Calmo
Visbiome

Skip to main content

Topics

Sorted by last update

J-Pouch ForumsGeneral Discussion
Long Term Disability
FrancesFrances
TE Marie Frances, I got approved by my long term disability insurance company in 2 months, I didn't file until I was out of work for 10 months and they paid me back to the last day I worked minus the waiting period. They sent out requests for records to all of my doctors and in the initial application my Internist sat down and filled her part out during one of my exams. I am in the process of them going around and updating everything to make sure I'm still unable to work. I finally applied for social... [ more ]
Frances Thanks so much for your support. I have 2 letters from 2 of the three doctors and 1 is from the expert from Cleveland Clinic. It took a year and a half. We cant make it that long with out my income. I know i will get denied from Social security but i hope not from my employer that i pay for with every check. I have been on short term for 8 weeks now and get 65% of my pay and i will run out 8-15 i think and then they send me to long term. Im so stressed about what will happen that i cant... [ more ]
Former Member Hi Frances,I from Canada and I think both Countries are pretty much the same when it comes to Long and Short Disability issues.It took me about a year and a half to finally get approved for my long term claim.It got pretty depressing some times when dealing with these heartless goons but once I had all my eggs lined up and an Iron clad positive report meaning,my doctors report enphaticcaly saying that yes I was 100% disabled because of my pouch and no longer able to do any type of... [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
J pouch runs life as well
R RLC
RLC Thank you - I am still battling. On the picc line but now running 18 hours. I get a 6 hour reprieve from being hooked up! Still very weak! I am eating a little now. My mornings are really tough. Very sore internally and alot of bone pain in the morning. I finally stopped the steroids a couple of weeks ago and I think that is my problem. I do not do well weeks after being weaned off of steroids. Not sure what is next for me....trying to keep the faith! Roberta [ more ]
azmedic Hey Roberta, Things will get better. I had my takedown 3 years ago tomorrow. I went back to work full-duty 2 months later. I am a firefighter/paramedic and let me tell you, the first couple of months being back on the truck doing 24+ hour shifts were not fun, but they got better with time. Our schedule changed a few months back on the truck and we went to a 48/96 schedule, meaning we were on for 2 off for 4 days. I eventually got back to working 3 days in a row without any complications... [ more ]
ElmerFudd Roberta, I am 6'2" and went into the hospital pretty sick in 2006 weighing a nice 185 pounds or so. When I got home 19 days later, after a week of fluid runoff (I peed SO much for a week), I weighted 148 pounds. So I can totally relate. I looked at my legs and thought, "Who am I anymore?" My doc prohibited immodium for quite some time, and nothing helped me for months. I can relate to the 20-30 times a day, and up every hour at night. That was normal for me and I was told by everyone it... [ more ]
See all 57 replies...
J-Pouch ForumsGeneral Discussion
Question for all Jpouchers on Step 1 food timeline
P Pkitty
mgmt10 An obstruction can happen at any time but you are most vulnerable right after surgery. [ more ]
Pkitty Thanks all for the great info! With bowel obstruction, is it correct that it typically happens (if it's going to happen) in the immediate weeks after the surgeries? And then you are safe? Or bowel obstruction can happen anytime even as the years go by? Also gstubbe - what happens with soda and a bag? Stoma irritation or something? [ more ]
Former Member I ate pretty much what I wanted a few weeks after surgery. I watched my intake of mushrooms, nuts and coconuts. If cautious of something then just eat it in moderation. I drank soda but not as often, and never close to bedtime cause boy ole boy gas and a bag not good lol. [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
Butt burn forever?
C Cate87
TinCan A reasonable expectation is that the butt burn will go away and you will get better. It took me a good 3-4 months before it began to dissipate. Now, it is not a problem at all (8 months out). If you don't already have one, a bidet helps a lot. [ more ]
CeeeeCeeee For me, butt burn seems to be directly related to having eaten specific foods which cause the problem. Once the culprit food is out of me...the butt burn leaves. So, if you can identify which foods, etc. might be causing your butt burn you can modify when/how much you eat them and if you continue to do so....prepare your butt prior to eating them with a barrier cream and continue using it until the food has completely passed out of you. Different foods seem to cause butt burn for each of us... [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Humira Hooray!
tammykathleentammykathleen
Former Member That is Fantastic news [ more ]
