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J-Pouch ForumsGeneral Discussion
need to find a GI Doctor in MPLS/St. Paul
Furious PouchFurious Pouch
ytcrockpot Hi, I would contact the Mayo Clinic in Rochester MN and see if they could recommend a GI doc, since they are the ones that pioneered the j-pouch surgery and they are only approx 1-1/2hrs from Minneapolis. Im 39yrs with my pouch and live in Florida, I just contact the Mayo in Rochester to take a look at me since I’m experiencing similar issues. Good luck, hope you find someone [ more ]
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J-Pouch ForumsGeneral Discussion
Positive note
A Agc1979
skn69 Amazingly wonderful post...so positive and helpful, especially for those who are just starting out on their journey... Thank you for the post...it reminds us all that normal is possible. Sharon [ more ]
Dancing Girl Great post!!! Yeah!!! I have had a J pouch for about 13 or 14 years. I do have some issues and am about to write a post about it... but in response to what you said.. yes yes yes.. my life is 180% better than from when I was suffering from Ulcerative Colitis!!! Oh my goodness!!! I am grateful this surgery existed and was perfected... it was not around when I was first diagnosed in 1976 at 18 years old...and I had many many years of suffering between 1976 and 14 years ago.. I am now 61 years... [ more ]
Kangaroo I love reading positive experiences with j pouches! I am almost 3 years since take-down and my j pouch has been a success. I don't have any food restrictions, I am always able to pass gas easily and safely, and I have never had pouchitis. The only 2 issues I had were nighttime incontinence and hemorrhoids. I solved the nighttime incontinence with 2 Imodium before bed, and I have the hemorrhoids under control by taking a daily bath with special bath salts by Better Bath Better Body. [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Hydrosalpinx laparoscopy surgery risk?
S Sdd5047
Janeuk CRAIGYS GIRL , I'm wondering how you got on with this operation, as it was a while back now. I have suspected hydrosalpinx after another failed round of IVF, and am waiting now for an MRI to find out whether this is indeed the case. Hope you are ok and everything went to plan! x [ more ]
Craigys girl Hi ladies SDD I just thought i would see how things are with you? I have had a major turnaround from my last post. I met my surgeon who has turned everything around for me and gave me massive hope and reassurance. He said there was no need at all to have open surgery and he is confident he can remove my left tube keyhole surgery, which i have the date of next week! He does not appear at all worried about my J-Pouch and said it will be easy! However now the time is coming closer i am... [ more ]
Sdd5047 I had my left tube tied off due to hydro. They decided to not remove due to risk of injuring other organs. It was done laparoscopic. In and out same day. About a two week recovery... Honestly worst part was waiting for my bowels to wake up after the anesthesia. We also had my colorectal surgeon on hand... Just in case. Currently trying to to get pregnant... Fingers crossed! [ more ]
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J-Pouch ForumsHelp! Need advice now!
