Roso good to hear that others that are in my "class" are doing well also! [ more ]
Laurie49Hi Holly! It's great to hear that you are feeling better and obviously don't agree with mindset of having to go through "misery day after day". Glad to hear things are looking up! [ more ]
georgiegirlhi Holly I am also 4 months from takedown and doing great - I'm so glad you others are too! [ more ]
n/aOh yea - I remember how terribly lousy I felt after my 2nd (out of 3) surgeries as well. And I remember being unable to stand up straight for weeks. However, you will start having better days before too long. In the meanwhile, keep hydrating. Keep resting. And when it's possible, take short walks, even if it's just to the mailbox and back. Hang in there, keep posting and let us know how you're doing -- [ more ]
Laurie49Chasingtime -- you are so new to this process. Although I know it feels like forever...you have a way to go in terms of healing and feeling better. Your body has been through hell. Again, you may be adjusting to a new normal, but it will be a better one that what you suffered with before. I've had my pouch since 1996 and it took quite a bit of time to adjust -- but, it's all been worth it. On a scale of 1 to 10, I am at a definite 10,99% of the time. Good luck and keep coming here with... [ more ]
Laurie49Dgo Day please explain why you are here -- again? You have stated, ad nauseum, all over the internet how this place is 'worse than hell' and that the veterans here are 'worse than the devil himself', and that all we do is "lie". You're right, this is America and a great deal of us feel beyond blessed to have had access to this surgery because it saved our lives! You are certainly not the only person who doesn't like their j-pouch, however -- you are the ONLY one who has been banned over and... [ more ]
TE MarieRoberta, I hope you can get back into your yoga soon. I have horrible foot problems that range from pain to numbness and hot to freezing. I've been to 5 doctors and through all the testing including and MRI or my right foot the consensus is the foot doctor says it's caused by fibromyalgia and the rheumy says it's not caused by fibro. I can't do the poses anymore. I should get my CD out and try to do the poses that I can that do not involve my feet but that doesn't leave me too many. When my... [ more ]
RLCThank you toughenough for the words of encouragement. You are right, I have made baby steps to getting better. Still not fast enough for me. When you have no control over your future anymore, it is difficult to grasp. As far as meds for anxiety/depression I am against them for myself. However, if someone needs them then by all means make sure you have a great doctor. I have learned through yoga and life's experiences on how to deal. The only thing I am having trouble with is dealing w/pain. [ more ]
Linda2Jennifer I am sorry to hear that you went through so much without support from family. It is hard for others to understand and I found that in my family as well. The labelling is the worst! We are people first and not a label! Yes, you are right that Medical Professionals seem to just keep adding the labels instead of taking the time to listen to their patients without judging then trying to fix us based on their misconceptions. I had trouble getting a Medical Professional to recognize I had... [ more ]
Guesti have my second appt with an amazing psychologist tomorrow. he has been through 2 bouts of cancer and deals with incontenance and is so uplifting. thank you for all your suggestions. i believe getting the bag off will do wonders as it weighs very heavy on my mind. especially the loop... [ more ]
SpookyYes, I definitely echo what Marianne said. My mood improved considerably as I began to feel physically better and was able to start doing things I had done before I got sick. Basically, my mood "healed" as my body did. But I understand needing to get over the hump. The adjustment period is tough and I truly believe that our minds have to heal along with our bodies. Have you considered therapy? It might be worthwhile to speak to a therapist who has experience dealing with chronic illness. If... [ more ]
Guestim like you. i really do not want drugs in me if i can help it and if it affects my pouch like it seemed to trial and error is out. im trying to use my mind and family to help but were not in our home state and feel isolated. my mom n dad came to keep me company til my wife can be home every day. were moving home approx 3 weeks after takedown. florida to ny and im concerned about flying with new j-pouch (accidents etc) but i need so bad to be there ill wear a diaper if necessary... [ more ]
