J-Pouch ForumsGeneral Discussion
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J-Pouch ForumsGeneral Discussion
Thank you @Petey12 [ more ]
Please read SJAN810 reply and click the link to the anorectal manometro test. In there they also list treatments of biofeedback and pelvic floor therapy which I highly recommend. It has helped me greatly understand what was going on. It is common with pouch surgery for muscles to be damaged, and therefore not function correctly. There are many things that can go wrong but there are therapies for them. Most doctors are like “it’s pouchitis so take Cipro” but there may be more to it. I also... [ more ]
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J-Pouch ForumsGeneral Discussion
For me it depends on how much I eat and if I eat late. If I behave myself and don't overdo the eating or do late-night snacking, I usually get up once during the night, sometimes twice. [ more ]
I rarely get a full nights sleep. Last night I went to sleep at 10:30PM then woke up at 12AM to go , then 6, 6:30, 7AM. I did snack quiet a bit and had an alcoholic drink. I get up at least once and have a hard time getting back to sleep. I know it affects me but taking sleeping pills is not a very good option either I found out. Just keep trying I guess. [ more ]
If you’re going to snack at 9 PM then you might get the best results from something fatty, like peanut butter. That slows down the GI tract and might give you more time. I wouldn’t read too much into one bad night - that can happen to anyone, with or without a J-pouch. I generally sleep through the night, 7-7.5 hours, but sometimes I have to get up earlier to poop, and then go back to sleep. [ more ]
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J-Pouch ForumsGeneral Discussion
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Dr. Fazio performed my surgery in 1996. I'm still going strong almost 30 years later! Very grateful for his work and service. [ more ]
Dr. Fazio, the BEST physician ever, performed my procedure in October, 2003. No complications whatsoever. He was a great soul and will be missed by many. [ more ]
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J-Pouch ForumsGeneral Discussion
Im 43 and go back and forth between feeling great and feeling exactly like you describe. Maybe ill be where you are when i hit 60. A lot of my stuff is mental health too though. I had depression and anxiety before the IBD and the IBD made it worse, and it in turn worsens gut stuff. At the end of it all it is still a better life than UC. [ more ]
I have found that where I am at is as good as it gets. i cannot gain weight I always have to watch what I eat, how much I eat, and when I eat. i am always tired since I am taking loperamide 3x/daily. Always have to take into account restroom considerations when traveling. vitamin d and b12 stay low without supplements. on canasa permanently to avoid cuffitis. have to avoid heavy simple carb intake to prevent recurring SIBO. Having said all that, I am grateful that I have it well under... [ more ]
check your vit D and B12 levels.. My husband found out that his levels were low. [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
“As much as possible” is too strong an idea, IMO. When the pouch is new is certainly needs *gentle* training to become a useful reservoir. Once you have the capacity to hold a reasonable amount of stool for a reasonable amount of time then you should probably do whatever serves you best. Some days I delay bathroom trips quite a bit, for my convenience, and some days I choose more bathroom trips, again for my convenience. I think Steve may be taking the backwash idea too far, but I agree that... [ more ]
Is that comparable to ILex or no? Does it stay moist or does it dry like Ilex does? [ more ]
Dan that’s in the beginning but some of us are 10-20 years out. [ more ]
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J-Pouch ForumsGeneral Discussion
so I have a redone jpouch since 2015 but have some minor incontinence. My GI at Cleveland Clinic wants me to see a DR Anna Spivak there who is doing a similar device for leakage . I havent made an appt yet but very curious . [ more ]
Hi all, I’m at about the 2-month mark. The research liaison said patients tend to notice results around 3 months, and clinically they tend to see results around 6 months. For me, I wouldn’t say my BMs were out of control, but my doctor was concerned about the amount of inflammation seen during my scope. So I have maybe noticed a marginal improvement, but there’s various lifestyle/diet/supplement changes I can do to affect that too. It has certainly not gotten any worse. One encouraging... [ more ]
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J-Pouch ForumsGeneral Discussion
Thanks for your response Scott. Good advice thankyou. [ more ]
J-pouchers do not normally become deficient in the various B vitamins. There is some risk of Vitamin B12 deficiency, but if that’s advanced enough to cause anemia (and thus low energy) then it’s pretty easy to detect with a simple blood test. It’s best to work out the actual cause of the problem before planning on the solution. [ more ]
