Calmo
Visbiome

Skip to main content

Topics

Sorted by last update

J-Pouch ForumsGeneral Discussion
IgG supplement for gut health?
SM Sara Marie
Jan Dollar Yes, Sara, that is my interpretation. If there was something very clearly beneficial, it would be big news. Most of what I read indicated it as helpful in some cases of C. difficile. Most pouchitis cases are not C. diff infections (thankfully). Jan [ more ]
Sara Marie Thanks, Jan. I hope so too! Guess it's nothing to write home about or we would have heard more by now. [ more ]
Jan Dollar I have never heard of IgG for gut health, so I had to look it up. Usually, IgG is given IV or subcutaneously. But, in this instance, it is an oral supplement. Even though it has been around for years, it does not seem that there are clear indications of efficacy. I am not sure how it survives digestion. Like probiotics, perhaps it is a mixed bag. Hopefully, someone with some personal experience comes along. Jan [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
Rules for J-pouch group
SM Sara Marie
Sara Marie I read it. Thanks! Very informative. [ more ]
Jan Dollar Here’s a link if you can’t find it: https://www.j-pouch.org/topic/...ow-not-to-be-a-troll It is pretty rare to be banned. It is preceded by loads of warnings and chances. Occasionally there is someone who creates turmoil and it becomes unworkable. It is regrettable, but a simple reality. Jan [ more ]
Sara Marie I will look that up. Thanks! [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
Update - New GI
C capper
New577 Hi, IMHO 6-9 is not high frequency. I was quoted by several surgeons prior to choosing one, that I could expect 6-8 BMs per day. And that’s exactly where I am at 3.5 years later. like you, on bad days; IPS, cuffitis, or SIBO flareups the number goes higher. on days where I only have 4-5, i know the following days I will have more as the small intestine needs to clear itself out. please don’t stress, your outcome is your outcome (same with me). We just have to make the best of it, as I am... [ more ]
Scott F That's useful to know, I think, even though there's not much you can reasonably do about J-pouch size, short of surgery. It's possible that your surgeon chose to make the pouch smaller in order to enable the blood supply to reach properly (I'm not certain that the anatomy works that way, but I think it might). It's also possible that your surgeon simply didn't do an ideal job. I think your GI's advice about managing the inflammation is exactly right. [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Iron infusion
N Nancydiane
New577 I go into IPS, I was a lifelong sufferer of iBS and it has followed me here. Many foods and supplements send me into spasms (controlled with levsin) [ more ]
Nancydiane When you say it doesn't like them did it cause diarrhea or do they just absorb better sublingual. Hoping this is a one time deal as I'm still not tolerating a lot of foods yet which was thinking could be why not getting the iron needed but I don't know I'm very new at this. Thanks [ more ]
New577 I have iron infusions once a year as my hemoglobin drops too low. iron supplements I cannot tolerate and it’s just easier to have the infusions and be done with it for 12-15 months. unfortunately us pouchers have malabsorption of vitamins and minerals that are processed in the terminal ileum. I have to take vitamins d and b12 sublingual as the pouch does not like those either. [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
Surgeon Recs in Alabama/Tennessee
0 0010
AlabamaMike Dr. Stephen Clark in Huntsville has been doing my pouch scopes and he repaired an umbilical hernia. Great Surgeon. He is with the Center for Colon and rectal surgery on Manning Drive in Huntsville. Dr. Bruce Belin in Lexington, Kentucky built my pouch in 2004 and I would highly recommend him. [ more ]
Dude, where's my colon? I had my surgeries with Dr. Campbell at Huntsville Hospital in Alabama and I had a good result. During my early UC days I was treated at both UAB and Vanderbilt. I had a much better experience at Vanderbilt. The GI team up there is great. [ more ]
0010 ❤️
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Looking for central Massachusetts GI
roxzroxz
Nikino A week to reply, that’s not good. A patient portal is so good for a doctor’s office to have. My prior primary care doc in Worcester did not have one. Makes things difficult. I don’t know any GI docs in central MA current day, I used to go to Elise Jacques, MD but she retired. I’d think most docs have some type of portal now maybe UMass hospital has a good GI doc & portal. Not sure if that’s closer for you. [ more ]
roxz Thanks! good to know their good. I’m over an hour from Boston, or would still be there went to the Chrons and colitis center affiliated with Massgeneral. They were great but the drive not so much had to take a whole day off work just to go to appointments. The worst thing about my doctor is they don’t have a patient portal to communicate always have to call and take up to a week to hear back typically. [ more ]
