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J-Pouch ForumsGeneral Discussion
Pooping yourself on your rectal/incontinence pad and not even having feeling that you did so until the real urgent defecate comes on which sends you to your bathroom to find the effluent in a streak lined on your pad
Len78Len78
Len78 Pouchomarx, I appreciate your response and you taking the moment to share that you are in a similar predicament I went out from morning till 2 again today only to come home to a pooped up pad in my Briefs I have not experimented with psyllium ever and don’t know if the water cookies would do anything i too just deal but it would ibe humiliating if I had a partner I was given notice or rather a heads up prior to rectal stump/cuff excision use to the threat of rectal dysplasia / I have... [ more ]
Pouchomarx i had a redo in 2015 with a mucousectomy and ever since i am the same way. I always have to wear a pad stuffed up into the hole. I have more issues at night though but does happen minimally during day at times as well. I have tried psyllium husk and Imodium and those help some but it sucks. [ more ]
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J-Pouch ForumsGeneral Discussion
Entyvio
O Oldlady
virginiac Would be interested in everyone s side effects with Entyvio.. I did another post before I saw this one .. the aches and joint pain is overwhelming me ;( ;( [ more ]
Former Member What happened??? WHy did it stop working??? [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
Problems pooping the bed post j-pouch surgery
FM Former Member
MH2020 I don't think anybody has noted this. Sure motofen, limotil, and other drugs are good at settling your belly and prolonging times between bathroom visits...but if you are having a lot of issues and you feel it is uncontrollable, please speak with your doctor about Tincture of Opium. I've not used this is about 8-9 years, but the 4-5 years surrounding my jpouch surgery I always had a vial of that stuff in the event "normal" methods didn't work. Tincture of Opium is basically a digestion... [ more ]
kangaroo woman I have this problem intermittently as well...usually when I eat salads or have only been consuming liquids. It usually happens in the wee hours of the morning. I sometimes feel it happening but am just too tired to get up. I think it's just something that some of us have to deal with, and it's not the end of the world. You live to learn with these things and just deal with it the best you can. There are worse things in life than a little leakage. [ more ]
Cdub Hi ArchAngelThomas - you're right, we don't talk about this enough (and certainly no-one warned me beforehand). Yes, it took a long time for this to stop happening to me. I dom't mean to dishearten you, but I think it was probably three or four years before it stopped happening to me, but every person is different. I would say (if you're not already doing this), try not to eat after 7pm, and try really hard to empty the pouch completely just before bed. My leakages also often happened in... [ more ]
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J-Pouch ForumsGeneral Discussion
Squatty Potty: Pros and Cons, which kind?
DG Dancing Girl
Former Member ❤️
Scott F I call them “discomfort height” toilets. [ more ]
Deb C I have always had difficulty emptying. Part of the problem is a mild rectocele but I have always suspected something else is not quite right. I have been able to live with it by using my fingers vaginally to do what I think of as straightening the shute. I looked into squatty potties then realized the stepstool I bought for the grandkids to use at the bathroom sink was right there in front of me. I still struggle to empty but the footrest does help since I'm only 5'2" with short legs. I hate... [ more ]
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J-Pouch ForumsGeneral Discussion
Flying as an Ostomate
Z Zee3
Zee3 Likewise, wish you the best as well! I’ve been overall happy with my decision - and hope things work out for you too! [ more ]
Pouch2021 @Zee3 yes, planning for pouch excision and end ileostomy in the next few months. Three days in the hospital is amazing! Gives me hope. Don’t love the 50/50 infection rate but imagine most are treatable. Will also ask about nerve damage in females with resulting urinary and sexual dysfunction. Doesn’t make sense that it only applies to males given the anatomy and perineal dissection involved with the surgery. Though expect they may not know the complication rate if not well studied. I didn’t... [ more ]
Mrs P ❤️
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J-Pouch ForumsGeneral Discussion
