Skip to main content

Topics

Sorted by last update

J-Pouch ForumsK-Pouch Korner
K pouch Stoma covers covered by Medicare
MJ0917 No joke but the best I've found to absorb mucus is the blue Scott Shop Towel rolls. They're found in the automotive section at Walmart. One towel could last me all day. Another thing that could help with mucus is Levbid. It's a pill you take every 12 hours, it stops bloating, gas, lessens mucus. Just a warning, it slows down motility too, so expect output to be thicker. [ more ]
Nicole12 I use a mepilex border lite bandage that is hypo allergenic and reusable for up to two weeks but I put a premium cosmetic cotton round before the bandage. It has saved me from spending all kinds of money and rashes.so my skin doesn't become iratated because of the mucus. I also apply Extra Protective Cream before the cotton round. The mepilex are expensive but if you protect and change your cotton round as needed you can reuse the mepilex for about two weeks. They are expensive but I spend... [ more ]
mlangbau I put this answer on another chain and it might come in handy here. I actually buy U by Kotex Security Ultra Thin Pads, Regular, Unscented, 44 Count. I cut them in half. They adhere to my underwear and cover the stoma. I have used these for years after trying others that weren't as gentle on my stoma site. As a male, I used to get some funny looks buying multiple packs at the grocery store...but Amazon has pretty much solved that difficulty!! It works out to about $5.50 every 2 1/2 weeks... [ more ]
See all 8 replies...
J-Pouch ForumsK-Pouch Korner
Re: Considering K-Pouch
bcirray Remember to stay hydrated with plenty of water. A good rule of thumb is 1/2 oz per body weight, ie 150 lbs = 75 oz of water/liquid Ray [ more ]
skn69 Todd, I am so sorry that you are suffering...you are going through the worst of it...ileus is a common side effect of abdominal surgery and general anesthetic...I had never had one until 2008 and then I learned the horrors of them... Once you get past that, the healing starts. It is not a hard a road as it may feel at the moment...the k pouch is very manageable once you start eating normally and can ingest either grape juice or prune juice & coffee...those are the fluids that keep your... [ more ]
Todd H Hi all, I am sorry i took so long to respond. I had my surgery as scheduled on 10/3 by Dr. Kiran. The surgery itself went well Dr. Kiran was able to do everything laproscopically both colon, rectum removal and K pouch creation in about 5 hours. However a few days later serious complications occurred. I developed an ileus. Which caused me extreme nausea and vomiting of bile. In fact they originally sent me home Oct. 10 but started vomiting as as i got home and had to be rushed back to the... [ more ]
See all 18 replies...
J-Pouch ForumsK-Pouch Korner
Have an ileorectal anastomosis or K pouch, have crohns colitis
skn69 So happy to hear it...congratulations! Sounds like the normal post op experience...exhausted, feel like the rug was pulled out from under you, trying to sit was a major accomplishment etc... The freedom from appliances is a wonderful feeling isn't it??? SO nice! Take it slow, be kind to your body...as I say, this is a very long road and a lifelong journey...not a sprint...so don't hurry the healing. Sharon ps...doing better...not good but better. [ more ]
jojohogan Hi Sharon, thx so much for thinking of me. Doing good 8 weeks over now. Still sore, Stoma site still not closed yet, but to go, frequency approx 8-10 daily but together usually but no pain ye ha. Had a complication in Hosp, obstruction, got sick with my own poo, didn't know a human can do such a thing but all good now. I found this op harder than the colectomy, I was wiped out, strength was gone from me, thought I went 20 rounds with Tyson. On right track, and would do it again. No Stoma, no... [ more ]
skn69 Hi Jojo, Just checking in to see how you are doing and how you are navigating your post op care...please check in and let us know. Sharon [ more ]
See all 21 replies...
J-Pouch ForumsK-Pouch Korner
After KPouch revision, another issue
LORI726 I totally agree with the above comments. Back in the day when my J pouch was working awesome, I had an ovary removed due to an ovarian cyst by a doctor who specialized in treating gynecological cancers. Thank God my cyst wasn't cancer, but he made a mess of my abdomen. He decided to do me a "favor" by removing existing scar tissue which just resulted in an intra-abdominal abscess, an intra-abdominal drain for 2 plus months, and possible damage to my J pouch. My colo-rectal surgeon was... [ more ]
skn69 Hi Kara, so sorry for the complications...you may need to have the midline scar opened up and exposed to heal outside-in or maybe start flushing it with betadine solution until it heals. My scars usually do the same sort of thing and those are the 2 go-to solutions Next, the cyst. I have a great general surgeon who does j pouches through laporoscopy and he is my only surgeon here. Does it all. Did my hernias, adhésions, galbladder and numerous pouch fixes...you do not have to use a k pouch... [ more ]
JLH Kara --i'm so sorry what has happened to you. Not fair at all. I don't have any experience with needing additional and major surgeries that were near the pouches, first the J, then the K. So my thoughts are not based on a similar experience. That said, I would opt for a local specialist in ovarian cyst surgery. Would also want my PCP to be included in the discussions, along with Dr. Dietz and the specialist. I'm glad you are transferring to university hospital and staying with Dr. Dietz. [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
Safe Abdominal Exercises after K-Pouch?
mh Thanks SKN69, I appreciate the thorough suggestions. Most helpful to hear from a fellow experiencer. Did I make up that word? he he [ more ]
skn69 Bhi MH When you say that you are healed what does that mean? 6 weeks or 6 months? I like to divide the healing process (and the re-education of your abs and body) into 3 stages: 3 months, 6 months and 1 year. For the 1st 3 months I have learned to do nothing strenuous other than walking...light housework and very easy yoga breathing. From 3 to 6 months I start working on the pilâtes ball and the yoga mats doing mostly isometric work of breathing, tightening and holding for 5-10 seconds at a... [ more ]
See all 2 replies...
J-Pouch ForumsK-Pouch Korner
Solution for leakage issue
Kara Fred Hi Jen- your so sweet to check up. All ok, everything same as before; just know (hope) my valve will be better and my Kpouch will function as it should. More mucous drainage than last time, and my staple incisions are a bit more tender, but I am moving along. How are you doing? Did you get all your to-go bags eventually sorted so you can go out with the myriad of supplies? �� Bummed Dr. Dietz will be gone and unsure if I will follow him to UH. He will do my follow up though at CC so glad... [ more ]