Breezie I love my Humira, too. I use it for Ankylosing Spondylitis and had been on a two-week interval but when I was pregnant and breastfeeding, my doctor and I agreed to an "as-needed" basis, since the Humira kicked in pretty quickly when I used it. I am fortunate (supposedly) to be keenly aware of when things are starting to brew disease-wise, so for the past six years, it had been going well. I guess I got a little too lax (managing to get by with one injection every two to three months) because... [ more ]
Jan Dollar Very good news indeed. I also was one of those who did not last the two weeks Humira was supposed to work. I was on it for enteropathic arthritis. My rheumy told me that those with IBD tend to need more frequent dosing. I did pretty well with the weekly dosing, but once Simponi was approved for AS, I asked to switch (monthly injections). It has been over a year and I am doing better on the Simponi than Humira, although I wound up injecting every 3 weeks instead of monthly at first, but now... [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
VSL#3 DS to give away in Dallas/Forth Worth
B beucfree
beucfree Copperhead, I don't know about the differences in brand between USA & Canada, sorry. I hope my explanation in previous post answers your other question. Thanks! [ more ]
Former Member Hi beucfree I`m from Canada and just started taking the VSL#3.What did you mean when you said it wasn`t working with your pouch?Also is it true that the Canadian brand is far less potent than the American one?Thanks. [ more ]
beucfree AP- Usually within 30 minutes after taking VSL, I have to go to bathroom and, usually only a little bit would come out. For hours I would feel I have to go but don't feel emptied. Also, first several day of starting VSL, I had excess gas and high frequency, which improved over time. With Align, I don't have those issues. I don't have to time it because I can take and leave home immediately. Whereas, with VSL, I usually don't leave home for an hour or so. Align has no impact on my frequency. [ more ]
See all 5 replies...
J-Pouch ForumsGeneral Discussion
5.5 weeks post-op - surgery 1
U 1970UC
kathy smith You are doing really well considering you're dealing a loop ileo. And yes, the j-pouch function is much different than the loop ileo function. kathy [ more ]
mgmt10 Glad you are doing well! I hated that loop ileo. Mine ran like a faucet 24/7. It's true...you cannot compare the ileo output to when your j pouch is hooked up...it's so much less. Good luck with the remainder of your journey! [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Tingly hands and feet?
EthumbEthumb
Connie Keflex is another one has always worked well for my son. [ more ]
kathy smith Both can cause neuropathy according to this article . If one starts noticing tingling in the extremities while on Cipro, it should be discontinued. kathy [ more ]
vanessavy Flagly causes Neuropathy, not cipro. My friend got it just after 2 months of use and she is in pure hell right now. IT can last forever or years so stick to cipro in case. You don't want it to progress, trust me. [ more ]
See all 15 replies...
J-Pouch ForumsGeneral Discussion
Probiotics
Dixie from SaskatchewanDixie from Saskatchewan
vanessavy Actually no I said the complete opposite about the probiotic. Irrigation is to clean out the pouch to prevent pouchitis. [ more ]
Dixie from Saskatchewan Thanks everyone for your replies. A colorectal surgeon I recently went to suggested probiotics to help with all the excess mucous coming out of my stoma. I have to change my stoma cover once an hour because of all the wetness. Vanessa - you said you had more wetness when you used probiotics (Align) unless you irrigated at night - that is what I am trying to avoid - more wetness. I was told by my surgeon that irrigation wasn't really necessary all the time, just when I felt the need to... [ more ]
Rocket Dixie I would buy the probiotics as soon as you can based on what I have seen on this forum. I have never used it myself but plan to once my Pouchitis clears up. Last night my GI told me I had a severe case of Pouchitis and he put me on XIFAXAN for 9 days. I had mentioned Probiotics and how it has helped so many people but he said that all the testing has never been completed. I gather he was not a big supporter of this. I also asked him for a scrpt for VSL#3 but he refused. Too bad, because... [ more ]
See all 5 replies...
J-Pouch ForumsGeneral Discussion
diet and supplements
kittykatkittykat
Former Member I have never been on diets and I consider it is not effective like taking somes pills for losing weight. The best way is to have a well-balanced food, do sport, drink lots of water and get a good sleep. As for supplements I take the vitamins E and Ca. E is for your skin and hair and CA is for your bones. Good Luck! ____________________________ sexy lovers [ more ]
Rebe0505 sounds to me like you have cleaned up your act very well and have a pretty good regiment for a healthy lifestyle from a food standpoint sounds like you getting a cd diagnosis has actually been a god sent...you feel better and you will be better in general.. good job in cleaning up your act... rebe [ more ]