Nikino If you are in Boston at Mass General Brigham Hospital, MGH- in my opinion, I feel safe to say you’re in a good spot. Communication is key. Keep messaging through the portal with when needed. [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
Taking NSAIDS if Jpouch is disconnected
T tulsamom
tulsamom Thank you Scott. I really don’t drink and have never had liver numbers abnormal. Still, I will use only what is necessary only for as long as it is. [ more ]
Scott F Tylenol is very safe in the usual doses (e.g. extra strength). The higher doses can be risky if you drink alcohol or have liver disease (whether you know it or not). [ more ]
tulsamom Thank you for that information. I wasn't aware about the dosages of Tylenol. [ more ]
See all 15 replies...
J-Pouch ForumsGeneral Discussion
Biospy
chili123chili123
Jan Dollar I have been on Remicade since 2016 (on biosimilar Inflectra since 2018). I would not second guess your choices. Skyrizi was not even available when I started Remicade and I had failed other biologics. There just is more data with Remicade because it has been around so long. So, I may wind up on Skyrizi at some point. I just started with a new GI and we talked about the newer biologics. But, he’s of the notion of sticking with what works. He even said he is not inclined to mess with my meds... [ more ]
ytcrockpot Hi Jan, May I ask how long you’ve been on remicade? My doctor gave me choice between remicade & Skyrizi. I’ve seen a few posts stating remicade is working very well for inflammation & pouchitis. I chose skyrizi because it seems to have less side effects, but maybe I shouldn’t be looking at that and look for something that actually might work better for me. Thanks, Yvonne [ more ]
chili123 So, if I have chronic inflammation in the terminal ileum, how can they tell if I have more issues farther up? My gi doctor, who is new for me and also new in her practice, had a lot of blood tests done and stool sample.....and all were pretty good...2 were just over normal.....stool was 56 and normal was up to 50....so I was sure that my biopsies would be okay. [ more ]
See all 10 replies...
J-Pouch ForumsGeneral Discussion
Fiber on the go
SH Sarah H
Jan Dollar How about Benefiber? Mixes clear and you can put it in water or anything. No taste. No grit. Metamucil always gave me a ton of gas and diarrhea. I guess I am sensitive to it. [ more ]
Deb C If my math is correct it would take 10 of the Kirkland capsules to equal 1 teaspoon of Konsyl psyllium powder. [ more ]
Former Member ❤️
See all 10 replies...
J-Pouch ForumsGeneral Discussion
New anastomosis following Transvaal mucosectomy, significantly improved polyp burden in pouchoscopy report from 10-10-24
Len78Len78
RHolt ❤️
Len78 Sorry I’m 5 feet 5 tall and 200 pounds that sentence should have read [ more ]
Len78 hi Jan, Diarrhea as a day to day and more frequent trips than just what a jpouch brings wo gastrectomy are some of my fears uncertsin transit time and winding up needing pull ups due to dumping syndrome comming on are also fears no one has answers, surgeon doesnt know how it will affect me post colectomy and living with jjpouch not having a stomach I want to be able to go shopping for clothing and food on my own after recovery which takes 6 months to a year ill have b12 issues and require... [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Artificial anal ring
David DaveDavid Dave
David Dave Thank you so much for your response. I am also just finding out about the sacral nerve stimulators, I haven't talked to a doctor about those yet; but, I'm reading more about them. dave [ more ]
Jan Dollar Artificial sphincters have been around for at least a couple of decades, mostly for urinary incontinence. My dad had one for urinary incontinence following prostate surgery. It was successful for him. But, urinary incontinence is different than fecal incontinence. There are a litany of complications, but the main one is erosion through the internal walls. They are always coming up with new designs. I hope the surgeon has some good options for you. A while back I read about sacral nerve... [ more ]
Former Member ❤️
See all 2 replies...
J-Pouch ForumsGeneral Discussion
WANTED TO POST MY DAD"S COLONIC INERTIA STORY JUST IN CASE IT MIGHT HELP SOMEONE ON HERE!
FM Former Member
nocolonstillrollingbb Hey! Fellow colonic inertia haver here. J-pouch saved my life. Thank you for spreading awareness about this condition - never met anyone else with it! [ more ]
Former Member @Former Member Thank-you! You are so right! Its a damn shame that doctors do not follow common sense! What doctor would think to leave a unused colon/rectum with a ileostomy??? Crazy as hell! @SeattleJane My birthday was yesterday so I spent it with my dad in the hospital, we are going to celebrate this week!!!My dad was in the hospital for two weeks!!! He finally was released from the hospital today!!! We are home now together!!! He has home health because he is going to be on antibiotics... [ more ]
