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J-Pouch ForumsOstomy & Skin
excision surgery
P Pouch2021
Mary2017 Oh that's amazing!! I am happy you gained 12 needed pounds. I love how you said needed lol. Be careful with working out with your ostomy, working out can cause issues like hernias so be careful. I use a ostomy belt at all times. I love the wrap idea you mentioned So happy your well dear!! Why did you have to get your pouch excised? [ more ]
n/a Hi - I had my jpouch removed in '18 (1 year after it had been disconnected). I posted my experience with the removal at the Cleveland Clinic, if you'd like to take a look at it. https://www.j-pouch.org/topic/...al-date-and-time-set . The Cleveland Clinic team was just great. I did travel about 2-1/2 hrs to have the removal done there, and while travelling did have its inconveniences, I felt the Clinic was well worth the trips. I'm doing well with my end ileostomy, it's so nice to feel good... [ more ]
Mikah the Bike Lover ❤️
See all 10 replies...
J-Pouch ForumsOstomy & Skin
J-Pouch Issues - At what point did you decide to go back and get a permanent ostomy?
Mikah the Bike LoverMikah the Bike Lover
CJR Caty, Thank you for sharing your story & experience. I am in a similar situation and symptoms. J pouch was fine until last few years, but now never out the loo, pain and lost a load of weight, restricted diet....I miss all food so much. Time to make a series decision. God bless you [ more ]
Mary2017 So happy to hear that! Thank-you! And your welcome! Anytime! [ more ]
Kushami ❤️
See all 31 replies...
J-Pouch ForumsOstomy & Skin
Pain at former stoma site
T TCM
Former Member I still get pain at my former stoma site as well. I think its the scar tissue. [ more ]
James112002 I have had my pouch since 2001. Intermittently have had discomfort at the old stoma site, but nothing significant, always went away Currently, it is happening more frequently and the discomfort is more pronounced. Feels like stool getting stuck in that area (I am guessing) Would love to kmow if anyone else could speak to this. Thanks! [ more ]
TCM Thank you. That helps. [ more ]
See all 6 replies...
J-Pouch ForumsOstomy & Skin
Anal skin breakdown and butt burn
B Brad9481
Jgrant Hi, I know I’m very late to this discussion, but I’ve had a lot of bile salt diarrhea, and the pain is indescribable. I had my ileoanal anastomosis in the 1980’s and just recently found a product that works incredibly well. It’s made by Medline, and it’s called Olivamine Calazime skin protectant paste. You can find it online. I got mine from a colorectal surgeon when I was having trouble with fissures brought about by a combination of SIBO and retrograde cricopharyngeal disorder (I can’t... [ more ]
ElizaB Thank you for your prompt reply. I will start it today...fingers crossed it helps out because I am at the end of my rope with this recent episode! [ more ]
suterd I use on top of each other in the morning before work if I am running late. I try to use the ketoconazole first normally and wait about half hour and then the triamcinolone...it is thicker. Then head off to work. In evening I do ketoconazole when I return home and the other before bed. So I try and do some space between. Hope it works for you. Unless I am having lots of issues, it works. Went to dermatologist when the surgeon was horrified about my butt. But even with occasional issues,... [ more ]
See all 18 replies...
J-Pouch ForumsOstomy & Skin
Blockages
MysticobraMysticobra
LORI726 Hello! I agree that blockages are horrible. Many of my blockages have occurred post op, but I did have a partial blockage a few years ago with my ileostomy. I don’t remember what I ate (which is surprising) but I guess I haven’t eaten it again! The only other advice I can give is to apply a heating pad. I think I read that somewhere online. Not sure if it helped or not but I will try anything to avoid the dreaded NG tube. I completely understand where you are coming from with the no more... [ more ]
Mysticobra Thanks all. I'm still being careful. Just a small update. No biggie. Still sore. I would only guess only four days out of the block it's still healing or shock. I am leaning toward shock only because it sounds better. Healing means damage. Trying to be light about the situation while still being serious in paying attention to it. Have a good day to anyone reading this. Richard. [ more ]
Mysticobra That is part of what I needed to know. Just part Thank you. The rest I'll find out through a gastro Dr probably a mri first Second. If they don't see anything probably a scope. Never had my small intestine scoped through the stoma. Not worried about that. Plenty of scopes the other way. Lol. Reason as I may have said. That I'm going through the process of getting a new gastro Dr is to ask questions and probably procedures. I like everyone else here have been through so many Dr appointments... [ more ]
See all 12 replies...