Rocket My GI put me on a Low Residue/Low Fiber Diet. Do I follow it all? No, not really. I have a sweet tooth too. Salt, is something I also use a lot of. Foods that I have to avoide are raw vegtables and raw fruit except watermelon. Bananas I cannot eat either because then my gut feels like I swallowed a cannon ball. I also take Potassium pills because of my blood test show I am very low on that and Electrolytes. I drink Powerade Zero which has zero calories and has Potassium and Electrolytes. I... [ more ]
See all 11 replies...
J-Pouch ForumsGeneral Discussion
J pouch or not?
FM Former Member
kathy smith Hi Laurie! How the heck are you? What's going on on your side of the world? kathy [ more ]
Laurie49 Hi Kathy! It's been forever. I hope all is well with you and yours. I'm SO grateful that you posted that to Fred Bird/Dog Day (I've always referred to him as 'name de jour"). I just started reading a bit here and I heard that familiar oh-I-am-such-a-victim tone in Dog Day and wasn't sure if anyone else had noticed (I should have known you guys would be right on it ). You're correct in that the only problems he has complained about, ad nauseum, on every site imaginable are that he could only... [ more ]
kathy smith Fredbird/Dog Day - you've been very refined this time around on the site and it's been much appreciated by all of us who've known you for over a decade. It appears that your more recent posts are starting in again with the negatively vague 'bad pouch' tales. You have never mentioned anything other than your lack of more than 7 hours of sleep per night (which is actually adequate for many people) and your lactose intolerance which you had before you had j-pouch surgery. Your comments to... [ more ]
See all 19 replies...
J-Pouch ForumsGeneral Discussion
Takedown tomorrow!!!
R Ryeliz13
Lizzie Knott So you are having your takedown tomorrow? I would recommend having a bed pad, usually the pouch begins to work while you are asleep. Go slow on drinking and eating, you do not want to get a blockage. Anti-Monkey butt powder is great for a sore bottom. Good luck! [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
what should i be doing ?
FM Former Member
Lizzie Knott I have been told every two years after a couple of yearly checkups. [ more ]
CeeeeCeeee I, too, chose a different surgeon for takedown than for the original proctocolectomy. Surgeon #1 believes in annual scopes in his office. If nothing seems suspicious he does not take biopsies. If he wanted to do biopsies, a separate appointment would be scheduled for that procedure as he doesn't take biopsies in his office. Surgeon #2, who did my takedown, saw me every year for scopes. Started off in his office. Then, I chose to have this procedure in the GI lab at the hospital. He took... [ more ]
mgmt10 This seems to vary from doctor to doctor but mine (my surgeon) told me he would like to scope my pouch every 2 years. My sister also has a j pouch and she goes for a scope every 5 years. [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
Help me remember some post surgery stuff
C CLeLong
CLeLong Anyone else [ more ]
CeeeeCeeee In December of 2012 I had a complete hysterectomy and the surgeon had to open me up and used the same scar line as my proctocolectomy scar. He stapled it shut, as well. Surprise!!!!! Very smooth, expedited recovery compared to the colon removal surgery. I still can't believe it was that easy on me. BTW....I'm almost 72 years old! Best wishes! [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Too chicken for a check up
MB Mountain Baker
Mattenheimer I was the same way. Scope lasted about 3 minutes. [ more ]
liz11 theresa- I would surely think that if you "demand" to your doctor that you want to be put under, then he will do that for you. Just be very clear in advance. You need to have scopes to catch anything in advance. The chances of them finding anything are probably pretty slim. So just go ahead, do it, and put it behind you! [ more ]
CeeeeCeeee After you do this one time you will wonder why you hesitated. For me, the only discomfort during the exam is minor and brief. It is caused when my doctor inserts air inside me to get a better view. Best wishes. [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
Crohn's with J-pouch after UC
B BlmBlp
BlmBlp Thanks for the input, Karbear. I hope all goes well with your surgeon next week regarding the fistula. So far, I have not had a fistula. Take care. By the way, I like your blog. [ more ]
Karbear It looks like I may be falling in the same boat. I had my surgeries 2 years ago because of UC. Since then I have had abscesses, cuffitis, chronic pouchitis, and now a fistula with more abscesses. My diagnosis hasn't officially changed yet, but Crohn's is suspected. For cuffitis I was treated with hydrocoritisone suppositories that cleared it up pretty quickly with only a few flares since. Both the abscesses and chronic pouchitis were treated with antibiotics. I have been on long term Cipro... [ more ]
