J-Pouch ForumsGeneral Discussion
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J-Pouch ForumsHelp! Need advice now!
Thanks Scott [ more ]
Well, the consultant may be describing the most common scenario, and there are certainly other possible causes of joint pain, but here’s what it says in the package: ” It is very important that you do not suddenly stop using Prednisolone Suppositories even if you feel better, unless your doctor tells you to. If you stop using your medicine too suddenly, you may suffer from some of the following: Fever, joint and muscle pain, itching eyes, nose or skin, mood changes, loss of weight, low... [ more ]
Just got answer from consultant, he says I would NOT get any withdrawal from prednisolone suppositories so....... [ more ]
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J-Pouch ForumsGeneral Discussion
Hello everyone!! Nice to been on this groups. I have my surgery on 2003. Been a while for me. I been used it to the bathroom. But I been always go mostly watery. One of the lady told me to use Meta Mucil. I been using it, drinking a glass before I eat. I just see the after I eat I get stomach pain. Just wonder if someone else feel the same. Never have stomach pain before. So I wonder if because I never took this before. [ more ]
I am two months post takedown, so I still go very frequently. Since the pandemic, I started using washcloth sized towels to dry myself after the bidet, due to lack of toilet paper. They helped a lot with the itching caused by yeast. Towels dry much better than any paper product. As soon as I switched back to using paper towels last week, -I was tired of laundering the towels-, insane itching me back. So I ordered a 60 pack washcloth towels from Amazon immediately. They don't get disgusting... [ more ]
Metamucil can make your output less acidic/irritating to the skin so potentially less butt burn. Search my username and metamucil and you'll find several posts I've written on how I took it. Try a little and see if it helps. [ more ]
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J-Pouch ForumsPouchitis
Hi Furious it’s funny u mentioned Uceris as I also was using the foam however I was having burning and irritation and it did nothing for me until he switched me to the pill form. So far so good . I did have a bought of leaking and burning today but I believe it was because of what I had even along with some other spices food,. I believe once this is out of my system I should be good. [ more ]
Every 8 weeks +\- on antibiotic for pouchitis. Been successful with this but concern for use of antibiotic long term. Anyone have success with probiotics or acidophilus? Appreciative of this group’s discussion. [ more ]
As my pouchitis became chronic and unremitting-when I likely was struggling with mild to moderate pouchitis chronically-befor I had a manageable meeting routine for it, I got sick at the drop of a hat. If anyone in my household caught anything, I got it despite quarantining, hand washing etc. it was awful. Since I’ve been on Immuran (immune suppressants) I have been healthier than ever-my kids and husband can get sick and I can stay healthy most of the time. It is very noticeable. It’s like... [ more ]
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J-Pouch ForumsPouchitis
I'm experiencing a similar situation and I don't have pouchitis. Thx for posting. [ more ]
Jan Dollar your great, can't believe your still here helping! My jpouch was years ago and I found you helpful then,thanks. Regards Jackie [ more ]
Nerve damage from the surgery or from local inflammation is definitely possible. Jan [ more ]
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J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsHelp! Need advice now!
I’ve also used tissue or Kleenex with positive results. Who could have guessed there would be a good tp shortage !!?? 🤦🏻♀️ [ more ]
Ah, good idea about the bin. Why didn't I think of that? Luckily, my dad's partner managed to find some of my preferred brand of loo paper, so with a bit of Vaseline I am now back to normal – phew! I am a total klutz in the bathroom and I just can't manage that kind of bidet option. Whenever I have tried an enema, catheter or anything squirty I just can't seem to coordinate getting the poopy water into the toilet rather than everywhere else in the bathroom. Thank goodness bathrooms wipe down... [ more ]
Hi, Kushami. If you are concerned about the tissues clogging the toilet plumbing, why not just toss them into a garbage bin? You're right about clogging because that would require an expensive plumber if you can't clear it with a plunger. Can you manage to use a plastic bidet bottle reaching from the front if aiming from the back is difficult? [ more ]
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J-Pouch ForumsGeneral Discussion
Thanks Scott for info, will look into some of the drugs you mention [ more ]
Untreated chronic pouchitis is pretty awful. I don’t know if you have a creative gastroenterologist, but there may be reasonable things you haven’t tried that are wiser than ozone. Possibilities include combination antibiotics (e.g. Cipro + Flagyl), other antibiotics (e.g. rifaximin, Tindamax, Augmentin), a biologic that you stop before having any future surgery, etc. Good luck! [ more ]
By the way, i also had my operation done 2002, always dealing with Chronic Pouchitis. [ more ]
