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J-Pouch ForumsWomen's Health & Pregnancy
Healthy diet
C ColoradoCarrie
Mika Hi, I'm new here, so thank you for having me, I think from reading the posts, that the one thing we all have in common (beside the pouch is lack of guidance regarding diet. I have had my pouch for the last 16 years( since the age of 16) and it took a lot of time and painful attempts to find out what works and what not. For me it is a lot like GinLyn, no cabbage, no passion fruit or other things with rough grains, certain greens. As for things that help get through the day if it is a problem... [ more ]
skn69 Wow Rachel, Your diet sounds almost exactly like mine and I have a k pouch! I guess that having a narrowed exit would mimic the same challenges that k pouchers deal with getting anything to flow out of a tube. I do really well with a hand held blender most days...the stuff that is really problematic but I love gets thrown in with a little fluid or juice and blended down to a smoothie...things like pineapple and other mega fiberous fruits and certain salads that get turned into gaspacho (cold... [ more ]
rachelraven I ate everything for the first 20-ish years, apart from Portobella mushrooms (had a terrible event with one in 2000; never again). Last 3 years, specifically, I have to be more careful. My outlet gets a bit narrow, so hard to digest things are bad for me. I definitely avoid most nuts (for me, almonds are the WORST), seeds, corn, peas, mushrooms, quinoa (woah, THAT was an experience - glommed up into a horrid ball, I could barely get it out, flew out after I nearly stroked bearing down to get... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
?pouchitis tx during pregnancy
roxzroxz
Mrs. H. I had pouchitis later in my pregnancy too (for the last 5 weeks). I've never had pouchitis where I've bled until getting it when I was pregnant. My doctor put me on cipro and flagyl. Those worked as long as I was on them, but once I went off of them, the urgency and bleeding came back. I was induced a couple days after my due date and immediately all of the symptoms disappeared. Things will get much better after your little person stops putting pressure on your pouch. All the best with... [ more ]
clz81 I was on Augmentin my entire pregnancy and while nursing. Flagyl is also ok to take in your 2nd and 3rd trimester. Don't worry...many women get pouchitis while pregnant. [ more ]
roxz I should also mention I am 35 weeks tomorrow. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Has anyone experienced pouch cramping due to baby's position/ kicking?
A Ali_Johnson
Ali_Johnson Thanks for your response! I guess that's exactly how I would describes them...lol. Well it's good to know I'm not alone. Thanks again! [ more ]
Breezie I had constant "butt cramps" during pregnancy; constant . Unpleasant, painful, disruptive. Sadly, the only thing that helped was the arrival of my son, who arrived six weeks early. I hope things are different for you; every pregnancy is different. If not, console yourself with the thought that it will soon be in the past once that baby is in your arms. Good luck! [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Feeling Baby Move after Surgeries
kaitlinmckaylakaitlinmckayla
Good to be healthy With my first before surgery 24 weeks. With my second post surgery I thought I could feel my very active kicker 13 weeks along my scars. I also had a csection scar from the first [ more ]
babygoose I'm 25 weeks now with my 2nd and felt him move around 17 weeks. I had my first before surgery and felt her around the same time. [ more ]
jodiloveslife You will definitely know! Felt mine around 16 weeks. Congrats too!! [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Breastfed baby stool
K ksmarisa
ksmarisa Thanks so much! I do letdown I to a towel... Oversupply is a bit better with blocked feeding... Stools are still a shade of green but otherwise she seems fine. Any thoughts on VSL 3 during breastfeeding? I take it twice/ day. That would effect color would it! I'm going crazy trying to figure out. Thanks so much the reply! [ more ]
clz81 Sorry you are struggling. This would be my suggestion at this point. Since you have an oversupply issue, before nursing, I would pump off the foremilk for a minute or so and then start nursing or pump a full bottle from one side ensuring a good amount of hindmilk. This way you can test the foremilk/hindmilk theory. After a couple days of this, you would see a difference if that was the problem. It's a good start. I too had oversupply issues and always let the foremilk milk run into a towel... [ more ]