JenJen Kara, Just checking in and glad to see that, as of your last posting, you are healing well after your last repair! Hoping food gets more interesting soon and praying things continue to go well, Jen [ more ]
JLH Kara--my empathy that you have to go through this in the heat of summer, besides twice. Can understand why you don't have any appetite. I lost at least 15 pounds from my surgery and never gained it all back. Because I have to be so picky about my food here I'm not eating enough. I'll get back to my chocolate habit soon enough! Have you considered switching to UH? I would think Dr. Dietz would be pleased to have you continue to be his patient. It was really easy to get my records from... [ more ]
See all 10 replies...
J-Pouch ForumsK-Pouch Korner
AM patches/insurance
mlangbau I actually buy U by Kotex Security Ultra Thin Pads, Regular, Unscented, 44 Count. I cut them in half. They adhere to my underwear and cover the stoma. I have used these for years after trying others that weren't as gentle on my stoma site. As a male, I used to get some funny looks buying multiple packs at the grocery store...but Amazon has pretty much solved that difficulty!! [ more ]
BillV Hi Rosie. Ampatches are made by Austin Medical in New Hampshire. They are very helpful in recommending the most suitable patch and will send you free samples. Austin will bill Medicare for you, but you must pay them the full cost at the time of your order and then Medicare will reimburse its share directly to you. If you want Medicare to pay the supplier directly, you will need to order from a Medicare authorized supplier like Edgepark or Byram. In order for your Medicare supplement to pay... [ more ]
JudithS Hi Rosie, I think the company you are talking about is AMPatch. I use them and my insurance and Medicare pays except for the co-pay. Their Phone is #800-223-9310. I found them very helpful and they will send sample packets, they have catheters, syringes, etc. I very much like the stoma covers unless I am really, really, having a problem. Give them a try if you want & get some samples. Good Luck. JudithS. [ more ]
See all 6 replies...
J-Pouch ForumsK-Pouch Korner
Alergy to adhesive
Kara Fred Hi Jennifer- Your last post sounded 100% better and I am glad you feel better. I know I sure did when I first had my pouch. Sometimes it gets overwhelming with all the different supplies you can try- there is so much out there, but everybody is different. Mini-pads don't work for me (I wish they did as they are so inexpensive!). The nursing pads are the best for my output and comfort. All in all you will find your groove and everyday will get better. I am so shocked and disappointed to know... [ more ]
skn69 Hi JenJen, Such wonderful news! I remember my first zip-up pants post op when then removed the indwelling cath...they dropped to the floor (they were the ones that I arrived at the hospital in and I had lost close to 30lbs...)still it was nice to see my hairy legs in something other than skirts. (ps...if you keep a couple of those old fashioned diaper pins around, you can pin the leg bag to the inside of a wide skirt (do not pierce the bag itself of you will spring a leak!) Some answers to... [ more ]
JenJen I'm wearing pants! This is newsworthy because they are not one of the 4-5 elastic waist joggers, sweats, or athletic pants that have been in regular rotation the past 4 weeks. Furthermore, I wore them to the movies! I owe it in part to all of you for responding so quickly and so helpfully -- Thank you so much! You all wrote something that made me feel less alone, answered a question I had or a question I didn't know I had. I've heeded all of your advice and the past 24 hours have gone much... [ more ]
See all 12 replies...
J-Pouch ForumsK-Pouch Korner
anybody increase the size of the holes in the catheter?
Michael Jenson ❤️
NoColonStillRollin Hi Janet, Was wondering if you've found a catheter that works for you? I've had my BCIR for about a year now and I still can't find a catheter that does a good job without causing too much bleeding or damage. Also, just like you I had trouble keeping my output the right consistency until I found Werther's Sugar Free Caramel Chews. 1-2 usually doe stye job and keeps things quite loose. The whole grape/prune juice trick was making me too nauseous! Anyways, hope this helps. Xx Avery [ more ]
skn69 Janet, What I meant about peanut butter (or almond or cachew) is that I eat it for any meal and replace just about any protien with it (for me it is both a fat due to the high calorie count and a protein as well as a sweet treat...it covers all bases with me. I have found 2 not-so-kosher tricks that my doctor agrees with (and laughted his head off when he heard them)...I use Alli (sp?) the fat reducing med (OTC) that separates a part of the fat in your food and isolates it so that it isn't... [ more ]
See all 14 replies...
J-Pouch ForumsK-Pouch Korner
Bleeding ulcer in K-pouch
NoColonStillRollin ❤️
NoColonStillRollin Hi Art Mom! I'm just now seeing your reply above and was blown away by how many things your daughter and I have in common. I saw you had mentioned your daughter is planning to move to LA. I actually live in LA myself and just recently made the move out here last year. Has she made the move yet? How is she doing? I actually use to be seen by the team at Cleveland Clinic as well but it was before I moved to LA when I still had my jpouch. I'm now seeing a great team at Cedars Sinai here and... [ more ]
Art Mom Avery, I hope you are doing well and have a knowledgeable doctor you can go to when needed. This last hospital stay illuminated our need to stay in touch with Cleveland rather than trust the experience of our team here in Michigan. Daughter has not been in hospital since, though she has times of feeling quite poorly. She does not review these forum or use site. I wish she would. She is finishing her BA degree this term and she doesn't like to dwell on her health. She is planning on moving to... [ more ]
See all 13 replies...
J-Pouch ForumsK-Pouch Korner
Input on leaking issues
Kara Fred Thanks so much - I met with Dr. Kiran before he left Clinic. I really liked him so it's good to hear how happy patients are with him. [ more ]
MJ0917 I used to buy Tegaderm to contain mucus but that was getting way too expensive. So I went to Walmart and found this Mirasorb gauze sponges made by Johnson & Johnson. This along with Nexcare waterproof first aid tape I found more palatable than spending $30 per box on Tegaderm. The sponges are huge that you could cut them into 4 smaller pieces. One small piece can last me 4-6hrs till it's fully saturated. I like the Nexcare first aid tape because it's flexible, hasn't peeled off once, and... [ more ]
JLH randers how did you valve get injured? is injured mean the same thing as slipped valve? i've just seen dr. kiran at columbia for my routine maintenance and am very pleased with him. j [ more ]
See all 10 replies...
J-Pouch ForumsK-Pouch Korner
Possible k pouch