TE MarieI don't know but think I've read people talking about the same thing and it was fissures. Did you know you can do a search on here to find past posts on a subject you are researching. I find it very helpful in the wee hours of the morning. Go to the top left hand side of the tool bar and select the magnifying glass with the "find". You can then put in the words you are looking for. I'm glad you are getting relief from the prep H so you can at least sleep some. If you find out what was... [ more ]
Kline84Thanks for the replays! Well the burning pretty much went away with the use of preparation H and bland thickening foods like bananas so maybe something I ate had a little more pepper in in than usual. Still having the uncomfortable irritated but not painful feeling every now and then. Seems like it happens when it's really hot out and I'm sweating a lot. Other than that the preparation h makes everything pretty comfortable. Thinking I may have a fissure though cause some of the bowel... [ more ]
notsotoughI had a very similar set of symptoms- the throbbing type pain. It also improved on sitting or lying very still. Eventually a stricture was diagnosed and after dilatation I really felt much more comfortable. I still had pouchitis but the discomfort was very different and never throbbed. The first examining doctor said it felt fine but the second said it was tight and crucially the examiantion provoked the same type of pain - examination is obviously never particularly comfortable but think... [ more ]
Blake D.Thanks guys for the advice. I ate half a bowl of tomato soup, a can of tuna (yuck), a little bit of a chicken breast, and a Greek yogurt today. I did not have many problems. Still have gas pains and sharts, but decreasing in frequency thank God! Don't want to ruin all my underwear. [ more ]
liz11might want to avoid so much sugar as sometimes causes lots of gas/bloating - like the pudding cups. for protein - scrambled eggs, greek yogurt, plain white cooked chicken, cheese, peanut butter [ more ]
mgmt10I couldn't eat tomato sauce for a couple of months...maybe longer. It killed me. I'm fine with it now. You really have to take it easy with food right now. I know it's tough when you're hungry but otherwise you will pay dearly as you just found out! Hang in there...it gets better. [ more ]
vstRNI would definitely switch surgeons and move. Although takedown is the easiest of surgeries, it (at least for me) can be very emotionally taxing. Family support would be a huge advantage during this time. Good luck with your decision! [ more ]
JWMIIIHi Chasingtime...I agree with Suebear that if you want another surgeon, ask the Cleveland Clinic in Florida to provide a recommendation. They have a good network of colorectal surgeons who were either Cleveland Clinic or Mayo Clinic trained. I am from Philadelphia but had to go to the Cleveland Clinic in Florida (Dr. Wexner or as the nurses call him...God) for my colectomy, J-Pouch and takedown. They had recommendations for me at Temple and UPenn here in Philly for any emergency follow-ups,... [ more ]
Guesti think i can from my surgeon. only downfall is wearing this bag a few more months. either way im in a pickle. thank you guys so much... [ more ]
TE MarieI've read and saved many articles and had not come across this one. Thanks for posting it. [ more ]
SubzeromamboThe study was based on people being treated for anxiety and/or depression before surgery but I still think your point is valid. Fighting pain tires the immune system and opens us up to more problems. Had a bizarre blockage on Monday and I had not even had anything to eat. Blockage has passed but the pain is still there. I am trying not to be down but it is hard. [ more ]
skn69There have been similar studies on pain...anxious or depressed people complain more of chronic post op or post surgical pain...which leads me to believe that pain causes depression and anxiety and so does pouchitis! Sharon [ more ]
Guestthank you guys so much. i will definitely walk because i dont like being inside to much. makes me feel trapped. the loop ileo is making me feel trapped as well. way worst than the end ileo. the bladder and butt side effects came on day 2 of celexa so i dont think ill need to wean but thanks for the advice. i agree and also do not like or feel good on meds. its been that way forever... [ more ]