ksmarisa Thanks so much for the replies. The green stools have continued. The little streaks of blood are most likely due to a fissure which was confirmed by the pedi today. The oversupply has continued and am at a loss at this point. Feeling pretty discouraged. I have been off dairy for almost 3 months now, don't eat wheat or soy... Gonna try not eating nuts for a week and see if there are any improvements... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
RV fistula and burping type air coming out of vagina
C clouseau
AllyS237 I have had a similar experience - it didn't start happening until about 3 years post J-pouch. I notice that it only occurs occasionally when I have to empty the pouch. I mentioned it to my GYN because I was worried about a RV fistula. She took a look and said everything looks good. So maybe it just happens to some people without having a fistula and occurs from things shifting in the pelvis? I'm not sure but thought I would share my story! [ more ]
GinLyn Yup, had this all the time with my R/V fistula, sometimes quite embarrassingly.... Gin [ more ]
Pluot I have the same experience as JHendrix. My GYN tells me that a lot of her patients who have had children report the same thing, as pregnancy can shift the contents of the pelvis and changes the shape of the vagina. As long as there's no fecal leakage through the vagina (which would be frank leakage or indicated by pain, bacterial vaginosis, etc) it's most likely nothing. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Living with fistula after takedown
D dawn58
GinLyn Hey, Dawn; I'm sorry to hear you're dealing with this! I'm currently fistula free but lived with an R/V fistula for 4 years. My doctor advised no tampons for exactly the reason C-jay outlined; holding fecal material in the vagina for any length of time is not good. For most of the 4 years I simply needed a liner, and many days that wasn't even dirtied. Toward the end I needed pads, but that was after complications had arisen. Sex is fine, but you might want to follow some precautions. [ more ]
dawn58 hi c-jay, I sent you a pm. [ more ]
CJB Dawn, I've lived with an RV fistula for almost 8 years now. But my pouch is almost 19 years old. I do wear a panty liner at all times and would actually discourage you from using tampons. If stool is leaking from your vagina, I wouldn't think it would be a good idea to have a tampon absorbing the stool and staying in there for hours at a time. I don't take antibiotics and have never got any type of infection. I am careful though to keep myself clean. My vagina does get irritated... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
How many people have had children also dx with IBD?
K ksmarisa
Jan Dollar I was diagnosed with pancolitis UC shortly before my 16th birthday. My husband, with left sided UC at age 45. I have two grown sons. The youngest developed sudden pancololitis at age 21. He was diagnosed within days of his first symptoms, quickly brought into remission with IV steroids, and has stayed in remission since with Colazal. My research indicates about a 15% lifetime risk with one parent with IBD, 35-50% when both parents have it. The familial link is much stonger with Crohn's than... [ more ]
rachelraven My dx was in 1982, age 11 years 5 months. Ulcerative colitis. Now I have other stuff going on, too. Not 100% sure it's Crohn's, they haven't labeled it as such yet. My daughter's dx was this February, age 11 years 8 months. Indeterminate colitis, but more likely Crohn's type. Eerie, no? Unlike me, she's had "hip" pain since about age 5, and it's now part of her IBD dx umbrella (sacroiliitis and enthesitis). I never had arthritis with my IBD. She also had Kawasaki's Disease (atypical) at age... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Birth Control
M mads101
Jaypea I was going to suggest the same thing as Pluot. There are low dose oral contraceptives that are safe to take for long stretches. I used Alesse and took them regularly so that I only had a period 4 times a year. You need to work with a physician or gynaecologist who know what they are doing and you are able to keep your lines of communication open. On an aside, I am wondering if you should be investigated for endometriosis? This could be a reason that your periods are so debilitating and... [ more ]
Pluot I have no problem absorbing the birth control pill with my pouch, and I take active pills continuously so I only have a period 2-3 times per year. My periods are really not that bad, even with the pouch, but I find it to be a big hassle (needing to change my tampon every time I have a BM) so I just prefer to skip it. It works well for me! [ more ]