Life after J Pouch-interested
ItsanewworldItsanewworld
Former Member Some of us J-pouchers including myself keep my stool loose as well, the looser the better it comes out. When mine is thicken it hurts or I get dehydrated easily. [ more ]
Former Member ❤️
CeeeeCeeee All is well here since my takedown in July 2002! Very few hiccups and all easily dealt with. I eat and drink everything/anything including my favorite adult beverage....gin martinis! I eat popcorn with no problems and crunchy veggies and fruits.....apples with the peel! I don't limit myself by excluding any food/drink. I do try to watch portions because I can gain a pound or two or three by just looking at a piece of cake! I was 63 years old when I had my takedown. I, too, didn't mind the... [ more ]
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J-Pouch ForumsGeneral Discussion
Probiotics
S Sfitz27
Sfitz27 Thank you! [ more ]
Scott F Probiotics are a very expensive way to manage stool consistency. I’d suggest something like psyllium as an effective, inexpensive approach. You can tinker with the dose to find out what works best for you. The Wegman’s pharmacy did a bunch of looking around to help me find a “reasonable” price. Some pharmacies will make that effort and some just won’t. [ more ]
Shannalee How did you get the price down? I need to go up to 1 1/2 pouches at least per day. You did get a little knocked off. I don’t know if it tells below, but I got my pouch 6/20/2000. Only had pouchitis once. I take the probiotic to thicken my stool a bit, mixed results. [ more ]
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J-Pouch ForumsGeneral Discussion
HELP Why does my J Pouch get irritated by vibrations of vehicles or boats
Linda2Linda2
ChelleC I seem to need to go more often during a bumpy ride. Don't know if it's actually because of the bumpiness or if it's 'all in my head' because there aren't many potties in the boats or cars. [ more ]
Linda2 Yes…it seems travel becomes more challenging I think maybe more so as the pouch ages. I hope you are able to find a way to overcome you challenges when you travel as well! [ more ]
Sara Marie ❤️
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J-Pouch ForumsGeneral Discussion
Leakage/incontinence & trouble emptying after Sphincterotomy
SH Sarah H
Former Member GEnius!!!! [ more ]
Surya Using mesh to repair a hernia in someone with ulcerative colitis or another autoimmune disease can indeed present some challenges. The body’s immune system might recognize the mesh as a foreign object, potentially leading to an inflammatory response or even implant rejection . This reaction can exacerbate autoimmune symptoms or trigger new autoimmune issues . As for sacral nerve stimulators, they are generally used to treat conditions like overactive bladder or bowel dysfunction. While they... [ more ]
Pouchomarx curious how this might affect people with UC? when i had my hernia fixed , Dr Shen was upset they used a mesh to fix it. He stated anyone with an autoimmune issue could cause more issues with putting a foreign material in your body. So far its been several years with no issues but i would think if a mesh could cause issues why wouldnt a stimulator?? [ more ]
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J-Pouch ForumsGeneral Discussion
Allergies and Crohn's
A AprilLS
Sara Marie I use a Neti pot for congestion and it seems to help. Also I use "Easy Breather", and herbal formula that supports the immune system, for allergies. I don't have allergies as bad as some people, and those people all said the Easy Breather didn't work for them, but then again, they do all those other allergens like gluten and dairy. When I stopped dairy, I noticed a marked reduction in congestion and when I stopped wheat gluten I there was a noticeable decrease in systemic inflammation. I had... [ more ]
Sara Marie ❤️
Mysticobra I have allergies but not that bad. I did when I was younger. Allergy shots and the whole shebang. But they didn't have what they have now back in the 60's and 70's. Plethora of meds for allergies now. I'll use a generic Allegra and it takes care of my mild allergies now. Wish I had that back then. Allergies stink. Being polite. I did read up that sometimes as one grows older allergies dissapate. Go away. And vice versa. As of now I use a netipot. That may help. Can't hurt to try. And they... [ more ]
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J-Pouch ForumsGeneral Discussion
Prescription Iron Supplements
C CTB23
Former Member Yeah hopefully now it will work. Just like I could not have orange juice with my colon but now i can! [ more ]