Glaucoma monitoring/straining/Jpouch
DG Dancing Girl
melissa111 Plenty of people with colons sound like a trumpet too. I don't think that's a J pouch thing. [ more ]
Dancing Girl You are going to laugh at this.. last night, I tried to WHISTLE while sitting on the toilet. I was straining and I remembered a posting here in The J Pouch Group, so I tried to whistle. IT DID NOT WORK. I couldn't even WHISTLE while straining. So, this afternoon, I decided to write and mention that and I see you said to BLOW YOUR NOSE!!! HA HA!! That made me laugh. I remembered the wrong thing. Well, I think that's only the SECOND time in my history of having a J-pouch.. some 13 or 14... [ more ]
Former Member I don’t need to blow my nose to use the toilet; I just happened to blow my nose whilst using the toilet and in doing so, I noticed the effect on the J pouch [ more ]
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J-Pouch ForumsGeneral Discussion
Pouchoscopy prep
B Bubba1028
Former Member ❤️
Bubba1028 I think I just bought whatever was on the list of instructions. Maybe I’ll just use half the enema or whatever, argh. The doc said I could have a regular meal until dinner the day before so I did eat until 4 pm yesterday so I bet I still do have stuff left in there. They did say I could have water until 10am this morning since my procedure isn’t until 2pm. I’m only passing clear stuff at this moment so I think I’m good. [ more ]
CTBarrister If you did not cheat, you should be clear if you had only clear liquids after noon the day before the procedure and nothing by mouth after midnight the night before. My general rule is to do the last enema about 2 hours before the time I have to leave for the procedure. I implemented this rule due to years of experience with Fleet enemas and knowing when the last urge to vacate dribs and drabs will be. I tend to be a tad sensitive to the Fleet enemas in terms of sometimes cramping and having... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Chronic UTIs after surgery
K Kh1988
LtlBird Did you have ulcerative colitis? It is very common for those with that to also have interstitial cystitis which can mimic bladder infections. You should see urologist and have your bladder scoped to find out. There are things to help if this is the actual issue. [ more ]
Kh1988 Thanks so much, I’ll start implementing these things! [ more ]
skn69 Start with a run of probiotics, good quality taken in the mornings before eating or drinking anything else. Next, change soap. NO washing down there with normal shampoos, soaps or body wash...only detergent-free special PH balanced soap. Only cotton unddies, no baths and use a bidet if needed. I had constant UTIs until I changed Obs-gyn who gave me these rules...next UTI was about 10ys later. Yes, you may need to check with a nephrologist or a different urologist but these a baseline... [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Buttocks bleeding during period
M MCH
skn69 I have a k pouch (and yes, I have been menopaused for years) but during my periods I would always bleed from my stoma...at first it seemed like a coincidence but as years went by, I realized that it was just a biological fact of life. Your hormones control a whole lot more than just your periods...they control your whole digestive system as well, causing diarrhea or dumping if you are chronically constipated, they make things swell, your gums bleed (yup, those too) and other tissues as well. [ more ]
Andreita Whenever I remove ilex it will literally rip my skin off and make it bleed. Please be careful with it Also I wouldn't use the cup because I have a iud something to keep in mind if someone has an iud as it might pull it due to suction [ more ]
happytimes Ilex cream during times of great irritation works better for me than calmoseptine. [ more ]
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J-Pouch ForumsPouchitis
Pouchitis
B Bloesch88
Scott F Sounds like it’s not completely gone. Give your doctor a call. In addition to Cipro, now might be a great time to start on a strong Probiotic, such as Visbiome or VSL #3 DS. The prescription strength is sometimes covered by insurance, and unfortunately it is pricey. VSL kept me off antibiotics for a year or so, and I find it still helps. [ more ]
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J-Pouch ForumsGeneral Discussion
need advice
chili123chili123
Scott F Fortunately homeopathic medications are usually diluted so profoundly that the only remaining active ingredient of any consequence is fantasy. [ more ]
CTBarrister Why would someone eat raw marmot innards? In that part of the world (where strychnine comes from) it is also believed that health benefits can be derived from eating raw marmot kidney, although this couple found out otherwise: https://www.washingtonpost.com...en-they-died-plague/ [ more ]
chili123 Right.....I read about it. Why would someone take that? [ more ]
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J-Pouch ForumsGeneral Discussion
A couple of questions
JA Joey A
Scott F A sed rate of 45 is unlikely to be worth the anxiety you’ve already given it. The sed rate isn’t specific to any one thing. If it’s increasing significantly, or associated with symptoms of concern then it could be meaningful. It’s only cavalier if you’ve convinced yourself that it matters. One person’s “cavalier” is another person’s “reassuring.” [ more ]
Joey A When I asked the new GI about the elevated SED rate (45) , he said, "well, it's not 300." I just feel uneasy about his cavalier attitude. Thank you for the advise. [ more ]
PouchLogic I did go for 2 or 3 visits after surgery was done, then for 3 years I saw no one. I didn't want to have to travel so far to see my surgeon and everything was going well. Things changed, luckily I saw a GI Dr when I was admitted to emerg for a bowel obstruction and he continues to see me for pouchitis when I need to. [ more ]
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J-Pouch ForumsPouchitis
Rifaximin Xifaxan
D DJJ2019
Indiana Thanks I am on Cipro for now because they won't give me any other under PBS here unfortunately.... [ more ]
AllyKat Xifican was wonderful. I used it for almost 2 years. But I had to come off as I developed mouth trush. When I came out of remission my symptoms were worse than ever. Stay off the antibiotics and go straight to the bio drugs. 20 years fighting pouchitis, every med, 4 years in remission with Entyvio. [ more ]
Scott F Cipro alone worked great for me for quite a while - 6-7 years. [ more ]
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J-Pouch ForumsPouchitis
Entyvio
JB J Baru
AllyKat I was in remission after my loading doses. 4 years strong, every 8 weeks! [ more ]
J Baru Thanks for reply...are you discouraged to still have to take Imuran? Isn't one of the pluses of biologics is to get off other meds...fyi I took Imuran for years..it did keep me"normal" but not interested in longterm use...JB [ more ]
J Baru Thanks for reply...are you discouraged to still have to take Imuran? Isn't one of the pluses of biologics is to get off other meds...fyi I took Imuran for years..it did keep me"normal" but not interested in longterm use...JB [ more ]
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J-Pouch ForumsHelp! Need advice now!