Randers.USA Had J Pouch Initially, was always a problem...had it removed...could not live way was/am used to with the ileo, went for K pouch surgery...it was done and I loved it so much better than a j pouch, imo. It is a major operation, you have to adjust and take care of it, but if all goes well, in time you will be happy you had it..then again, many people love the j pouch and the standard ileostomy...for me personally, a well functioning, well built k pouch was a great option. Just try and do a lot... [ more ]
skn69 Hi Ashley, I have had my k pouch for 36+yrs...it has had excellent years, some speed bumps due to other health problems, a few mechanical difficulties due to my own personal stupidity (always, I repeat, always use lube!) and a couple of age related issues. But I am a special case. That said, I Have Lived! I lived as a shut-in pre-kpouch...incontinent, sick, miserable and unable to imagine a life outside of a bathroom. The k pouch gave me back me. Freedom, life, liberty and the ability to... [ more ]
BillV Ashley, I agree with what both Kara and JLH have written. I have a BCIR which is similar to the k pouch in function, but constructed a bit differently. Both procedures have a high success rate and high user satisfaction. Most people with well-functioning pouches do not visit these forums, so don’t be discouraged by those with problems who come here for suggestions and support. I have had excellent results with my BCIR during its 3 year life. I found it easy to insert the catheter after the... [ more ]
See all 5 replies...
J-Pouch ForumsK-Pouch Korner
Hoping to get K-Pouch, Need Advice
Kara Fred JenJen and C. Susan- my thoughts are with you both as you start a new endeavor for your K-pouches. It sounds like you are both on track with good surgeons. Use this forum for any questions as I have found a wealth of knowledge. The recovery from this surgery is difficult (those core muscles will be sore), but knowing the outcome will keep you motivated. The hardest part I have right now is eating the right foods. I wasn’t as worried having an ostomy, but with the K-pouch, everything you put... [ more ]
JLH Csusan I had posted an article on the k pouch korner, which is too long to post again here. Try this link https://www.j-pouch.org/topic/2...e-of-k-pouch-for-ibd If that doesn't work then go to the second page on the site. I think you'll find some of the information helpful. FYI, I asked what the failure rate was in the first year and it is about 10%. In the article the rate is much much higher because they used stats going back many years when the success rate was not good. One reason why I... [ more ]
C. Susan Hi Jeane, I will definitely keep you updated with any visit to Dr. Kiran. I was told by his assistant that he does take insurance. Unfortunately for me I have an HMO plan and not a PPO so at this time I am only covered to see doctors in New England. I am discussing this with my company's HR department in hopes to works something out. Regardless, I will still pursue a visit with him if he would like to move forward after reviewing my medical history. [ more ]
See all 22 replies...
J-Pouch ForumsK-Pouch Korner
What's a normal diet for a k poucher
Janit That is pretty much my routine although I do stray in the nuts and olive dept. For some reason ever since I got the K-pouch I can't eat mushrooms because they make me sick! When I just had the bag they would pass on thru no problem but now it's like an eruption of some sort, odd.. [ more ]
Rosie128 I think twice about anything I have to "pick" out of my tube while intubating. I never eat corn as the clogging and picking and long night of multiple emptying are so annoying that to me they are not personally worth it. Never painful, just a pain in the neck! I like things that are low residue and break down in the stomach acid. I do like carbs for this reason, although they do increase output and make things thick so I drink copious amounts of grape/fruit juice with them. As long as I make... [ more ]
skn69 Hi Roza, First off, I have a k pouch and not a j pouch so nothing is left 'down there'...it was all removed. When I did have it (35+yrs ago) it was such a mess that I cannot remember it. As for the diet...Well the first 10yrs were a disaster. I had no idea what I could or couldn't eat, no rules, no advice...just hit and miss...and many, many mistakes, tons of pouchitis, blockages and frustration. Then, in my case, I discovered a method that worked...it happened to be Fit for Life but it... [ more ]
See all 12 replies...
J-Pouch ForumsK-Pouch Korner
Unacceptable Doctors Visit
Angie Wilson Good for you! And, good for you to seek legal advice just in case. Looking back, there were definitely a couple of times I should have pulled that card - even if it was just a letter which would move my name to a "better try to get it right" pile in a doc's office. The surgeon who botched one of my surgeries even told me later I was "much too nice" about it. My thought was he was human - who doesn't make mistakes? But, I tend to allow others too much slack and expect too much from myself at... [ more ]
Sunshyne89 Thank you all for responding. I appreciate everyones support. I had even sought out legal advice if I needed to take it a step further. I was able to get the situation rectified. I am now looking for another surgeon. Though the surgeon did not make the error, the PA's are under her watch. [ more ]
Randers.USA I agree with you , being upset and such , and also trying to get things corrected. It seems that all to often doctors / surgeons write in our medical records COMPLETE FALSE UNTRUE INACCURATE statements/notes...I do not know why,. but feel they sometimes portray the patient in a less than favorable light so as if any malpractice case comes up, people who see/read your med records, such as a jury or other physician, they come away with an inaccurate impression of you as a patient / person. [ more ]
See all 8 replies...
J-Pouch ForumsK-Pouch Korner
OMG!
Janit Has happened to me more than once lol! [ more ]
Mysticobra Ya... Autopilot... Catches up sometimes... Lol. [ more ]
Rosie128 Have done this at the house before, which is not that big of a deal, but poor hubby! I do so much on auto pilot, that I am nervous one day I will make a bigger mistake. So I hear ya on doing "brainless" things! lol [ more ]
See all 9 replies...
J-Pouch ForumsK-Pouch Korner
Help! need advice for one handed operation of the K pouch
Kara Fred I'm so sorry you are going through this ordeal. I think everyone has provided great ideas and my first thought was to install the constant drain tube/bag- just like after surgery. Of course irrigating is hard, but it appears you have managed. My stoma is typically flush with the skin, with the exception of a small roll above- surgery settled & I am not stick thin. My thoughts are with you Janet, this too shall pass. [ more ]
