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J-Pouch ForumsOstomy & Skin
trying to figure out the whole changing the bag process
B Bethie
Randi M Bethie-Colleen is correct that the beginning is frustrating and a bit of trial and error. A good seal is very important in protecting the skin. I used the adapt rings and also found that the stoma would get a bit swallowed by them but it never blocked the output so if your daughter isn't having problems w output I wouldn't focus on that. The rings are designed to help absorb moisture which makes them puff up. I suggest you stretch the ring to the exact size of her stoma and place it on the... [ more ]
Colleen2001 Hi Bethie, Learning the process and technique of appliance changes can be confusing and frustrating. It sounds as if she has a bit of skin irritation, most likely due to output getting under the wafer. Does she have an end ileostomy or a loop? I find the end ileo to be much more manageable and easier to fit because it generally sticks out a bit further than the loop. First, you really need to make sure you are measuring the stoma before putting on a new wafer. I don't know how long it's been... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
period coming out tush
D dawn58
Jan Dollar I really have no idea if things flow both ways or not. I would think that it was possible, unless one end was narrower than the other. Typically, it flows from high pressure to low pressure. Hormone replacement to reduce or stop your periods makes sense. I've never had a fistula, so I don't have any personal experience to share. Jan [ more ]
anotherchance Dawn58, I can't say I've had experience with what you're going through, however, I have total and complete faith in Dr. Remzi and CC. Hang in there and know we're cheering you on. My prayers are with you. Stay STRONG and keep us posted on your progress! [ more ]
dawn58 ok, I get that there is still a connection, but do these connections usually flow only one way? Before I only had mucous from my intestines, and now I have blood from my vagina. Has anyone had both at the same time or with the same tract. I know I don't want either but I would rather have the blood out my tush during my period. Thinking I could go on the pill and stop the blood flow. I also think that the constant mucous is not good for healing. What do you think, or any experiences? [ more ]
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J-Pouch ForumsGeneral Discussion
Tingly hands and feet?
EthumbEthumb
Connie Keflex is another one has always worked well for my son. [ more ]
kathy smith Both can cause neuropathy according to this article . If one starts noticing tingling in the extremities while on Cipro, it should be discontinued. kathy [ more ]
vanessavy Flagly causes Neuropathy, not cipro. My friend got it just after 2 months of use and she is in pure hell right now. IT can last forever or years so stick to cipro in case. You don't want it to progress, trust me. [ more ]
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J-Pouch ForumsGeneral Discussion
Probiotics
Dixie from SaskatchewanDixie from Saskatchewan
vanessavy Actually no I said the complete opposite about the probiotic. Irrigation is to clean out the pouch to prevent pouchitis. [ more ]
Dixie from Saskatchewan Thanks everyone for your replies. A colorectal surgeon I recently went to suggested probiotics to help with all the excess mucous coming out of my stoma. I have to change my stoma cover once an hour because of all the wetness. Vanessa - you said you had more wetness when you used probiotics (Align) unless you irrigated at night - that is what I am trying to avoid - more wetness. I was told by my surgeon that irrigation wasn't really necessary all the time, just when I felt the need to... [ more ]
Rocket Dixie I would buy the probiotics as soon as you can based on what I have seen on this forum. I have never used it myself but plan to once my Pouchitis clears up. Last night my GI told me I had a severe case of Pouchitis and he put me on XIFAXAN for 9 days. I had mentioned Probiotics and how it has helped so many people but he said that all the testing has never been completed. I gather he was not a big supporter of this. I also asked him for a scrpt for VSL#3 but he refused. Too bad, because... [ more ]
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J-Pouch ForumsGeneral Discussion
diet and supplements
kittykatkittykat
Former Member I have never been on diets and I consider it is not effective like taking somes pills for losing weight. The best way is to have a well-balanced food, do sport, drink lots of water and get a good sleep. As for supplements I take the vitamins E and Ca. E is for your skin and hair and CA is for your bones. Good Luck! ____________________________ sexy lovers [ more ]
Rebe0505 sounds to me like you have cleaned up your act very well and have a pretty good regiment for a healthy lifestyle from a food standpoint sounds like you getting a cd diagnosis has actually been a god sent...you feel better and you will be better in general.. good job in cleaning up your act... rebe [ more ]
Rocket My GI put me on a Low Residue/Low Fiber Diet. Do I follow it all? No, not really. I have a sweet tooth too. Salt, is something I also use a lot of. Foods that I have to avoide are raw vegtables and raw fruit except watermelon. Bananas I cannot eat either because then my gut feels like I swallowed a cannon ball. I also take Potassium pills because of my blood test show I am very low on that and Electrolytes. I drink Powerade Zero which has zero calories and has Potassium and Electrolytes. I... [ more ]
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J-Pouch ForumsHelp! Need advice now!