Straining, 8 days post takedown
S Sammie1997
PouchLogic It should get better, you and your body will figure it out. I will suggest that planning to have a longer sit during your bm may help, just giving it time rather than straining. I know someone has posted on here concerns before about how long it takes sometimes. Hopefully you aren't already sitting for to long but I often take 20min, or longer especially before bed. Good luck [ more ]
Sammie1997 Thanks Scott, today was a lot better. No burning or straining. Only issue I'm having now is still getting use to my pouch filling. Gives me some awkward cramps that last a few minutes. But they are nowhere near as bad as it was the first few days. So I'm assuming with time the cramps should mostly go away. [ more ]
Scott F If a long bath makes you feel good then that sounds like a great plan, well worth repeating. Time is likely to be your greatest ally, but whatever you did most recently might get the credit. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Benefiber
AngiebAngieb
Angieb Thanks to both of you [ more ]
SheaB I take It up to three x day. I follow the dosage on the package and I mix it in anything I am drinking, water, tea, coffee, juice. I have Not had an issue with Benefiber thickening. [ more ]
Bubba1028 Does it have the directions on the side of the container? Usually it gives you the suggested tablespoon dose and you mix it with water. Easy peasy. From what I remember, the longer you let it sit, the thicker it gets and the harder it gets to drink- thicker. [ more ]
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J-Pouch ForumsGeneral Discussion
How many immodium per day/night
B Bubba1028
Still Standing I'm also glad you were able to get to lab and your appointment yesterday without any trouble, as well as getting a scope scheduled so soon. I'll be praying you get some answers soon so that you can get some additional sleep. [ more ]
Aimc Bubba, I'm glad you got to the appt and lab okay. Hopefully between those and the scope you will get some answers. Let us know what you find out. Aimee [ more ]
Bubba1028 I did, but he prefers this one. I got the stuff and was able to give the sample before my appt and dropped the sample off after my appt. it actually worked out better than I thought. The doc thinks it’s one of 3 things- pouchitis which he’ll treat with Vanco, inflammation of the rectal area which he’ll treat with cream or suppositories, or inflammation of the upper intestines which need more testing bc that could indicate crohns. He’s pretty sure it’s pouchitis. Gosh I hope it’s not Crohns. [ more ]
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J-Pouch ForumsPouchitis
Eating disorder and J pouch
A AnnieGirl
La-Te-Da I would be worried about getting dehydrated. Make sure you are drinking lots of fluids. Sending peace and love! [ more ]
AnnieGirl Thank you everyone for your kind/helpful responses. To answer your question Kate it started years before. [ more ]
katenet Did the ED start after the diagnosis or before ? I’ve always been interested in ulcerative colitis and eating disorders. I think there is a correlation. I starved myself as a kid so I wouldn’t have an accident in school and it became a pattern. Purging affects nutrition and absorption which can upset the immune system. I’m so sorry that you are struggling [ more ]
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J-Pouch ForumsGeneral Discussion
2 step or 3 step?