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J-Pouch ForumsGeneral Discussion
My Gi told me I can have a gas x with every meal, in addition, he recommended going gluten-free; even though I don't have an allergy or intolerance, it seems I can have sensitivity to gluten. [ more ]
My gas has to be from food I am eating. I stayed away from sugars and didn’t didn’t have any spaghetti sauce and I hardly had any. I may just be more sensitive to things. I have done gas-x which helps. I don’t really get gas pain, I just can feel the pressure slowly working it’s way down and it creates the need to go because I have a hard time expelling it and it drives me nuts. [ more ]
It sounds like you may be overshooting on the dosing. Maybe pick either the Imodium or the Citrucel and gradually adjust the dose by small amounts until you’ve gotten it as good as you can, and then (only if necessary) add one (not two!) Imodium for a while and see how that goes. You’ll get some variation in stool consistency, but it may be best not to worry about that unless it’s causing you a problem. Have you tried anything for the gas yet, or discussed it with your doctor? [ more ]
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J-Pouch ForumsGeneral Discussion
Thank you all for your feedback! [ more ]
I would never use castor oil. Was told to take it for colon exam clean-out 40 yrs. ago and it nearly killed me. It cleaned me out for the exam and kept on cleaning me out. Major dehydration requiring an 11-day hospital stay. Was told never to use that again for any reason. Note to YT: Cod liver oil is not the same as castor oil. [ more ]
I have a friend that takes a teaspoon of Cod Liver Oil every day, started when he was a kid & now in his 60’s. Doesn’t have any joint pain. probably should ask your doctor before taking any [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
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I havnt even heard of it! I’ll put this on my notes to try the next time! Thank you so much [ more ]
Have you tried nortriptyline? Some people say it helps with painful contractions but I dont know I'm just suggesting if you have no other answer.they recon it works after just one pill. [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
I seemed to catch a bug or virus of sorts that has caused the chills, muscle aches, and a bad headache. The headache is gone now but the others symptoms are still lingering some. I have tried to rest and get as much sleep as possible over the last couple of days. In order to help with that, I have taken some muscle relaxants that I had been prescribed previously. It has a tendency to really knock me out. Typically, the longer I sleep, the better I feel but the more difficulty I have with my... [ more ]
Your MRI report doesn't look normal to me especially at the L3-4 level. But I am not a doctor. It's your call but I would go to hospital, get the Toridol shot, and request a referral to a neurosurgeon. Wait if you can take the pain. Do not wait if you can't. See a neurosurgeon one way or the other. Good luck. [ more ]
Arnica & CBD icy hot spray or cream and a hot pad is what I might try. Someone might say ice is good for something like this. I'd do whatever feels better to you. Maybe those treatments paired with some acetaminophen? Most people on this forum (and their doctors) seem to agree that NSAIDs can trigger bad responses from the pouch. After the pain decreases, Iyengar yoga might help if you can find a good, experienced teacher. I can't vouch for other types of yoga. If the pain is too bad,... [ more ]
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J-Pouch ForumsGeneral Discussion
Thanks for getting back to me RB15, much appreciated. Sorry to hear you're still experiencing anaemia issues, I'm sure it's really exhausting constantly having to have infusions like that. Especially if you're not feeling much benefit from them. I hope your anaemia improves, and that the crohns gets under control too. My anaemia has improved in the last four months - but the only thing different is that I completely gave up alcohol. I can't think of anything else that's changed in that time,... [ more ]
Hi R227, sorry for the delay in replying, i missed the email notification. So since that post i got diagnosed with Crohn’s disease unfortunately, so i guess that could certainly be a factor to the anemia as i was losing blood too. However, i have been on Stelara now for 8 months and it is working well to the point that i bleed seldomly now, but still have the same rate of anemia. Which leaves me to believe that maybe it has been an absorption issue all along, maybe due to the Crohn’s or the... [ more ]
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J-Pouch ForumsGeneral Discussion
Tylenol is fine with a J-pouch. A regular dose of 650 mg is likely to work better than 500 mg for most folks - I just take 1000 mg (an extra strength dose). Tylenol is generally only a problem if you have liver disease or drink appreciable amounts of alcohol. [ more ]
