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J-Pouch ForumsGeneral Discussion
Liver & Entyvio
Y ytcrockpot
CTBarrister Unfortunately this can happen not only with Entyvio but other biologics and immunosuppressants. Both Imuran and Methotrexate messed with my liver chemistries and I had to go off both. It's unlikely you have any liver damage but be advised these liver enzyme issues are a risk with this entire class of drugs, that's why you go for blood tests. My standing order is for blood meds quarterly. Good luck with the hepatologist, hopefully no damage done. [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
trouble with bananas
KeepMovinOnKeepMovinOn
dd I had a blockage from a banana. I use to be able to eat them often. But just recently had a terrible bout after I ate one. Your body is always changing and I might have had increased inflammation. Luckily Miralax helped work its way through. But since then I can’t even look at a banana without getting sick. Everyone’s condition is unique and I would assess more on a personalized basis [ more ]
New577 Interesting. Pre surgery, bananas gave me heartburn almost immediately, but cooked plantains were fine. these days, they still give me heartburn and I only can eat a small portion of plantains. if I eat fried chicken, jpouch gets very upset. So fried foods in general have to be taken in small amounts, or else. Another food I love on the no go list. [ more ]
LV2Hike Even though this is a very old post from 2015, and it's 2024 now, I was happy to find it when I googled "is bananas bad for Jpouch". I too have noticed over the years that I get worse after eating bananas especially if they are very ripe. Yesterday I ate a super ripe banana in the morning and had a terrible day with very little control, where I even had a little poop accident. Luckily I always wear a sanitary pad, prepared for those occasions. I don't know whether it's the higher sugar... [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Poor Calorie Absorption and Exercise
B BK 123
SwollenColon Stating the obvious here but you have to consume more food than you need to in order to gain weight. If you're maintaining your current weight with, for example, 1500 cal/day, then you'll have to bump that up to, say 1750 cal/day. You'll eventually gain a little weight, then plateau. At that point bump your intake up again to 2000 cal/day. Repeat the process until you hit your target weight, and you'll have to continue at this level of caloric intake to maintain that weight. Protein and fats... [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
Excellent article on Special Concerns
F Frustrated
Hazel It’s been over 25 years - and I am still adjusting... [ more ]
New577 Thanks, great article; i am three years in with this thing, and I am still figuring things out. It is unfortunate that’s the GI docs and surgeons do not warn us as to what our lives will be like. Perhaps they are silent because some us would defer/reject the surgery if we knew then what we know today. [ more ]
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J-Pouch ForumsGeneral Discussion
Questions from new J-Poucher
D Dave23
Kangaroo Imodium helped me tremendously with leakage and accidents while sleeping. I took 8 pills per day for the first year. Now, 8 years later, I just take 2 before bed to slow things down and prevent accidents. [ more ]
Matt R It's been 20 years, but I remember the beginning being like you describe. I took a lot of imodium/loperamide initially. The best trick I learned was to not drink while you're eating. After that last bite of a meal, you can immediately drink something, but just not in between bites. I remember my surgeon telling me that leaking at night every so often was normal ... but he told me that after the surgery. Knowing that beforehand wouldn't have changed my decision, but I wish I would have been... [ more ]
LoveLife Hi there. Besides what the others have written you could consider how late you eat and drink, and experiment a bit with what foods makes you leak more. It takes a while to get to know your new gut and how your eating habits influence your system [ more ]
See all 6 replies...
J-Pouch ForumsGeneral Discussion
Increased BMs followed by Constipation
I Ike18
Mrs P Ugh. I’m sorry you’re having these issues. I feel like pouchitis can rear it’s ugly head quickly so the fact that your pouch looked good 30 days ago isn’t saying much to me. For me, I know I have a stricture which causes difficulty “going”, which cause gas, which causes pain and gurgling. Which can then lead to pouchitis. My doc usually suggests Canasa suppositories. The use of them can help to “open up” the area and also reduce any inflammation. I hope you’re feeling better soon [ more ]
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J-Pouch ForumsGeneral Discussion
Crocin as a supplement?
L LoveLife
Sara Marie What have you been reading? I'm always curious about supplements that might help. I'm interested in trying this if others have found it helpful somehow. I googled it and found mostly articles on saffron and brain damage. Here's a place you can get it as a supplement: https://nootropicsdepot.com/hi...GMsQaURoCU-8QAvD_BwE [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
Activated Charcoal- yay or nay?