E Emilie
luvmyupsman You didn't say (that I could see) what your age is and if you have children, but I was young, 28, when I had my surgeries. I had 3-step because I was so ill. I know there are other threads on here about this, but I wish I would have had step 1 of 3 and had more kids before finishing the surgeries. Just something to research/think about if you are in your childbearing years. [ more ]
Emilie Thanks again everyone for your feedback. My albumin results came back last week slightly higher so as of now my surgeon is planning to do it in 2 steps. I hear and agree with allowing the body time to heal, how much easier an end ostomy is to deal with than the loop, and possible complications. I feel like it’s such a hard decision to make and I’m not sure 2 steps is the right one but I’m just trusting my surgeon for now, who came highly recommended, and if my symptoms worsen between now and... [ more ]
girlunky Actually, there are two kinds of two-step surgeries, the more common where you get the j-pouch built and not connected, and have a loop ileostomy in step 1 and then takedown in step 2. The 2 step variant has an end ileostomy as the first step and then j-pouch construction + ileostomy closure as the second. [ more ]
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J-Pouch ForumsGeneral Discussion
Clear Passage therapy for bowel obstructions
duck11duck11
luvmyupsman I would love to hear anyone's experience. I am scheduled to travel to Clear Passage Gainesville the first week of January. I thought I would come here to see if anyone had good or bad things to say. It's a big chunk of money. But I am so weary of the recurring bowel obstructions. [ more ]
duck11 http://www.clearpassage.com [ more ]
maddie18 What is clear passage therapy? [ more ]
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J-Pouch ForumsGeneral Discussion
celiac testing
J JHendrix
Pouchomarx The biopsy can be taken from an upper scope not lower. they test right past the stomach at beginning of the small intestine.. But if our pouches are made from small intestine, I wouldn't see why they couldn't test for it from the pouch? I would ask the GI or surgeon [ more ]
Aimc Here's an article about the subject from the University of Chicago. https://www.glutenfreeliving.com/ They say yes, you have to eat gluten to get a true test answer. [ more ]
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J-Pouch ForumsGeneral Discussion
Sad News about Dr. Adrian Greenstein
melissa111melissa111
Mark Rufino I didn’t mean to worry you! I’m sure things are fine if you’ve felt fine. I do know that he did leave rectal tissue, so maybe he refined it over the years. I didn’t hear him say it, apparently he said it to my mother, Maybe he was just saying it to be very conservative. Anyway, no worries, don’t want this thread to have any trouble so it can stay a tribute to him. [ more ]
CTBarrister I have been told by my GIs that Gelernt left a small amount of rectal cuff and that’s exactly how it’s supposed to be done, for the reasons mentioned in your post. But the limited shelf life of a J Pouch stuff is really a worst case scenario as mentioned in my prior post. There is an old pouch thread on this board and there are many people here who are 30 years plus J Pouch patients. At 27 in J Pouch years I am not old compared to some on here. [ more ]
melissa111 No I got mine in 2012. I'm hoping if he said that, it was just because he didn't know how long it'd last then. One thing I think he and his son do different, is that they don't leave a rectal cuff of any sort. But maybe they did, back then. I don't know. You hear a lot on here about people having cuffitis because the little bit of rectal tissue that got left, gets inflamed and has to be treated. I heard other surgeons left up to a half inch of it. But when I asked Dr. Adrian how much he... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Prednisone withdrawal
DK Doug K
Doug K Thanks - great advice. [ more ]
CTBarrister It will take time. Once you are off, you will eventually need to get a bone density scan done. I was on prednisone for 20 years and it left me with osteopenia. Long term usage is known to effect bones and a bone density scan is a prednisone damage assessment. You might need calcium and vitamin D supps. Discuss with your doctor. [ more ]