Sara Marie ❤️
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Fasting today even though not required for tomorrows pouchoscopy 10-10
Len78Len78
Len78 Thanks Jan!! my instructions said have a light dinner at the bottom not clears all day the day before. At 3 I had a spoke two slices of cheese and some precut salami Genoa because of different input from like 5 different nurses one said stopping eating wasn’t necessary today the day before I’ll do my enemas tommorrow pouchoscopy morning but the dr wanted the mag citrate too abd I’m post trans anal mucosectomy 4/17/24 I thought not having a rectal cuff anymore I could get away with just... [ more ]
Len78 Thank you I’ve been given different opinions and instruction from 5 different nurses some said two enemas only either fleet contained or warm tap watered but the latest is to do the msg cutrate which I started on at 6 about 39 mins ago my time i confessed to the staff I ate a few slices of Genoa salami two precut slices of cheese and a entire apple all at 3 pm today dr relayed to staff member to tell me to do the mag citrate 10oz bottle im on the 3rd sip of it at 650 tonight/soon 2nd may... [ more ]
Jan Dollar I always do clear liquids and a bottle of mag citrate the day before. My new GI ordered the standard sigmoid prep with clear liquids, Miralax, and mag citrate but that is overkill. I guess it all depends on your own transit times. Jan [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Gastros instructions for first flex sig since transanal mucosectomy was done 4/17/24
Len78Len78
Jan Dollar The reason you don’t need the saline (Fleet) enema is because it is hypertonic (concentrated) to pull water from the colon to stimulate evacuation. We do not need that, just the rinsing. It is the container that we need, and rinse till clear. It does not stay in long enough to really matter one way or the other. I have been doing the mag citrate, but it does not bother me, and I do actually wind up expelling some retained solids that way. Jan [ more ]
Len78 Update: callled gastros office the magnesium citrate is not necessary for my flex sig the nurse checking off my instructions made a error those were the of instructions I’m to do two warm tap water enemas and have a ight dinner about 5 pm Wednesday the 9th eve of day before scope the 10th bottom line check with your dr because the instructions could be wrong they stopped assigning mag citrate over a year ago at the facility I use so I’m only doing two tap water enemas on the 10th in the very... [ more ]
Pouchomarx a Barium enema? i think you mean a Fleet enema [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
How fast is your food passing through
M Marc-Antoine
Former Member Yeah same with me as well, I tried to reduce trips as well but have not been successful either. But maybe that is suppose to be our baseline and I think that is pretty healthy for us if were not having any other issues. [ more ]
Former Member DAMN! That is pretty fast! I am surprised your transit time is faster than mine, especially since I do not eat animals. You must be taking care of your body [ more ]
Former Member ❤️
See all 24 replies...
J-Pouch ForumsGeneral Discussion
Lecture on pouchitis and mention of a product to help with overnight incontinence
K Kushami
cindy greeley Thank you for the post and very informative information on study regarding pouchitis. It’s comforting to know this work continues for people with a pouch and we’re not forgotten. Certainly not many of us out there that live with J-pouches, as we are in the minority. But quite thankful I have one and a quality of life 15 years later! [ more ]
cindy greeley Re: Lecture on pouchitis and mention of a product to help with overnight incontinence [ more ]
cindy greeley ❤️
See all 3 replies...
J-Pouch ForumsGeneral Discussion
Skyrizi Success?
Y ytcrockpot
SteveG The first 3 applications should be infusions at the doctor's, with a higher dosage (600 mg) than the injector, which is used afterwards in 8 week intervals (at home). [ more ]
ytcrockpot Thank you so much for this reply, it gives me less worries and some hope! I just received my approval From the insurance for that on body injector. It’s very interesting, I watch the video on it. [ more ]
Still Standing I'm currently on Skyrizzi and have been since March of this year. I don't have any major side effects that I'm aware of. We'll know more how it is working when they scope after a year from when I started it. I also take Budesonide and Imuran beside the Skyrizzi. The on body injector is different from just getting a shot, but you'll get the hang of it pretty quick. (It takes 5 minutes to inject the medicine.) I wish there was a magic formula that fixed us all without chemicals and side... [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
Keen athletes, have you tried superstarch?
K Kushami
Sara Marie Done. Are you saying that many people make super starch and that particular search result that I found was for a bad company? [ more ]
