure coincidence but I too have been having intermittent dizzy spells over the last year, which are becoming increasingly debilitating. They seem to follow an episode of disturbed pouch activity. Therefore I have assumed they might be linked to dehydration but I drink lots if water and herbal teas. I guess it might be electrolytes so will look into. Any other thoughts appreciated? [ more ]
Jan, She did the movements to put the otholites back in (lean back, sudden turn to the left, wait, sudden turn to the right etc...) and told me that if it was the otholites then they should be back where they belong...better this morning...no dizzies last night...not sure if it is the adjustments of the otholites but at least for now I am feeling better...(also am using ear drops while I am at it...) Sharon [ more ]
Sounds scary! Not sure why issues with your cervical spine would be an issue, unless it was because it is preventing you from moving your head in ways that keep those otoliths in suspension. Jan [ more ]
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J-Pouch ForumsHelp! Need advice now!
I think this skit is that you are referring to (profanity warning to the PG-13 people on the board): https://m.youtube.com/watch?v=mbHJ0KNYEoA There is another connection of Keith Richards to this board and this discussion. Nicky Hopkins, a great studio pianist and keyboardist of the 1960s, was the keyboardist on some of The Rolling Stones greatest hits of the 1960s and 1970s. Richards and the other Stones wanted him to be a permanent member of the band, but because of Crohn's Disease he... [ more ]
You are welcome! Hope everything gets better for you Thank-you for offering to stay in touch, I love it when people do that [ more ]
Hi Lauren and CT Thanks again for sharing your perspectives. I'm only on Remicade after talking with my doctor and getting a 2nd opinion too. My Dr. didn't say anything about restrictions with alcohol but since a social drinker too, it's been pretty easy to stop and see if that helps too. Love the Keith Richard's liver comment and agree! ... Robin William's did a good skit about him once if you haven't seen it. I'll stay in touch as my treatment progress and wish you both good health too. [ more ]
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J-Pouch ForumsGeneral Discussion
Thanks for your reply!!! I’m so happy you were able to get the surgery. I will keep you posted if/when I get the TT! [ more ]
I had a "scar revision" that was basically a tummy tuck about a year after my take down. Insurance paid because it was disfigurement from the surgery and wound infection that didn't heal correctly. There were no complications or problems. It didn't affect my pouch function at all. I even got pregnant and had a baby after it. Only thing is I had to have a C-section. They fixed a hernia created by pregnancy separating the muscles, during it. Lasting issue from the procedure is how loud every... [ more ]
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J-Pouch ForumsGeneral Discussion
Oh your kids have the same deficiency too?!?! I am sorry to hear that. I am glad you guys are doing good though! [ more ]
Oh, it has been way more than 2 years. Deficiency is associated with IBD, and also with age. Everyone in our household has a vitamin D deficiency. We all also have UC. My primary point is that there is no generalized solution. We are all individuals and should be treated as such. Jan [ more ]
5,000IU twice a day for 2 years??? Wow! I never heard of that much before for maintenance! I am glad you are doing better though!!! Thank-you for sharing that, I never knew some people needed that much. Do you know where your low vitamin D came from in the past? My pediatric nurse at the time said its common in people with diseases. [ more ]
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J-Pouch ForumsPouchitis
Does gas eventually come out (and provide some relief when it does)? Early pouchitis can behave in a variety of ways, so it’s hard to know for sure. I certainly get a feeling of pressure when I have untreated pouchitis, but I also usually get leakage and increased frequency, too. [ more ]
How much water are you drinking??? Are you drinking throughout the day??? [ more ]
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J-Pouch ForumsGeneral Discussion
Thanks Jan! I am feeling better, but plan on making an appointment. [ more ]
With your history of a fistula and your current symptoms, and especially with the improvement with the Cipro, my primary concern is that you have developed an abscess and/or a new sinus tract. You may have also developed a stricture at the pouch inlet, which would be beyond the reach of your dilator. Hopefully you already have contacted your GI to look into this. If you develop chills, fever, or escalating pain, call for an urgent appointment. Good luck! Jan [ more ]
Thank GOD!!! Maybe its cuffitis without bleeding? I would suggest seeing your gastro ASAP. In the mean time, I would definitely suggest drinking more water for sure. [ more ]
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J-Pouch ForumsPouchitis