SpookySpooky
Chook2 I found it helped me alot yesterday ,did a huge bowel movement.ginger ale and activated charcoal may calm the stomach goblins but more research needed. [ more ]
skn69 Hi Spooky, My dad was old-school and used to burn toast for me to eat when I was a kid and had bloody stools...I hated it but it helped a lot. Slowed things down substantially...But it took a couple of days to work (and caused black output...Beware!) When I moved over here, my GP was also a naturopath. She put me on activated charcoal for 1 month when my gallbladder/liver acted up the first time over 30yrs ago...it was better than burnt toast and did help with both the gas and the 'whatever... [ more ]
Spooky Thanks again, Jan. Getting older is fun I have been lucky overall. The last time I was on a course of cipro/Flagyl was 6 years ago, so in that case my GP will probably be reluctant to prescribe anything, just based on my past experiences with her. Plus the cipro in particular really slowed down my motility, which I always worry about since I have had partial obstructions related to adhesions. The last thing I want is to get bunged up. I will see what my GP suggests. 13+ years with the pouch... [ more ]
See all 10 replies...
J-Pouch ForumsGeneral Discussion
Ginger Ale
C Chook2
CTBarrister It was Canada Dry that saved me in Montreal! Not a surprise I guess, because I was actually in Canada, that it was the house brand rather than Schweppes! [ more ]
RossG I totally agree on the ginger ale. Prefer Canada Dry vs. Schweppes. [ more ]
CTBarrister Ginger Ale has long been a go-to for me as a remedy for gastrointestinal distress when Pepto Bismol is not readily available. I recall very vividly in October 2014 I travelled to Montreal with a group of friends. At the hotel bar, I ordered and consumed, for the first time in my life, steak tartare. It's essentially raw steak prepared with a pepper sauce. Within 45 minutes, I was feeling extremely ill and nauseous. I excused myself and went to the men's room, where I was certain I would... [ more ]
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J-Pouch ForumsGeneral Discussion
Acute Pouchitis - Is Treatment Needed?
I Ike18
Scott F If you do try a laxative (I’d try a fluid diet first) then MiraLax is the usual one suggested for J-pouchers. [ more ]
SteveG If it is a partial obstruction at the old stoma site you could try a laxative or some days with fluids only (no solid food). [ more ]
Ike18 Thank you for the insights. I may see if it subsides in the coming weeks, if not schedule something with the doctor. [ more ]
See all 6 replies...
J-Pouch ForumsGeneral Discussion
Hemorrhoids after j pouch
C C.S.
C.S. Thanks for the info [ more ]
Scott F I’ve had the occasional hemorrhoid, and for me they tend to clear up on their own. I find my bidet to be vastly better than toilet paper. Straining on the toilet tends to cause (and exacerbate) hemorrhoids, so anything you can do to minimize that will help - keeping the stool soft is important. If they get severe then sitz baths can help. [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Rv fistula
MillertimeMillertime
colitisfree @Millertime I had some leakage recently and figured its a RV Fistula, then saw pus coming out so my surgeon prescribed Augmentin and it got much better. I am scheduled for a pouchoscopy this week, he said if he feels that it needs to be repaired he will do the flap procedure to close it off. I did some research and spoke to other j pouchers who told me to try to wait as once you do 1 repair, the second one is more complicated. I will have a conversation with my GI tomorrow and surgeon before... [ more ]
Scott F It looks like the poppy seed test will work well on a recto-vesical fistula, but I think it will work less well (if at all) for a recto-vaginal fistula. They both have the same abbreviation, unfortunately. [ more ]
Millertime Ty [ more ]
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J-Pouch ForumsGeneral Discussion
SSRI Anti Depressants?
temotytemoty
Sara Marie There is a Chinese herbal formula I take that helps with this. It is made by "Herbalogic" and it is called "Decompress" and is formulated for depression/anxiety. The effects are subtle but noticeable for me. I have been using acupuncture and Chinese herbs to support my hugely imbalanced body due to having no colon and this has been more successful than anything western medicine has offered as of yet, though I keep checking to see what they have come up with. None of it has been for me yet,... [ more ]
SeattleJane Ack! I wish. I do not know why, probably due to the brain gut connection of my unique physiology, but I am not able to tolerate SSRIs. I have tried them all and even at the smallest fraction of a micro-dose they cause level 10 out of 10 diarrhea. Bah humbug! When I was younger, pre-j-pouch days, I became severely depressed after a miscarriage and Zoloft was the miracle cure. Depression still shows up at my door from time to time and I wish an SSRI was still an option for me to kick it to the... [ more ]
Sara Marie My overall (including GI) health got better when I started taking Chinese herbal formulas that support mental health (for depression/anxiety, monkey mind). [ more ]
See all 5 replies...