J-Pouch ForumsOstomy & Skin
Need Suggestions
Y ytcrockpot
Laura Fogelman Convatec is a great company and their nurses are very helpful, supportive and willing to send samples to patients [ more ]
Laura Fogelman The only thing I can think of that might help is to wear a surgical glove when trying to cut her appliance. I have a K-Pouch and use a catheter. I also have arthritis in my hands but if I remember to down a glove it does give me some extra support. I hope this helps. Laura [ more ]
n/a How nice of you to reach out for your friend. I might suggest looking into moldable wafers. I also have arthritis in my thumbs (having surgery for it in a few weeks), and have found that the convatec moldables are SO much easier on my hands, and easier to shape/fit around my weirdly shape stoma than cutting. You can get samples by calling convatec and discussing with one of their nurses. Let me know if you need their number and I'll dig it out for you. [ more ]
See all 3 replies...
J-Pouch ForumsOstomy & Skin
How fast do you have to fix a leak?
K Kushami
Mysticobra Old post. Sorry you can't change as quickly as you'd want to. I wear a convetec wafer that has white tape. I notice a leak immediately. It hits the white tape and gives me time to get ready to change. I have waited to see how long it takes to actually hit the edge of the white tape. Doesn't take long. 20+ minutes. I would hope by now you may have it figured out. The more or longer you have an ileo the quicker you get at changing it. As said above. Changing more often when you feel you can do... [ more ]
DMC If you normally change every 4 days. Try every 3 days. Don't push your ware time. Good luck [ more ]
See all 2 replies...
J-Pouch ForumsOstomy & Skin
Donated.
MysticobraMysticobra
Mysticobra Mods. Could you please delete this thread. I will find a place to donate them. Thank you. Richard. [ more ]
Mysticobra I'll give it a few days. And see if the little town here has a shelter. If not I'll use the link above. Someone can use them. Maybe not here. But somewhere. Richard. [ more ]
n/a That's kind of you, Richard. If you get no takers, another option is FOW: https://www.fowusa.org/ . I've sent my extras out to them in the past, they are legit. Hope all's well! [ more ]
See all 5 replies...
J-Pouch ForumsOstomy & Skin
White sores on stoma
K Kimmiebee84
PouchLogic You probably should not be taking asprin. [ more ]
Kimmiebee84 Could aspirin cause these? I have been taking it for headaches lately, because (let's be honest) Tylenol is like taking skittles. I get chronic headaches, and I am finding that my migraine medicine is causing more of them. If you somebody could reply regarding this I would really appreciate it! [ more ]
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J-Pouch ForumsOstomy & Skin
Loop ileostomy
K Kushami
New577 Hi, I never understood how this could be physically possible. When I had my loop my surgeon stapled shut the bottom limb leading to the jpouch and anus. Although I had mucous discharge for the 13 weeks of the osteomy, there was no stool. [ more ]
Kushami Thank you. I just couldn’t seem to find an answer by searching on this one. [ more ]
Former Member ❤️
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J-Pouch ForumsOstomy & Skin
Flying and illeostomy
heverhever
JanW2 Hi Jan 15, I have had the Blue card , but doesn’t make a difference and also TSA pre approval , they do have to be careful, guess even with us old folks haha. But , it’s just a bit of a Cranky World now. Some people are in the wrong jobs. I’m traveling alone in January and reminding myself to deep breath already. Am I just nuts? And still the COVID issues!! But very happy to be as I am today. You stay safe and enjoy the Holidays Jan [ more ]
jan15 I have a K pouch and not only got patted down, but pulled aside to show off my stoma. This despite explaining my situation in great detail. BTW I am in my 70s. I said something rude to the TSA person, which wasn't necessary but they really treated me terribly and was about to miss my flight. I would love a letter or card that I could show. It doesn't help that four major joints are replaced so I trigger the alarm. [ more ]
Former Member ❤️
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J-Pouch ForumsOstomy & Skin
ostomy output after jpouch?
J jlc
dlewicki I’m assuming from what I’ve read that it varies depending on the person. I’m 5 weeks out from my takedown as of tomorrow and my stool has been anywhere from very soft but formed to mashed potato-ish. Depending on what I eat/time of day. Metamucil has helped form things up and can help expand the pouch but it won’t necessarily slow down activity like Imodium would. [ more ]
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J-Pouch ForumsOstomy & Skin
One piece or two piece systems?