can anyone interpret for me? waiting for the doc, but am anxious
I itsnotsherry
Jan Dollar Bummer! You are definitely between a rock and a hard place, but oly you can decide what risks you are willing to assume. We all could potentially face the same dilema, since there is no such thing as a 100% certain UC diagnosis. We all just hope for he best. Good luck deciding. At leadt we are here when you need to vent... Jan [ more ]
itsnotsherry Yes. They changed my diagnosis about 10 months ago. I had what we all thought was UC for 23 years. I just wish I could go to sleep and wake up however it is meant to be...no decision on my part..I know, a fantasy world! Thanks for helping me, and everyone else on this site. You are very special, and I appreciate all you do! [ more ]
Jan Dollar Cimzia? OK, so you must have Crohn's. Pouch revisions, redos, whatever, would be contraindicated, regardless of how many surgeons you see. Cimzia is not used for UC or pouchitis. I understand your dilema now. Basically, your choice is to deal with your dysfunctional pouch with medical intervention or opt for pouch removal and ileostomy. Not much of a choice. You just have to decide which way the balance is tipped for you. Jan [ more ]
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J-Pouch ForumsHelp! Need advice now!
What Next?
C crobbins
crobbins Jan, Thanks for the quick response. I was totally unaware of C. difficile infection. I just had the test done for it and luckily a friend who happens to be a surgeon told me to come into his office today. He recommended metamusil,yogurt, and said the probiotics might help but he wasnt sure how long a process they might be. He says that he will get the test results within the day so I am incredibly relieved that things are moving so fast. I think it is caring people like you that make this... [ more ]
Jan Dollar Oh my gosh! This is not good at all! Any doctor who is not a county bumpkin, should be well aware of antibiotic associated diarrhea (C. difficile infection). The CDC has sent numerous alerts to all medical providers over the past ten years or so. You need to be tested for C. difficile and probably a course of Flagyl or even vancomycin for this. I am not calling your doctor stupid, as I like to give everyone the benefit of the doubt, but.... It has been years since they thought you could not... [ more ]
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J-Pouch ForumsHelp! Need advice now!
J-pouch Surgery 2009, now have UC diagnosis, HELP
FM Former Member
jeane One small ulcer at anastomosis site but pouchitis in distal pouch above anastomosis site and cuffitis that is really doing me in lately. I am trying to wean off antibiotics as I have been on them since takedown and the rectal canasa does not seem to be doing anything. Every time I try to wean from antibiotics my bothersome symptoms return. The jpouch surgery has not been a great experience for me and yes my pouch is also very active at night and I rarely get more than 4 hours of sleep... [ more ]
Former Member My pouch seems to be just as active at night too. Don't sleep much and I'm sure that contributes to the fatigue. [ more ]
Former Member None in the pouch just at the anastomosis site. Are you on meds? and Do you adhere to certain diet since your surgery? [ more ]
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J-Pouch ForumsHelp! Need advice now!