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J-Pouch ForumsGeneral Discussion
It probably the stoma itself. It does stop bleeding quickly. Welcome. [ more ]
Thanks for the input. To be honest im not sure whats bleeding i just see little trickles of blood in the bag after i run. Its already stopped bleeding by the time i check it out. [ more ]
Are you saying the stoma itself is bleeding? Or you actually have blood coming out of the stoma? I think your (not sure) your referring to the stoma itself. If you are it's normal. The stoma's capillaries (spell) are right at the surface and bleed super easy. Even rubbing the inside of the bag or the edges of the wafer rubbing it will have it bleeding. I.... During a change... Use q-tips and sometimes even touching it lightly will put a bit (blood) of red on the q-tip. Now if you are... [ more ]
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J-Pouch ForumsPouchitis
During my GI visit with Dr Colombel, the director of Mt Sinai IBD research center at NYC, I was strongly advised not to consume emulsifiers. They told me that emulsifiers strip off the protective lining of the intestines. Ice cream, they said is loaded with multiple types of emulsifiers, as emulsifiers give a creamy consistency. They told me to stay away from such ice cream. So I only buy so called "natural" ice cream that has no emulsifiers in them. Many ice cream brands have a "natural"... [ more ]
This is a reasonably new article (early 2015) and discusses the mouse gut. I did a Google search and found no scientific articles relating this in human terms. There have been many mouse studies that bever panned out to correlate to the human body. So, it is too soon to tell. More studies, and specifically human, or at least primate studies, are needed to draw any real conclusions. That said, it is always best to eat as much whole, unprocessed food as possible. Jan [ more ]
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J-Pouch ForumsGeneral Discussion
Hello, Asa. I don't have a suggestion for chewable probiotics for your complete absorption, but have your tried kefir? It is a fermented (probiotic) drink found in the milk section of grocery stores. It tastes like yogurt, but is thinner consistency. I buy a strawberry flavoured, effervescent kefir and I like it. You could also try Greek yogurt -- not the sugary, flavoured kind, but just plain Greek yogurt. You can add your own teaspoon of honey or sprinkle of cinnamon, or blueberries, a... [ more ]
Hi Asa Lay. I just read your comments. I'm sorry to hear about your trouble with the nurses. Once thought came to mind. There are a ton of YouTube videos of people showing how to do everything. Measuring needs to be done with the sample holes and whichever fits best, that's your size. Your stoma will shrink too. Pebiotics, I just take them out of the capsule. I take 4 capsules a day. My surgeon told me to take 2 a day but I wasn't doing good. I read on the visbiome website that you can take... [ more ]
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J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsHelp! Need advice now!
thank you [ more ]
Yes and no. All of the biologics have a similar risk profile, but overall, the side effects are quite uncommon. I have been on one biologic or another for about 15 years and have had zero complications. I am careful in regard to exposing myself to contagion. The primary issue for me is simply the hassle of having frequent lab tests and having to come to clinic for infusions. The upside is undeniable for me, as my chronic pouchitis resolved by being on the right biologic. I am currently on... [ more ]
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J-Pouch ForumsGeneral Discussion
Hi Scott, I hope you enjoyed your day, I surely did being able to eat a balance diet of food today thanks to you guys. Okay , thank you for that I'm excited ! Continue to be bless . [ more ]
I eat plenty of spicy foods. As long as you pay attention to your body you can try any food you like. [ more ]
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J-Pouch ForumsGeneral Discussion
I think it would depend on how often you go to the bathroom. The more often you go, the less time it has to stay in the pouch, but the less often you go, the longer it stays. I go so frequently during the day, I’m probably not more than 3-4 hours away from the bathroom at any given time. Again, it probably depends on the person, however because I know others who have posted on here that only go 3-4 times per day so that would make their time a lot longer inbetween movements. Good luck with... [ more ]
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J-Pouch ForumsGeneral Discussion
Please Kim tell me if you too use the catheter a few times in the day as I seem to need using it 8 to 10 times in order to feel comfortable for a while and not in pain with cramps or gas, usually free for about 2 hours, though i was hoping for a little longer time!! I hope i am not overdoing it. Any tips? Thank you [ more ]
You just insert it and it drains. It's a soft flexible tube that you lubricate and insert - very easy! I've also have my pouch since 1987. I didn't start using the catheter until 1999. Home use is not a problem at all, using it in a public restroom is sometimes tricky, mainly because of the need to rinse it. When there's a private bathroom with a sink, no problem. If you have more questions, just ask! [ more ]