J Jmitch
Kushami ❤️
Kristin-in-Calgary I've used both 1-piece and 2-piece and found reasons to like them both. It's harder to center the flange of a 1-piece since you have to look through a little window, but once it's on, I like that the bag can't fall off, as it occasionally and catastrophically does with some 2-pieces. I also like the lower profile, meaning a 1-piece doesn't stick out from your abdomen as far. However, I have had to keep trying new systems to find one that works and am currently back to a 2-piece that is... [ more ]
TE Marie I found one piece systems work best. I personally don't like filters so don't have them in the bag. I empty gas from the bottom. Richard is right. I prefer clear bags on the front as it helps when changing. I use a convex wafer and have tried about every brand. Start out with what the stoma nurse sets you up with. I also changed it myself at the hospital so I was good with it when I went home. I hope all goes well. [ more ]
See all 4 replies...
J-Pouch ForumsOstomy & Skin
Ileostomy recommended
LoriBLoriB
Kushami ❤️
Kristin-in-Calgary I, too, opted for a permanent ileostomy after 7 years of j-pouch hell, with constant pouchitis, cramping, pain, and general misery. I've done much better since I got my ileostomy. I was diagnosed with Crohn's a few years after my IAP surgery. The same thing you're describing above happens to me sometimes. I describe it as telescoping out, but I think the medical term is prolapsing . Mention it to your ET nurse, surgeon, and/or gastroenterologist when you see them and they can let you know if... [ more ]
fisherdan I chose a permanent ileostomy after 14 years of hell with a jpouch! I was in constant pain and cramping and trips to the bathroom! I exhausted all use of medication to bring into remission my Chrohn's! Now 3 months after surgery, I am 80% pain free and though i still struggle with blistering around stoma, the issue now is that suddenly my stoma has about tripled in length! This does not bother me but I wonder if this is normal! It did stick out maybe a 1/2 inch and suddenly a week ago I... [ more ]
See all 4 replies...
J-Pouch ForumsOstomy & Skin
Multiple Stoma Sites
FM Former Member
Kushami ❤️
n/a If you go back to an ileostomy, an ostomy nurse will evaluate your stomach and help you determine what might be the best location for your stoma. I personally have had 4 stomas, and they've all been in the same site: #1 was an end ileo in '93 for colectomy; #2 was a loop ileo for jpouch; #3 in '17 was an end ileo when my jpouch was disconnected; and #4 in '18 when the stoma was unexpectedly revised during jpouch removal surgery, due to "kinking" behind it. Like you mentioned, the stoma is in... [ more ]
Randybw1 I'm no help here, I've had one on my right side and now my permanent one on the left side. There has to be someone that's had this done. [ more ]
See all 2 replies...
J-Pouch ForumsOstomy & Skin
Anal skin irritation
E Eniak1980
Former Member I find as a guy the travel bidet with the small angled spout is best .I also find the travel bidets are easier to clean as they do get splash on them and you can put warm water in them and that feels great I also bought a one size fits all toilet seat bidet that didn't fit and I don't know how easy to keep them clean .the travel bidet is easy clean,warm water if you don't have an electrician and cheap [ more ]
Nancita @Chook- I ordered my sudocrem from Walmart (I’m in Seattle Washington - USA) under $12 and delivered in 3 days! Active ingredient is zinc oxide w/ some lanolin. Very nice but honestly you could buy the zinc and add lanolin and make it your self. But I’ll use it. Very mild effective and smells nice. On to water cleansing 💦 To further reduce butt burn. I now use water! For those who can’t add a bidet to their toilet, like me, I recommend Tushy’s travel Bidet! I bought a Pink one and it’s... [ more ]
Tony DeLorenzo Dear Eniak1980, We have identical medical issues. I'm always dealing with anal skin irritation. I've found that the best (non-irritating) wipes are Target's Fragrance-free. I take out about 25 at a time rinse them in warm water and ring-out any remaining chemicals. I've tried every wipe on the market and these are the best. After using the softest toilet paper that I can find, then I use the moist wipes, and then let it dry for a couple of minutes, and then cover the irritated area with... [ more ]
See all 21 replies...