Kushami @Sara Marie , could you please remove the link to the company that you posted? There was a court action lodged against this company alleging inflated claims for its particular version of this product, and I would hate anyone to click through, believe the hype, and spend a lot of money on this because of a thread that I started. Superstarch is a legitimate product in its own right (not "just cornflour") but it appears that this company may have exaggerated its benefits to athletes for sales... [ more ]
Former Member ❤️
See all 4 replies...
J-Pouch ForumsGeneral Discussion
Anal Stricture - Surgeon recommending dilation ...then what?
JimInMaineJimInMaine
Hazel Hi! Im from Maine also and had Dr. Schoetz, the worlds best colon rectal surgeon! I have a flex/sig scheduled later this month with Dr. Marc Branda. He’s very good. I’ve been seeing him locally for a while now - got a little tired of driving to the Lahey Clinic, although I do miss seeing the doctors there. I don’t have much to say at this point just happy to hear from someone from Maine and having the same surgeon in common. I had my surgery in 1996, so It’s been awhile. Regards, Hazel [ more ]
SeattleJane @CTBarrister What a nightmare for you and your family for your father to die from a complication of cardiac catheterization, I'm so sorry. I appreciate the time you took to explain exactly how the endoscopist approached your dilation. At this point in time, I do not know either the width of the stricture or the approach my G/I doc will take to dilate. From my current symptoms, and from having scoped me 6 months ago and seen narrowing at that time that she dilated, she is reasonably certain I... [ more ]
Former Member ❤️
See all 42 replies...
J-Pouch ForumsGeneral Discussion
interview w Dr Bo Shen--new changes in techniques and approaches
J jan15
CTBarrister This is nothing more than a marketing technique, a way to get business for advanced endoscopists. And steer patients away from unnecessary surgeries they may be getting sold on by colorectal surgeons. Nothing Dr. Shen describes in that article is new, other than the term he is using for it. Excising polyps and dilating strictures have been treatments that are NOT new developments. What has changed is that GIs routinely did these procedures and many still want to- or else have referred their... [ more ]
Sara Marie Yeah, it seems like he is still very invested. I liked that he preferred the less invasive approach, though I didn't like the analogy. People should never be discouraged from biking if we want a better world! [ more ]
Former Member ❤️
See all 5 replies...
J-Pouch ForumsGeneral Discussion
Really confused and could use clarification and insight?
Len78Len78
Len78 Meant that mucosectomy doesnt take away the polyps inside my pouch only had cuff atz zone addressed [ more ]
Len78 Hi Scott, thank you very much . So with my pouch having been moved she hand sewn I have a new anastomosis being the atz was removed with the associated length 5 cm cuff. I’ve always had polyps in my jpouch but I’m sure if surgeon felt negative about saving my pouch and the mucosectomy itself he wouldn’t have persued it in the 1st place i don’t at an ostomy there’s no more tinkering with the pouch after this but the procedure first take away te jpouch polyps what I had done thanks and I think... [ more ]
Scott F I’m pretty confident that your procedure would have eliminated any polyps at the old anastomosis. Your new anastomosis should be less prone to polyp formation. You can confirm this in a couple of weeks when you go for your pouchoscopy. [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
iLex alternative search results
K ken31cay
Ljz Yes!! Thanks for sharing that! I will definitely call- and my husband will call and I will call again to request it! I did before but never got through nor did they answer emails. Would be wonderful if Ilex became available again! I too have found Kens compound to be similar to Ilex but because the stomadhesive burns I was using maybe 20% of that with 80% of the Cerave which is nice and thick. I will try the alchohol free convatec paste right away but very thankful to ken for finding that... [ more ]
hiyakat Hi @ken31cay and everyone, I've been an iLex user for 25 years, and unfortunately, Medline (who now owns iLex) has stopped producing it. I called them, and while they suggested trying "Remedy," I found it doesn’t compare to iLex in terms of consistency or effectiveness. The representative told me she will let management know. If you miss iLex as much as I do, please consider calling Medline to express your support for bringing it back . The more of us who reach out, the more likely they are... [ more ]
Former Member ❤️
See all 20 replies...
J-Pouch ForumsGeneral Discussion
Ostomy trick that helped my dad, I think it could help other ostomates too
FM Former Member
Former Member Oh great!!!! I am excited for you to start the journey of getting better!!! I hope you can enjoy New York too [ more ]