I plan on talking to my GI about using a catheter because I can never fully empty. My question is how does it work? Does it get inserted and just drain or is it something you use to flush?? I have had my J Pouch since 1987 and I am just know learning about this! [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsGeneral Discussion
Like an enema? [ more ]
I have had a jpouch for 36 years. Had over 80 obstructions. Had adhesions taken out 15 years ago. Now problems again. To help stop them drink lots of water. Use a hot water bottle. Lay upside down on a couch. And massage your guts. I also made a sixty ounce syringe with a top put on from the water bottle bag. I use it to put water up and then pull out the yuck. This helps not pushing so hard. I had over 30 surgeries down there before I did this. Much better. Good luck!! [ more ]
I've been tested for Crohn's and Endometriosis. Negative for Crohn's positive for endometriosis. I had no idea until recently that endometriosis could be in different areas of your body aside from the reproductive area. They think that's what may be causing the stricture in my small intestine and have me following up with a gyno and a gastro. We will be looking into birth control to control it. [ more ]
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J-Pouch ForumsGeneral Discussion
Thank you so much for the info Michael. I’ll look up for Dr.Brannan ASAP. I really appreciate I have an alternative instead of going to Cleveland Clinic Weston (3.5 hours driving) for every little issue. Thanks again! Laurita [ more ]
Dr Anthony Brannan in Tampa is one of the better Jpouch doctors in the area, I believe he is still working out of the St. Joseph hospital system. Probably the best in the state is Dr Wexner out of the Cleveland Clinic in Weston FL. I have had great experiences with both. good luck! [ more ]
Can anyone recommend a good gastro doc in the Fort Lauderdale area? Please leave out Cleveland Clinic in Weston. I’ve had it with them [ more ]
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J-Pouch ForumsWomen's Health & Pregnancy
J-Pouch ForumsGeneral Discussion
Doing well. Still out on paid leave until may11 so just hanging out...as long as i dont eat the bad foods doing really well...🙂 [ more ]
I hope you are better now [ more ]
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J-Pouch ForumsGeneral Discussion
I figured as much... [ more ]
Yea, I was half being sarcastic on the stockpiling thing. I do get a little nervous on availability of our meds though. We shall wait and see, fingers crossed! Stay well everyone! [ more ]
I have no answers, only the fact that here in France we have socialized medicine (not always such a good thing) and that the government is not charging by the shot or pill...they are also testing about 100 other molecules and this is just one of them...but I made it to the evening news where no other treatment has (other than chloroquine) in weeks. Don't go stockpiling or buying stock in the company...it could all turn out to be a non-starter in the long run... Sharon [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsPouchitis
Kate, I don’t know what your question is. Are you asking about returning to work after recovering from COVID-19? Going to work after preventive isolation? How are you connecting pouchitis with this (and do you mean acute pouchitis or chronic pouchitis)? What sort of work do you mean? [ more ]
The chrons and colitis Foundation is having a free Covid- Ibd webinar 4/30, 7 pm (not sure Of exact time) here is the link to register http://online.crohnscolitisfou...n.org/covid19webinar e ven though we have a pouch, some believe we still have auto immune disease. [ more ]
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J-Pouch ForumsGeneral Discussion
Hmmmm. I didn’t know that he retired. Which one of his medical staff did you not care for? [ more ]
Yes......I was terribly nervous about the surgery! Thank you so much for your support! Regarding the urinary issue..........Dr. Moro said to me, "It is happening frequently. I am beginning to wonder if I'm doing something wrong!" I wanted to say, "Duh!" I had to catheterize for almost a year. Fortunately full function gradually returned. I met others who weren't as fortunate! I hope you like Dr. Ng as much as I do! [ more ]
Know what? I didn't care for his staff either, at first. I also had issues with my urinary track...apparently some nerves were cut and I couldn't go...without help...for a full six months! But now I remember how we met...Dr. Moro asked if I would be a support for you as you were nervous about the surgery. Anyway, thanks for the info, I definitely will contact Dr. Ng's office. I appreciate it! [ more ]
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J-Pouch ForumsGeneral Discussion
I understand...after years of depriving yourself and living in fear of food, it is so nice to be able to let go and eat. But it catches up with us, fast...our bodies like to hang on to all of those calories, never knowing if starvation is going to happen again...So we seem to get fatter, faster. It is unfair...but do you best... [ more ]
Ya i just need to get my diet right and lose the weight. I started back jogging today so thats a start. Im pretty bummed that i let myself get this fat but after starving with uc it was like i just couldnt stop eating. [ more ]