J-Pouch ForumsGeneral Discussion
Jpouch surgery
N Nancydiane
Nancydiane No watchful waiting really isn't an option for me they offered me the choice to wait 6 months and repeat specialized colonoscopy but they also said it would be rolling the dice and I didn't like that option plus the worry and the stress of wondering if I waited too long would have been more stressful than moving ahead thank you for your opinion and I will get through this as most everyone on this site has pointed out. It's very encouraging to hear that you have had it for a long time and it... [ more ]
SeattleJane Hi @Nancydiane , I had jpouch surgery 19 years ago due to advanced polyposis and I'm doing reasonably okay. I relied on this group of folks for advice and just to vent. You have all of us here to support you no matter what you decide. I do appreciate @CTBarrister 's questions about surveillance as a possible strategy. Maybe or maybe not. My new, young-ish G/I doc told me at our first meeting that she was sorry I had this happen so long ago because current practice with benign polyps (I had... [ more ]
Nancydiane Thanks [ more ]
See all 18 replies...
J-Pouch ForumsGeneral Discussion
Travelling
J Jeh
SeattleJane I had similar issues to those mentioned already, except a bit worse due to my original surgery not being successful, and needing a second surgery 4 weeks later. They had expected to discharge me 2 days after the first surgery, but when it became clear there were complications, I was on a PICC line for tube fed nutrition for a month before the follow up surgery and an additional month afterwards. No fun, but exceedingly unusual. It is much more likely all will go well, with normal post... [ more ]
Jaypea While it would be lovely to recuperate in Spain, travel is stressful and requires a great deal of energy. To say nothing of sitting for long periods and lots of walking in airports. Three weeks post take-down is still early in your recovery. It took 2 weeks post surgery for my bowel to start working properly again so was not discharged until about day 17 post-op. My diet was extremely limited as I was learning how my pouch functioned and I did not risk being more than a few steps away from a... [ more ]
New577 You will need to see how you are feeling after your post surgical follow-ups. on the 10th day after takedown, my staples were removed, and that evening my undetected fistula began to leak. It was a real sh** show, resulting in emergency surgery in the middle of the night. Please be careful and listen to your surgeon’s recommendations. [ more ]
See all 5 replies...
J-Pouch ForumsGeneral Discussion
Second pouch
K Kushami
Winterberry Kushami, I’m sorry that you experience cognitive difficulty, especially during medical appointments and trying to remember what was discussed. I have a family member with early dementia so I know a little of what you’re talking about. Tty this for your next medical appointment: get a small notebook and write down any questions you have, and all the answers they give you. If you can’t write down their complicated medical terminology, give them the notebook and ask them to write it for you. [ more ]
Kushami Just out of interest, or for anyone else wondering the same thing as me, here is some information from a paper by Remzi et al in 2015: Preoperative Evaluation Patients underwent a comprehensive clinical examination before redo IPAA surgery. Although perioperative evaluation has evolved through the years, in all cases, there was an accurate and detailed history of the presenting symptoms and the prior pouch surgery. For patients referred to us, this included both operative records and... [ more ]
Kushami Good for you, @New577 . The two surgeons I saw failed to impress me, so I doubt I will be going back regardless. They both showed signs of poor communication skills. If they had been able to give me a reason, such as double checking for Crohn’s, and had done a better job at the consultation, that would have been a different story. As each surgeon wants to look for themselves (fair enough), I won’t bother to get into a pouchoscopy with someone I don’t like for the surgery anyway. [ more ]
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J-Pouch ForumsGeneral Discussion
alternatives to Ilex
N NathanG
ken31cay I just did a post with my results/opinions of some products I've recently tested: https://www.j-pouch.org/topic/...ch-results#lastReply [ more ]
ken31cay @ NathanG : note that there are several Coloplast skin barrier products. The "Thick Moisture Barrier Paste" product is the one I think might show some promise. I've tried another Coloplast product and it was garbage. [ more ]
ken31cay Yeah iLex is perfect. I'll post when I find a 'best alternative' out of the products I will be testing soon. [ more ]
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J-Pouch ForumsGeneral Discussion
Why do peanuts make my butt itch? (Weird problem with peanuts)
melissa111melissa111