TE MariePlease call your doctor or pharmicist about how to wean off of it. I've tried antidepressants before that gave me side effects too. If you want to try something else there are many others out there. Maybe once you quit taking it you will decide you don't need anything. [ more ]
skn69Chasingtime, The only non-medicinal remedy that I have ever found that helped me (I don't, personally, like meds and don't like what I feel like on them) so I use exercise to control my moods and feelings post op..since I can't run anymore (never really could) I walk miles with an MP3 full of music that I have collected and that makes me feel good...I walk about an hour a day, most days, and it does wonders, I feel stronger, more at peace and it tires me out sufficiently to help me sleep... [ more ]
georgiegirlthe main thing is to stick to food that doesn't leave stringy balls of fibre such as raw vegetables and citrus fruit etc. Otherwise eat what you have an appetite for - your body knows what it needs. Oh and keep up the fluids and salty things until everything settles down. [ more ]
beckysmomGood for you and best wishes! My daughter followed a low fiber diet, under 3 grams on fiber content. At first soups, pudding, yogurt, protein shakes. Chicken breast, lean ground hamburger, ground chicken, fish (low fiber like flounder) No vegetables at first and then only well cooked ones later. Mashed potatoes then later white rice. White bread. You can always google low fiber. Take care. [ more ]
Linda2Sorry to hear of your loss Jan! Glad to hear you are going to go out and have a break from it all! Blessings to your family as you grieve and I hope the good memories of your step-mom will bring peace to you and family in the years to come. [ more ]
RLCSorry for your loss! I hope you get to enjoy your anniversary! Roberta [ more ]
skn69My sincerest condolences Jan...I understand how you feel. Sharon [ more ]
GuestI understand how annoying that is. Gas is one of the many reasons I'm sorry I got a pouch. The only times I've been lucky at getting rid of it is during bowel movements or sometimes when I'm laying on my back. Otherwise it's sure not like the old days when this never happened to me. And gas is one of the main reasons I can never, ever, get enough (censored word) sleep!!!!!!! [ more ]
CeeeeCeeeeWhile sitting on the toilet I have coughed very hard several times and voila.....out comes the gas.....explosive-style! [ more ]
skn69Bend, stretch, twist, turn...do yoga...I know of no other way to untrap the wind then to mechanically turn the pouch through movement...you will eventually find the positions that work best for you and your pouch...some people have success laying on their tummies with a pillow under their abdomens, others on their sides on the bed (be ware of other stuff coming out with the wind!)... and of couse massaging your tummy can sometimes help. Sharon [ more ]
AllyKatChinese vegetables are a killer for me as well! [ more ]
Epic ScotsmanA few weeks ago I had a mushroom & swiss burger (the best type of burger!) for the first time since the surgeries and I was so happy when it all went through fine (and came out fine). It seems my body was purpose built to eat everything, even with certain parts missing. [ more ]
mgmt10I have had mushrooms a few times now and I always worry. I really love them though, especially portabella mushrooms. They haven't caused an obstruction but they always get stuck at the "exit". I strain and strain and then they finally pop out looking just like they did going in like Spooky said. I usually just stay away from them. That is the only food I worry about for myself. [ more ]
TE MarieIt is good to be skeptical when making this huge decision. I had conscious sedation over 14 years and saw my colon sick and then bounce back. I knew what it looked like inside. During my last test I saw that part of my colon was BLACK and dead inside. The rest of it didn't look well either and my GI took around 30 biopsies. I didn't have any polyps, just one ugly mess of a colon. I'd been in the flare from hell for 6 months. My GI set up for a CTscan 2 days later. When I had my follow up... [ more ]
DisneynutI'm sorry Dog Day and vstRN, I didn't read your whole stories, but were yours emergency surgeries? Where were your surgeries done? I know the success rate is much higher when it isn't emergency surgery and when done by an experienced surgeon. She needs to make her decision based on comparing apples to apples. I hope I didn't offend, because I feel very bad for your situations. [ more ]