tulsamom Dr Remzi saw the cause of the jpouch growing up in the abdomen as a restriction near the bottom. So first surgery to create ostomy and let pouch and surrounding tissues heal and rest for 6 months. Then at 6 months- surgery number 2 - he will remove the restriction in the mesorectum and will either reduce jpouch to normal size or create a new one. At 9 months from first surgery, Oct 24, he will hook the restored jpouch back up and close ostomy. Much more extensive and disturbing situation... [ more ]
Former Member Why are you getting a temp for 9 months? [ more ]
See all 9 replies...
J-Pouch ForumsGeneral Discussion
Squatty potty
C Chook2
Former Member Thank-you for psting this!!! I posted that years ago, I am glad you reposted it so other people can see it and new people can see it! one girl on here told me she uses a step stool. [ more ]
Former Member ❤️
See 1 reply...
J-Pouch ForumsGeneral Discussion
A learning experience
nocolonstillrollingbbnocolonstillrollingbb
Regret07 ❤️
Former Member Yeah doctors treat us like shit! I am sorry you went through that hon. A lot of doctors lack empathy [ more ]
nocolonstillrollingbb Oh it's bad lmao. I've gotten c diff twice, wasn't taught infection protocol, had to fight them to prescribe c diff specific antibiotics, was refused stool tests, oh my goodness it's been terrible. I could do an entire 10 page post about the way I've been neglected by doctors lmao [ more ]
See all 9 replies...
J-Pouch ForumsGeneral Discussion
10 YEAR J-POUCH REVIEW COMING SOON!!! ANY QUESTIONS YOU WANT ME TO ANSWER???
FM Former Member
Former Member I have not talked to you or scott for years. I am not going to respond to you or Scott anymore. This is my last response. Leave me alone. [ more ]
CTBarrister Having someone tell you that you are posting nonsense when you are isn't being rude, it's being real. [ more ]
Former Member I am not going to waste my time reading all of this. Just please leave me alone, you and Scott have been nothing but rude to me for years. I want you two to leave me alone! [ more ]
See all 21 replies...
J-Pouch ForumsGeneral Discussion
How to settle down diarrhoea
K Kushami
CTBarrister All Pepto Bismol is, is bismuth subsalicylate. Its a metal which is toxic to bacteria in your bowel. It is also a mild antacid so I would imagine it is at least somewhat alkaline. I seriously doubt it will cause any burning sensation on the way out. I never experienced that. [ more ]
Kushami I have ordered some Pepto-Bismol. If I can’t take it, it can go in the medicine cabinet for other family members. Thank you @CTBarrister for the suggestion. [ more ]
Former Member ❤️
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Personal info from forum
P Pouch2021
Kushami ❤️
CTBarrister If the board was hacked I would think everyone would have received the email, otherwise what was the point of the hack since the only thing of value would be the privately stored emails of members? Which reminds me that medical offices have become huge recent targets for ransomware attacks. I work as an attorney and handle many personal injury cases, and just in the past year, settlement in a couple of my cases was held up due to such attacks. I could not get current bills on my clients... [ more ]
Jan Dollar Could you send me a copy of the email in a private message please? I I will send you a PM you can reply to. I will make sure the site administrator Bill J looks into it. I am traveling right now, but check my email daily. As far as I know our profile information is not shared with marketers. Jan [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Living with a JD-Pouch - 5 years in
JDsLightLabJDsLightLab
AMB "Stay strong, drink your water, and be kind to your medical support staff." Best advice ever! [ more ]
Former Member @JDsLightLab Have you ever tried a cheaper version of wipes??? The wipes you use are pretty expensive, just wanted to make a suggestion for you to save money. I use fragrance free wipes from Target (target brand) and target brand also makes sensitive skin moisturizing wipes as well, if you do not have a target in your area- i am sure walmart may be in your area. Have you tried or thought about using cheaper brand wipes??? [ more ]
Aimc ❤️
See all 8 replies...
J-Pouch ForumsGeneral Discussion
ETS2 Gene
P Paul123
RHolt Okay, I found a nice summary here by the Crohns and Colitis Canada: https://crohnsandcolitis.ca/Ne...s-Uncovering-the-Hid It seems that what they discovered is that a gene in the non-coding area of DNA can actually turn on inflammatory action of cells that can lead to IBD and even colorectal cancer. They are not sure how this will translate yet into treatment or prevention, but it is an exciting development. Thank you for making me aware of this, Paul. [ more ]
RHolt Hi @Paul123, Can you please say more about this and where you found the information? I am curious. I will do a web search myself, too. Thank you. [ more ]
Former Member ❤️
See all 2 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch Prolapse
S Safado