Tear in J-Pouch & Fistula's
M mehoffma
beckysmom Sorry to hear what you are going through. My daughter didn't have any fistulas, but after surgery to revise her j pouch, she had an infection at the incision site(that was left open to heal from inside out) and that required a wound vac, but only for 10 days. Then she developed a hematoma presacral abscess and that was also infected but they put a drain in, only for 5 days, it was caught early. Can't you get a appointment sooner that 7/12? Seems the draining might be an issue?? Hope you get... [ more ]
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J-Pouch ForumsK-Pouch Korner
Kock Pouch cramps!!!
grandma64grandma64
JaniceM I am not sure on your surgeon's schedule - I'd check with them. And, it depends on if you take the stretching more slowly. It's 6 - 12 wks or more. [ more ]
grandma64 Thanks for replying Janice! Is there a estimated time for the pouch to be fully matured? Just wondering? grandma64 [ more ]
JaniceM The pouch stretching is the hardest part of the kp surgery. It will continue until pouch is mature. Even a mature pouch can get cramps but they will not last as long as in the early weeks. I still have severe cramps if I've waited too long - but once I interbate, it's all good. [ more ]
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J-Pouch ForumsGeneral Discussion
J pouch or not?
FM Former Member
kathy smith Hi Laurie! How the heck are you? What's going on on your side of the world? kathy [ more ]
Laurie49 Hi Kathy! It's been forever. I hope all is well with you and yours. I'm SO grateful that you posted that to Fred Bird/Dog Day (I've always referred to him as 'name de jour"). I just started reading a bit here and I heard that familiar oh-I-am-such-a-victim tone in Dog Day and wasn't sure if anyone else had noticed (I should have known you guys would be right on it ). You're correct in that the only problems he has complained about, ad nauseum, on every site imaginable are that he could only... [ more ]
kathy smith Fredbird/Dog Day - you've been very refined this time around on the site and it's been much appreciated by all of us who've known you for over a decade. It appears that your more recent posts are starting in again with the negatively vague 'bad pouch' tales. You have never mentioned anything other than your lack of more than 7 hours of sleep per night (which is actually adequate for many people) and your lactose intolerance which you had before you had j-pouch surgery. Your comments to... [ more ]
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J-Pouch ForumsGeneral Discussion
Takedown tomorrow!!!
R Ryeliz13
Lizzie Knott So you are having your takedown tomorrow? I would recommend having a bed pad, usually the pouch begins to work while you are asleep. Go slow on drinking and eating, you do not want to get a blockage. Anti-Monkey butt powder is great for a sore bottom. Good luck! [ more ]
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J-Pouch ForumsGeneral Discussion
what should i be doing ?
FM Former Member
Lizzie Knott I have been told every two years after a couple of yearly checkups. [ more ]
CeeeeCeeee I, too, chose a different surgeon for takedown than for the original proctocolectomy. Surgeon #1 believes in annual scopes in his office. If nothing seems suspicious he does not take biopsies. If he wanted to do biopsies, a separate appointment would be scheduled for that procedure as he doesn't take biopsies in his office. Surgeon #2, who did my takedown, saw me every year for scopes. Started off in his office. Then, I chose to have this procedure in the GI lab at the hospital. He took... [ more ]
mgmt10 This seems to vary from doctor to doctor but mine (my surgeon) told me he would like to scope my pouch every 2 years. My sister also has a j pouch and she goes for a scope every 5 years. [ more ]
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J-Pouch ForumsPouchitis
Bowel Obstruction?