J-Pouch ForumsOstomy & Skin
Parastomal Hernia
F Fosty
TE Marie Sorry Frosty, I just noticed your post. Maybe you need a second opinion. Good doctors do not care if you get one. I had my surgery at Mayo's by the surgeon that removed my j-pouch. She had to go through mesh and scar tissue/adhesions of which she worked on. She worked longer on my adhesions than she did on the hernias. I bet she is tired if seeing my guts! 4th surgery she's done. I wouldn't want to move my ileo to the other side either 😣 I am so sorry you are going through this. Does your... [ more ]
Former Member Sorry to hear about your suffering, where do you think your hernia came from? Doing specific exercises or extensive stuff??? [ more ]
Fosty Hi there! Sorry so long for reply. I had the surgery Jan 8th but unable to do laparoscopic or mesh do to scar tissue. Hernia is back ugh and worse. Saw surgeon and trying another with just mesh on top. She said could go 50/50. The only other is moving stoma to the other side which is much more major surgery she said. How are you doing and have you had many hernias and know anything about changing to the other side? Hope you’re doing well. Lynn [ more ]
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J-Pouch ForumsOstomy & Skin
Is it rude to let your bag show
A Andreita
Former Member When I had my ostomy, I stood proud with it, I did not cover it because I was proud of it and i did not like covering it because it made me keep track of when to empty it. BE YOU [ more ]
Former Member When I had my ostomy, I stood proud with it, I did not cover it because I was proud of it and i did not like covering it because it made me keep track of when to empty it. BE YOU [ more ]
n/a Ya, I wouldn't call it "rude" - I'm pretty sure I've "flashed" now and again, but I don't believe people watch my front side that closely to even see it [ more ]
See all 8 replies...
J-Pouch ForumsOstomy & Skin
Fat bellies and iliostomy
E egk
Bubba1028 They have a bunch of stuff you can get to help with the seal, if that’s what you’re worried about. I had my ostomy site near my belly button which made it difficult bc of the curve of the stoma site. Similar to if you had a curvy mid section. I told my doc that it was hard to get a good deal and she suggested this putty stuff that I could order Through the ostomy company- sorry, I don’t remember the name. It helped a lot. It was pliable at first but I used a hairdryer when changing the bag... [ more ]
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J-Pouch ForumsOstomy & Skin
Temporary Stoma/Ostomy
S SJAN810
SJAN810 TE Marie, Thanks for responding! Sorry to hear you have dealt with similar issues. I'm wondering what you mean by a permanent ileostomy? How is it permanent if the plan is to temporarily divert from the j-pouch and go back to using the j-pouch? What's the difference between this one and the temporary one? I'm confused. Is it an end ileostomy where they disconnect the end of the small bowel from the j-pouch to use for the stoma and then reconnect it later? Thanks! [ more ]
TE Marie Did you discuss getting a perm ileo instead of a temp one? I had a permanent ileostomy while being diverted from my j-pouch. My surgeon spent 3 hours while in there lysing my adheasions/scar tissue. She did all this laparoscopic. I really didn't want a temp one as I had horrible problems too. Later on I did need to have my j-pouch removed as my pouch problems didn't go away. But shoot you don't have any of the problems I had. I take that back I had IPS too. I would ask if s/he is going to... [ more ]
SJAN810 JHendrix, Thank you for your input. I’ve only been communicating with my doctor over email since August and will probably have to wait until I see him in person to get a better explanation. My appointment in August led to several tests, most had normal results, ruling out inflammation, Crohn’s disease, pouchitis, strictures, etc. The last test I had done indicated that I have IBS. I had an appointment scheduled to follow up with my doctor about all of this but I’ve had to reschedule several... [ more ]
See all 9 replies...
J-Pouch ForumsOstomy & Skin
High B12
n/an/a
n/a No doc ever prescribed supplements - they have never shown an interest in vitamins/supplementation. However, my PCP just recommended I increase my Vit. D to 5000 IU/day. He didn't think the elevated B12 would be a problem, since apparently the body gets rid of excess B12, which I don't understand - if my blood levels show a high level, apparently I'm not getting rid of the excess? I feel a little uneasy about the elevated B12, and am hoping it's just an anomaly for some of us who are missing... [ more ]
Bubba1028 Interesting, usually people have low B12. You say you’re on supplements- did the doc suggest that previously? Was it low before? Sorry I don’t have any insight. I’m curious what others have to say, though. [ more ]
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J-Pouch ForumsOstomy & Skin
Testimony, questions, it's been a while!!