skn69 Janet, The flange has two little hook-up thingies on the sides that should hook to the belt (it is sold as a unit in one box I think)...the baby bottle nipple gets put in from inside towards the outside so that it fits snuggly...you can superglue it in for security if you like...then slide the tube in after it...the advantage especially for people with sensitive skin is that there is no taping of tubes onto the skin...the belt holds things tight against you. I use 2 differnt kinds of... [ more ]
JLH I asked for the flange and have that ready. What is the benefit of the belt and how would I attach it to the flange? What do I use to plug the catheter? i'm still worried that repeated intubations, which were not done very well, have damaged my valve. The nurse brought me a new catheter and I think it too added a tad bit of damage I'll be happy to no longer be the animal in the zoo i.e. the nurses watching me. What really gets me is when they say: now that's working properly, when 15 minutes... [ more ]
See all 14 replies...
J-Pouch ForumsK-Pouch Korner
Possible to have K-Pouch Surgery...
skn69 Thanks for the answer Jan, I am terribly ignorant about these things...it makes sense though...they would want to do an all or nothing sort of procedure...I also forgot about those darned antirejection meds. By the way, did I hear something about perparing the body with blood transfusions to make it accept transplants better? Sharon [ more ]
Jan Dollar They don't do small bowel transplants unless you cannot tolerate TPN and it beomes a life-saving endeavor. Plus, very unlikely they would transplant only a small section of bowel, since you still have to take the same antirejection meds. Also, it is extremely unlikely they would risk any portion of a graft to a reservoir. There are bowel lengthening procedures that may be more useful for an attempt to come off TPN. https://en.m.wikipedia.org/wik...tine_transplantation Jan [ more ]
skn69 Josh, My heart breaks for you. I am so sorry that you are suffering...especially since it was not necessary...this is a horrible situation for you. Can you get out of the house? Do you have the energy? Like Janet asked, can you go for walks? Just around the block to get some fresh air. I know that that was the first thing I craved once I started to feel a bit stronger...walks. For now, just heal. Get strong and heal and then you can think about alternatives to your present situation. Supid... [ more ]
See all 9 replies...
J-Pouch ForumsK-Pouch Korner
Contrast study of the K pouch with deformation of the valve
Kara Fred I'm so sorry to hear of your trouble with the valve. Sending you warm wishes & thoughts; and know we are all probably extending a bit of TLC to our valve! I know you will keep us posted- Kara thank you for the images too-very interesting view! [ more ]
skn69 Thanks Janet, "You can never use too much lube"...Quote from Dr C, my k pouch surgeon. Beware of crunches etc for 1 yr post pouch creation...consider your pouch a newborn...do not expect it to walk, jump, run, climb etc during the 1st 12 months...baby it and it will last you a lifetime. Things are not healed before then even if you think that they are ( or in my case, ever)...so no 'over-enthusiasm' please! Thanks for the vibes.... be nice to your pouch Sharon [ more ]
JLH thanks again for more history on your problem; it gives me insight as to what can possibly go wrong. unfortunately my new knowledge is at your expense, which isn't fair. i hope there can be a reasonable solution. tough choices for you and i send healing white light to help you through this turmoil. i love my k pouch--hey, it's valentine's day--but am also dreadfully frightened of it. i probably overly lube and then mindfully breath until the catheter slips in so smoothly that i don't feel... [ more ]
See all 5 replies...
J-Pouch ForumsK-Pouch Korner
Thank you!
JLH kara you are doing amazingly well for being only 7 weeks out!! both physically and mentally. at that stage i was still having some doubts as to whether it had been the right surgery. it was right and i'm happy camper now. interesting that diet's office says ok for miralax and the ostomy nurses were adamant that it was wrong. what dosage? you'll learn with the food. takes practice, which i am still working on also. i've given up juice and have not noticed a difference. then again i drink... [ more ]
Kara Fred I was private messaging with Janet and she made a good suggestion to post to the entire K-Pouch corner group. Things are going well with my K-pouch; Water’s Catheter is out, incisions are healing, stoma is getting smaller and intubating is getting easier. I completely understand all the posts by others in regards to incidents with their tubes. I can see how easy it becomes to make / have a mess and how easy it would be to forget supplies in the restroom. I do have a lot of mucous drainage... [ more ]
skn69 Ok... I use a small Evian water bottle with the sippy-tip and snap top lid. That holds about 3 syringe's worth of water in it so I can squirt enough into the syringe to irrigate 2xs if needed...then I just use the syringe to push out as much gunk as possible into the bowel and rince with the remaining water. Yes, grab a few 60cc syringes with catheter tips from the hospital, a few extra tubes (strait and curved if you can) and an extra leg-bag or two plus a couple of blue pads. I put the... [ more ]
See all 10 replies...
J-Pouch ForumsK-Pouch Korner
all new problem...maybe
JLH just got your report on another post so no need to repeat. [ more ]
JLH did you get to the doctor's office ok and what did the tests indicate? i've been worried about you! hope all ok and good results and you can return to k-pouch normal food. best, janet [ more ]
JudithS Two days ago I had something stuck in one of the holes in the tube, 1/2 out and 1/2 in. Couldn't figure out what it was at the time because it wasn't pliable like food, so just kept moving the tube back and forth (didn't think of adding water-good idea). Finally after what seemed like a millennium, probably five minutes, a lemon seed came out. I try to be so careful when adding lemons as I use them all the time, but one little one got away!!!!!!! Guess I'm going to use cheesecloth when... [ more ]
See all 9 replies...
J-Pouch ForumsK-Pouch Korner
K pouch and Malabsorption issues...anyone else??
skn69 My best friend has an animal hospital and they tell all their patients to give pill to their dogs in peanut butter...same suggestion here too..Crush and take mixed into a tsp of peanut butter (or nutella...pick your poison)... Sharon [ more ]
hollyfaith76 Thanks for the advice! I have quit taking the pills whole...but am still getting old ones out periodically. I am not losing weight too quickly, I just think I'm not absorbing anything from my food intake at all. The iron infusions help with the anemia, just have to get to a level where we can start maintenance treatments. I won't know what to do if my hemoglobin gets back to double digits. I just didn't know if anyone had tried taking multivitamin intravenous therapy (which I can do while I... [ more ]