Sara Marie Thank y'all for sharing. This is yet another thing that the marvelous colon did for us that we have to find a way to regulate externally! I will make sure my doc tests for iron. It was ages ago, when I had a colon and had active UC, that my iron tested low and I tried iron supplements, which made the bleeding worse. Maybe they have something better by now. This was probably 25 or 30 years ago last time I tried it!! [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
Raw oysters
G grateful
CTBarrister Those oyster were all ordered while I was on vacation last week in Portsmouth, New Hampshire. They were very tasty! The raw oyster option did exist, and one restaurant I visited had an oyster bar with one employee dedicated to shucking and serving the oysters. But the grilled oysters all looked good and I went with those. Fried oysters were also on the menu as an option. [ more ]
grateful WOW Barrister, looks delicious! thank you! [ more ]
CTBarrister These are grilled with bacon, Brie cheese and bread crumbs: [ more ]
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J-Pouch ForumsGeneral Discussion
CABBAGE JUICE
Anthony831Anthony831
Sara Marie Anyone else have any success soothing the guts with cabbage juice?? I haven't tried it yet. Somebody on youtube said to put a cabbage leaf, right after you have rolled it with a rolling pen, right on your but. You roll it up and sit on it. Anti-inflammatory they say! I do that with a perianal cold pack-I just sit on it. This helps the hems too, and it's so refreshing in the summer! [ more ]
Former Member Anthony is right!!! https://www.youtube.com/watch?v=ORnmefZu5Cg [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
Weight loss
Uc-DanielleUc-Danielle
lclassen ❤️
mainebound I was on Ozempic-my stomach emptied so slowly after dosage was increased that it almost seemed like a bowel ileus. Sick and in hospital until it wore off. Couple years later, tried Wegovy. 1st step up in dose, same thing a few weeks. This is just me though. Meds affect everyone differently. I will not touch them again. [ more ]
lclassen I’m on the same situation. I haven’t tried any of the shots yet. I did use Adipex in the past and did not have any problems. It is my understanding that you may have some nausea after the injection, but that can be minimized if you do the shot at night. That’s just what I’ve been told by several friends who are currently taking the injections. [ more ]
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J-Pouch ForumsGeneral Discussion
Electrolytes replenishment ??
Jeff807Jeff807
Former Member I am glad it works for you! [ more ]
Deb C Start with simple and cheap. Add a dash of salt and a splash of lemon juice. Maybe make the tea a little weaker. I do yardwork in the hottest part of the day because for me it's not the heat or the humidity, it's the mosquitos. Also I can't see well enough in dim light. I'm often out there sweating profusely for a couple of hours and have never had problems with dehydration. I probably do drink a couple quarts of tea and/or water a day but I don't force myself to drink any set amount. [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
The impact of COVID-19 on the pouch?
O OscarThePouch
OscarThePouch Well I guess it's too late for me to take Paxlovid now. I'm at day 13. I wish I had pushed for it. The doctor didn't want me to use it but I should have pushed harder and said I'd take the risk on Diarrhea. [ more ]
Jan Dollar I contracted Covid twice, last time a few months ago. Both times I had increased diarrhea with the infection. I also took Paxlovid both times. Paxlovid did NOT increase my diarrhea, it improved it. Jan [ more ]
Sara Marie ❤️
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J-Pouch ForumsGeneral Discussion
Florida Doctor On Probation After Not Hearing Patient Scream During Colonscopy
CTBarristerCTBarrister
Mysticobra Oh I remember my first one. They gave me two valiums. Ha. That was a joke. And I thought it was normal. This was 1996! I was 40. Never been scoped. And my only second appointment to a gastro Dr. I went for a second soon after and could hear people getting them and the ones they do to the stomach from my waiting room. While the valiums were taking effect. It was a circular waiting area with about six rooms. One room was used to scope. And you could hear. Easily. After about 15 minutes of... [ more ]
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J-Pouch ForumsGeneral Discussion
Bad gas
nocolonstillrollingbbnocolonstillrollingbb
Former Member If a person really loves you for you then it will not matter to them. A pouch is apart of us and our disease is apart of us. They should love every part of us, if not- then they are not the right person [ more ]