i take Tylenol 500mg whenever I need for aches and pains. No issues with pouch ever. i have avoided Nasids before surgery and really avoid them with the pouch. [ more ]
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J-Pouch ForumsGeneral Discussion
20+ years ago, i used have sigmoidoscopies performed in the GI office. Those days are long gone. They opened an endoscopy center and started to collect the big $$$. Besides if they are going to offer anesthesia services, they need anthologist/nurse anesthetists in the building. It turns out, that if the GI is not snaking up past the pouch inlet , we really don't need any sedation. Ahh, the good old days. [ more ]
Yes, insurance does not allow docs to do it in the office any longer. Probably cause insurance makes more money this way. [ more ]
Hi, i am having a scope with a new doc in a new state friday...stinks that my old doc (my surgeon) could do it in his office...this time i have to go to surgery center, 2000 bill (300 is my part) instead of 25 copay...do y'all have to go to surgery center or do it in the office? 2 fleet enemas, clear liquids for prep..3-5 minutes of not having fun is what the scope used to take....🤪 [ more ]
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J-Pouch ForumsGeneral Discussion
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J-Pouch ForumsGeneral Discussion
I suspect all of us experience this to some degree, and it’s very annoying. There are a number of things that can help with the mess, some more involved than others. Some of the high-end bidets (e.g. Toto Washlet) spray the bowl with water as you walk up to it. This reduces the mess sticking to the bowl. A few folks here have said they now hand spray the bowl before sitting down, which is much cheaper than a Washlet. If you’re ready to buy a new toilet two features can make a difference. The... [ more ]
I experience this frequently. While I take Gasx three times a day to lessen the explosive gas affects, my frequent experience is that I have a messy toilet bowl and a messy butt that takes extra time to clean up. i wish it was not so, but this the reality of my life with the pouch. [ more ]
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J-Pouch ForumsGeneral Discussion
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J-Pouch ForumsGeneral Discussion
It can come back and stay in a low grade condition for a while with minimal or no symptoms. Many of us have trouble clearing it and some people get scoped and don't know they have pouchitis until it shows on scope. You may need to be on antibiotics for more than 10 days to clear it, and it could come back. You might want to go for annual scopes and keep an eye on it so it doesn't get out of control. [ more ]
Think you may be right. Can it take a month to clear pouchitis? You guys have so much knowledge, appreciate it. [ more ]
I think your premise is inaccurate. You have had pouchitis all along, it's not been treated and it's slowly gotten worse. That's why you have the symptoms you have now. [ more ]
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J-Pouch ForumsGeneral Discussion
Flagyl and Cipro never helped me in the past. Like mentioned in thos thread, it may have made it worse! Not a good feeling swallowing those big pills when they didn't help at all. [ more ]
TRUE, yeah I had Cdiff after my takedown of my first pouch and that was awful [ more ]
I know I may sound ridiculous. It could be what was mentioned. But you mentioned stress. Personal stuff. That's stressful. Although I had uc all my stress manifested itself to my gut and made it act as it did. In hindsight I know that now. It made my colon and pouch go bonkers. Now that both are gone I had a perfect example of it last night. Stress. I had an episode of being stressed. I could feel it in my stomach. Yes. I can tell the difference now. Had I had either colon or pouch now it... [ more ]
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J-Pouch ForumsGeneral Discussion
thank you....I'm on Stelara. My only complaint has been skin infections sometimes. Here is link: https://www.mountsinai.org/abo...r-ulcerative-colitis [ more ]
The link doesn’t work. I've been searching for new meds for 42yrs, I’ve only found steroids or biologics. I tried stelara last year didn’t like it. I’m on Entyvio now, makes me extremely fatigued. Hoping for better results soon. [ more ]
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J-Pouch ForumsGeneral Discussion
Hi. Just wanted to post and update on here. I am booked in tomorrow to have a permanent stoma and disconnect my jpouch. Turns out I have very stubborn inflammation that antibiotics won’t control and I’m not prepared to cycle the NHS treatment list hoping something works. @helena I hope you are getting on better with yours or you have been able to get your situation on the right track!?! [ more ]
I firmly believe that once you fix/repair any mechanical issues you will be in a better position to manage your pouch to a satisfactory state. I think your surgeon’s approach is reasonable; as to let’s not give up on the pouch at this point in time. [ more ]