P phonix2g
phonix2g @n/a Thanks! God Bless! [ more ]
n/a So glad to hear you are recovered and doing well. I had my dormant jpouch for a year while disconnected. I had some serious, unexpected and uncontrolled discharge as well - mine happened during the day, typically. While waiting for pouch removal, I was given Keflex in an attempt to help control the discharge. Keflex did help a bit, but I still discharged every day. After removal of the pouch, the discharge was gone, outside of a small amt. through a small opening the surgeon left for... [ more ]
See all 2 replies...
J-Pouch ForumsOstomy & Skin
Confused! end ileo or barbie butt?
J Jayda
LORI726 So glad it is over Jayda! It sounds like everyone or almost everyone goes thru some sort of post op problem but you sound like you’re definitely on the right track! Hope you continue to enjoy your new buttless life!! [ more ]
Mysticobra Yes. Unfortunately the weight will find you. And it will go where you don't want it if you are lazy like me. Lol. I was down to skin and bone. I was skinny to begin with all my life. But then it went to the extreme. (128 pounds). I lost 50 pounds. I looked like death walking. Felt like it too. That's all in the past. Now I'm back up but still short of my normal weight and being a male it's all where it should not be. I should work out. But I did bring up that I'm lazy. Richard. [ more ]
TE Marie I'm jealous as my Barbie Butt was painful for months! I had to sit on heavy duty medical air butt cushions when driving too. Sorry you had to go thru all that other stuff as if the surgery wasn't hard enough on you. Don't worry, the weight will find you [ more ]
See all 14 replies...
J-Pouch ForumsOstomy & Skin
Feeling blocked
F Fosty
Lambiepie It might help to get into certain poses - cat/cow while on hands and knees, spinal twists while sitting down. It might help move things along. I hope you’re feeling better by now. [ more ]
maddie18 Get yourself Super Enzymes by Now. [ more ]
JHendrix How is it going now? Hopefully things didn't block. Sometimes when I feel that pain around the stoma I massage all around it. I'm not sure if it really helps but it seems like it helps to push things through that might otherwise get stuck behind the stoma. [ more ]
See all 3 replies...
J-Pouch ForumsOstomy & Skin
J pouch gone, hello Barbie butt
LORI726LORI726
1993SPouch ❤️
Randybw1 ❤️
Jayda I’m happy to hear that there’s no infection!!!!! Not happy about the mucus - I bet that’s what mine has been doing too. LOL I am only getting 1-2 day wear time because of leaks but it doesn’t look like output leak. It looked like a crazy amount of puss but then also a light brown/reddish colour that’s hard to explain. I have been so confused. I bet it’s doing something similar (at least in one spot that’s always been trouble). re hospitals - I have tried numerous times to change to somewhere... [ more ]
See all 17 replies...
J-Pouch ForumsOstomy & Skin
Swimming in ocean or pool?
J Jmitch
Cinder23 I have a 1 piece hollister and I’ve had it submerged for 6 hours in a lake. No water in no poop out. Also been in hot tubs and hot springs with it. I just change it after. I can’t speak about the 2 piece though. I don’t cover it but to each their own. Maybe just a tight T-shirt or something? [ more ]
See 1 reply...
J-Pouch ForumsOstomy & Skin
Ileostomy location, surgery next week
J Jmitch
TE Marie Thanks JenJen, I might have you beat in number of surgeries. My husband told me to have them put in a zipper. I hate wearing that 6" wide elastic belt so really appreciate you sharing your doctor's guidance. It really bothers me as I have fibromyalgia and most bras bother me too. My surgeon didn't tell me to wear it and I do think the nurses fit me for it in order to keep the appliance on longer. I have been wearing it for a few hours after I put on a new bag. It is worth that time because... [ more ]
JenJen TE Marie, I am sorry to hear about your need for a hernia surgery. I had one 5 years ago -- after 3 colon (j-pouch) surgeries in the 5 years preceding it and before a k-pouch surgery 2 years later. The surgeon repaired both a large, post surgical, midline and a small stoma hernia using a "component separation" technique and "biologic mesh" (pig tissue.) I will tell you what I remember my doc (McIntosh, who was highly recommended as the best hernia surgeon in Metro Detroit and the mid-west)... [ more ]
TE Marie Thanks N/A, I'll check out that group. I'm in several FB groups but have been off of there for a while. My stoma was revised during the removal of my j-pouch too. I was diverted for 6 months before the removal. Hopefully the third time is a charm! [ more ]
See all 15 replies...