R Rocket
Rocket Marianne, There are other name brands out there, especially like the health food stores. I have never tried them myself but I am going to ask my doctor this evening when I see him. I actually found some juice at my grocery store that includes Probiotics without milk or soy products which I cannot have. A court cost me $3.99. I don't know if anyone has tried this type of treatment or take this supplement in a juice form. Rocket [ more ]
mgmt10 When I had UC my GI doc brought up probiotics as a treatment plan but I was just too far gone at that point. Plus my insurance didn't cover the VSL 3 that he recommended. It's super expensive. [ more ]
Rocket Thanks Karbear. I was diagnosed with UC back in 1993 (gosh I can't believe its been that long) and I wish Probootic was something on the market back then. Perhaps I would not have to endure so much for all these years. I hope this is not something doctors do not share with their patients? Rocket [ more ]
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J-Pouch ForumsGeneral Discussion
Help me remember some post surgery stuff
C CLeLong
CLeLong Anyone else [ more ]
CeeeeCeeee In December of 2012 I had a complete hysterectomy and the surgeon had to open me up and used the same scar line as my proctocolectomy scar. He stapled it shut, as well. Surprise!!!!! Very smooth, expedited recovery compared to the colon removal surgery. I still can't believe it was that easy on me. BTW....I'm almost 72 years old! Best wishes! [ more ]
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J-Pouch ForumsGeneral Discussion
Too chicken for a check up
MB Mountain Baker
Mattenheimer I was the same way. Scope lasted about 3 minutes. [ more ]
liz11 theresa- I would surely think that if you "demand" to your doctor that you want to be put under, then he will do that for you. Just be very clear in advance. You need to have scopes to catch anything in advance. The chances of them finding anything are probably pretty slim. So just go ahead, do it, and put it behind you! [ more ]
CeeeeCeeee After you do this one time you will wonder why you hesitated. For me, the only discomfort during the exam is minor and brief. It is caused when my doctor inserts air inside me to get a better view. Best wishes. [ more ]
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J-Pouch ForumsGeneral Discussion
Crohn's with J-pouch after UC
B BlmBlp
BlmBlp Thanks for the input, Karbear. I hope all goes well with your surgeon next week regarding the fistula. So far, I have not had a fistula. Take care. By the way, I like your blog. [ more ]
Karbear It looks like I may be falling in the same boat. I had my surgeries 2 years ago because of UC. Since then I have had abscesses, cuffitis, chronic pouchitis, and now a fistula with more abscesses. My diagnosis hasn't officially changed yet, but Crohn's is suspected. For cuffitis I was treated with hydrocoritisone suppositories that cleared it up pretty quickly with only a few flares since. Both the abscesses and chronic pouchitis were treated with antibiotics. I have been on long term Cipro... [ more ]
BlmBlp KangaRoe, I forgot to ask if yo were you on a trial of antibiotics once you were diagnosed with Crohn's before being switched to Pentasa? If so, how long was the trial. Thank you, [ more ]
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J-Pouch ForumsHelp! Need advice now!
what would you do?
I itsnotsherry
Jan Dollar I would be more worried about your low platelets. They are not critically low, but still waaaaay lower than normal. It is easy enough to rule out the UTI with the urine test. Do what is asked of you, but I don't see the need for an emergency MRI. Jan [ more ]
liz11 I vote with your husband. Better to be safe than sorry. AND you surely don't want to end up in the ER over the weekend, cause you don't get the "real" docs then. If you go now or tomorrow morning.. you will end up with good docs taking care of you and/or your regular docs will be reachable for sure. Hubby wins this one. Take care of yourself. [ more ]
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J-Pouch ForumsGeneral Discussion
good surgeon report
Lizzie KnottLizzie Knott
Lil Missy Hi Elizabeth, Im curious, Ive had multiple surgeries in the last 5 years and was wondering how did they determine scar tissue needed to be removed? Ive often wondered if Id run in to that problem myself since Ive had multiple surgeries. Thanks for any info. [ more ]
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J-Pouch ForumsK-Pouch Korner
Catheter
FM Former Member
vanessavy It's a 30 french that we use Companies are Marlen and the other is Medina The Medina is the one that was actually designed for the kpouch. There is another one on the market that I haven't used and it is very expensive, Weber & Judd. Some people make their own for 2 bucks with tubing from Ace hardware. You can get creative. [ more ]
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J-Pouch ForumsK-Pouch Korner
Fruits and Veggies with BCIR
vanessavyvanessavy
vanessavy My favorite is watermelon and cucumber. Makes water so smooth and tasty since I am a horrible water drinker. [ more ]
Subsky my friend posted a link on her facebook about those fruit infused water, looked pretty cool. Your's looked like they turned out great! I might try this once it heats up a bit...and throw an ounce of two of the good stuff in there with it [ more ]
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J-Pouch ForumsGeneral Discussion
Need encouragement from jpouchers
C chrfor
parag i was recovered in 1 month after take down. but u have to started with simple food, avoid spicy, milk/milk product and deep fried product. if u have increased bowel movement u can also go with natural fibre suppliment after concerned with ur GI. [ more ]
Twilight One thing that helped me after takedown was asking the surgeon for an antispasmotic. The gas pains and spasms would take my breath away and after they calmed down a bit I was able to go back to work around 3 1/2 weeks after surgery. [ more ]
Lizzie Knott I am so sorry that things are not progressing as you would like. I would recommend kegals and large pads for night time leaks. It does get better. We all heal and work at different rates. [ more ]
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J-Pouch ForumsHelp! Need advice now!