Ljz Safado, I know it’s even years and hope you’re repaired j-pouch still:doing great! Can I ask where you had your pouch fixed and did the repair hold? Thanks much. It seems I have a prolapse pouch but haven’t yet discussed surgery details. Just confirmed diagnosis this week. Thanks for any info you can share.ljz [ more ]
Safado Thank you Scott. I appreciate your help and the insight from your posts. I hadn't heard of Konsyl but looks like a good option for all-natural psyllium fiber. It's a good point that I need to be patient with my body healing so thanks for mentioning that. [ more ]
Scott F First, be patient with yourself. You’re recovering from surgery, and your body will keep changing/healing for a while. I take one full dose of psyllium (per the package directions) before breakfast and dinner. It’s easy to experiment with the quantity to see what works best for you. I actually mix a half dose of Metamucil and a half dose of Konsyl, but the amount of psyllium is the same. I take one Lomotil at bedtime to help me sleep through the night. I rarely take a bowel slower otherwise,... [ more ]
See all 17 replies...
J-Pouch ForumsGeneral Discussion
J-pouch anal irrigation
M Mary4130
Former Member I dont think I got answer about this or not. Do you still keep in contact with the people that have your son's organs??? [ more ]
Former Member Yeah I get it. But it also gave you a new life too! Over 30 years of peace. Might be good to celebrate that peace! [ more ]
Former Member ❤️
See all 36 replies...
J-Pouch ForumsGeneral Discussion
Blood test
chili123chili123
Jaypea CRP is merely a marker for inflammation. It could be high for any number of reasons. I once had a CRP of over 300 and the doctors never did find out why. I was fine two weeks later! [ more ]
Scott F The Prometheus test is the only blood test that purports to distinguish between Crohn’s and UC. It’s not very reliable. The distinction often isn’t very important - in my case they never actually figured it out. If you have active inflammation it should be treated, of course. CRP can help assess inflammation, and there are a variety of other tests that also can help with that. Unfortunately they can disagree. [ more ]
Former Member The only test I am familiar with is the Prometheus test that test for crohns or ulcerative colotis [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
Prolapsed J-Pouch Solutions.
FM Former Member
Ljz I know this is an old thread but just wondering how your appt went ( I know king time ago) and if you had surgery to repair prolapse. You may no longer be visiting this website but personals someone else had experienced a prolapsed pouch. Interested in surgical or non surgical options and where people are finding best, trusted care. I have had some tests done but have couple differing opinions from surgeons, at 2 different teaching hospitals, whether pouch or mucousal lining is prolapsing. [ more ]
Former Member Thank you GKU_51 & TROTTS. [ more ]
Trotts Hi, just wanted to wish you luck and heal fast! K im E [ more ]
See all 12 replies...
J-Pouch ForumsGeneral Discussion
Good days and bad days
HI Hope Its OK
CTBarrister Hope, I am doing good and have been for a long time. If you had surgery in 2022 you could be experiencing a lingering motility issue. Try taking the lomotil as I suggested 45 minutes before meals and if you see a noticeable decrease in BMs right after eating meals, it's definitely a motility issue. Lomotil is the drug prescribed for such issues, as suggested by its name although a better name would be Slomotil. As in slower motility. Many doctors call this phenomenon "spasmodic pouch",... [ more ]
Hope Its OK Thank you for the detailed reply. My doctor did not mention that about Lomotil. He only said to me to take it morning-noon-night twice each time. But to be honest with you, I feel like it does not help sometimes. I’ll try your method for a few days and see if it helps. About motility, I’ll also research that. I’ve had my latest operation in 2022 summer so it’s been now 2 years. My doctor keeps giving me this iron pill that makes me ill with so painful diarrhoea and does not plan to give me... [ more ]
Aimc ❤️
See all 14 replies...

Join Us!

Founder, Creative Director & Web Master

William J. Johnson
bjohnson@j-pouch.org

Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

Forum moderator and advisor
Jan Dollar R.N.

 

 

 

 

General Disclaimer

 

This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.


Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).

Confidentiality

Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.

 

CCFA

The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100


National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440    800-343-3637

 

Join Now

Already a member? Sign In

Copyright © 2019 The J-Pouch Group. All rights reserved.

Membership Required

We're sorry. You must be signed in to continue. Sign In or Register
×
Are you sure you want to remove from your Block List?
×
Loading...
×
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .
×
Link copied to your clipboard.
×