Sara Marie I think the answer to your questions is YES! My butt gets itchy and irritated frequently and I haven't always established a direct correlation between that exact kind of irritation and which exact foods, but nuts are definitely one to watch out for. It'd difficult since things take a while to digest, sometimes they irritate and sometimes they don't (depending on what else is going on in the gut), and sometimes it's a combination of different foods, like eating them too close together, or... [ more ]
CTBarrister It doesn't happen to me. And it also doesn't make sense how peanut butter is OK for you, yet peanuts chewed into a "very fine paste" are not. In my mind it does not spell allergy. But your perianal skin is probably very sensitive to any kind of irritation- even from fine nut granules. [ more ]
melissa111 That's what's so weird about it. It really seems like the kind of thing that would happen from an allergy because when it does happen, my butt gets red and severely inflamed and VERY bad pain. Like, it was bad enough that I had to stay in bed all day, once after I'd eaten a big jar of peanuts the day before. Another time it happened, I was seriously considering leaving work early. It's that bad. It's even worse than when I eat extremely spicy food with nothing to buffer it. People keep... [ more ]
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J-Pouch ForumsGeneral Discussion
Pouchoscopy - Biopsy
I Ike18
Scott F I see no whisper in the results you quoted of cancer, pre-cancer, or cancer that’s even thinking about it. [ more ]
Ike18 Thanks for your input Scott.....much appreciated. it was my routine 2yr pouchoscopy. I haven't really had any material symptom changes recently, but who knows what is going on down there?! I know you're not a doctor (or maybe you are!) - but would anything on there give you cancerous/pre-cancerous concerns? Always gives me anxiety waiting on the pathology returns, which is now extended due to doctor's vacation. [ more ]
Scott F You don’t say whether this was a routine pouchoscopy or one done to help evaluate a problem. It’s common for a reasonably healthy J-pouch to show mild inflammation, but your report suggests more inflammation than that, in severity, ulceration, and deeper inflammation than the mucosa. I’d guess your doctor will probably recommend some medication additions or changes. [ more ]
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J-Pouch ForumsGeneral Discussion
Ilex and vitamins
G grateful
grateful I totally agree. What a disappointment!!! i don’t get it. It was the only ointment that work for me too. Hang in there Pouchomarx. [ more ]
Pouchomarx pretty sure Ilex is gone. They lied to their customers for several months saying they were having issues getting an ingredient but would be back in early 2024. Well they stopped answers emails about 4 months ago and their phone numbers in USA and UK no longer work.. this is BS. Only barrier cream i could find that actually dried and wasnt a goopy wet slippery mess. [ more ]
Sara Marie ❤️
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J-Pouch ForumsGeneral Discussion
endoscopy
J JHendrix
Scott F I’ve had a rigid sigmoidoscopy (I don’t think they ever went beyond the sigmoid colon with rigid scopes). It was certainly quite unpleasant, but it didn’t make me want sedation for a basic pouchoscopy. “Endoscopy” is a general term for a variety of scoping procedures (colon, larynx, esophagus/stomach, whatever). The term is sometimes used to specifically mean a scope of the esophagus, stomach, and duodenum, likely because the correct name (esophagogastroduodenoscopy, or EGD) is too... [ more ]
Jaypea Bronchoscopy is a completely different kettle of fish....you must be asleep as they are entering your airway and main stem bronchi. It could not safely be completed while the patient was awake. [ more ]
CTBarrister I had a bronchoscopy a few years ago and generally it's done under general anesthesia. [ more ]
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J-Pouch ForumsGeneral Discussion
VSL#3
A akteacher
AMB Did you see this study enrolling patients I just read about posted as a topic here. https://www.j-pouch.org/topic/...mula-study-is-posted . Inclusion criteria is 10+ bm's/day, pouch 6 mos+ and pouchoscopy within a year. [ more ]
Sara Marie Ha! Right. [ more ]
Scott F The extra strength is just double the amount per packet (900 billion CFUs vs. 450 billion CFUs). Studies do look at dose but they don’t care whether it’s one packet or two. My insurance covered VSL #3 DS until August, when I went on Medicare, but I had a year-long fight to get that. Very few insurance plans will cover it without a fight. There’s almost no research that names Visbiome, even though that’s the formula that got tested (under a different name). Try explaining that to your... [ more ]
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J-Pouch ForumsGeneral Discussion
A restful night's sleep?