skn69 Hi Holly, I remeber taking those pills! Had them shipped here at great expense only to discover that they go in and come out in the same condition. I finally got prescribed iron shots that I took weekly...(they actually tatoo the butt so be careful)...it lasted about a year or 2 until I could get my levels up but in the end I started taking everything in liquid, gelcap or chewable form...works much better for us. Our transit time is often too quick and thus some things just do not digest,... [ more ]
See all 3 replies...
J-Pouch ForumsK-Pouch Korner
new BCIR
Pressing On I tried to reply already....guess it didn't post. Thank you for the advice and encouragement. Went off the Flagyl, per surgeon's office, and in a low FODMAP diet. Have seen tremendous improvement -much less diarrhea and gas. As for intubation, had to wear a Foley 2 days per Susan Kay. It was to hopefully loosen whatever is causing my pouch to not fully open when it's not full. It will always open when it's full, just not other times. Still working on that issue-time will tell. [ more ]
JLH my k pouch surgery, at cleveland clinic, was also two months ago and i am climbing the same, steep learning curve. thanks bill for confiding that you had doubts during the first three months. i certainly have and all i need to take care of is a cat, not three young kids! good luck to you. given that i am in the same boat as you my best suggestion is to read--and re-read as i have--the many posts on the k pouch korner. they have been very informative and have helped me cope. i'll put in my... [ more ]
skn69 Pressing, So sorry that the road is so rocky...sometimes it just takes time to get to know your pouch and how it functions. I would dial back a bit and go a bit slower...change your diet a bit...maybe cut out the diary prodcuts (high gas producers), the carbs (makes the contents of your pouch thick and pasty and difficult to remove) and up your grape juice or prune juice intake along with your coffee intake (may just be why I am so energetic and hyper)... You may wish to hook up your tube... [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
Would like to find an Colostomy forum like K-Pouch
JudithS Thanks Jan, I've passed this along to her. Hope this helps as much as all of you have helped me. Judith S [ more ]
Jan Dollar I would suggest she start with the UOAA (United Ostomy Association of America). http://www.ostomy.org/Home.html There she will find links to find local support groups, plus there is a discussion board for pretty much any type of ostomy, including colostomy. Jan [ more ]
See all 2 replies...
J-Pouch ForumsK-Pouch Korner
advice
JenJen Irene, My feedback pertains to your hernia problem, which I have experienced. My colon was removed 5 years ago after it suddenly went toxic from UC. Four surgeries later I had a an angry J pouch and was experiencing dangerous and painful blockages. I also ended up with a massive hernia at the repeatedly reopened surgical site. I initially put off having it repaired because of all my other pouch complications and my colon doc agreed. But more blockages and a trip back to ICU made her... [ more ]
Irene K Thank you Janet and Jan. Janet I like Dr. Kiran very much and he is a very good doctor its not him Im frustrated with I guess it just the whole situation and I am not sure what to do. Jan I think I am going to do that when we speak again. Thank you both for answering me I really appreciate it. Irene [ more ]
Jan Dollar I like to pose questions that make it personal. Ask something like, "What would you recommend if I were your sister or mother, or if you were the patient?" Of course, the final decisions are yours, but it is good to know what he would do in the same circumstance. Jan [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
Flagyl and neuropathy
skn69 Is it reversible? Once you get peripheral neuropathy is ith permanent? Sharon [ more ]
Angie Wilson I feel so dumb asking this again - asked it on another thread - I have taken some anti biotics off and on thru years - but not all that many. I am wondering if maybe with my symptoms if I would do better taking more of them. I've always been "tough it out" or "stay home more" - in terms of dealing with issues rather than take more drugs - but maybe I've been too cautious and could have gotten more relief over the years. Jan- thanks for a great explanation about neuropathy and ways to look... [ more ]
TE Marie I was took flagyl in much larger doses for c.diff in my colon and also in my j-pouch. I was rotating it and Augmenten every 2 weeks and noticed my peripheral neuropathy in my feet got worse when taking Flagyl. I quit taking it and rotated with Xifaxan instead. I can't take Cipro either. I already had peripheral neuropathy so it didn't cause it. Just made it worse. Things were like Jan explained above. I hope you are feeling better soon. [ more ]
See all 5 replies...
J-Pouch ForumsK-Pouch Korner
Side-effects of Flagyl, Cipro?
JLH Extreme tendinitis in every joint from Levaquin, which is in the Cipro family. Painful! Several bouts of Pancreatitis from Sulfa based meds. Also not fun. [ more ]
TE Marie Years before having my colon removed I got c.diff from taking Cipro for sinus infections. I wish I could have taken it for my pouchitis. I took a lot of flagyl for pouchitis until I it was making my peripheral neuropathy, in my feet, worse. I was alternating augmenten and xifaxan before I had surgery diverting to a permanent ileostomy. The latter is very expensive but is specific for intestines. (There's a TV commercial out marketing it for IBS with diarrhea. It includes a pink cartoon glob... [ more ]
skn69 I ended up with ligament pain and inflamation while on Cipro...another nasty side effect. Sharon [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
Catheter in 24/7
skn69 When I had to keep my cath indwelling due to a peristomal hernia I found two solutions. One was the abovementioned tube but it did not work the way that it should on me because of the hernia. The other was to get a colloidial patch (sort of a thick transparent patch (looks like a sheet of those blister bandaids) that helps to heal the skin) about 3x4 inches, cut a slit to halfway in and a keyhole. I would then stick it to my clean, dry skin with the stoma sticking out of the middle. I would... [ more ]
JLH this is all very helpful to me. this is my 2nd day of inserting catheter on my own, and am on the far side of the learning curve. will only get better!!! so far i've faired down my syringe to better fit into the catheter. also, have determined that knelling in front of toilet is best for me, but that's not going to be sustainable in public rest rooms. sharon--can you send me the message you sent to jasmin? thanks, janet [ more ]
skn69 Jasmin, I responded pn Facebook to your post but wanted to add something here. When my pouch was down and twisted and had to keep the tube indewelling someone (a kind soul from here) suggested that I contact a manufacturer of ileo/k pouch caths for ideas and samples...there was a nice guy who had invented a semi-permanent indwelling tube....it is much larger and shorter than our usual caths...and has a 'bubble' at the end that you fill with water (using a syringe) that holds it in without... [ more ]