@CTBarrister I understand that the Remistart program has been durable and extremely beneficial for you, and I hope it stays that way. I happily use the manufacturer’s “coupons” for several prescription medications in the same way, though not (yet) to the tune of tens of thousands of dollars. My point is simply that the drug company will maintain the program only as long as (and in a way that) they consider it net beneficial to them, and a variety of factors could change the current situation... [ more ]
Scott, I am not sure exactly what you are implying but I have been on the Remistart program for 5 years. At the very beginning of the 5 years they sent me a Remistart card that looks very much like a Master Card. I then turned it over to my doctor. I never actually used that credit card for anything and as far as I know, all that it "purchases" is Remicade infusion debt. I believe I may have gotten a renewal card around 2 years ago. I again turned it over to the billing manager of my GI... [ more ]
@CTBarrister Hopefully the Remistart program will continue for you as it has. The name alone suggests that they are hoping to extract more money once enough people are started on Remicade and reluctant to stop. They may not actually do that, of course. [ more ]
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J-Pouch ForumsOstomy & Skin
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Glad to hear it! Me too I am just focusing on the things I can change. [ more ]
Do you mean my thread being old ? [ more ]
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J-Pouch ForumsGeneral Discussion
So happy you are at peace [ more ]
Hello everyone! Been awhile since I posted anything. It's now 9 months since my take-down procedure and I'm doing better! The anal pain that I had for so long has gradually gotten better. A regiment of 2 loperamide a day (breakfast and dinner) has slowed bowel activity and, I believe, assisted in the absorption of irritants minimizing anal pain that has been so uncomfortable. And a gradual increase in the size of the j-pouch has provided more time between bowel activity...though I still have... [ more ]
Yeah and one big family lol. [ more ]
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J-Pouch ForumsGeneral Discussion
Forgot to mention, "use the bathroom when you need too as well, do not hold for long periods of time if you can help it." [ more ]
My surgeon also recommended drinking fluids about 1/2 to an hour before a meal and 1/2 hour after and drinking very little with meals. I drink throughout the day and get plenty of fluids outside of meal times. [ more ]
I would add not overdoing it with bowel slowing meds like loperamide during day. During meals and about one hour afterwards I would only drink little, because otherwise you thin down your digestive juices worsening digestion. Some fibres like long, undigestible ones from asparagus or others like corn husk were told me to avoid them after my surgery, when I had a stoma. They can cause blockages. On the other side psyllium husk or other vegetable fibre may be beneficial in both directions... [ more ]
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J-Pouch ForumsGeneral Discussion
Dr. Shane Mcnevin in Spokane Wa is wonderful. [ more ]
Makes sense. If you are unable to empty and are resorting to using a catheter, this may be a structural issue. I would enquire about some advanced imaging, such as defagraphy, to see if you have a pouch prolapse or collapse when you bear down. This defect would not be evident during a scope. That is something that is a surgical issue. Your GI can order this. The Portland area should have some qualified surgeons. I know we have some members up that way. You might want to do a search for posts... [ more ]
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J-Pouch ForumsGeneral Discussion
Yeah, definitely. I have been making sure to use those as well [ more ]
Wipes too [ more ]
I will try that definitely [ more ]
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J-Pouch ForumsHelp! Need advice now!
sorry Anais to hear that, my contractions started a year after the first j pouch surgery the nortriptyline does work but I found out after over taking it it will completely stop working, my contractions started back up on Saturday and have been suffering since i stopped taking the nortriptyline for about 30 hours and i started taking it again and my contractions are gone i would try this medication it helped me a lot just make sure he takes as directed, because i had a small contraction i... [ more ]
I am sorry that did not work honey, I would reach out to the gastro/surgeon at this point. [ more ]
My son started Cymbalta but it did not help with the painful contractions. He is been suffering for almost a year, right after connection surgery. Contractions are constant. Do you think the other one you are taking might be better. Please let us know. Thanks! [ more ]
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J-Pouch ForumsGeneral Discussion
I sent it to your person email. It did not go through? [ more ]
no email received. [ more ]
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J-Pouch ForumsHelp! Need advice now!