clz81 My OBGYN has been pushing me for 3 years to start birth control to help with my periods. I have horrible periods that come every 21-24 days, last for 7 days, heavy bleeding, and horrible effects on the pouch. I've been reluctant though as I'm so tired of medications and on antibiotics all the time. She suggested the Nuva ring or whatever it's called. I'm still considering it, but it would likely make these issues much better. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Pregnant with my first. J-pouch surgery only 2 years ago. HELP
kaitlinmckaylakaitlinmckayla
kaitlinmckayla Unfortunately, my parents don't give a crap about me, so they dropped me off their insurance. But that would be nice. [ more ]
dawn58 As for insurance, you can be covered under your parents plan until the age of 26. [ more ]
LHetti Pregnancy is an exciting and scary time! Is all ok with your j-pouch? If so, I don't think you need to be anxious. The OB will handle all your prenatal care. In my case, I was at a regular OB and wasn't even considered high risk or anything. At some points in the pregnancy, I was having some issues with pouchitis and fistulas, so my surgeon had to handle those issues and medications, but the OB just handled the pregnancy. I too delivered in a new state, far away from my original surgeon. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
atypical glandular cells on pap smear
N nbm
skn69 Please do not ignore the advice and do those pap smears. Not sure of the number or percentages but pouchers have a higher rate of certain medical problems...if you took pred it is even higher. I tended to ignore requests for bloodwork and pap smears and then paid the price later when things got out of hand...so please be vigilant. Sharon [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Polycystic Ovarian Syndrome and ovarian cysts
G gela
skn69 Hi Gela, Don't know how old you are but... I had ovarian cysts while in my 30's...some rather large. They caused a lot of problems (have a k pouch so liquid stools were not a problem for me) including pain, swelling and pouch discomfort that resemble pouchitis, excruciating pain during sex... but I do not remember diarreah. That said, ovarian cysts wreak havoc on your hormones and cycle and that can cause incredible bowel problems. When the body releases certain hormones (around your period)... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Hysterectomy
R ratwoman75
skn69 Hi Ratwoman, I will answer what I did for KSR, I was polycystic, had salpangitis and various other girly problems...I refused the hysterectomy because I was young and still full of hope for kids but my surgeon told me that a hysterectomy would not be a problem for me (a k poucher) because they organize the organs on 'a shelf' in such a way that they all find their spot. I was worried about things shifting or collapsing but he said that they use mesh or sutures to keep them all in place. In... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
j-pouch and hysterectomy
ksrksr
skn69 Didn't have the hysterectomy but had multiple cysts removed from down there (way polycystic) and salpangitis...And the discussion about the hysterectomy with my surgeon. According to him it should not be a problem. I did have desending organs at one time and my surgeon 'put them all on a nice little shelf' as he put it...made for a nice image in my brain...kind of like a teapot and cups on a shelf! Told me that that is exactly what he would do for me if he had to do the hysterectomy. Not... [ more ]
ratwoman75 I have had both. No I haven't had any problems other then normal hysterectomy issues. The only thing I have problems with is that I can't absorb the pills I have to cut them or have the patch for estrogen. But other than that it went well. Just a long surgery because of surgery scar tissue. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Medicine while breastfeeding
lholdemlholdem
JJA In my early years with my pouch, if Flagyl didn't work on my pouchitis, cortenemas did the trick every time! But sounds like you have done good research-hope you can stay healthy enough to finish breastfeeding without issue! [ more ]
Clicky I breastfed my baby for 20 months - the entire time on Augmentin from day one until a month ago when I had to stop as I had my jpouch removed. Doctors said I had to take drugs and also that it was unlikely to cause any problems - he's been fine - fabulous actually! I also took it and keflex through the entire pregnancy. Good luck with your decision. [ more ]
lholdem Hey again. Thanks everyone for your helpful input. Here are my findings/conclusions: [LIST] Entocort is not available in an enema, and per my doctor, other steroid enemas are not very effective at treating pouchitis. I didn't *notice* any negative side effects of the entocort when I was taking it, except that I had to delay baby's shots. She just caught up on her newborn/2 month shots so I don't want to have to delay her 6 and 9 month shots if possible. Pediatrician said he was ok with two... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Pregnancy with j pouch, hernias, and not so great sphincter muscles