G 97Guy
Former Member ❤️
Sara Marie Do you ever think that so many enemas could mess with your gut microbiome or your electrolyte balance? The frequent enema plan sounds attractive to me, but I wonder about doing it every day. Did the doc address these types of things when approving it? [ more ]
Bill K I’ve had jpouch for 2-1/2 years. Had chronic pouchitis from the start. Had ulcerative colitis for 30 years. I do a warm water enema right before bedtime. Usually sleep 6-7 hours. I also do enema in morning. I have a total of 3-4 bm usually start in late afternoon. Dr approved the warm water enema. Generally takes 5 minutes to empty jpouch. Ask your GI Dr about this. I only take Cipro and Imodium. Good luck. [ more ]
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J-Pouch ForumsGeneral Discussion
When to take an enzyme capsule?
WinterberryWinterberry
Sara Marie I hear that. 20 years here. [ more ]
Former Member I bought their Daily Maintenance Enzymes. It has a number in the bottom right corner 80034755. I have trouble with a lot of veggies and dairy. When I take the enzyme first I have less gas and less urgency. My GI only talks of probiotics, never enzymes. I’ve only taken one a day before lunch so far. Hope it keeps working, it’s been 10 years and seems like the learning never ends. [ more ]
Sara Marie Hi Rayanna! Which foods do you have trouble with and which kind of Flora enzymes did you buy? There are many types, it looks like! Thanks! Sara [ more ]
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J-Pouch ForumsGeneral Discussion
A Rough Night / Morning
C capper
Sara Marie That's a lot of mini-wieners! [ more ]
Mysticobra That's a long time. 23 years. 👍 [ more ]
capper Scott, sorry for the slight misunderstanding. Mushy is typically good for me. Watery seems the worst and most unpleasant. I don't typically get much harder output than mushrooms, although sometime when my fluid levels are down, it can get firmer. Last night I officiated another game and got home very late. I chose a couple of pizza pops because I needed something solid that wouldn't run through me like the night before. I ended up waking up early, eventually going back to sleep for 3-4... [ more ]
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J-Pouch ForumsGeneral Discussion
Internal iron staples, are they really safe?
I Ikh
Former Member Yeah that makes sense! Let me know how it goes! I am wondering that too now. I am not sure if I have my staples personally. [ more ]
katenet Thanks Lauren i guess my pouch doctors concern is an allergic autoimmune type response to the metal [ more ]
Former Member As far as I know, some people still have them and some people do not still have them. I think the only way to really know is to have radiology work done. As far as I have heard, they are safe. A doctor did say not to have anal sex: one of the reasons is because the staples might hurt the penis if they put the penis in the anus and the penis could also ruin your J-pouch. That is what i heard when someone posted their story on here. As long as you do not receive anal sex it is safe. [ more ]
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J-Pouch ForumsGeneral Discussion
Getting rid of J-Pouch
D Derrick
Former Member I am sorry you are having problems hon! I was the opposite of you, I had severe problems with my ostomy but not problems with J-pouch. Everyone's body is different. I will keep you in my prayers, if you need emotional support you can always message me. [ more ]
Mysticobra Derrick. You can pm me anytime if you want to talk private or have any questions. Richard. [ more ]
Derrick Richard, I appreciate your insight as that is very helpful. There’s not a lot of data on these things unfortunately so I really do have to rely on others experiences to see what can happen and how it is for them. [ more ]
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J-Pouch ForumsGeneral Discussion
NY Presbyterian Hospital
A akteacher
twinkie NJ Transit into NYC, then transfer to the subway. [ more ]
akteacher Thanks everyone! I’ll be checking out my options. [ more ]
AMB I stay at the Hilton/Homewood Suites on Glenwood Ave in Teaneck, NJ - right over the bridge - there's a Marriott property at the same exit. I have stayed at the Edge but prefer the reasonable cost of hotel and ease of parking in NJ. (I drive to the City from 3 hrs North.) It's a quick Uber or Lyft ride to Dr. Shen's office, though prices for ride service seem to have doubled since last year also. So when you compare prices for in-town or over the bridge, check out what the Uber would cost, too! [ more ]
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J-Pouch ForumsGeneral Discussion
Food Discussion
C capper