J-Pouch ForumsOstomy & Skin
Finally ditching the j pouch
LORI726LORI726
Kushami ❤️
Saff Hi Wendy, I second Richards sentiments, I’ve just had the surgery 4 mths ago and I was terrified for a few years before doing it, but it’s worked out fine, it was also my easiest surgery to recover from. I think once I decided to finally do it and make a commitment it was easier, so I hope you feel some relief having made a decision. Now hopefully you can do your best to be well for the surgery and have all your questions answered as well as possible before hand. And take time to recover and... [ more ]
WendyNemec Thank you everyone! It's good to hear that life after a J-pouch removal sounds promising. Bill, I hadn't heard about the BCIR. Thank you! I have been reading everything I can on it. I go to Florida often, so the trip wouldn't be such a hardship if my insurance pays for the surgery and stay. I know I am also mentally and physically so drained and want...need... to do something. This group was a savior for me back when I had my J-pouch surgery done and I am so glad that it is here for me again. [ more ]
See all 29 replies...
J-Pouch ForumsOstomy & Skin
heat
M Momma
n/a Heat hasn't upset my barrier too much, but when I get itchy under the tape part of it, I squirt a tiny bit of nasacort on my fingers, wipe it around the itchy area, and continue with my normal barrier application. I usually do this maybe twice a month. I picked up this tip on another ostomy site, and it works great for me. I checked 1st with my dermatologist who said it wasn't a fungal or yeast thing. Maybe your son could run this idea by his ostomy nurse or dermatologist? [ more ]
PouchLogic I found after having a jpouch I don't tolerate the heat as well as I used to in general. [ more ]
See all 2 replies...
J-Pouch ForumsOstomy & Skin
Skin irritation around stoma
R Raj
Art Te used a beeswax ring for awhile and tried various mounts;; sometimes the small pimple red itch but only having a stoma for about a year during the 3 gook u my J pouch surgeriesa ral red purple irriationkind of like dead exosed to the air flesh developed this was when my surgeon not my GI doctor recommended the Collagel seaweed tape and some form of seaweed based crème which worked very well and calmed the irritation down.....still had to go for fourth surgery due to the stoma herniating... [ more ]
TE Marie Good news - things have improved. Is the itching under the whole appliance or limited to around the stoma? If it's just around the stoma have you ever tried using something like a ring or paste around the stoma under the appliance? [ more ]
woodstock69 So to update, Coloplast are by far superior, the new sensura mio flip has few barrier areas and is soft compared to other convex, I also use their sensura convex both still cause some itching but I am starting to think it is the acid from food somehow. [ more ]
See all 20 replies...
J-Pouch ForumsOstomy & Skin
Jpouch removal - prep?
n/an/a
n/a Ya, my surgeon said there was a lot of "jpouch junk" in there as well. Even though I hadn't eaten for 12 hrs prior, and thought I had pooped myself out clean beforehand! [ more ]
woodstock69 No prep, I just had mine removed but I will say the dr said there was alot of junk tangled in the scar tissue, maybe there should have been something to clean me out? Surgery took 6 hours. [ more ]
n/a Whew, thanks guys. One less worry! [ more ]
See all 8 replies...
J-Pouch ForumsOstomy & Skin
Can an ileostomy fail?
K Kushami
woodstock69 The biggest problem would be short bowel syndrome if you have had alot of small intestine used. [ more ]
BillV Fortunately, there are two procedures available for those with failed J pouches and problem ileostomies. These are the K pouch and the BCIR. There is a lot of information available on the internet and both have a high success rate and degree of satisfaction by those who have them. These procedures do not require having an external bag with its associated issues and the stoma is button hole in size and located 2-3 inches lower than the stoma for a conventional ileostomy. As with any major... [ more ]
Kushami I did read of someone (maybe on this board?) who originally had a stoma created, but his/her skin reacted so adversely to the bag/adhesives and became so irritated that a j-pouch was the only option. I wonder what would happen to someone with a failed pouch who then couldn't tolerate a stoma? Must be very rare. [ more ]
See all 6 replies...

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Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

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When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .
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