S sally85
sally85 Thanks so much lholdem, and i have so much respect for you going through pregnancy with a j pouch, your baby has a very strong mummy! xxx [ more ]
lholdem The leaking was definitely exacerbated by being pregnant. I am dealing with it a bit again as I have another bout of pouchitis, but nothing like when I was pregnant. It was like my pouch had no room to fill up so whenever I had gas or something coming in, it was really hard to keep a little leak from coming out :/ In general I felt way better right after delivering - even with the incision from the c-section. So good news, pregnancy didn't seem to "cause" issues; bad news, pregnancy made... [ more ]
sally85 Hi lholdem, awwwwww thanks for the comment, it is definently love, i cant get enough of the little things! lol Thanks for your reply also, its good to know the pouchitis was treatable, i think the nurse is very concerned with the sphinters and hernias, all the pressure on it all...did the leaks stop once you'd had baby or did it cause a more permenant problem? Thanks again, Sally xxx [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Large Ovarian Cysts PAINFUL
AnnieKAnnieK
AnnieK I have an appointment scheduled in Cleveland Clinic with Dr. Mona Orady. Anyone know her or of her? [ more ]
rachelraven Reguiero seems to be in the know with pouches. In fact, in some online searches, his name was tagged to some pouch research. I feel pretty ok with him; he seems awfully thorough. [ more ]
liz11 annie as a pittsburgh person myself... I might suggest that you go to Cleveland and at least get a consult. The colorectal surgery jpouch specialists ARE in Cleveland and they seem to work very well with their colleagues in other areas.. like gyn. and urogyn, etc.. In fact I have had a urogyn and cr surgeon together in the operating room for one of the many surgeries I had at CC. The reason I ended up at CC was because of prior cr surgery problems done by some pittsburgh cr surgeons... both... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Sore "down there"....
n/an/a
n/a I've had my jpouch 21 years and still don't know how to handle things at times. Very frustrated. The vag. end of things seems to be improving. However, the BB is very severe, as in covering a large area and extremely angry looking. I'm having doubts now as to whether it is fungal, as there is no itching, not too much burning, however, there is pain in the anal area where the seton comes out of, which is not typical for me. Haven't noticed any leakage or draining at that end, which adds to... [ more ]
Spooky Yes. I do occasionally experience itching/irritation on the outside of the vaginal area - this normally happens a few days before my period. I had this even before my UC days, so I don't think it's related. I have spoken to my OBGYN about it, and she said this is a common problem, usually caused by hormones or topical yeast (It's possible to have a yeast infection only on the outer area of the vagina, btw). She suggested an over-the-counter topical antifungal cream for when the itching is... [ more ]
skn69 I am at that age that almost all of my girlfriends are on it...and so far so good...no bad press...but that does not mean that you don't have to read up on the studies and make the decision yourself. I should try to get on it (or at least use the tube that I have got) if only for my future...they say that as you lose your esterogene things get thinner down there and can start to bleed so it is now reccomended even for those who are not sexually active. But I am in France and everyone is... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
How does a c-section compare to the BIG colon surgery?
linalina
lholdem C-Section was nuthin' compared to the colectomy. It was more on the level of the loop ileostomy take down. Sure, you have an incision to care for, but nothing like have your entire inside being cut up. The ONLY thing that was maybe remotely worse was being awake during the surgery prep! I got soooooo nervous since I didn't want to take any sedatives before the baby came. My OB assured me I would feel fine once I heard/saw the baby, which was totally true. I could have been cut in half and... [ more ]
ksr My incision for the c-section was vertical because I had 3 previous abdominal surgeries and was cut open 3 times vertically. My OB did not want to make an horizontal incision on me. I am not a good person to talk to about if the j-pouch or c-section was worse. I had horrible complications after both. I am fortunate I have a healthy daughter and that I am doing much better health wise. My stomach is now back to "normal". It took time though. [ more ]