tf I want to add I did all the above & it never seems to go away totally. Some days better than others. I find it very difficult to be with others like vacation, day trips. Going to the bathroom with your girlfriends & sharing rooms together is over. Can not do. If u have a partner already & they went through this with you it's not so embarrassing. Who out there is now single for whatever reason after pouch & how do u ever get past this with someone new. Only this group would... [ more ]
Scott F When I was treated for SIBO I was on the antibiotic for a few months. I don’t know how long your treatment was, but perhaps it was incomplete? The other advice (to follow basic gas-reducing measures) is also appropriate, but you may already be doing it. In addition it’s worth avoiding swallowing air (slower eating and drinking, etc.). [ more ]
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J-Pouch ForumsGeneral Discussion
Third obstruction in a month
B Bubbapup
Former Member I am happy the doc wants you check in with her daily! That sounds great!!! I really believe it may take a month for you to recover, please do not overdo it hon, you need rest, the doc is 100% right!! Rest is the best medicine honestly, that is how your body heals, rest and sleep. Glad you are going to do FMLA, that is important!!! Your welcome, keep me updated!!! [ more ]
Bubbapup Doing okay. Just uncomfortable. Not in pain meds. Doc called this AM and wants me to check in with her daily- just give the nurse a call and let them know how things are going, how many times per day I’m going, if I have pain, nausea, etc. Yesterday I slept almost the entire day. I feel better today but just can’t get comfortable in any position other than laying down. I told the doc that and she said yea, it sounds more muscular-skeletal, given everything I had done. She said to listen to... [ more ]
Former Member How are things going???? [ more ]
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J-Pouch ForumsGeneral Discussion
Pouchscopy
G grateful
Scott F I do take both Cipro and Flagyl now. Cipro alone worked great for about 8 years, but it slowly lost effectiveness. Flagyl alone had never done the job for me, but adding it to the Cipro did the trick, and the combination has worked well for an additional 8 years so far. Combining antibiotics when necessary is pretty standard in chronic pouchitis, but it also increases the set of potential side-effects, of course. [ more ]
HEMU Sara - thanks i will get it done by my surgeon for sure but since he resides in a different city i will plan it out at the earliest till then i am at the mercy of my local GI consultant ( not a great one) [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
Do you use 3m Cavilon No-Sting Barrier Film Spray?
SM Sara Marie
Ljz The spray may work but I found difficult to use/ reach area. The cream does not adhere well at all to moist tissue and doubt it stays on more than hour or less. I’m searching for replacement to ILEX paste, no longer available, because it adhered to skin fantastically, protecting sensitive area and promoted/ allowed healing when output created raw skin. I have purchased Cavillon, and at least 6 others that do not adhere at all and therefore do not help. All these creams are nice, soft and go... [ more ]
Former Member Yup! You got it! At least one person told me they use that and they like it, same thing with the spray too. I do not remember who it was though unfortunately. [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
Crohns?
chili123chili123
CTBarrister Basically everything Scott said above- should be repeated. Worrying about whether's it's Crohn's is utterly pointless- all the treatments are the same regardless of what you call the inflammation or where it is. What's important is whether the treatment works. I have the exact same situation going on. You will be indeterminate on Crohn's by any knowledgeable expert and anyone who tells you otherwise has an opinion you likely shouldn't trust. And you will always be Crohn's indeterminate. It's... [ more ]
chili123 I cannot tell you how hopeful I am that you are right!! I have a virtual appt with a gi doc at Cleveland clinic next week so hoping she can provide answers....but, they gave me someone new so we will see. THANK YOU [ more ]
Scott F The terminal ileum location suggests that it might originate with backwash from the pouch causing inflammation, the inflammation causing the stricture, and the stricture causing stool stasis, which could potentially have caused the ulcers. I don’t think Crohn’s is likely to turn out to be your problem. It’s best to keep the stricture managed as needed going forward. [ more ]