See all 6 replies...
J-Pouch ForumsK-Pouch Korner
Underlying Cause of SIBO
Jan Dollar For us, the primary factor is the lack of the ileocecal valve, which prevents backflow of stool that contains a high amount of bacteria from the colon to the small intestine. After colectomy, the j-pouch or k-pouch takes the place of the stool reservoir, but there is no valve between it and the upstream small intestine. Yes, the small intestine does take on the role of water absorption after colectomy, but this is even true in those with an end ileostomy, yet SIBO is not a big issue for... [ more ]
JLH having followed this forum's threads about SIBO i am wondering what the association is with colon removal. some of us, who lack a colon, have developed SIBO over time. part of the SIBO problem is an abnormal osmotic reaction in the small bowel. (another key factor is, of course, bacterial overgrowth.) considering that the colon functions to remove some liquids--sorry, not expressing this with good medical terms--might it not make sense that over time the small intestine starts taking over... [ more ]
Jan Dollar Actually, yes. But there is no one cause. It is more of a symptom or syndrome associated with a wide variety of disorders. http://www.siboinfo.com/associated-diseases.html Jan [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
BCIR + pouchitis
JLH pouchitis is the worst prediction that i can imagine for my new k pouch. i'm a bit more that 3 weeks out from surgery and due in four days to have the cathera removed. have had a very difficult and slow recovery, much of the problem has been excruciating back pain--right up there with breaking six ribs and no available pain meds! looking forward to getting rid of this external plumbing, and the associated smells. it's doable, and of course necessary, but not a chance that i'll miss my plane... [ more ]
Jan Dollar BCIR stands for Barnett Continent Ileostomy Reservoir. It is not really patented or trademarked, but just a modification of the continent valve. It is performed at a number of centers in the US, but is most known at the BCIR centers. The Kock pouch has also undergone various valve improvements over time, just like the ileoanal pouch has. Jan [ more ]
skn69 BCIR is a continent ileal reservoir with a patented continent valve that is done in only a couple of private clinics in the USA... It is the little sister of the original K pouch (which also bred the J pouch)... Sharon [ more ]
See all 17 replies...
J-Pouch ForumsK-Pouch Korner
K Pouch Surgery
Sunshyne89 Thank you Sharon and Teresalg. This information has been very helpful. I am still doing some research and I am not sure which route I will take. I had a bowel obstruction, hernia repair and ileostomy revision in 2015, total colectomy in 2014, polypectomy in 2014, gall bladder removal in 2013 and have had several other surgeries not related to digestive issues. I am a 7 year brain tumor survivor as well. So I definitely want to make sure I make the best decision for my body. Though Florida is... [ more ]
TeresaLG Hi Sunshyne89. I had a failed j-pouch and now have had the BCIR since 1999. Yes, I've had pretty chronic pouchitis, and the anemia and vitamin deficiencies that everyone deals with. I've been managing pretty well though until now. I've had all kinds of tests and we can't find the source of my excruciating pain. I'm actually considering the ileostomy, as I just want to get on with my life. I'm disheartening to hear that your ileostomy was so problematic. Oh to just have a healthy colon! Good... [ more ]
skn69 H Sunshyne, I have had a k pouch for about 36yrs now...it is a delicate surgery and needs to be preformed by an experienced surgeon who knows what he/she is doing...there are not a lot of them out there. It has a lot of advantages over a j pouch or ileo if your sphincter is not reliable. You saw the video so you understand. The k pouch and Bcir are almost identical other than the reinforcement of the valve that is a trademarked procedure for Bcir. A lot of k pouch surgeons do their own... [ more ]
See all 9 replies...
J-Pouch ForumsK-Pouch Korner
Suspected SIBO
JLH i just posted, on another thread, that to many on this forum i sound like a late night informational about SIBO and the benefits of diet. so here it is again: the lowFODMAP diet might be difficult for some to get on, but it turned my life around. lots of info on it,--look at kate scarlata's website, monash u. plus monash u. has an app that is invaluable. it's an elimination diet, not a life-long one. beats meds anyday! jlh [ more ]
Bodoni Some doctors don't perform the test. They treat the symptoms. Usually Cipro and or Flagyl. The test is called a Hydrogen Breath test. The patient fasts for 12 hours and goes to the hospital and breathes into some kind of ballon. Maybe every 15 minutes for a couple of hours. ( This is just a rough idea. ) The test is not always accurate. So, you can see why I referred to my condition as suspected SBIO. You are right, some find that diet can give good results. [ more ]
RJG-Ross I hope people respond to this since I was about to post a question about SIBO also... But why suspected SIBO and not diagnostic of SIBO? I wonder if it is not better to first change diet before taking medication and seeing what happens with SIBO symptoms. I removed all wheat products almost 2 years ago and, aside from losing a lot of weight, I also removed most of my digestive issues (pouchitis) and allergic reactions, including basophilia (high levels of the immunoglobins (white blood... [ more ]
See all 3 replies...
J-Pouch ForumsK-Pouch Korner
Stoma is a bit small / stricture?
skn69 Bodoni, What I found that worked really well (but you need to be Mcgiver here) is to use the tip of those 60cc syringes...they come with a tip cover...it is the perfect size but could be dangerous if pushed all the way in so I melt the open end over a flam or boil it and then slowly press it down until it turns into a puddled hard base large and smooth enough to not hurt me...the tip goes into the stoma, the base sits outside and I tape it down... I have all different kinds & sizes of... [ more ]
bcirray Bodoni Please review the post about small stoma just before yours. I suggest the same answer for your problem. Ray [ more ]
See all 2 replies...
J-Pouch ForumsK-Pouch Korner
An official K poucher
skn69 Sounds fantastic Janet, Freedom! Just take it easy. No salsa dancing (or eating for that matter!) and not snow shoveling marathons...this is your baby for the next 6 months so please be kind to it! And you need to give it a name (makes it easier to talk about in public with friends...and not the same name as your old stoma or j pouch...he/she deserves a brand new happy name!) Good luck getting out of there and heading home. Sharon [ more ]