BlmBlp KangaRoe, I forgot to ask if yo were you on a trial of antibiotics once you were diagnosed with Crohn's before being switched to Pentasa? If so, how long was the trial. Thank you, [ more ]
See all 14 replies...
J-Pouch ForumsGeneral Discussion
good surgeon report
Lizzie KnottLizzie Knott
Lil Missy Hi Elizabeth, Im curious, Ive had multiple surgeries in the last 5 years and was wondering how did they determine scar tissue needed to be removed? Ive often wondered if Id run in to that problem myself since Ive had multiple surgeries. Thanks for any info. [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
Need encouragement from jpouchers
C chrfor
parag i was recovered in 1 month after take down. but u have to started with simple food, avoid spicy, milk/milk product and deep fried product. if u have increased bowel movement u can also go with natural fibre suppliment after concerned with ur GI. [ more ]
Twilight One thing that helped me after takedown was asking the surgeon for an antispasmotic. The gas pains and spasms would take my breath away and after they calmed down a bit I was able to go back to work around 3 1/2 weeks after surgery. [ more ]
Lizzie Knott I am so sorry that things are not progressing as you would like. I would recommend kegals and large pads for night time leaks. It does get better. We all heal and work at different rates. [ more ]
See all 9 replies...
J-Pouch ForumsGeneral Discussion
Fissure
D DaveInNorCal
DaveInNorCal Thanks Jan. [ more ]
Jan Dollar It might, but mostly if you also use a wet compress. You can get a sitz bath at any drug store that you fill with warm water and place in the toilet bowl. No tub necessary. Sitz baths are the first line treatment for fissures. Showers arejust not the same. Jan [ more ]
DaveInNorCal Jan, we don't have a bathtub. Assuming I'm taking care of the hygiene issues by showering, will sitting on a heating pad promote healing? [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
emotional work week
Holly MHolly M
tammykathleen Holly, you continue to impress! ~Tammy [ more ]
CeeeeCeeee I am so impressed with you, Holly! To not bury your concern but share it with those "in charge" took courage. Your co-workers needed to have their eyes opened! Hang in there! Things will improve. Grab a few minutes of rest whenever you can until your stamina returns. Best wishes! [ more ]
Holly M had a much better day today at work. Had a good talk with the office manager and she promised things would change and they would have more consideration and empathy for me when I am really tired towards the end of the day or have alot of bathroom visits. I had a busy weekend with alot of family events and did really well. I am hoping things continue to improve every day. [ more ]
See all 6 replies...
J-Pouch ForumsGeneral Discussion
Driving after surgery
Kline84Kline84
suebear I drove myself home, a 2 hour drive after TD. I had only been on pain medication the day of surgery, 4 days later I was sprung from the hospital and was fine to drive. I also drove the day after being released from the first surgery, again another 2 hour drive and I was not on pain medication then either. Sue [ more ]
Kline84 Thanks for the replies. I wasn't sure how most people feel after takedown. My dr. Is ok with letting patients drive as long as they are off of the pain killers before they leave. He said he will probably release me on Friday ( surgery is Tuesday morning). I could break the trip up into segments and get hotels just wasn't sure if I would feel good enough to make it out of Denver traffic or drive at all for that matter. I'm thinking I might have to do some more searching for a driver! [ more ]
mgmt10 I wouldn't do it. I had a pretty smooth takedown and I know I wouldn't have been able to drive home six hours....not even half that. You really should try to make some kind of arrangement. Even if it's a car service. [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
colorectal surgeon in Dallas Tx
FM Former Member
Arlene V My son's surgeon is Dr. Clifford Simmang. He has offices in Dallas and Grapevine. He was recommended by the surgeon my son consulted with at Mayo in Rochester. Surgery was 3 years ago and he is doing great. We love him!!!! [ more ]
beucfree I also had surgeries done by Dr. Jacobson at Baylor Dallas. He's got tons of experience. Please feel free to PM me if you have any questions about Dr. Jacobson. nocolon-2000, I just send you prinvate message. [ more ]
nocolon-2000 Anyone at North Texas Colon and Rectal at their Downtown Dallas, Baylor office. I had Dr. Robert Jacobson and Dr. Paitoon Tulanon. Both excellent. I am back to Dr. Jacobson now. Love the man! Dr. Philip Huber is also good. I saw him for a bit but returned to Dr. Jacobson. Huber is probably closer to you, but Jacobson is worth the drive! [ more ]
See all 9 replies...
J-Pouch ForumsGeneral Discussion
Period (woman question)
C chrfor
chrfor I agree with you guys. Not sure why they want to start it back up. I am in no hurry to get it. I will ask more questions when I talk to her next before I take the prescription. Thanks for the input. Christine [ more ]