vstRNI would try the fecal transplant and worms in a second (and I'm a vegetarian too)! I'm pretty fresh out of surgeries but I really really wish I had waited on this and exhausted more options. It does sound like you are emotionally ready for this and I think it is wonderful that you are confident you want this done. I made the decision because I was scared, felt guilty and was just so emotionally beaten down from a 2 week stay on a med/surg floor with horrendous room mates. When my kids would... [ more ]
vanessavyI had no signs of rectal cancer when I had it. So that is scary to really think about. [ more ]
SpookyThe last time I had one was 2.5 years ago. At that time the surgeon said there wasn't really a need for them if I wasn't having problems. It's considered an invasive procedure. BUT I know that thoughts on this are always changing. I no longer see my surgeon, but I've been referred to a new GI so I'm hoping that he'll do one. I'll certainly ask about it at the appointment. [ more ]
Tan LondonThank you for the extensive and informative reply. I don't seem to be having any symptoms of potential rectum cancer (blood, diarrhea, etc) but generally feel someone has stuck something up my butt! Anyway, what if it is cancer, what do they do? Remove the rectum and close the pouch and back to ileostomy? Also I had a W or S pouch.. don't know if that makes any difference. Tan [ more ]
SubzeromamboThank you for the reminder. I just located our local team. I cannot wait to meet people face to face. Our next meeting is Saturday. I don't know if all teams do this but we have weekly training with a physical therapist and a physical trainer. These people are paid for by a local hospital and fitness club. If we meet our fund raising goals, which appear very reasonable, our travel and hotel expenses are paid for. Is this just a local deal or does the Long Island Team do this too? [ more ]
CTBarristerThere is a parallel thread on this topic and I think the thinking may be changing on the frequency of pouchoscopies due to an emerging concern about rectal cuff cancer as further mentioned in this thread: http://j-pouch.org/eve/forums/...1071921/m/1587012226 [ more ]
jeaneI think somewhere around every 3 years is the benchmark unless you had cancer, low or high grade dysplasia prior to surgery and/or a history of cuffitis since takedown. In the latter case, you should be going annually for scopes and biopsies. I go annually as I had an indefinite diagnosis for low grade dysplasia on my colectomy pathology and cuffitis on and off since takedown. I would, however, be very happy to only go every 3 years as a pouchoscopy with biopsies is an invasive procedure... [ more ]
mgmt10I had my surgery two years ago too with regular check ups like you. I just had my first scope of the pouch done in July. My surgeon told me to see him again in one year. The pouch should be scoped at least every two years to make sure all is okay. [ more ]
ActiveUC'erEep, sorry about the need for additional surgeries. I just booked at the Guest House yesterday (well, for my family and me for prep night and maybe a day or two) and now I'm a bit worried! My mom will be the one staying in town while I'm in the hospital and I think she was more comfortable with the concept of staying on campus as opposed to dealing with traffic, night time traveling, etc. Note - she is from a really small town! Also, they just opened up a Doubletree Tudor Arms (newly... [ more ]
liz11more butt wound issues... and some female junk that seems to have arisen since the jpouch removal surgery. fun fun fun. But at least I have the best docs on it!!! Thanks so much for asking. [ more ]
Guestlizz11, what tests are you going in for? everything ok? [ more ]
liz11maximus- I had my surgery done in march and am still not back to work. But I had tons of complications which hopefully you won't experience. I too, like Gmarie am dealing with rectal wound issues and have had to have multiple EUAs including an upcoming one for that. just remember, regardless of how long you are out of work, once you are healed.. you are done done done!!! [ more ]
gmarie1208Good luck. I had my surgery done at the end of June and I have no idea when I will go back to work. I had lots of complications and now having some rectal wound issues. This surgery at least for me was way harder than the pouch creation. Make sure you have someone in the hopital with you I could not have gotten though it without my sainted mother there. You will be in my prayers. [ more ]