capper I seem to go in stages. By that I mean that I rarely ever suffer from incontinence while sleeping. However, the combination of going to bed with a full stomach and when I am extremely sleep-deprived is a recipe for it... They say stress can make one's condition worse. The fact that I am presently going through a marital separation AND moving to a different rental house probably doesn't make things better for my health... [ more ]
Kushami Tough-leaved salad greens. Lentils, baked beans, chickpeas and the like. Soup that is liquidy with bits of vegetable in it. Beer. Chilli and garlic in more than background amounts. I also had a bad experience with a “chocolate fountain”. I didn’t know that you make the chocolate flow by melting it in with large quantities of oil. I had a slight episode of incontinence while sleeping, the first time ever since my surgery recovery period. [ more ]
capper AMB, that is wild stuff, just wild! I say that because it's delicious stuff you are mentioning but bizarre! Kimchi makes you feel good???!!! I love it but i never thought it was a food that was gut / jpouch friendly. Same with corn.... SD bread, for sure should be easy to digest. I love my draft beer (especially the light / wheat kinds) and I love to use it to wash down a basket of wings. Hot wings are my favorite although all flavors are good!!! [ more ]
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J-Pouch ForumsGeneral Discussion
Pain meds and obstructions with an ileostomy?
n/an/a
Sara Marie I think they slow the entire GI system down, so upper GI too. But I'm not positive. [ more ]
n/a Thanks so much, all. I will be hopefully meeting w/the surgeon one more time prior to surgery, and will feel much better about discussing various meds. One last question, do opiates have the same effect on an ostomy as they do a jpouch (constipation, possible ileus?) [ more ]
Sara Marie I second that about avoiding opiates including tincture of opium. Not only do they slow the gut down too much which makes obstructions harder to resolve, they also cause emotional instability, so whatever you are bothered by will seem a lot worse unless you have just had your dose. And withdrawal is very unpleasant. It's a roller coaster to be avoided. I speak from my own experience. [ more ]
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J-Pouch ForumsGeneral Discussion
Fatigue even after good nights sleep
Matty96Matty96
Matt R I had surgery 20 years ago. I started getting tired a few months ago. I couldn't think of what changed recently, until seeing New577 post about B12. I read a book about Ultra-Processed Foods in August and my opinion was already that vitamins are useless unless you have a deficiency and reading that my opinion went further in the direction of it being useless and I stopped taking B12 vitamins, which I've been taking since the surgery. I just did a sleep study before looking at this board (I'm... [ more ]
Pouchomarx how old were you when diagnosed with PSC? I am 52 and a few years ago MRI on pouch stated dilated CBD and an intrahepatic duct . So of course i thought i had PSC. I saw a liver specialist at Cleveland Clinic who sees people with PSC and he doubts i have it. Said the dilations were not significant enough and i did not have any strictures in my ducts, for the pearl necklace appearance. But he stated we can do liver labs every 4 months to keep an eye on it. So far my liver labs have always been... [ more ]
grandmaof1 I’m tired all the time. And I do believes it from us not working exactly as planned anymore. I drink and drink nonstop. I do drink water with extra electrolytes etc. I have wondered if a sleep study would help me also. My son had it done when he was younger. But hated sleeping with the machine. I also was just diagnosed with PSC of my liver and that makes me tired too. Let us know what you find out. [ more ]
See all 13 replies...
J-Pouch ForumsGeneral Discussion
Food replacements.....
Asa LayAsa Lay
AMB I am a lifelong pasta and pizza lover but have had to cut down on wheat flour and had difficulty with tomato also. I have had luck with peeling and removing seeds from fresh tomato and using a high quality tomato paste. There's also an excellent tomato powder that can give you a rich tomato flavor without the acidity. https://www.burlapandbarrel.co...-dried-tomato-powder . [ more ]
Scott F I’d take a dose of psyllium before eating tomatoes if they run through you. I don’t know if it will work, but it might be worth a try. [ more ]
Asa Lay As I stated to another poster.....its not the burn that bothers me, its just that they go right through me. Usually within one hour of eating, I am bathroom bound for several hours......If it was just the burn, I could tolerate it for the most part. .....LOL. [ more ]
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Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

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