Daisy18 My c-section was a piece of cake compared to the j-pouch surgeries! I was walking around that night and after 5 days felt normal again despite a little soreness. My stomach returned to normal. You just have to give it some time and exercise if you have time after you are allowed to :-) [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
I don't want to be infertile, how high are infertility changes after jpouch surgery
G gen1
gen1 @iholdem thats awesome, you were able to conceive right away i wish i would of known about fertility isues before surgery i would of totaly asked my surgean if that could of been posible protect my reproductive organs. I did havr it lapracopic I hope that made a difference. [ more ]
lholdem In my case, I think the active UC and meds were making me more infertile than the surgery did. I had a miscarriage and a year of trying with no luck pre-surgery. Post-surgery I got pregnant right away. (And I think I also had an excellent surgeon - he stitched up my ovaries kind of "out of the way" based on his theory they might evade scarring, and when I had my subsequent c-section my OB said she hardly saw any scarring.) Obviously fertility isn't that simplistic, but in my case I think... [ more ]
gen1 Oh wow u had jpouch then switched to perm ileo?Why? If u don't mind me asking. I just hole when I do try to conceive I don't have to go the ivf route because it's like 15grand ;( [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
37 weeks, worried about c-section and possible NG tube
Jodi BJodi B
ksr Congratulations! I am glad you had an "easy" delivery! [ more ]
Jodi B Update: On May 7thh I gave birth via c-section to a healthy 6 lb baby boy. Funny thing was I didnt even realize I was in labor lol. The night before I started getting cramping in my pouch which made me feel like I had to use teh restroom. This continued all night and in teh morning I jokingly timed the pouch cramping and was surprised to see that they were happening every 3 1/2 minutes and lasted 45 seconds each! I called and the doctor said to come in to be checked. I went to labor and... [ more ]
rachelraven Had one C section, never had an NGT or ileus with it. Did with the J pouch, though. C section was nothing like J pouch surgery. No complications here. They don't mess with your bowels much if at all with the C section, and bowels hate to be touched, which is one of the reasons they sometimes go into an ileus. I had a spinal. The effects of the spinal wear off pretty quickly, though. Should not be a cause of an ileus, as it's not systemic. Best advice is get up and start moving, quickly. I... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Pregnancy with Osteoporosis & Factor V
T twhit
twhit skn69 and Jan thank you both for your replies. I'm glad that I'm not crazy for wanting another baby. I will be talking with my obgyn and hematologist to see what they think as well. [ more ]
Jan Dollar No, you are not crazy! Personally, I don't think the risk of worsening your osteopenia with Lovenox is high enough to either avoid pregnancy or the anticoagulant. Talk this over with your OB/GYN (which I assume is high risk, based on your history). I think there is a way to carry this off AND retain your sanity! Jan [ more ]
skn69 Twhit, No, you are not crazy...just a mother. I cannot say anything about the rest but I can say that there are also alternative, homeopathic methods to help with the osteopenia that require no meds...probably less effecive but they do help. There have been a lot of studies on bone loss and exercise...what they have shown is that weight bearing exercises help build bone (lifting light weights, climbing stars while holding weight in your hands or in a back pack or weight belt), so does... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
10 weeks pregnant- iron supplements causing GI issues?
B Burrism1
apple Floradix liquid iron works very well without any side effects..! I get the gluten free one and I also squeeze fresh orange in the serving for added vitamin C(for best absorption). My levels went up in 4 weeks!!! This stuff is the BEST! Good luck [ more ]
vstRN I did really well with Floradix. You can find it in most health food stores. It's a liquid supplement though so with the nausea may be a little hard to get down (I don't mind the taste at all). It was the only thing that would get my levels up. [ more ]
LHetti I take ferrous gluconate because my hemotologist said that was the easiest form of iron to take. 28 mg on an empty stomach, taken with Vit C (I do the chewable Vit C). No issues, but I'm not pregnant with morning sickness. Best wishes! Laura [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
What on earth is going on with my body?