So I saw my surgeon today…. He didn’t want to discuss the possibility of a reversal yet as he believes the problems I am having are due to bacterial overgrowth because I have a fistula where my small intestine was joined back together going to my old stoma site wound. This apparently can cause mild pouch inflammation and an increase in frequency and urgency. I am booked for CT to gauge the size and route of the fistula and will no doubt require bowel resection to remove it. After that if... [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
A note on intravenous NSAIDS, including Ketorolac. They can indeed cause G.I. ulcers. [ more ]
I am late to the thread, but I saw this and had to comment. I have suffered from iron deficiency anemia the last few years of my j-pouch life, and iron pills crush my stomach, so that is not an option to resolve it. I also attempted to eat chicken livers daily, as well as an assortment of other iron rich foods, but unfortunately, my body does not absorb iron as well as it used to. A couple of years ago I received my first iron infusion (Feraheme) and it most definitely improved my situation. [ more ]
Thanks everyone for the comments and suggestions. Sorry I haven’t responded to them all. I am reading them all. Still working on the iron levels. I have a lot of things wrong with me at the moment and it’s hard to get them all sorted. [ more ]
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J-Pouch ForumsGeneral Discussion
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J-Pouch ForumsGeneral Discussion
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Thanks. My surgeon didn’t think it was pouchitis but I guess we’ll see if things improve. Thank you. [ more ]
When I start to get seepage it seems to be a sign of pouchitis. I suppose the lidocaine + successful pelvic floor PT might have relaxed things a bit and reduced the sensation of exiting material. [ more ]
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J-Pouch ForumsGeneral Discussion
Hey everyone! I am new here and stumbled across this post when trying to Google wag bags and j pouches. I just started backpacking this summer and some of the trails I am looking at require wag bags, which is fine but I am not sure how to use them with a pouch. Also with water treatments what does everyone use? I have been using the drops but think they mess up my system a bit (or it could be dehydrated food) I really want to get good enough to do a thru hike eventually but I am concerned... [ more ]
Ha ha Scott, I totally agree! I scrape a nice big hole, then balance in a deep squat that positions my feet out of the way. Then, like a fox (or dog), I have to bury it. Also it helps to have an extra squirty water bottle, you can get a good rinse. I also find that a nice coating of vaseline before I leave helps with avoiding skin damage, aka butt burn. [ more ]
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J-Pouch ForumsGeneral Discussion
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If you are really worried about an ulcer you could ask for an H pylori breath test. It's easy and non-invasive. If that is negative then move on to a more detailed discussion with your surgeon. In my opinion it sounds like the angle of your intestine is causing some kind of obstructive symptoms. Ulcer pain doesn't generally make you vomit but an obstruction sure will. Changing your diet to mashed up foods with low fibre may help to see if you can alleviate some of the symptoms may provide... [ more ]
Once you’ve thought through the impact of the problem on your life then a frank conversation about the options, risks, and benefits with your surgeon is a good idea. No one wants another surgery, of course. [ more ]
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I eventually went to the hospital and they didn't find anything! It must have cleared or maybe I didn't have one. All that work-up for nothing. I feel so defeated. I'm still having pretty severe stomach pain (going 10x+ per day so that's back to normal). [ more ]
Usually once an obstruction has you vomiting it's time to get medical help, but generally it would start hurting before vomiting if backed up intestinal contents had caused the vomiting. In any case, if you can't keep fluids down you're on the clock, and will need IV fluids before too long. If your pee gets dark then you're getting dehydrated. [ more ]
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J-Pouch ForumsGeneral Discussion
I had a marvelous scuba diving trip to Cozumel a few years back. I was careful to drink water that was represented as filtered, and I didn’t get sick. The hotel had plentiful and accessible supplies of filtered water, as did the boats I was on. It’s worth noting that Xifaxan is now recommended for the treatment of Traveler’s Diarrhea, in case that motivates you to bring some along. [ more ]