cramping post takedown
R run4life
run4life Thanks for the responses. I am feeling better after I finally passed some gas so hopefully that was the issue. Thanks!! [ more ]
liz11 yes you could have pouchitis immediately upon takedown. But your situation sounds more just like gas that needs to move through. Try moving around a lot, twisting, bending, walking. Use heating pads, hot baths, hot showers. See if you can get things moving. [ more ]
beucfree Gas sometimes feels like cramping. First couple of months I had several things happening to me that I couldn't explain. I remember having severe back pain that turned out to be gas. I would say give it some time and if cramping persists, call your surgeon. You can ask for anti-cramping meds. [ more ]
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J-Pouch ForumsGeneral Discussion
Fissure
D DaveInNorCal
DaveInNorCal Thanks Jan. [ more ]
Jan Dollar It might, but mostly if you also use a wet compress. You can get a sitz bath at any drug store that you fill with warm water and place in the toilet bowl. No tub necessary. Sitz baths are the first line treatment for fissures. Showers arejust not the same. Jan [ more ]
DaveInNorCal Jan, we don't have a bathtub. Assuming I'm taking care of the hygiene issues by showering, will sitting on a heating pad promote healing? [ more ]
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J-Pouch ForumsGeneral Discussion
emotional work week
Holly MHolly M
tammykathleen Holly, you continue to impress! ~Tammy [ more ]
CeeeeCeeee I am so impressed with you, Holly! To not bury your concern but share it with those "in charge" took courage. Your co-workers needed to have their eyes opened! Hang in there! Things will improve. Grab a few minutes of rest whenever you can until your stamina returns. Best wishes! [ more ]
Holly M had a much better day today at work. Had a good talk with the office manager and she promised things would change and they would have more consideration and empathy for me when I am really tired towards the end of the day or have alot of bathroom visits. I had a busy weekend with alot of family events and did really well. I am hoping things continue to improve every day. [ more ]
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J-Pouch ForumsGeneral Discussion
Driving after surgery
Kline84Kline84
suebear I drove myself home, a 2 hour drive after TD. I had only been on pain medication the day of surgery, 4 days later I was sprung from the hospital and was fine to drive. I also drove the day after being released from the first surgery, again another 2 hour drive and I was not on pain medication then either. Sue [ more ]
Kline84 Thanks for the replies. I wasn't sure how most people feel after takedown. My dr. Is ok with letting patients drive as long as they are off of the pain killers before they leave. He said he will probably release me on Friday ( surgery is Tuesday morning). I could break the trip up into segments and get hotels just wasn't sure if I would feel good enough to make it out of Denver traffic or drive at all for that matter. I'm thinking I might have to do some more searching for a driver! [ more ]
mgmt10 I wouldn't do it. I had a pretty smooth takedown and I know I wouldn't have been able to drive home six hours....not even half that. You really should try to make some kind of arrangement. Even if it's a car service. [ more ]
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J-Pouch ForumsPouchitis
Pouchitis Travel Advice
TheStomacTheStomac
TheStomac Thanks all for the responses. I have postponed the training and knuckled down on my diet. I am scheduling a visit with the GI about the time I finish this course of antibiotics. I have a feeling that the pouchitis is simmering in there. Mark [ more ]
CTBarrister Thanks for the input tammykathleen. I tolerated Prednisone well when I took it sporadically from 1972 to 1992, but it did make me get a Moon Face, increased my appetite (which has historically been better than good even without prednisone) and worsened my chronic insomnia. Those were the only issues I seemed to have with it. It seems like Entocort is not quite as harsh on the body as Prednisone. Stomac, it sounds like you need a longer course of antibiotics. You took them for only 7 days, I... [ more ]
tammykathleen In my experience, Entocort is nothing like prednisone. They are night and day. I was lucky and the Entocort worked wonders on me. I was on it for four years. I had non of the nasty side effects that I did on prednisone. It didn't cause me anxiety, joint aches, insomnia, weight gain, moon face-nada. I would never have believed I was on any sort of steroid. The cortico-part of it makes a world of difference. [ more ]
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J-Pouch ForumsGeneral Discussion
colorectal surgeon in Dallas Tx
FM Former Member
Arlene V My son's surgeon is Dr. Clifford Simmang. He has offices in Dallas and Grapevine. He was recommended by the surgeon my son consulted with at Mayo in Rochester. Surgery was 3 years ago and he is doing great. We love him!!!! [ more ]
beucfree I also had surgeries done by Dr. Jacobson at Baylor Dallas. He's got tons of experience. Please feel free to PM me if you have any questions about Dr. Jacobson. nocolon-2000, I just send you prinvate message. [ more ]