BebeksporBebekspor
Bebekspor Thank you very much! I appreciate the feedback. Katie [ more ]
LHetti I'm sorry for all the troubles! I agree with what's been said above- fistulas come because of disease, surgery complications, childbirth and to just wreak havoc for women and surgeons! You asked on the other page about Crohn's diagnosis...my diagnosis was changed because I had Crohn's like symptoms: fistulas, stricturing, and Crohn's of the cuff. They stopped calling it cuffitis because my rectal cuff had so much mucosal lining eaten away it was just beyond cuffitis in nature. Because of the... [ more ]
Bebekspor I posted a question on the 'rv fistula question' thread, but I should post it here too. My gynecologist found a 2mm hole in my perineal tissue upon a pelvic exam for the yeast infection issue. She directed me to my colorectal surgeon. Spoke to him, he said it could be possible Crohns (which I don't think I have), and that it shouldn't be from the surgery because it 'went perfectly'. He is going to see me on Sept 8th to look at it. So far I just have gas passing through it once every few... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Total body vibration
C Crystal<3
cmears ❤️
Jan Dollar Thanks for the description! I was envisioning those machines that have a big belt that goes around your butt and jiggles your fat at a fast oscillation rate that was popular in the 50's! Yes, this does sound like intense exercise. The work your body does to maintain balance is good whole body exercise, and this seems to really accelerate it. If your joints can handle it, your j-pouch should too. I know with my enteropathic arthritis, it would be a pain machine for me! So, I am not getting... [ more ]
skn69 I was told that they are great for bone density...but so is bouncing on a trampoline...anything that vibrates the skeleton apparently helps to build bone. I tried the power plate (the next big thing over here for the past 5yrs) a couple of times at an institue but never went back due to cost...I tried the occilating, vibrating plateform at a trade show last year (the newest next big thing) and ended up with a blocked sacroiliac for a month. The vibrations were fine but mixed with the... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
RV fistula question
K Kelsie
Bebekspor So yesterday my gynecologist found a little (2mm) hole near my perineum. I had previously spoken to my surgeon about passing gas through my vagina, and he said it could be a fistula and to keep an eye on it, to tell him ASAP if stool started coming from it. I'm going to see my surgeon on Sept 8th and I'm trying to be upbeat, though I am very nervous. What are the chances it'll heal itself? What should I ask him? Thank you, Katie [ more ]
jennym2 I also have a RV fistula. I started noticing the passing of gas through my vagina about this time last year and had some random leakage of stool. But it went away so i let it go. When it came back I went to my GI doctor and he said it was most likely a fistula. It was only my second time seeing him and he actually recommended i go back to Penn in Philly where i had my j-pouch. After a pouchoscopy, MRI and two EUA's they finally found mine. I had a draining seton put in, then they tried the... [ more ]
MicheladelfinaTX I developed an RV fistula just a couple of months after my first takedown. It started with gas pains that I would get in the middle of the night that I would have to contort myself into weird positions to release, and then when they did pass...it wasn't from the bum. Stool started passing through the fistula just a couple weeks later, though I had two exams and both my surgeon and an OB/GYN couldn't find anything. I was miserable and begged my surgeon to do an exam under anesthesia, which is... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Vaginal Delivery?
T Tiffany26
Karrine Congratulations. .. I have 4 children three born post takedown. My one piece of advice is once you are healed pay attention to the strength and health of your vaginal wall. I am going through surgery for a 3rd stage prolapsed bladder which has caused allot of renewed problems with my jpouch after 15 years so stay strong and do those kegals [ more ]
skn69 Congratulations! She is really beautiful. Wonderful news that your delivery went well too. Now, relax and enjoy your new family. sharon [ more ]
roxz Congrats Tiffany, I'm so glad to hear your delivery went well!! This makes it easier for me to try to go that route, I hate the thought of another surgery, I've had a c section before for twins and it stinks...hopefully I can deliver this time! Thanks for sharing! [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Pressure in vagina?
LaneyLoveLaneyLove
TE Marie I've heard a lot about pelvic floor therapy with Physical Therapists. I think maybe that might help you. Hopefully someone with experience will post! Did you ask your OBGYN about it? Maybe s/he could set you up with a PT. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Scheduled C Section?
P prairiegirl
prairiegirl Thanks everyone! I've also discovered that my hospital generally schedules them 10 days before the due date. But... I'm due January 4. 10 days prior to that is December 25. I don't know if my OB is around Christmas week, so I expect it will be either the week earlier or the week later. Hopefully the week later (Dec 29) as I'd prefer not to go before 38 weeks unless medically necessary. [ more ]
lholdem I was scheduled 5 days before my due date. I had started having intermittent contractions but not active labor. [ more ]
Clicky I was 37 weeks on the dot but was very sick with relentless pouchitis. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
IVF in August- any insight?