Bodyweight variances, whether they be higher or lower can shift things around in there. I have a K pouch, an abdominal stoma with a valve (which would be the equivalent of your rectum). Whenever I gain or lose weight, the valve shifts and so does the pouch...which can wreak havoc on functions. I am assuming (maybe wrongly) that sudden or severe weight losses or gains can cause problems with J pouches too. I was told to find a comfortable body weight and to stick to it...but facts are... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Thanks again, Scott, I have Canasa suppositories and they hurt too much to put in and they really didn't help much when I used them before. At this point, I really don't know what to do. I don't have another GI doctor to go to but I'm going to email him tomorrow to tell him about the problems that I've been having and hopefully he'll tell me what to do. I don't think that it's pouchitis, there's too much blood and I'm feeling too uncomfortable. Thanks for all of your help! [ more ]
By “an additional disease” I just meant cuffitis, which you’re speculating about. I apologize for any confusion. The easiest “topical” (really rectal) treatment For cuffitis is Canasa suppositories. They are expensive, and I believe mesalamine enemas are less expensive (but perhaps more of a nuisance). I’d really suggest getting your pouchitis under better control first - that will help clarify if something else (like cuffitis) is actually going on, and enable you to tell if any treatment is... [ more ]
Do you know how cuffitis hurts??? Is it like what I'm describing??? What is the usual treatment for it.....I've told him that I think it's cuffitis and he has me on an oral medication, is there a topical one. What would be the additional disease that I could have. Lots of questions here and my doc can't answer a lot of then. Considering going to see Dr. Shen. [ more ]
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J-Pouch ForumsHelp! Need advice now!
My first guess would be that it’s a partial blockage that’s just taking longer than usual to resolve on its own. I guess it could be pouchitis, as PouchLogic suggests, but it doesn’t really sound like it to me. [ more ]
It could be pouchitis, antibiotics are really the only option there. I don't present with a fever and I don't think that is a sign. [ more ]
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J-Pouch ForumsGeneral Discussion
Hi, BatDan. A number of folks here have posted about emptying (and sometimes flushing) their pouches using a catheter. If you use this site’s search function (the little magnifying glass icon next to “DONATIONS”) you can read all of it. I’d suggest a search for the word catheter, or the words Medina catheter. Good luck! [ more ]
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J-Pouch ForumsGeneral Discussion
You will learn to manage it, it took me 6 weeks. It just is not as easy as the end. Just three months will pass fast. Better get it once the pandemic is really over so that you won’t get stuck with it. [ more ]
Man you guys are making me nervous about the loop [ more ]
Yes, you should consider yourself lucky that you did not get stuck with the loop. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Hi Kushami. Thanks for the input! I bought straight up psyllium husk but am not consistent about taking it. Do you think it would be more beneficial to get Metamucil? [ more ]
Just to chime in – Benefibre is not made from psyllium husk and I found it did nothing to cushion BMs. Smooth Metamucil (i.e. finely milled psyllium husk) is definitely the way to go. It doesn't help everyone but it saved me from "butt burn". [ more ]
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J-Pouch ForumsPouchitis
Bloesch, some of us (like me) simply have to stay on antibiotics all the time. Before you do that, I’d suggest seeing if everything short of that might be sufficient. If I were in your shoes, I’d try a maximal dose of a strong probiotic (e.g. Visbiome Extra Strength, 4 packets per day) plus a course of Cipro + Flagyl. I’d stay on that probiotic dose as long as you can, but it does get very expensive. Good luck! [ more ]
Are you still taking probiotics? Were you taking the probiotics between the flare? What probiotics are you using? I am usually put on Cipro and flygal maybe you need that to fully get rid of pouchitis, with it's return so quickly I would say that you aren't on antibiotics long enough or they are not doing enough on their own. I was going through something similar, I am now taking Visbiome, twice daily. I am hoping this will stop the reoccurrence, I was having success with just once a day but... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Dear TE-Marie and tulsamom- I want to thank you both very much for your excellent and caring advise. For some reason this came in on one message. Please stay well, take care and God Bless. [ more ]
I could eat everything before my pouch revision at about 10 years. Then the scar tissue narrowed the spot where the pouch attached to small intestine. Since then I've had multiple partial obstructions from plant matter that wasn't chewed properly or was just too fibrous to get small enough, like brussel sprouts and mushrooms. My advice is like the others. Try small amounts of what you want to eat, and enjoy! You will probably be fine. Just be a little more mindful than you used to be about... [ more ]