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J-Pouch ForumsGeneral Discussion
poop consistency fluffy and ragged
RenReevesRenReeves
New577 The only thing would add to @scott f post above is that when I overindulge and I get excessive gas, the stools tend to float. Since I take gasx with every meal (does not eliminate but reduces the intensity of the flatulence) those instances occur infrequently. [ more ]
Scott F If you are having no pain, urgency, leakage, or excessive frequency then poop consistency is likely to be of no importance whatsoever. [ more ]
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J-Pouch ForumsGeneral Discussion
Second obstruction in a week
B Bubbapup
Former Member Of course its not going to work for everyone, I just wanted to post what works for me. And I add salt to my water to avoid low salt. The salt I use is iodine salt, it has sodium, potassium and sugar in it. I should have added that in there in my old post. And she the person did say my post helped the past few days since she was not much of a water drinker. But like you said, its not going to work for everyone. I just like to post what works for me in case someone wants to try it. [ more ]
Scott F Just to be clear, pouch excision is sometimes a big surgery, and is generally done as an open procedure, so it might tend to form more adhesions than a lysis-of-adhesions procedure alone. I don’t think it’s likely that the outcomes have been directly compared. Every abdominal surgery has the potential to add adhesions, and only a small fraction of those adhesions tend to cause us appreciable trouble. It’s really a crap shoot (pun intended). My point was more like 1) if you need a pouch... [ more ]
Pouch2021 Sorry my reply above was in response to Scott F. [ more ]
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J-Pouch ForumsGeneral Discussion
Probiotic recommendation?
C CLB
CLB Thank you so much for your replies! For RenReeves: What is the dosage of S. Boulardii that your doctor recommends? I'm going to get some Florastor and start it ASAP. Thanks again! [ more ]
RenReeves Hi, for C-Dif prevention, nothing beats saccharomyces boulardii. It is ridiculously effective. I kept getting C-Dif every time I was on antibiotics...until I started taking S. Boulardii during, and a couple months after, antibiotics. My GI doc now has every patient take it with their antibiotics and he has been very impressed with what he claims is a 80-90% reduction in C-Dif cases in his patients. https://www.saccharomycesboula...%20therapy%20for%20C . [ more ]
Scott F The probiotic that is supposed to help prevent C-diff is Florastor (or other S. Boulardi formulations). That’s a yeast strain, very different from bacterial probiotics. The study you read about “VSL #3” was actually studying the product now called Visbiome. The product formula had separate ownership from the product name, and they had a little tiff. Nevertheless, they are indeed very similar. I use Visbiome now. It’s expensive, but you might want to compare prices per CFU - lots of... [ more ]
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J-Pouch ForumsGeneral Discussion
Pouchitis after iron infusion?
C Cb2009
Scott F There are certainly consequences to pathologically holding in poop or pee. Allowing a J-pouch to fill to its normal capacity is nothing like that. [ more ]
Former Member Scott F: I do no think you are a nice person and that is why I do not respond to you but since in the past you kept posting on on what ever I post, I am going to put an end to it by posting info here, after this I am not going to respond to you anymore because I was tired of your rudeness in the past and I am tired of it now. https://www.carygastro.com/blo...0bowel%20syndrome%20 (IBS) https://www.medicalnewstoday.c...of%20frequent%20UTIs First website: talks about how holding poop in a colon... [ more ]
Scott F Lauren, please stop repeating this nonsense as though it were established fact. There isn’t a shred of evidence that delaying bathroom trips has any connection to pouchitis. [ more ]
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J-Pouch ForumsGeneral Discussion
Immy
SM Sara Marie
Sara Marie Wow, NOBODY has taken this stuff? I'm perplexed. I think this stuff might be really helpful for the system. I'd love to hear anybody else's experience because I think lots of people could benefit. I think it has made me a lot healthier. For those who dare to experiment...THIS is something to try! I emailed the Immy people and they said the heat-killed bacteria hangs out in the lower part of the small intestine and does its work there, not in the colon, until it gets flushed out. I wouldn't... [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