JLH Hi guys! I have been busy all morning with final prep for today's release from hospital! The stoma nurses said I'm doing an excellent job on maintaining the drainage and understanding how the system works. It was nice to have that reassurance. Had a minor blockage this morning, which gave me some extra practice with pulling out the tube, cleaning and irrigating it. Everything else looks very good and they gave me a get out of jail card for free. I had been sort of dreading this stage of the... [ more ]
JLH Hi all I'm in a very good recovery mode, helped along by a good friend who came to visit me for three days. So the pain is under more control and yes I'm being much more pleasant patient! It's funny because now that the spine pain is under control I can actually feel the pain from the abdominal site and I understand that that also hurts. But it will get better over time and no heavy lifting. Bill thanks for the traveling tips. I have a friend coming who will check me out of hospital and stay... [ more ]
See all 8 replies...
J-Pouch ForumsK-Pouch Korner
Small stoma
BillV I have not had a problem with stoma size with my BCIR, but a Marlen 30fr catheter with the bullet tip should be easier on your stoma than the Medina. Be sure to use plenty of lube and insert the catheter gently. Another thought is to use a plug known as a “binkie” to help maintain the size of your stoma. I am not sure to what extent it could increase your stoma’s size or help with your problem. Binkie’s can be obtained from: Wayne Jacks MWJacks@aol.com . There are several posts on stoma size... [ more ]
See 1 reply...
J-Pouch ForumsK-Pouch Korner
Discomfort
bcirray Dyna; Please describe "discomfort". Is it skin related or muscle pull or what? Ray [ more ]
skn69 You've got me stumped! No idea...just hope that you are all right and that it is nothing. Sharon [ more ]
Dyna No not having any problems at all, just a little discomfort around stoma area all the time. Not the stoma but in and around. If I'm doing some activity I don't really notice but when I stop the discomfort is ther. [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
plastic surgery
Rosie128 JLH, good luck! After the healing and the intial getting used to intubating, you will be fine! Are you getting your rectum removed and sewed shut? AKA "Barbie/Ken Butt"? That for me was the best part after dealing with fissures, pain, and constant drainage with proctitis. I was followed by a GI doc in Boston, but the most difficult part for me was that there was no K pouch doc close by, had to hop a plane to Cleveland if needed...although supposedly some docs in NYC were beginning to crop... [ more ]
JLH Sell esteem is very important and I support you next week I'll be getting my k pouch w dr. Dietz! Interesting, I'm also in Boston. Very anxious right now. [ more ]
Rosie128 Thanks Sharon! Hope all is well with you. The (high-risk) obgyn that did my surgery actually went in through my incision from Dr. Dietz (vertical) not horizontal like a regular C section. The plan throughout my entire pregnancy was to avoid a C section at all costs, but at 39 weeks the baby was breech and after an attempted version (physical turning of the baby) they viewed the pouch via ultra sound and decided they could do a section while avoiding the pouch all together. They did have a... [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
ILEOSTOMY LEAKS CHANGE TO A K POUCH
Rosie128 Love mine! Best thing that happened to me post-UC. I agree with what the others said. Takes a little getting used to but then the pouch learns to go longer with out emptying. I love not having a conventional bag 24/7. I wear a nursing pad over my stoma (stoma is flat) to collect mucous. But wear a large square bandaid during swimming and sex. It literally gave me my life back! [ more ]
Jules-mules I had a J pouch for 13 years following an emergency colectomy for severe UC. The J pouch was never a success. A surgeon tried to redo it but failed and I ended up with an ileostomy. After a year I persuaded the same surgeon to give me a Kock pouch. I have had it for eight years now and am really pleased with it. I have been lucky because my valve has never slipped and I have not experienced any major problems. I empty the pouch 3-4 times a day and always irrigate. I regularly take the... [ more ]
skn69 Hi Dgr, No, I did not have ileo -to-k pouch but have had my k pouch since 1979...I think that means it's been 36yrs! Let's see...first the explanation. The k pouch is a continent ileal reservoir developped in Sweden by Prof Koch (thus the name)... Basically they take a length of small bowel, fold it onto itself, slit it open and restitch it to form a pouch. They leave about 30cms (12 inches) of bowel hanging off of the unattached end and form a one-way valve that allows you to put a tube... [ more ]
See all 3 replies...
J-Pouch ForumsK-Pouch Korner
Surgery on right hand. How do I take care of k pouch
skn69 I agree with Bill on the diet...no fiber, lumps, nuts, pineapple, pulpy oranges etc...keep it strained, puréed or liquidy...the last thing that you need is to have to unblock that darn tube with one hand. I remember years ago, they gave me a syringe with a bulb at the end of it (a big green thing)...it worked great one handed (when I had a miserable time with my i.v. in my right hand)...I kept a 1 litre reciepient and the syringe in the powder room (in France there isn't any sink in most... [ more ]
BillV I totally agree with Sharon’s suggestion on use of the catheter while your right hand recovers. When I was discharged from the hospital following BCIR surgery, I was set up with a foley catheter and leg bag for the long trip home. Although this worked, I discovered when emptying the bag in a public restroom that particles of fiber got caught in the bag’s drain and made emptying the bag more difficult. Unfortunately, leg bags are designed primarily for urine and not stool. If I had to do it... [ more ]
skn69 I am so sorry Joan, You are discribing one of my nightmares. Useless right hand...arghhhh! (Charlie Brown music Arghhhh!) My only suggestion is to hook yourself up to a strait drain...put the tube in and tape it down then plug the end. That way you only have to aim and unplug...for the couple of days in/at the hospital and first couple post op at home I would keep it hooked up to the leg bag...then you just have to empty the bag out directly into the bowl. Once you are on the move and... [ more ]
See all 3 replies...
J-Pouch ForumsK-Pouch Korner
Granulation/skin tag got ripped off
skn69 Still bleeding a bit (as if I actually took the time to look for those darn silver nitrate sticks!)...I have tons of granulation on the stoma so I need to really work on it and just can't get up the energy to do it (it takes 0 effort really, it is just finding those sticks!). Since my Ethiopath has been working on my organs (deep tissue) I am having less sharp pain in my abdomen...he says that he was working on my liver (which was enlarged according to the last ultrasound) to 'pump out' the... [ more ]