You might want to try raisins before prunes and if you tolerate them move on to prunes. Cooked asparagus and shrimp are okay for me but mushrooms caused a partial blockage. Have you tried a protein powder smoothie? I use a powder, recommended by a nutritionist, that doesn't contain sugar. I use it with various fruits and veggies whipped up by my blender. [ more ]
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J-Pouch ForumsGeneral Discussion
I too still get occasional pain behind the old stoma site (7 years later). I sometimes worry things are getting blocked back there but it's always been ok. I massage the area and sometimes use a heating pad although I don't know if it really makes a difference or not. [ more ]
Yes, I had occasional sharp pain and occasional mild inflammation/tenderness at my old stoma site. It never got serious and tapered off to nothing after a while because I don't have it any more (15 years out). Your pain sounds a bit more intense. Always good to consult surgeon or stoma/pouchcare nurse if you are worried. Hope they were able to help. Cheers, Sarah [ more ]
Hi, Walking. I am four years after my takedown and I sometimes get twinges or a tickle of sharpness around my old stoma site. It never last more than a few seconds, and I don't worry about it a short long as I can eat and eliminate and I don't have any signs of blockage, lingering pain, vomiting or fever. It might be your scar tissue healing. Your takedown was very recent, only three months old. When my takedown was a few days old and still in hospital, I used to experience what felt like... [ more ]
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J-Pouch ForumsGeneral Discussion
Time was crucial for me. I remember a qualitative difference at 4 months and then again at six months but it really wasn't until about a year had passed that I experienced real stability. I know that sounds discouraging but I'm sure at some point you'll be able to look back and be thankful it's changed and all is ok. Best of luck to you.... [ more ]
I tried metamucil the other day, just 2 tsp in the am and it did not go well. Went every hour, unable to fully empty, from 4 pm til 7 am. Not sure why its not working for me. I used it a lot when I had the bag. [ more ]
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J-Pouch ForumsGeneral Discussion
Hello J9Pouch, I got terrible belching – like Exorcist style except my head didn't spin round – after I developed megapouch. I hope you don't have that! It's pretty rare. Did you get it sorted out? Cheers, Sarah [ more ]
Any restrictions in your digestive tract can cause gas, it's got to go somewhere and when things aren't moving (or moving slowly due to restrictions) gas will build up. A lot of belching for me usually means I am working through an entrapment or obstruction. [ more ]
Wait, so a stricture at the bunghole can actually cause belching? I have had very slight nausea but not enough to vomit off and on daily for over a month.. They think it may be my gallbladder but cant be certain [ more ]
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J-Pouch ForumsHelp! Need advice now!
Hello Angieb, I get "waterfall" BMs occasionally too (great description!). In my case, it is usually mild pouchitis or something that I would describe as a "stomach bug" or "upset stomach" (no way to know exactly what it was, but my bowel felt the need to give itself a good cleanout!). I believe the yellowy colour is because it is basically digestive juices (bile), dead bloodcell waste products (bilirubin) and water coming through. If it is pouchitis, there's a distinctive smell as well,... [ more ]
It's a long list for soluble and insoluble foods. The best thing you can do is google "insoluble food" and all sorts of lists will pop up. It will also give you lists of "soluble" foods. You will see what you can eat, what to avoid, or eat sparingly. Basically, insoluble foods are foods that do not break down in your gut. They come out of your pouch looking almost the same as they did going in and you can recognize it. Insoluble foods can cause difficulty with BMs, can make you feel "stuck",... [ more ]
I think everyone is different I find foods with skins on difficult to pass but when food gets stuck sometimes I find if a lay down on my left side for a while it helps shift the food I can hear it moving it also comes with wind and I find fizzy pops can help shift things along and hot baths these are all the things that help me it’s all a learning and still learning hope this helps [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
I am retired military. I did not get diagnosed and have my surgeries until I was already out of the military. To be honest, I do not believe you would be accepted into any of the miltary components. Even in the Reserves or National Guard, you would run the possibility of being deployed as well. You can check with your local recruiter to clarify this. [ more ]
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J-Pouch ForumsGeneral Discussion
Hi MCH and Winterberry, Thank you for your responses. Unfortunately I have tried coconut oil in the past because I read all the benefits for the body but for some reason my system didn’t process it well. Make nauseous and cramping every time I tried it. I finally gave up and give the rest to a friend who has no stomach issues. I’ll try the avocado idea to see how well I tolerate it. Besides all my issues, I also have fatty liver, so I have problems digesting some foods, but it worth to try. [ more ]