JillMI went back 4 weeks post op. part time for 2 weeks then full time. [ more ]
JenniferGIm about to try it... it seems to be the only way I can lose wait. I am insulin resistant so carbs / sugar really stick! [ more ]
skn69I have a k pouch and have lived on a high protien/low carb diet for the last 25yrs...in my case it helps things 'flow' through my kpouch and out my tube...Which may Not be what a j pouchers is looking for! I like it because it keeps things thin, not thick! Sharon [ more ]
vanessavyPaleo is better. Atkins basically ripped the paleo diet off anyway. So many recipes online to follow for it. [ more ]
Jpouch8888Insurance often covers VSL#3 DS. You will need to call and be VERY CLEAR to them that is DS. If they say no, ask to speak to a supervisor for verification. [ more ]
georgiegirlPersonally I didn't mind the end ileostomy I had first - it was such a relief not to have UC. The loop was a different story, leaks, skin breakdown and hyperactivity at most bag changes. I am thrilled with my Jpouch but then it is functioning well and I feel healthy now.I did feel self conscious with the bag especially during summer - this summer am looking forward to getting in my bathing suit and swimming again (I know they say you can swim with an ileostomy but I didn't want to). However... [ more ]
RLCI, too, feel the same with dukee11. I had a takedown 4/30/2012 and this j pouch is like having UC all over again. I have contractions/pain when going and go anywhere from 4 - 15 times a day. Is that normal at this time? I have been on a picc line (nutrition) since June 20th. I am down to every other day. Running mild fever 100.4 that comes and goes and they still can't figure out why. Waiting to see GI in Sept. hopefully, she can shed some light on this very dark tunnel. Still waiting for it... [ more ]
skn69There is always the K pouch or BRIR as an alternative to either end ileos or unhappy j pouches...it is still a pouch but one that has an abdominal stoma and a much lower incidence of pouchitis and problems other than an somewhat and occasionnaly fragile valve. If you do not want an ileo for whatever reason (skin breakdown, esthetics, personal reasons etc) and you have a very discontented j pouch that makes your life miserable then please look into what a k pouch is or PM me and I will give... [ more ]
ju330Thanks for the response... I actually feel a lot better today, no fever, and have only gone to the bathroom once so far (which is normal for me- once or twice in the morning, and not again until late afternoon/early evening.) I'll see how the rest of the day goes... [ more ]
CTBarristerIt sounds like pouchitis to me. I have never actually gotten a fever, but all the other symptoms I do get. If you get a scrip for cipro and/or flagyl it should make you feel better within a few days. [ more ]
mgmt10Yep, like Sharon said...we took out the carpet in my sons bedroom and put in hard wood floors. He has a Honeywell hepa filter air cleaner in his room and then downstairs too. This has helped A LOT. [ more ]
skn69Manuel, Do not forget the mechanical advantages of lifestyle change too...you may have to pull up the carpets and put down a non-fiberous flooring like parquet or other linolium type flooring, pull down the curtains and put up blinds and switch the fabric sofas for leather...I had to do all of that and more but for now, a have a vacume cleaner with a HEPA filter system that I can wash and dry (no more vacume cleaner bag) and an antiacharian matress cover and quilt...I also air out my bed and... [ more ]
Manuel J.Thanks to you both, you are calming me. Antihistamines sound real good! I look forward to seeing a doc about it. [ more ]
JJAKJeane- Do you have a bidet? I suffered with what the docs always diagnosed as chronic cuffitis for years-canasa did nothing, and they'd only prescribe the steroid suppositories on occasion or for short term use, so I just learned to live with it. Since I got my bidet (which has pretty high water pressure, and I use it to really squirt water up in there a couple times a day (biobidet i3000, $200 on ebay), I almost never have cuffitis issues anymore. When I have had Fissures, they have been a... [ more ]
jeaneLiz and Nancy...thank you for the encouragement. This has been a very long year and I was hopefully optimistic by the end of it things would turn around. The only way I am really able to function is on 875 X 2 of augmentin and have needed canasa pretty much constantly this entire year which really does not work well for me. I am 49 and wondering what years on this med (let alone all the prior years on UC meds) will do to me down the road. Today is my fourth day back at the full dose of... [ more ]