Randi M Christine-I agree with Jan. if everything checks out ok why start it up? The periods I had after first surgery were more painful and crampier than normal. I haven't had since takedown but am going to assume they won't be fun. I wish I never got mine again. [ more ]
Jan Dollar Mine stopped for about 3 months after my surgery. I am not sure I would want medications to start it back up if everything was checking out OK otherwise. Basically, it just means that your body does not think you should be getting pregnant right now. But, if it worries you, I guess hormones to stimulate menses would be OK. But, for me, I didn't miss it, and since I was anemic, I could use the iron I would lose from my period. Jan [ more ]
See all 4 replies...
J-Pouch ForumsGeneral Discussion
Take Town 7/3 But why are night worse?
FM Former Member
mgmt10 I do tend to go more in the evening...I really don't go all day long. I go when I get up then not again until 3pm or so. Then it's about 3x from 5pm to bedtime....then once in the middle of the night. Thats my average day. When I had UC most of the trips to the bathroom were late afternoon/evening too. [ more ]
Former Member I figure if I go into this expecting the worst the if it happens I wont be so frustrated. Like if I look at it like, THIS WILL HAPPEN LIKE THIS it wont be so bad bc mentally ill be a little prepared lol [ more ]
kathy smith I rarely wake up at night. As with everything else, we're all different. Hopefully you'll have minimal night awakenings. kathy [ more ]
See all 6 replies...
J-Pouch ForumsGeneral Discussion
Thinking about ostomy
FM Former Member
liz11 An ostomy, in particular, if you get immediately diverted, can be a very fast way to get back your quality of life and to get off the drug train. Lots of people choose ostomies for the long term because they do not want to deal with continued pouchitis, ongoing medications which can damange other parts of your body, and endless doctor visits and tests. After it was deterimed that my jpouch failed due to functional issues, one of my doctors did mention continent ostomies, but I chose to get... [ more ]
kathy smith This site absolutely spreads awareness. There is a k-pouch forum and information here about BCIR. That may be the case but it is still contraindicated. Would you have statistics available that show that those with chronic pouchitis who revert to a continent ostomy are doing fine? That would help people make a more informed decision if those statistics are available. I can't imagine anyone wanting to die rather than having an ostomy. I can understand a person preferring not to have one but... [ more ]
nocolon-2000 I sooooo understand where you are coming from. I was where you are however many years ago (I'd have to search the site). I was in the bed, ready to go into the OR for a permanent ostomy. My surgeon came in and suggested giving probiotics a try in addition to the Crohn's medication I was already taking to see if it would clear the post-colectomy issues. I decided to give probiotics a try once the doctor promised that if I would give it a month and didn't feel like it worked, he would... [ more ]
See all 23 replies...
J-Pouch ForumsGeneral Discussion
sitz baths: for healing - or for comfort?
n/an/a
n/a So interesting, Jan. Thanks! I think I was associating fistula "healing" with "closing", thinking they were one and the same. Since they are apparently not the same thing, what does "healing" in terms of a fistula mean? [ more ]
Jan Dollar Actually, it can be beneficial for both comfort AND healing. Moist heat is commonly used as a healing aid in various parts of the body. Heat increases blood flow, which speeds up healing. Moist heat penetrates deeper than dry heat, even if the water does not reach the area of infection/inflammation. However, what is unique about a fistula is the type of problem it is. Since a fistula is lined with epithelial tissue, the body does not necessarily view it as something that needs healing, but... [ more ]
DaveInNorCal Will sitting on a heating pad promote healing of a fissure? [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Perianal scouring
IE Irish Eyes 2
n/a My CR surgeon and her assistant recommended to first pat some convatec stomahesive protective powder over the entire area (use a cotton ball), and then apply protective cream on top of that (they recommended calmoseptine, but use whatever's your favorite). The powder is healing, the cream is both healing and protective. Keep it on all day: after every BM, before bed, etc. A bidet or squirt bottle rather than TP helps immensely, too. Like you, I had irritation and cracks, but I've been... [ more ]
nocolon-2000 My skins has been much better and very few fissures since I started taking a probiotic. [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
New j pouch...struggling
RM Randi M