Doug K Thanks CTBarrister and Scott F - I have been on heavy doses of steroids for 15 years straight - I assume it will take time. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Incontinent but with good sphincter muscle tone
N Nick8
Nick8 Update - the prednisolone didn't do much for me so I went back on to Cipro and am now on my second month and about to go on a maintenance dose. My bm frequency has reduced recently, I am not sure why. I used to average around 14 a day and now go about 10 times a day. It could be the Cipro but I had already been taking that for a month before my bms reduced. Maybe it just takes a while to act. It could be that my pouch is settling down, after 8 months. I hope so. My muscles are still a... [ more ]
Aimc ❤️
Nick8 Scott, yes, with prednisolone suppositories or if those are too difficult to use, foam. [ more ]
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J-Pouch ForumsPouchitis
SIBO
HE herb ear
DJJ2019 I agree on it being a crap shoot. There are times I think I've had SIBO and treated it as pouchitis, and probably times I thought I had a little bug, but it turned out to be pouchitis. It would be nice to not have to go straight to Levaquin/Flagyl if it is just a minor flare up. [ more ]
herb ear It worked great until I discontinued it. I may have been wrong about having sibo. I originally had pouchitis and was takin cipro...it may have not fully cleared the pouchitis. Now on another course of cipro and flagyl...feel much better...its a crap shoot sometimes [ more ]
DJJ2019 How did the Rifaxamin work for you? [ more ]
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J-Pouch ForumsPouchitis
Severe inflammation
J janepouched
Mattyv ❤️
janepouched This vancomycin is a powerful antibioic to target the inflammation. My specialist is an expert on j-pouches at UNC Hospitals in Chapel Hill ,NC and knows what medicine to prescribe. [ more ]
CTBarrister I have had Pouchitis for 25 years and never was prescribed Vancomycin by anyone. The leading Pouchitis treatment antibiotics are Cipro, Flagyl, Xifaxin, Augmentin, Levacquin, and Tinidazole. You would have to ask your doctor why he is using that particular antibiotic which is more of a go to treatment for C Diff, from what I know. Of course you may or may not have side effects with the others as well, but they are known to be effective treatments. If antibiotics don’t do the job, you will be... [ more ]
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J-Pouch ForumsPouchitis
Can change of diet cause pochitis?
Greg_DGreg_D
PouchLogic I don't think diet, yours anyway contributed, unless you had not been eating fish before? Then you don't have as good a reference point as the fish could be an issue. I however have more issues with veggies and no issues with meat for diet and pouchitis. I have always been put on flagyl and Cipro together and gotten good results. I also take visbiome packets of probiotics and that usually keeps pouchitis away. If I feel like I am starting to get pouchitis, or I'm just feeling off in my gut I... [ more ]
Scott F The only well-documented effect of diet on pouchitis is that for some people carbohydrates (starches and sugars) may increase the frequency of pouchitis. Bacterial probiotics can also influence (decrease) the incidence of pouchitis, but most people get the necessary doses of those from supplements rather than diet. Have you tried Flagyl? [ more ]
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J-Pouch ForumsMen's Health
Weightlifting and Male Hormone Replacement
donn369donn369
Justcantlose75 Also because u have a pouch and that it’s made out of ur small intestine your small intestine is NOT made to hold stool so there for u must get it out of u ASAP so that means people DOUCHE your ass.. lol get it out of there ASAP and I PROMISE IT WILL MAKE A WORLD OF DIFFERENCE... [ more ]
Justcantlose75 Please take hormone replacement single blend cypinate or enenyhanate is fine stack with Decca or prope does wonders.. when U have uc. It lowers ur test count bring it to normal standards anywhere between 6 to 800.. plant base diet forsure oatmeal twice a day stay disciplined and all will be MUCH better... [ more ]
THE KID ❤️
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J-Pouch ForumsHelp! Need advice now!