I am sorry the catheters are not working Tracey! I hope you do not need a bag again but if you do, I am sure you will be resilient with your ostomy if you need one Have you tried that step stool??? Or enemas??? [ more ]
I'm sorry to hear that you have this problem, as well! I'm back in PT again, but it's not helping, so I'm looking at other options like injections, etc. with a referral to GYN. My pouch doesn't like the catheter at all... Frustrating is putting it mildly, for sure! Stay well!! [ more ]
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J-Pouch ForumsGeneral Discussion
My understanding is that a confirmed second appointment does not mean a reserved dose for you, as Scott pointed out. Initially, many providers were doing that, but it just gets in the way of the roll out. States and local authorities are getting better at coordinated ordering of the vaccine. The confirmed second appointment simply saves your place in the appointment system. When Texas was freezing we had appointments cancelled in California because of delivery delays. Another thing to keep... [ more ]
Just got my second dose of Pfizer vaccine! I’ll see how it goes from here. [ more ]
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J-Pouch ForumsGeneral Discussion
JordySimo, late reply one year later! I was searching for Covid vaccine posts and found this one again. A good way to remember to drink water is to drink a full glass every time you finish peeing or pooping. You're in the bathroom already so drink a glass before leaving the bathroom. Think of it as replenishing your fluids after emptying your bladder or pouch. I also keep a large (32 ounces) bottle of water on my desk or wherever I'm working and aim to finish two bottles during the day. [ more ]
@Winterberry , I’ll openly admit I’m guilty for not drinking anywhere near enough water, I tell myself every day to drink loads but I just don’t seem to... oops. I don’t have a healthy lifestyle either which is the lazy side of me I’m trying to change. @LIGuy11 I mentioned to my employer that I am possibly in the high risk category due to my previous surgeries and they told me to go home and work from home for the foreseeable as they have a right to protect their staff (I work in a hospital... [ more ]
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J-Pouch ForumsGeneral Discussion
Fred, Not doing the carnivore, but I wager I've eaten as much red meat as any j-poucher except, I guess, the Neanderthals. Had my pouch since 1986 when I was 21 and I venture to guess that I eat some form of cow 2-3x/week. Further, I drink alcohol regularly, enjoy hot sauce and snack on nuts, cheese and most anything else. Guess some folks will judge me, but we're all wired differently and what some want, others won't and what works for some, will not work for others. Hang in there. If you... [ more ]
I eat mostly any meat. But I also eat carbs for the calories. Little to no veggies or fruit. I have started taking a powder in water to get some of the vitamins etc you would get from veggies/fruit. I average 4-6 bowel movements a day. Hang in there Fredz. I don't envy you doing the 3 step. I managed to get in good shape before my surgery and got it done in two. [ more ]
Ok, take care. [ more ]
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J-Pouch ForumsGeneral Discussion
Was finally able to schedule my Covid vaccine dose 1 at Walgreens Saturday March 20. Does anyone know if Walgreens gives you a choice of Pfizer or Moderna or do you have to take whatever you can get? Was able to schedule both doses in one shot on their website but they don't let you choose the vaccine. My second dose is Saturday April 17. I am assuming that because both doses were booked in one shot that they will keep my second dose stored in their cooler until April 17. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Been a while since we talked, hope you are doing great and hopefully you will pick out a name soon lol. [ more ]
Yea I would say that the more time that passes it’s just going to get better, after my takedown I was really gassy as well and feeling the contractions rolling through my gut over and over and thinking here we go again to the restroom just for it to be gas. I’m like 2 yrs out now and I still hold my breath if I decide to try and fart standing up hoping it’s dry and not damp after lol. But what’s worked for me is if I’m gassy I lay on my side or stomach and I’m usually able to pass the gas... [ more ]
Nice to meet you Gom!! I am a vegetarian too! [ more ]
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J-Pouch ForumsMen's Health
If takedown was that long ago, you definitely need to contact your gastro/ colon surgeon ASAP!!!! Hope you feel better dear! Keep me updated! Are you taking any NSAIDS???? That can cause bleeding too. [ more ]
1 year, 3 months. I did not work out before 3 months afterwards, if you mean that. [ more ]
When was your takedown??? [ more ]
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J-Pouch ForumsGeneral Discussion
I would like to point out that it is not exercise per se that prevents blood clots, but simply movement does. Or, more correctly, being sedentary is what promotes clots. So it is important to get up and simply move around every hour or so. This is particularly important when flying on long flights or driving long distances, when we tend to sit longer than usual. I did not want people to think that they need to perform any particular “exercise” to prevent blood clots. A daily walk is great as... [ more ]
Happy to hear that! And I will! [ more ]
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J-Pouch ForumsHelp! Need advice now!
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Founder, Creative Director & Web Master
William J. Johnson
bjohnson@j-pouch.org
Bill Johnson founded the J-Pouch Group in 1997.
After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.
Forum moderator and advisor
Jan Dollar R.N.
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396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440 800-343-3637
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