nocolon-2000 It gets better. It gets better. It gets better! Part of what you are feeling as "full" is probably irritation of straining and/or healing. As far as skin irritation/butt burn. Get in the shower with a nice hot spray (hose, if possible) and spray directly into gently spread checks. Gently pat dry. Apply ointment (Calmoseptine is awesome!). No gas pains??!! I am so jealous! I had horrible gas pains and had to do the Lamaze breathing while standing VERY still. It will get better. Really. In time. [ more ]
Irish Eyes 2 Hi there this is very normal but if I may, try not to strain so much as u will literaly exhaust the muscles down below, just let gravity do its job and this will assist you in passing the stool you see at the moment your body will try to pass the stool and gas at the same time the trick is to try to gauge which is which this will take some time but evetually you will be able to tell the difference. Heres is a technique that I figured out, try this lie on you back ok and bring your kness up... [ more ]
Holly M Hey there Randi: It will get better. The BB is bad and that is why I chose to get the bidet. It really helps alot. No wiping and it dries you. Very helpful.If you don't have a bidet try a squirt bottle then take a baby wipe and just dap at your tush so you don't irritate it further. Then put on some good butt cream, you may have to try a few before you find what works for you. For me I use Prep. H ointment. I had small accidents too before I could make it to the bathroom. To really empty my... [ more ]
See all 5 replies...
J-Pouch ForumsGeneral Discussion
complicated surgery needed... Dr Dietz
LU LisaTX USA
Former Member Lisa, I have not had your complications but I feel like I know Dr Dietz. He performed a subtotal colectomy with ileorectal anastomosis on me in July 2005 for colon cancer at age 29. He operated on me on a day he had set originally for academic issues. He is an excellent surgeon; realistic, yet optimistic. Excellent bedside manner. Recommended which surgery he would perform with phrases like "if it was someone in my family, i would want .." He saved my life and I fully trust his surgical... [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
HYDRATION!!!
J Judy1
BrittanyKay Great ideas everyone! Thanks [ more ]
Tommy pb I spike my water with nuun. It's a tablet that u drop into your water for electrolytes. Most vitamin nutrition stores have it. Works very well for just basic hydration or work outs. [ more ]
vanessavy Ice tea actually dehydrates if it has caffeine. Have to double up on water if you do tea, same with coffee. Just wanted to share this. FIT TIP: Make your own vitamin water. Add fruits instead of sugar for a natural sweetener for your H20. Cut the fruit into paper-thin slices or small chunks. Combine ingredients with water. Refrigerate 4-6 hours and serve over ice. So delicious and very refreshing! [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Post takedown
C Cate87
mgmt10 I had gas cramping for a few weeks after takedown. It was more bothersome than painful. Being that you were just released from the hospital for an obstruction I would say this is normal. As long as you aren't in any large amount of pain. If that happens, then you should call your doc. Feel better soon. [ more ]
Former Member I havent had my takedown yet but I just wanted to say I hope you feel better soon. I am sure someone will be along shortly with some support. I am sure your thrilled to be home! Good Luck!! [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Is a fistula a one way street
D dawn58
Jan Dollar It can go either way. It all depends on the pressure gradient, and it flows from high to low. Gravity matters, as does the pressure within each organ at either end of the fistula. If the fistula communicates with the skin, that is where the pressure is the lowest, so it always leaks out of the skin, instead of the other way. I doubt one is better than another. I guess the worst is if your bladder or urethra connects to your pouch, as that leads to chronic urinary tract infections. There is... [ more ]
Lorsall I have been wondering this exact same thing, and was wondering if it is possible to have a fistula and not know it- no pain or anything. [ more ]
See all 2 replies...

Join Us!

Founder, Creative Director & Web Master

William J. Johnson
bjohnson@j-pouch.org

Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

Forum moderator and advisor
Jan Dollar R.N.

 

 

 

 

General Disclaimer

 

This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.


Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).

Confidentiality

Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.

 

CCFA

The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100


National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440    800-343-3637

 

Join Now

Already a member? Sign In

Online Now

Copyright © 2019 The J-Pouch Group. All rights reserved.

Membership Required

We're sorry. You must be signed in to continue. Sign In or Register
×
Are you sure you want to remove from your Block List?
×
Loading...
×
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .
×
Link copied to your clipboard.
×