Flagyl versus cipro
HE herb ear
CTBarrister Because antibiotics alone were not working as well as they needed to after 25 years and my J Pouch inlet was becoming strictured, which is a common situation with long term Pouchitis patients. I was taking antibiotics exclusively for a very long time before introducing other treatments. 20 plus years [ more ]
herb ear Why the need for drugs other than antibiotics? [ more ]
CTBarrister You would have to ask my liver that question, but it’s also processing Remicade and Methotrexate for the past 4 years and I regularly have blood labs done to check my liver chemistries which only got out of whack when I was on a higher dosage of Methotrexate than I am now. Because my body has not developed antibodies against Remicade, my GI has said he will likely take me off of Methotrexate altogether. I am taking very low dosages of antibiotics now, like 250 mg per day and no longer taking... [ more ]
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J-Pouch ForumsGeneral Discussion
Prolapse
N Neta
Scott F Prolapses vary in type and degree, and you might be able to get by with managing stool consistency in some cases, and perhaps learning to relax the sphincter more completely, to avoid even slight straining. Some folks irrigate their pouch using a tube inserted and a bulb syringe (basically a turkey baster with a flexible end). But prolapses generally require surgery to fix them. [ more ]
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J-Pouch ForumsGeneral Discussion
Total change in stool consistency
P PatrickMcGowan
PouchLogic I don't always have increased output or notice a change in consistency. I usually get more gas and trouble sleeping, longer visits to the toilet. [ more ]
PouchLogic I didn't know that I had pouchitis for approximately 2 years, at least that is what my Dr thinks as I only started seeing him when I went to emerg with a bowel obstruction. I have found some luck in keeping pouchitis away with probiotics, but I often miss my symptoms and end up taking a course of antibiotics, flagyl and Cipro. [ more ]
Scott F We’ve had a few people claim to get pouchitis to go away without antibiotics, but I think it requires a course of antibiotics (usually 10-14 days) in the vast majority of cases. It’s important to rule out an infection first. [ more ]
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J-Pouch ForumsGeneral Discussion
About sleeping
HI Hope Its OK
Hope Its OK Well, maybe it is but i don’t know. I’m still fairly new to j-pouch and the new life so i’m gonna try couple of things to see how it goes. I am also really underweight after all the surgeries maybe that’s one of the reasons, but who knows? I am really sorry for your health issues and exhaustion, I can relate to some of it because i had couple of issues after surgeries too. I just hope you feel better. Thanks for your reply. [ more ]
kta I am always exhausted. I work long hours , don't eat as well as I should and have other health issues besides a j pouch. Maybe it is just the way it goes for some of us. [ more ]
Hope Its OK Thanks, Strange. I will try to find something like the snacks and the water in where i live because i don’t live in US or UK. And i’ll try to update afterwards about the change. Thanks again, i hope you’re okay. [ more ]
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J-Pouch ForumsGeneral Discussion
I CANNOT lose weight for the life of me! J Pouch-related?
L LIGuy11
skn69 I tried an experiment last week. I had gotten my bloodwork back and it wasn't great but not horrible either. My thyroid isn't great but only subclinical. So I figured that I needed a good kick in the butt. I made a huge pot of veggie soup with soup bones and then blended it. (Took the bones out first). I ate mostly the soup along with Greek yoghurt for 3 days, a little fruit but 0 carbs then spent the week eating mostly veggies and protein... Yup... it works. Less intake, more output. Walked... [ more ]
Former Member Drinking all day and still not feeling hydrated is more than likely another medical issue; I believe the symptoms of diabetes is excessive thirst, craving water and never feeling hydrated. Symptoms of a potassium deficiency Is normally fatigue rather than a feeling of thirst; potassium supplements won’t do any harm, as long as taken within reason; normally excess potassium is excreted via the kidneys. It’s probably easier to maintain a good potassium level via your diet, such as Milk,... [ more ]
LIGuy11 Coming back to this thread...I do notice that I am ALWAYS thirsty. I can literally drink all day and I will never feel hydrated. I've been drinking a lot of G2 Gatorade lately (less sugar) to get my electrolytes in. I have a hard time drinking water only, which is why I opt for Gatorade and things like diet soda (I know, probably not smart). There are times when I crave water though. I recently bought these dissolvable electrolyte tablets called Nuun to put in my water. Do you think a... [ more ]
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J-Pouch ForumsGeneral Discussion
Osteoporosis
SosSos
Sos and this? https://www.askapatient.com/vi...5320&name=PROLIA [ more ]
Sos Prolia? Have you read this? https://www.centerforhealthjou...er-wonder-drug-wasnt [ more ]
GraceB I also have osteoporosis I am almost sure that my Ulcerative Colitis and after J-pouch surgery hit me over the top. I am on prolia and it seems to be improving my bones. I take a lot of vitamins, exercise. I am not able to eat everything so that is another factor. I try to just keep myself healthy. I am very thin and can not gain weight. I try to keep myself busy and try to be the best that I can. [ more ]
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J-Pouch ForumsGeneral Discussion
red itchy lumpy eyelids
Y yvon
GraceB I also have a problem with chalazion cysts on my eyes that are itchy Eye Dr never said anything about it. I never thought it could be from immune system. I have to have them removed most of the time. As a matter of fact I am dealing with one now. I am on hot compresses and antibiotic this time. I hope I don't have to have it removed again. I will mention that to my eye Dr. Thanks for the tip. [ more ]
Cocomama low dose prednisone by mouth. My doc says ok. 5 mg works pretty well. I do this occasionally. Dermatologist was no help for me. [ more ]
yvon thanks, I will [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
Beginning the Baby Journey- Dr Suggested No C-Section?