Allie86Allie86
JillM I was scared to death to do IVF, but it turned out to be a lot less traumatic than I was expecting. I found the injections were more of a nuisance than anything else. Worst part of the whole thing is the 2 week wait after you transfer your embie(s). I did three cycles and got pregnant first try all three times. First was a fresh cycle where we transferred 2 3 day embies. One implanted and he is now 8 1/2! I did a frozen cycle and did get pregnant but miscarried early. Second fresh cycle we... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Pregnancy with ostomy vs. pregnancy with J-pouch
K KRF2523
PoucherInTO I had my surgery when I was 15 years old - I'm 34 now. I found out last year when I started seeing a fertility specialist that I cannot have children. The pelvic dissection scarred my fallopian tubes (some women get use IVF to get around this) however early age and long term steroid use (amongst other meds that no one really had long term data on in the mid 90s) made my ovaries go into "protection" mode and when it was time to start considering stimulation for egg retrieval, I found out... [ more ]
luvmyupsman I thought I would chime in here. I am 33 years old. I had the three step surgeries five years ago between August and December of 2009. At that time I had two children - ages 1.5 and 3 (I had no issues conceiving them). No one told me at the time that stopping after the first surgery to have more children was an option. I wish I would have known and I would have done that. It seems that I am now unable to conceive. We haven't used any sort of protection for four years. I did see a fertility... [ more ]
JillM I had the opposite experience. 18 months of trying with no luck. We ended up with IVF and have two beautiful kids but it was a lot more involved for us. Are you close to wanting to have a baby? If it is in the next 1-3 years, then I'd probably recommend keeping the ostomy till you are done with kids. But if it is in the far off future, then you might want to go ahead now. Just be prepared that some of us DO have issues getting pregnant and think about what you might do if that happens? Are... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Please walk me through fertility treatment & IVF process.
skn69skn69
skn69 Congratulations Jill, Thanks for the info and encouragement all...will pass on the wisedom Sharon [ more ]
JillM Sana - three cycles here - 2 fresh and one frozen - got pregnant all three times. Carried first fresh to full term - Alex is now 8 1/2. Miscarried the frozen cycle. Carried second fresh to full term - Meghan is 6 next week! There is hope...I found the whole process a lot less overwhelming that I was fearing... [ more ]
JillM Generally, for IVF you take a stimulation drug to increase egg production. They monitor your ovaries around day 9 or so, and then you go back as often as needed until the follicles are the right size. Then you take a trigger injection which forces the body to ovulate and release the eggs. If this is done on Thursday, you would have the eggs retrieved on Saturday. If she is using donor eggs that are not frozen, then she would have to have her husband on call to go to the clinic when the donor... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
vaginal delivery
roxzroxz
roxz thanks Jan! I was hoping others on here may have delivered vaginally would love to know how their pouch handled it! [ more ]
Jan Dollar I would consider it as a trial labor, rather than a planned vaginal delivery. Overall, 1 out of 4 will still wind up with a c-section after a VBAC trial labor. The fact that you have had not had a prior vaginal delivery adds another layer of the unknown. Still, my thinking is that waiting for labor to begin on its own, ensures readiness for the baby to be born, regardless of the ultimate delivery method. Jan [ more ]
clz81 I did have a vaginal delivery, but it was my second pregnancy. We all felt comfortable with that decision based on my first delivery (pre-pouch) being so easy and the fact that I have small babies. I was very happy to be able to avoid surgery, however, I may have chosen the C-section if I hadn't already had a vaginal birth with an idea of what to expect. Tough decision! [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Recovery following c-section
M MrsC85
Daisy18 I had both an epidural and spinal because the obgyn wanted to make sure I was good and numb in case the section took a little longer than normal because of my pouch (It didn't, I think she was just being cautious). Just like Breezie, my GI system was shut down until the next morning and I too was able to walk around the same day of the c-section. You will be ok :-) [ more ]
Breezie I had both a spinal block and an epidural at the same time for my c-section, due to also having ankylosing spondylitis. The result was that they shut down my GI system for at least a day, probably the only day in all of the years that I had my j-pouch that I didn't poop at all, ha ha! The effects will wear off pretty quickly and you'll be up and around before you know it. My son was six weeks early and I was able to walk into the NICU to meet him a couple hours after the c-section. C-Section... [ more ]
LHetti Hi! I had a spinal with my first c-section and then an epidural with my second. I'm sure I had an accident in the recovery room, however, it was no big deal as I couldn't feel anything the nurse just fixed any issues. I refuse to use a bed pan, so I was up and using the bathroom later that day. You'll do great! Congratulations a little early! Best wishes for a very smooth delivery. [ more ]
See all 5 replies...