nocolon-2000 Anyone at North Texas Colon and Rectal at their Downtown Dallas, Baylor office. I had Dr. Robert Jacobson and Dr. Paitoon Tulanon. Both excellent. I am back to Dr. Jacobson now. Love the man! Dr. Philip Huber is also good. I saw him for a bit but returned to Dr. Jacobson. Huber is probably closer to you, but Jacobson is worth the drive! [ more ]
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J-Pouch ForumsGeneral Discussion
Period (woman question)
C chrfor
chrfor I agree with you guys. Not sure why they want to start it back up. I am in no hurry to get it. I will ask more questions when I talk to her next before I take the prescription. Thanks for the input. Christine [ more ]
Randi M Christine-I agree with Jan. if everything checks out ok why start it up? The periods I had after first surgery were more painful and crampier than normal. I haven't had since takedown but am going to assume they won't be fun. I wish I never got mine again. [ more ]
Jan Dollar Mine stopped for about 3 months after my surgery. I am not sure I would want medications to start it back up if everything was checking out OK otherwise. Basically, it just means that your body does not think you should be getting pregnant right now. But, if it worries you, I guess hormones to stimulate menses would be OK. But, for me, I didn't miss it, and since I was anemic, I could use the iron I would lose from my period. Jan [ more ]
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J-Pouch ForumsGeneral Discussion
Take Town 7/3 But why are night worse?
FM Former Member
mgmt10 I do tend to go more in the evening...I really don't go all day long. I go when I get up then not again until 3pm or so. Then it's about 3x from 5pm to bedtime....then once in the middle of the night. Thats my average day. When I had UC most of the trips to the bathroom were late afternoon/evening too. [ more ]
Former Member I figure if I go into this expecting the worst the if it happens I wont be so frustrated. Like if I look at it like, THIS WILL HAPPEN LIKE THIS it wont be so bad bc mentally ill be a little prepared lol [ more ]
kathy smith I rarely wake up at night. As with everything else, we're all different. Hopefully you'll have minimal night awakenings. kathy [ more ]
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J-Pouch ForumsGeneral Discussion
Thinking about ostomy
FM Former Member
liz11 An ostomy, in particular, if you get immediately diverted, can be a very fast way to get back your quality of life and to get off the drug train. Lots of people choose ostomies for the long term because they do not want to deal with continued pouchitis, ongoing medications which can damange other parts of your body, and endless doctor visits and tests. After it was deterimed that my jpouch failed due to functional issues, one of my doctors did mention continent ostomies, but I chose to get... [ more ]
kathy smith This site absolutely spreads awareness. There is a k-pouch forum and information here about BCIR. That may be the case but it is still contraindicated. Would you have statistics available that show that those with chronic pouchitis who revert to a continent ostomy are doing fine? That would help people make a more informed decision if those statistics are available. I can't imagine anyone wanting to die rather than having an ostomy. I can understand a person preferring not to have one but... [ more ]
nocolon-2000 I sooooo understand where you are coming from. I was where you are however many years ago (I'd have to search the site). I was in the bed, ready to go into the OR for a permanent ostomy. My surgeon came in and suggested giving probiotics a try in addition to the Crohn's medication I was already taking to see if it would clear the post-colectomy issues. I decided to give probiotics a try once the doctor promised that if I would give it a month and didn't feel like it worked, he would... [ more ]
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J-Pouch ForumsPouchitis
is it necessary to have yearly scopes
R Rebe0505
kathy smith I would get the scope locally and send the results to Dr. Shen for his opinion. That would cost way less and take way less time. If your symptoms start returning then you could make a decision about going to Cleveland at that time. kathy [ more ]
Jan Dollar If it were me, I'd ask Dr. Shen who he would recommend in southern California. I bet he knows several colleagues who trained st Cleveland and relocated near you. Unless you were planning on moving near Ohio eventually... Jan [ more ]
Rebe0505 heard from dr. shen on his return and he said yes i should be scoped year two for sure..my husband and i will decide how and when we will do it..husband leaning to seeing shen for it even with cost to travel..besides i could set up any other appointments at clinic i might have concerns about either for me or husband..we might have to go to wisconson in fall so maybe we could work something out with that... rebe [ more ]
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J-Pouch ForumsGeneral Discussion
sitz baths: for healing - or for comfort?