Has any noticed a change in bowels associated with starting Statins?
NYC GooglerNYC Googler
grateful Are you taking statins because you are 65 years old??? You have normal cholesterol readings? Taking statins is highly controversial and I believe we jpouchers don’t t need to add any medication unless it is absolutely medically necessary. i am 75 and they want me to take statins 5 mg. I too have normal cholesterol readings. I am fighting it because their reasoning doesn’t make absolutely no sense to me and is stressing me out to the max. [ more ]
JTinSC My cholesterol numbers have always been very well in range, sometimes very low. But my doctor started me on a statin last week because I am "over 65 years old". Within two days, I started "leaking". Granted, I have always had problems and take a large number of lomotil daily. But now, I can't leave the house, much less the bathroom. And I wake up during the night to take a shower and change my sheets, which is new. If there is a statin that is slowing the activity of the J-pouch, I would... [ more ]
Jan Dollar The reason I ask is because each drug is different, so the bias would be assuming a similar effect for all statins. Jan [ more ]
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J-Pouch ForumsGeneral Discussion
Conclusion to my 2mm dialation
chili123chili123
Former Member Yeah I keep my stuff in a folder: I have my colon pics, and my J-pouch pictures. I plan on keeping everything so I can make a scrapbook of it haha. I have not posted mine yet. Some people have posted their J-pouch pics, I love looking at the pics so I can learn more. [ more ]
chili123 Never thought about it.....I'd have to dig them out of a box. I certainly vividly remember them, lol. Have u posted yours? [ more ]
Scott F ❤️
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J-Pouch ForumsGeneral Discussion
Staples
A AustinA711
Former Member The staples are usually titanium, they normally stay in the pouch. Do you still have that pain??? [ more ]
New577 I would think after all these years the built up scar tissue would adequately support the anal anastomosis. Your GI who performs your scopes would be the best resource to look at/feel that area for integrity and any other issues. For each scope my GI does performs, he does note that area, what it feels like, any staple line ulcers, etc. I can tell you from experience, that irritation in that area (I have cufffitis) can cause symptoms you are experiencing. [ more ]
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J-Pouch ForumsGeneral Discussion
Inflammation and Pain
C capper
Former Member Yeah I never heard of that either but I would not doubt it. I know I had that Joint issue when I had my colon/rectum but it went away after surgery. [ more ]
Sara Marie I also wondered about gout. I have never heard of IBD arthropathy/enteric arthropathy. I will go look that up! Ah...here is what is says: "Enteropathic arthritis (or enteropathic arthropathy) is a type of arthritis associated with inflammatory bowel disease. The condition causes joint inflammation and tenderness in the arms, legs and sometimes spine. It also involves digestive problems. Certain medications and lifestyle changes can help reduce symptoms and prevent joint damage." (... [ more ]
Pouch2021 There is significant overlap in the meds used for IBD, psoriasis, psoriatic arthritis and what I believe you’re getting at, Capper, which is called IBD arthropathy or enteric arthropathy. I don’t know you or your health history/risk factors but I wonder about gout based on your description of the foot pain. A rheumatologist would typically be able to distinguish between all of these diseases and not sure what to make of all the talk about “inflammation.” While the diseases can be complex... [ more ]
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J-Pouch ForumsGeneral Discussion
Dialation
chili123chili123
chili123 Thank you everyone [ more ]
Scott F @chili123 the newer terminology is shifting to "Crohn's-like disease of the pouch" for most J-pouchers, and it generally doesn't affect the whole GI tract. In any case, imagining the worst-case scenario is terrible for your disposition and almost always turns out to be wrong. As CT wrote, even if the findings are more Crohn's-like, your doctor will simply find a treatment that works for your condition. A stricture is generally at a single location, sort of like a rubber band around the gut,... [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