Hi, Laura Lee. You could also try replacing all butters with fresh ripe avocado. Use a ripe avocado as a spread on toast or bagel. I use it in sandwiches in place of mayonnaise. Avocado has lots of potassium, and if you let it sit on your counter (don't try to ripen it in the fridge) for a day or so, it will be perfectly ripe for easy spreading. Some grocery stores now sell frozen chunks of avocado in a bag, already peeled and cubed for you, and ready for smoothies or defrosted for salads,... [ more ]
Hi! I posted the original comment about being both an anatomy student and a j-pouch patient. I still have not changed my diet-I already feel as though it is pretty limited and really do not want to make a change. Anyway, your question about canola oil made me think of coconut oil. i own a book recommended by an acquaintance who had colon cancer about all the benefits of using it instead of other oils, and this person (and the authors of the book as well) believes that replacing other oils in... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Twinkie-My doctor had a special paste with a prescription from a special pharmacist made with lidocaine 2.5% and hydrocort 2.5%, it was expensive $40, but it really has helped me, . Thank you so much. [ more ]
Ilex paste or cream is terrific against butt burn. I swear by it. Easy to purchase at ur local pharmacy , eBay, or Amazon. [ more ]
Eliza B- Thank you so much. Stay well [ more ]
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J-Pouch ForumsPouchitis
Hi I take Pepto Bismol to keep my Pouchitis in check. I usually take a tsp a day or if I feel it's necessary I take one tsp in the a.m. and one in the p.m. [ more ]
I take a very high dose of VSL #3 DS (4 packets/day). I think it helps, but thank goodness my insurance covers it. Visbiome may be easier to find, and (as PouchLogic wrote) is very similar. [ more ]
Hi, most of the jpouchers take either vsl3 or Visbiome, both are basically the same. There is also a double strength but requires a doctor script. It's not cheap but it's supposed to help with pouchitis. I am taking one packet twice a day, I was only taking one but I was still getting reoccurrences so I have upped the dosage. There are others but I don't know much about them. Good luck [ more ]
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J-Pouch ForumsGeneral Discussion
Thanks Michael I just spoke to my sister in law (her birthday today)...everyone is stable but we saw my stepdaughter today (she stayed in the garden...no contact and a respectable 3m social distance)...her brother in law + the whole family are sick as well as her best friend with her whole family too...in other words...no one, good or bad, nice or not, healthy or not is immune...I will scream loudly until this thing is over...this is not 'just the flu'... Sharon [ more ]
Dear Sharon- I so hope they will all miraculously recover. So sorry you had to be witness to all of this, my heart goes out to you and the people who are now infected by this horrible virus. My prayers are with you and all those who are now so ill. May God Bless Michael [ more ]
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J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsHelp! Need advice now!
I had a pouch redo with Dr. Remzi May 2019. Takedown of loop ileostomy November 2019, after new J-Pouch had time to heal. Great outcome. I wouldnt trust any one else with my bum problems ! He's really nice too. [ more ]
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That sounds horrible. I hope the redo works and provides you with some relief. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Dr. Remzi NYU Hospital. I wont go any where else! [ more ]
I would say Dr Remzi. If you can go to NY, go. We have beeen using the docs at Weill Cornell. In addition to UC, my son also has PSC. We started there because of the PSC and continued but my docs there have been co silting with Dr Remzi on my son’s case. He has a leak that won’t quit along with an abscess. Then leak is at the astasmosis, I can’t spell. The stitching line for lack of a better explanation. The surgeons, doctors, nurses, everyone, as been wonderful. Jeff has spent thenbetter... [ more ]
Dr Remzi is an amazing surgoen and is now in NYC but he did my surgery at the Cleveland Clinic. This was the 3rd attempt for me and I believe will be the final. I just had a check up with Dr Shen and he stated numerous times what an amazing job Dr Remzi did with the new pouch. He said it was perfect. I feel fantastic and if something were to happen down the road I would definitely be looking Dr Remzi up!!!! [ more ]
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Founder, Creative Director & Web Master
William J. Johnson
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Bill Johnson founded the J-Pouch Group in 1997.
After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.
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General Disclaimer
- This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.
Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).
Confidentiality
Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.
The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100
National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440 800-343-3637
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