n/an/a
n/a So interesting, Jan. Thanks! I think I was associating fistula "healing" with "closing", thinking they were one and the same. Since they are apparently not the same thing, what does "healing" in terms of a fistula mean? [ more ]
Jan Dollar Actually, it can be beneficial for both comfort AND healing. Moist heat is commonly used as a healing aid in various parts of the body. Heat increases blood flow, which speeds up healing. Moist heat penetrates deeper than dry heat, even if the water does not reach the area of infection/inflammation. However, what is unique about a fistula is the type of problem it is. Since a fistula is lined with epithelial tissue, the body does not necessarily view it as something that needs healing, but... [ more ]
DaveInNorCal Will sitting on a heating pad promote healing of a fissure? [ more ]
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J-Pouch ForumsHelp! Need advice now!
Incontinence following a fistulotomy
K kilodalton
Jan Dollar This close to the procedure, I would assume that your symptoms are related to traumatized nerves. If after a few more weeks your sensation is not returning, you may want to have some tests. But even then, it may be too soon. It can take a very long time for nerves to repair themselves, and it depends on the degree of damage. In most cases, it is related to swelling from the procedure, which is minor damage, and resolves more quickly. More severe damage can take up to a year to regenerate. [ more ]
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J-Pouch ForumsGeneral Discussion
Perianal scouring
IE Irish Eyes 2
n/a My CR surgeon and her assistant recommended to first pat some convatec stomahesive protective powder over the entire area (use a cotton ball), and then apply protective cream on top of that (they recommended calmoseptine, but use whatever's your favorite). The powder is healing, the cream is both healing and protective. Keep it on all day: after every BM, before bed, etc. A bidet or squirt bottle rather than TP helps immensely, too. Like you, I had irritation and cracks, but I've been... [ more ]
nocolon-2000 My skins has been much better and very few fissures since I started taking a probiotic. [ more ]
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J-Pouch ForumsGeneral Discussion
New j pouch...struggling
RM Randi M
nocolon-2000 It gets better. It gets better. It gets better! Part of what you are feeling as "full" is probably irritation of straining and/or healing. As far as skin irritation/butt burn. Get in the shower with a nice hot spray (hose, if possible) and spray directly into gently spread checks. Gently pat dry. Apply ointment (Calmoseptine is awesome!). No gas pains??!! I am so jealous! I had horrible gas pains and had to do the Lamaze breathing while standing VERY still. It will get better. Really. In time. [ more ]
Irish Eyes 2 Hi there this is very normal but if I may, try not to strain so much as u will literaly exhaust the muscles down below, just let gravity do its job and this will assist you in passing the stool you see at the moment your body will try to pass the stool and gas at the same time the trick is to try to gauge which is which this will take some time but evetually you will be able to tell the difference. Heres is a technique that I figured out, try this lie on you back ok and bring your kness up... [ more ]
Holly M Hey there Randi: It will get better. The BB is bad and that is why I chose to get the bidet. It really helps alot. No wiping and it dries you. Very helpful.If you don't have a bidet try a squirt bottle then take a baby wipe and just dap at your tush so you don't irritate it further. Then put on some good butt cream, you may have to try a few before you find what works for you. For me I use Prep. H ointment. I had small accidents too before I could make it to the bathroom. To really empty my... [ more ]
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