J-Pouch ForumsWomen's Health & Pregnancy
OBGYN-advice
S shk2j
rachelraven I became pregnant naturally once. I'd say try first (they generally need you to give nature a chance, first, before jumping to IVF stuff). I never needed IVF, but never conceived but one child. Had I had more, I would have needed it, as I'd had a large ovarian cyst removed the year after her birth, and he was a fertility specialist who, based on my innards, was surprised I'd even had ONE child naturally. I requested a C section to spare the sphincters. Many non-j pouchers have very increased... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Pregnant... @ 5 weeks post takedown. Help!!
C clouwho2
clouwho2 Jackster - My pouch/medical/pregnancy history isn't typical. I moved to Indiana 1 month prior to takedown last August. I then got pregnant 2 weeks after takedown (oops!). I was able to conceive without any effort at all. As for drs in Indiana...I was in Bloomington. I had a group of doctors there (not high-risk) watching me during pregnancy. I can't say they were my favorite, but they did the job while I was there. Most people I talking to there said to NOT deliver in Bloomington. As for... [ more ]
Jackster185 Clouwho2, What part of Indiana are you in, and did you find a good OBGYN? I'm in Indianapolis and 4 and a half years post takedown, but my husband and I are going to TTC and I want to make sure I find an OBGYN that is sensitive to my needs and my "abnormal" anatomy... Any help?? And hope your pregnancy is going well!! [ more ]
clouwho2 lholdem, My ostomy scar is still red from surgery and in what I would consider a healing phase. I had laproscopic surgery for the jpouch creation and I think my ostomy scar actually looks better than the scar from the jpouch. I don't think it has stretched yet but I anticipate it will. I have 16 incisions from various surgeries from my hips to my shoulders and most have healed very well to where they are almost unnoticeable. I would suggest - vitamin e oil. It does WONDERS for skin and... [ more ]
See all 10 replies...
J-Pouch ForumsWomen's Health & Pregnancy
Advice finding an OBGYN with experience!
J Jackster185
Alimiller That is very helpful.. I'm also in the same boat. Had my surgery in Ohio and live in ny.. I talked to a few maternal fetal specialize but no one around here ever delivered a jpouch c-section patient before. So it's a little scary when that time comes for me, and I'm 40 so I'm very concerned.. Thank you! [ more ]
rachelraven I started with high risk in my area, but I wasn't "High Risk" enough for them to be interested in me, so I left. I did not have a doctor who had ever had any J pouch patients do my C section (there are none here), but they knew my history. My surgeon wrote a note saying to give me a C section, rather than a vaginal delivery (High Risk was VERY adamant I have a V delivery, and I was NOT comfortable with that), and the new docs were fine with it. Had no issues whatsoever, we didn't even have a... [ more ]
See all 2 replies...
J-Pouch ForumsWomen's Health & Pregnancy
J-pouch, pregnant and diarrhea!
D Danishgirl
lholdem CONGRATULATIONS! So exciting. I am now just 10 days away from my delivery date - I also had a flare of symptoms during my pregnancy (including diarrhea the whole time... I wouldn't mind a little constipation). It took a while to diagnose for various reasons, but turns out it is pouchitis which is now being treated. My advice to you is get it checked out and treated as soon as possible. Because I let the pouchitis go too long, I had a lot of trouble gaining weight when I needed it. [ more ]
clz81 Doctors used to tell me when I had UC that with pregnancy, about 1/3 of people will experience positive effects, 1/3 negative effects, and 1/3 no change. That might go for the J-pouch as well. You are more susceptible to getting pouchitis and bowel obstructions when you are pregnant so keep that in mind. The surge in horomones SHOULD cause your digestion to slow, at least in the first trimester. Doesn't mean you'll experience that necessarily, but for me, I was down to going once or maybe... [ more ]
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Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

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