linalina
happytimes I had both a vaginal birth and a c section prior to my jpouch surgery. Here's my take on both. I had to have a csection due to my oldest being too big for my body. (Couldn't fit through the vaginal canal) Baby measured normal and was 8 6 1/2 oz, Average is considered 7 1/2 pounds. So I was over a 1lb bigger and still measuring within reference. Second baby was induced in order to have a vaginal birth (I had already had my jpouch surgery scheduled and would have had to postpone it for a month... [ more ]
susbo I’m getting notifications on this post too, so just to provide my own update: I had a second uncomplicated vaginal delivery in February of this year. Big factors for me were the fact that my colectomy and j-pouch surgeries were about 15 years ago and I haven’t had any real issues (besides pouchitis) since, and I plan to have more babies, so c-sections could get riskier. Both of my pregnancies have resulted from IVF due to my tubes/ovaries being in the wrong places after my colon surgeries. [ more ]
JPouch2017 I had this page set to follow when I was attempting to get pregnant/ deciding on delivery last year so the new posts reminded me to come back and provide my experience for anyone who may be searching in the future like I was. I was underweight after my final surgery and that most likely kept me from ovulating when we were trying. If your surgery was relatively recent don’t be discouraged, your body may just need a little more time to reboot. Prior to UC, I had two healthy pregnancies and... [ more ]
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J-Pouch ForumsGeneral Discussion
Dr. Shen
M Marj
Pouchomarx They were both my doctors, I still talk to Remzi all the time. They are friendly but will probably be the same relationship as its been the last 3 years.. Dr Remzi leads a superstar team over at Langone [ more ]
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J-Pouch ForumsGeneral Discussion
New to the pouch - what is normal?
BE Brad Epps
Winterberry Hello, Brad. A sitz basin might help heal and soothe the intense itching in the inside. You can find a sitz basin on Amazon or in a medical / health equipment store. They shouldn't cost more than $15. Fill it with very, very warm water and lower yourself slowly into the basin (the basin is meant to sit on the toilet rim -- lid up) and soaking your bottom until the water cools, will help heal the irritation or small cuts inside. Sitz baths will also help if you develop fissures inside. This... [ more ]
Brad Epps I am glad I will be able to get back to some kind of activity in the future. I know taking it slow, even with healing, has always been hard for me as I am impatient...And I am glad the scar tissue can loosen up and stop hurting. Thank you for your insight. I will definitely try the washing and blotting dry to help my skin as well. Thank you so much for your help. [ more ]
girlunky Hi Bradd, sorry to hear you are struggling. I'm a bit further on with my pouch, almost 10 months. At two months I was definitely having a harder time than now. I'm back to squats, deadlifts and core training - I may never be as strong as I was before, but at least I'm in the gym. I've stretched out all the scar tissue and it doesn't hurt anymore - wow did it hurt when I started core training again! I can even do 7 mile runs again, though I am slower than ever before. I've found that I am... [ more ]
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