I was in Mexico in the year 2000, and was a lot younger and did some things that were unwise and I wouldn't recommend now. I didn't get sick at all, but probably wouldn't repeat some of the risky behaviors I engaged in. I was based in Cancun and stayed at the Club Med there. I booked a bus trip excursion and tour to Chichen Itza, which as I recall was around a 3 or 4 hour ride. We stopped at a village and ate lunch at some random local restaurant way, way off the beaten path. I also booked... [ more ]
Hello, thanks for reviving the convo. When I went back in 2016 I remained healthy the whole time, did not get sick and actually felt quite well. The only touchy part was when we were traveling between Oaxaca to Mexico City the first bus we took broke down and it was a very long trip back. The TP ran out on the bus (luckily I brought some along), I ran out of water and didn't have enough food. So, I would make sure to carry a roll of extra TP if you're away from your lodging for a time, pack... [ more ]
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J-Pouch ForumsGeneral Discussion
thanks for the input, guys! its much appreciated! [ more ]
New577 makes an excellent point. I had no stoma, but like anyone after abdominal surgery I have adhesions, and those don’t slide around quite like an untouched gut. A sudden blow to the wrong spot can cause an adhesion to pull hard on something soft, and that can cause trouble. [ more ]
Like Scott said, your pouch is mostly in your pelvis, so I think you are relatively safe in that regard. However, I had a two step process, and I have taken some accidental hits to the former stoma/takedown site. That spot is still sore two years later. My fear is that some scar tissue will break off or decide to relocate itself. maybe some rib protection device that wraps around your abdomen should be considered if your paranoid like I am about something going amiss during this activity. [ more ]
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J-Pouch ForumsGeneral Discussion
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J-Pouch ForumsGeneral Discussion
I think they checked my blood pressure when I went to the hospital and it was normal. It's always normal whenever I go to the doctor but I feel normal whenever I've went to the doctor, so I don't know if that means much. [ more ]
I thought adrenal because of the salt cravings, fatigue and loss of appetite. Also maybe diarrhea, although that’s hard to say – whether the diarrhea is part of the episode or the diarrhea is a result of your losing your appetite and not eating much, as you thought it might be. https://www.mayoclinic.org/dis...craving/faq-20057988 Did you happen to check your blood pressure during an episode? Sorry the endocrinologist was so unhelpful. [ more ]
Adrenal? I never thought this could have anything to do with that. I have suspected that I have some kind of hormonal problem going on for years, though, because I was on an extremely high dose of prednisone at age 14 to save my colon the first time around and I always suspected it messed something up. Ever since then, I've had an unusually high resting heart rate. I've also had calcium kidney stones and I have calcific tendonitis in my shoulder. They told me that normally it's older people... [ more ]
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J-Pouch ForumsGeneral Discussion
Thank you for your response I’ve had my pouch since 2005 and the past 2 years my level has been rising. After covid I got pouchitis and it went even higher. [ more ]
Yes! After my total protocolectomy, I caught a bug and went in for fluids. When they took my blood and ran my numbers, my bilirubin (and other liver numbers) were off the charts. I was hospitalized for 4 days and eventually it came down. Doctors had no idea what happened but threw around that maybe I had Gilbert’s Syndrome. Since then, my number is a little elevated but no one is worried about it. The whole thing was strange. [ more ]
Thank you [ more ]
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J-Pouch ForumsGeneral Discussion
The psyllium generally improves the consistency of what is coming out and actually decreases irritation because the poops are more smooth and are less frequent. If you were going to take it when there is still a bit of inflammation happening, I would drink lots of water, and I bet it can have a positive effect on the inflammation/irritation as well. Also with the aloe, I would start with just as small amount just in case you happen to be allergic. It's not common, but everyone is different! [ more ]
Thank you! I went out and got an aloe Vera plant, will see how this does. Once I get the swelling down I need to try the psyllium husk. I see everyone saying this is good. Would love to empty quicker and more thoroughly in general, even when not inflammed! [ more ]
Yes, I have definitely put the aloe up my bum a little ways, because sometimes the swelling is more on the inside. It reduces inflammation and decreases the healing time for me. I have had the clustering thing before, but isn't as often since I started taking psyllium, the universal poop regulator. I take a heaping teaspoon in 4 oz water. I add the water into a small jar, then the psyllium (fine ground & organic is best for me), put on the lid and shake vigorously, then drink it right... [ more ]