JLH hi thanks for this great info. nope, no such thing as pureed veggies in the market, but that certainly will be something i can make up before hand. it's a great idea. as for pantyhose, no problem, don't wear them. don't anticipate going out for anything dressy for quite some time. i'll be over two weeks out, close to three, before i return home to the stairs and kitchen on the top floor so am not too concerned. if need be i can stay at my friend's home for longer. will miss my dear cat. the... [ more ]
skn69 Janet, One of the things that I found really useful and yummy was frozen (all natural) vegetable purées. They are sold here in the frozen food stores (not sure if you can find them in the supermarkets there) but they are 100% natural, no additives, not even salt. They come in 1 kg (2lbs) bags filled with what looks like ice cubes...but they are the puréed veggies. I liked green beans, pumpkin, carrot, squash or peas...I would nuke them and add some water to thin them out into a thick soup... [ more ]
See all 7 replies...
J-Pouch ForumsK-Pouch Korner
K-pouch doctors at Cleveland Clinic - any experience there?
JLH ok, i'll follow your orders as i have a tendency to be oblivious to pain and forge ahead just to get something done. i'm fortunate that the woman who cleans for me will be able to come in on a daily basis. so too the carpenter to help move stuff or anything heavy. i'd be happy to stay in a rehab place for a week after the surgery, especially since i've read that it is usually a 10-14 day stay and this doc is saying 7 days. for that extra week i would absolutely need my electronic devices. [ more ]
skn69 Ok, first off, do not worry too much (that does not mean not to worry at all) about the short gut syndrom...according to Dr Cohen, my k pouch surgeon (been doing them since 1977ish and learned directly from Prof Kock), you still have more than enough...When the non-stop k pouch complications hit me he told me that even if he needed to remove my pouch he would still have enough gut to rebuild another one without any difficulty...so technically you are fine...just don't go throwing them in the... [ more ]
JLH Originally Posted by skn69: Hi Janet, Wooohooo! That is good news (in as much as getting a date to have someone take a stroll through your guts and knit them into a sweater can be good news!)...are you happy about it? How does the news make you feel? Happy? Excited? Terrified? unsure? Impatient? All of the above? For me it was a relief every time that I managed to get a surgeon to move forward towards a treatment or surgery (I wrote 'cure' but erased it...we are never really cured but... [ more ]
See all 19 replies...
J-Pouch ForumsK-Pouch Korner
Need info for a friend
JLH i posted an article on k-pouch. look in the 'korner', scroll down to 2014 article..... it is helpful. will find out on monday if i can have the conversion from j to k! eagerly awaiting the ct scan results and doc's interpretations. jlh [ more ]
skn69 Ceew, I agree with everything that Bill has to say. I have a k pouch and know for a fact that few surgeons and even few doctors know what a K pouch (or BCIR for that matter) are. In the 70's the k pouch was touted as the 'new' thing in colorectale surgery...but was rapidly replaced by the j pouch in the 80's because it uses the natural exit and requires so much less upkeep. Those with a healthy sphincter were winners but those with pre-existing ileostomies or who had sphincter problems were... [ more ]
BillV There are two continent ileostomy procedures: the k pouch and the similar BCIR. A large percentage of these procedures are performed for people who have significant problems with their ileostomies and desire a better quality of life. Lots of information is available online for both of them. An excellent website on the BCIR is: www.bcir.com and it has a video presentation about the procedure and information about the benefits and risks. Unfortunately, there are only 2 surgeons who do BCIR’s... [ more ]
See all 4 replies...
J-Pouch ForumsK-Pouch Korner
Diet changed my world!
winter wish I have a jpouch, but don't have pouchitis just SIBO. I shall give it a go, fingers crossed. [ more ]
vanessavy This is the kpouch section. I don't have a jpouch. [ more ]
JLH richard forgot to mention that the most critical food is refined sugar and then shell fish. both cause bleeding and incontinence. they cause inflammation, but not all j pouchers with pouchitis respond the same. you may have previously mentioned, so sorry if i don't recall, but have you tried going off sugar? i can eat certain fruits and veggies. shell fish is a strange one, but same reaction. as for vanessavy's diet i think it is important to clarify whether she has a j pouch or a variation... [ more ]
See all 17 replies...
J-Pouch ForumsK-Pouch Korner
...
skn69 I so agree... Been there, been hurt badly...not much that I could do about it...I was always told that I need them more than they need me. It is crappy but it just is. Sharon [ more ]
Randers.USA Opinion 8.16 - Substitution of Surgeon without Patient's Knowledge or Consent http://www.ama-assn.org/ama/pu...ics/opinion816.page? A surgeon who allows a substitute to operate on his or her patient without the patient’s knowledge and consent is deceitful. The patient is entitled to choose his or her own physician and should be permitted to acquiesce to or refuse the substitution. The surgeon’s obligation to the patient requires the surgeon to perform the surgical operation: (1) within the... [ more ]
See all 2 replies...
J-Pouch ForumsK-Pouch Korner
New to the K Pouch Korner
AussieRoo Thanks for the replies and suggestions. My surgeon is Dr Allison. SKN69, I will certainly pass your suggestions on to my surgeon, it's all food for thought. Thank You, Carolyne [ more ]
skn69 HI Carolyne I am so sorry that your k pouch is not cooperating and seems to be giving you constant trouble. Not all leakage means valve slippage...there are 2 other causes that come to mind immediately and are not often considered...both may have an easier fix than a valve re-do which is a full blown surgery. 1. a peri-stomal hernia. That means that there is a weakness in the muscle that holds the valve in place so that it twists and pops open or gets strangled (very painful around the... [ more ]
bcirray It's got to be the valve again. This again can be fixed. Get to your surgeon. Ray [ more ]
See all 3 replies...

Join Us!

Founder, Creative Director & Web Master

William J. Johnson
bjohnson@j-pouch.org

Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

Forum moderator and advisor
Jan Dollar R.N.

 

 


 

 

General Disclaimer

 

This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.


Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).


Confidentiality

Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.


 

CCFA

The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100


National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440    800-343-3637

 

Join Now

Already a member? Sign In

Online Now

  • duck11
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×