liz11kjeane- Sorry to hear you are still suffering so much. My thoughts are with you as you work through this big decision. Have you considered a diverting ileo? It may buy you time to get your head around the idea of a permanant one and its not a big surgery. As a new permanant ileostomate.. want to let you know that I lifted weights, did a pilates class, went swimming today, and ate a ton of great food- includng ice cream! All of which I couldn't have done with my jpouch intact. We are all here... [ more ]
CTBarristerYes, Michael is right on. The big picture strategy is that it's usually only an issue if you make it an issue. Women are attracted to men who have self confidence and you start raising red flags if you bring up health issues regardless of what they may be. Frequency of bowel movements is only an issue if it gets noticed. If it gets noticed, I already posted about how to handle that. The real question is not your health, it is what you bring to the table in terms of your personality, your... [ more ]
Michael HubbardI can also atest to these stories. I met my wife about a year after my take down procedure and it was a non-issue when we were dating. It's now been 5 years and we have a 2 1/2 year old son. The increased frequency was no big deal. Once we moved in together and it became serious explaining the whole "potential leaks" at night wasn't a big deal either. I don't wear Depends, I only wear pads, but either way it wouldn't be a big deal. Just take your time with it and be positive and honest. I... [ more ]
CeeeeCeeeeFor me there was no comparison between my output while having a temp. ileostomy and my experience with my J-pouch fully connected and functional. I was worried because I had tremendous output...liquidy...while living with my ileostomy. [ more ]
mgmt10In my case I had a very uncooperative ileo. It ran like a faucet all day and night. It was a loop ileo so that's why. I was worried that the same would happen after takedown but it was total opposite. The output was much slower. Expect to be going to the bathroom a lot immediately after takedown while your body adjusts to its new plumbing. I was going about 10-12x a day right after takedown. Then in a couple of weeks it slowed to 8x then a couple of more weeks I was down to 4-6x a day and... [ more ]
TE MarieThat's a hard question to answer. During my last flex pouch scope the doctor told me my pouch was well constructed and a good size. He said when I was over my cuffitis I should only have to go 4-5 times a day. It depends on your anatomy and the skill of your surgeon along with what you eat. I'm still having problems and my take down was almost 29 months ago. Other's are fine and go right back to work after a normal recovery time. [ more ]
jeaneI am sure others with a fistula may have more advice for you as although I have had my share of issues, a fistula has not been one of them ( not sure I would be able to hanle one more issue). I would do exactly what you are doing in that I would exhaust all medical possibilities before agreeing to the surgery. Best of luck. [ more ]
akteacherSorry the post was confusing. Posted it just after getting the news regarding possibility of losing pouch....very upsetting! I have had my pouch since 1996 & with the exception of the bowel obstructions & the fistula repair, I have had no major problems. I have since heard back from the GI dr. He said there is a complex fistula between the pouch & top of the vagina. He suggests going back to CC to have it dealt with. As my husband will be meeting me there from Alaska, I can't... [ more ]
jeaneI am confused by your post and maybe if you provide more information others can offer advice. If you have inflammation has anyone determined what may be causing it like pouchitis or cuffitis? Do they know if you have a perforation based upon your scans? Do you know what caused the prior fistula? Have you had other tests like a pouchoscopy versus scans to see if there is inflammation in your pouch? I never like the answer that they cannot help you when they have not determined the root cause... [ more ]
Former MemberI am going to see my doctor on Tuesday and i am going to ask him why the s-pouch and not the j-pouch. [ more ]