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J-Pouch ForumsGeneral Discussion
Well then I hope this can be figured out so you can go! Maybe the lower dose of antibiotics like Scott takes will work for you. I’m sorry I had no idea about the PTSD and mental health problems. Maybe you wrote about it and I missed it. I’m one of those people who likes to crawl under the porch and be alone when I’m sick, and trips are the worst for me. Maybe not the best thing for my mental health but I seem to get by. I wish you the best and some solution/relief for your trip! [ more ]
You have a little time to experiment with a smaller dose, which would be better (if it works) for longer-term use. For this purpose the rapid resumption of symptoms is useful, as you may get clarity more quickly. I hope you are able to make the trip and have a wonderful time! Good luck! [ more ]
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J-Pouch ForumsGeneral Discussion
I’m in the two-enema group, but I do both the morning of. T liquid diet starting the afternoon before is a good addition. I’ve never used any sort of laxative to prep for a pouchoscopy. Technically we can’t have a “flex sig” because we don’t have a sigmoid colon, but they often use the same flex sig scope. [ more ]
Liquid diet commencing noon the day before, 2 tablespoons Milk of Magnesia 8 pm the night before, Water enema the morning of, repeat if not clear. [ more ]
1/2 of Miralax colonoscopy prep. (238 grams in 64 oz of liquid) becomes; 119 grams into 32 oz of liquid in four 8 oz servings. does the trick and cleans me out perfectly. [ more ]
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I have never had a pouchoscopy with sedation. Lots of scopes (upper and lower) with Fentanyl and Midazolam. I like that cocktail and it doesn't leave me too drowsy afterwards. I soak up the meds, am out for 20 minutes then wake fresh as a daisy. I'm going for a non-sedated pouchoscopy next week....let's see how this one goes. [ more ]
I had almost all of my pouchoscopies without sedation. Except those rare occasions when a gastroscopy was done right before. I didn't feel too uncomfortable and the advantages are that I can see the whole process live on the screen and that I can walk home alone or drive afterwards. [ more ]
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J-Pouch ForumsGeneral Discussion
I saw some of those. I wish they would make a bendy one that is both bidet and enema bottle. They have some straight ones that are both. Why not a 2 in 1? [ more ]
I just went on to Amazon and chose one. Make sure the squirting part bends so you can target the area you want. If I knew how to post a link, I would. [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
Dr Shen always told me some ulceration along the suture lines are normal and he never mentions it on the pouchoscopy report. [ more ]
Hey Jacqueline. I wanted to ask what did your Dr suggest to do about the ulcers?. During my recent s.scope my Dr mentioned I had some ulcers but I wasn't given any treatment. [ more ]
Thanks Scott! [ more ]
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J-Pouch ForumsGeneral Discussion
I got a letter from my doc to have bathroom accessibility at all times. I was a teacher and it was not uncommon to be assigned a new room far from the bathrooms or in a portable. One time an overeager VP called me on my trips to the bathroom. All I had to do was call HR and she backed off. [ more ]
If you need it go for it. My wife is disabled. She can't even get it. They have refused her several times. And she is truly disabled. So some get it some don't. What gets me is she really is a candidate for it but refuse to give it to her. That is where my thoughts go. I'm not saying you don't deserve what you have. But alot of people skirt the system and those who don't are just left out in the cold. Like my wife. It's a sore spot for me. I see her and her pain everyday. But a judge makes a... [ more ]
thank you ycrockpot [ more ]
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J-Pouch ForumsGeneral Discussion
Yea it definitely threw it through a loop. It didn’t happen right away. It took part way through my cold for it to really affect the jpouch. Yea it did for sure affect it and took a little while to get back but I’m about there. [ more ]
I'm trying to understand the common cold too. It looks like it might be affecting the j pouch. [ more ]
Not completely where I was before but definitely leaps and bounds from where I was even a week and a half ago. Definitely threw things through a loop. I think it triggered mild pouchitis also so I was given a script of cipro and that helped my cramping and bloating I was having. [ more ]
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Bill Johnson founded the J-Pouch Group in 1997.
After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.
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