IBD and blood clots
A athena
Scott F @athena is right on target. Dehydration can be a risk factor for blood clots, so maintaining adequate hydration is *always* appropriate, but excessive hydration isn't protective. [ more ]
Former Member https://nyulangone.org/conditi...%20while%20traveling https://unitedveincenters.com/...ese-natural-methods/ [ more ]
athena Drinking water doesn’t ‘thin’ the blood in any way, shape or form. (Otherwise we could be in trouble, at risk for bleeding, every time we drink a lot. And we’re really not.) The blood is very tightly regulated as to its components. Water is one of them, but we are around 70% water as a whole, so it makes up a lot more of our bodies than just a component of ‘whole’ blood. The water we drink is absorbed in the lower GI tract (lower ileum for us pouchers, since colon is gone), but only so much... [ more ]
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J-Pouch ForumsGeneral Discussion
Hernia
H Hazel
Former Member How is your hernia now??? Did you get it taken care of??? [ more ]
Hazel Thank you for your answer! I am seeing another surgeon and we shall see where that takes me. Thank you! [ more ]
skn69 Hi Hazel, Not sure of your age or your medical situation but I do know hernias, at least abdominal ones...I never had any prior to my mid 40's then they just kept coming, it didn't matter what I did or didn't do...I got one by doing deep breathing yoga exercises suggested by my surgeon! Sometimes as we get older, our muscle mass and tissue get thinner (blame menopause) and thus tear easily. I've got a K pouch (abdominal continent pouch) so my first hernias (peristomal) compromised the... [ more ]
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J-Pouch ForumsGeneral Discussion
cholestyramine
J JHendrix
Former Member Chloestyramine should be taken 1 hour after medicines medicines. After you take cholestyramine- wait 4 hours until taking any medicines. [ more ]
Scott F My health insurance has an individual deductible that's half of the family deductible. All I have to do is meet that to change the economics drastically. I hope you're able to get the medication that works best for you. [ more ]
JHendrix I won't come anywhere near my family deductible but I guess I'm grateful that my husband and I don't require much medication. I'll try Imodium but if it doesn't provide at similar effectiveness I'll have to figure out how to stay on the Lomotil. The fistula was reaching the point where I was needing to think about an ostomy. Thanks for your input on this. [ more ]
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J-Pouch ForumsGeneral Discussion
Anal fissures
J jbear
Former Member Calmospetine really helped me. Before used that, I felt like I was shitting broken glass [ more ]
Sara Marie Papaya ointment! Where did you get that? What brand do you like? What does it do? [ more ]
Nancydiane I feel your pain I have an anal fissure that is very active right now after my take down surgery which was July 9th I had ulcerative colitis for 40 years have my j-pouch created in February of 2024 but I also had developed a n anal fissure 2011 the anal fissure came about from so many years with the colitis and I knew that it was going to give me problems after the takedown surgery but boy did I underestimate the problem excruciating pain I do the sitz bath I have the special ointment n i d... [ more ]
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J-Pouch ForumsGeneral Discussion
J pouch physician in St Petersburg Florida
AI Accept It
Former Member Your welcome! You too! Maybe we can meet once you move down here! I go to Florida Medical in Tampa, I see Dr. Cody for my pouchoscopies. If I were having bad problems with my pouch, I would definitely see Dr. Seminaro. [ more ]
Accept It Lauren, Thanks for your quick response. I am close to tampa and it was suggested to me to reach out to my gastro in Orlando for a referral. I may follow up on that but also contact Dr. Seminarian. Thanks again. Stay healthy!! [ more ]
Former Member ❤️
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bjohnson@j-pouch.org

Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

Forum moderator and advisor
Jan Dollar R.N.

 

 

 

 

General Disclaimer

 

This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.


Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).

Confidentiality

Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.

 

CCFA

The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100


National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440    800-343-3637

 

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