mgmt10I am wondering why an s pouch? They generally do not do them anymore because the j pouch is a much better design. Did your surgeon give you an explanation as to why he wants to give you an s pouch? Takedown just means the final surgery when they reverse the ileostomy and hook up your new plumbing. It sounds like everything you are experiencing is normal post op stuff. You should start feeling better with each passing day. [ more ]
ActiveUC'erOk. Just curious. I ran across an article recently (not the one I posted) and was shocked that it said that the drug had actually been developed FOR UC itself. [ more ]
Chris MActiveUC'er... Sorry but he didn't say wha the name was, or I totally missed it. Even if I heard the name I don't think that it would ring a bell.... sorry [ more ]
ActiveUC'erJust curious...does this drug sound like the one he was talking about? It's called Tofacitinib http://online.wsj.com/article/...20120815-713454.html [ more ]
ActiveUC'erI've been on it for 3 years and never noticed that problem. The only time I've noticed that problem was when I had a UTI. [ more ]
Guestmy surgeons on call doctor just called back and said no need to stop but i have another question. have you had any problems urinating? feels like i have to pee all the time but dont go easily... [ more ]
Guestmy surgeons on call doctor just called back and said no need to stop but i have another question. have you had any problems urinating? feels like i have to pee all the time but dont go easily... [ more ]
SpookyFirst thing that came to mind was a fistula, but it could also be an abcess. Either way, it's good you've made the appointment and I hope you can get it sorted out! [ more ]
Former MemberCyst? Fistula? Those all come to mind. Make sure you soak the area, that will draw anything remaining out, Epsom salts are good for keeping it clean too. [ more ]
Dave TexHi Vanessavy. Although gross, it erupted this morning. White goop then blood then nothing. Happened while cleaning after bm. Ouch! Got tp and squeezed just a bit, that is when it really squirted. Lump still there but, smaller. [ more ]
vstRNI've had some luck sitting on a chair with my knees pulled up to my chest. Kind of annoying but it works sometimes. [ more ]
GuestTracy this problem isn't "stupid" as much as it's annoying. I understand what you're going through. About the only time I've been able to pass gas while standing on 2 legs has been by accident, such as when I'm really active. In those rare cases the gas is released without me even trying to pass gas. Otherwise, the best you can do is try to keep away from foods that produce gas. I understand how that's like walking thru a minefield too when you have a J Pouch. I'm sorry if you've heard that... [ more ]
GuestTracy this problem isn't "stupid" as much as it's annoying. I understand what you're going through. About the only time I've been able to pass gas while standing on 2 legs has been by accident, such as when I'm really active. In those rare cases the gas is released without me even trying to pass gas. Otherwise, the best you can do is try to keep away from foods that produce gas. I understand how that's like walking thru a minefield too when you have a J Pouch. I'm sorry if you've heard that... [ more ]
liz11rachey. seems like that might be something your surgeon should check out. Any fluid buildup like that could be infectious. I had fluid buildups and abscesses draining and more abscesses bursting after my last surgery. It was so serious they got an infectious disease doctor involved. Just sayin.. might be something your surgeon should take a look at. [ more ]
Former MemberI have fluid build-up right now and its just coming out through my staples on my wound site. The home healthcare nurse said its not a concerning color and its normal after surgery. It was very painful when it popped but she said it should go away on its own. [ more ]
blufnger03I had fluid buildup after my 1st surgery. It actually ended up popping on its own, although it was really painful and drained for like 2 weeks. They discovered it through ultrasound. [ more ]
BethieI think the keeping dry thing is probably a huge help - she has the creams, does take nice hot baths and hopefully she will learn to manage the amount of movements as well as the tushy burn! [ more ]
JenniferGohhh ya, baths are great especially in the first few months when its hard to get relief! [ more ]
Jpouch8888Sitz-Bath with very warm, almost hot water. Or a hot bath! Works wonders. [ more ]
After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.
Forum moderator and advisor Jan Dollar R.N.
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