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J-Pouch ForumsGeneral Discussion
permanent ileostomy problems--terrified to get the surgery
E egk
GraceB egk I also had ileostomy for 3 months before take down in 2010. I had so many problems with leaking. I had a few nurses trying all different type of bags. I even had the top ostomy nurse trying to help me get the right ostomy bag. Finally I called the company of the make of the ostomy bag. It took a few weeks for me to find the correct fit. The women that I spoke with was very helpful. She would send me supplies and explain how to use it. If that didn't work I would call her back and she... [ more ]
Former Member A blow dryer?? Dang! You must be a super hero! If I did that, I would be scared lol. [ more ]
Former Member I had an end ileostomy for 6 months between step 1 and and 2 (I had 3 step), and I believe it was a great experience to have. It was so easy that I was considering not even getting a j-pouch at all. Now I have my j-pouch, I am not scared of going back to an ileostomy, if becomes necessary. When I had the loop, and it was such a nightmare. It was retracted into the skin, directly shooting down on the skin. I had to change on average everyday. One night I had to change three times, because it... [ more ]
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J-Pouch ForumsPouchitis
Pouchitis are they Joking??
RavenWolfRavenWolf
CTBarrister In the case of Remicade, that is essentially correct. You can't go on it and then off it. I have been on it for 5 years. There is also the chance that you can develop antibodies, although that hasn't happened in my case. But the reason you can't go off it is not because it's addictive like heroin and you go into withdrawal. If you go on and then off and then back on again, it's just likely not to be effective. Also, you need to take it for a while before the results are observed. At least 6... [ more ]
lclassen @CTBarrister , I'm unfamiliar with biologics, as those weren't around in '98. 😉. I've been told that once you go on a biologic you can never stop taking it. Is this correct? [ more ]
RavenWolf Wow thank you. I will definitely be bringing theese up to the doctor. They have me on Budesonide right now and say it's for 8 weeks. [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Here we go again...potential obstruction??
B Bubba1028
lclassen This may sound crazy, but my GI says to always have meat tenderizer (like Adolf's) on hand. 1-2 tsp with water. The tenderizer helps to break down the obstruction. [ more ]
grandmaof1 Have you tried drinking 100% pure grape juice. It is something about the sugar and the grapes. I have it on hand at all times. But don’t over do it drinking it or you will have the runs. A little bit at a time. I truly have found this works. Good Luck. [ more ]
Bubba1028 Sit ups and stuff sound painful when your stomach already hurts like hell. Ouch! I guess if it works.. doesn’t the soda produce more gas and chase more pain? Ugh just the thought hurts. I appreciate the suggestions but I think I’m too chicken to try or maybe I’ve waited too long on this run. I’m back in bed now... The doc thinks I’m at the tail end of a partial obstruction. Said he would have given me IV fluids and a CT scan to rule it out but I Wouldn’t haven’t wanted to go into the ER... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Upper abdominal pain
S Salwa
grandmaof1 I had the same problem. The pain is unreal so I had them scope down thru my throat. It was gas pains. Unreal gas pains. So I started using Simethicone chewable from the $1 store I hardly have any problems now. But I will sayI was shocked that is was that simple and easy to fix. I do no what pain you are talking about. It can put you right out for a few hours and then it goes away. Maybe try the Simethicone. Good Luck. I hope this solves your problem like it did mine. Also don’t drink any pop... [ more ]
Salwa Hi Scott, thanks for the reply. My previous gastro checked for both of things and nothing there. My new gastro told me sometimes there is no explanation for why this is happening 😔. [ more ]
Scott F This could be a variety of things. Partial blockage/obstruction is one possibility, but it could also be gall bladder or pancreas-related. Did the gastro really just kind of shrug? [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
Collagen usage (also Loperamide)
D Disneynut
Disneynut I am using Vital Proteins. I get it at Costco but it looks like you can also order it online. Did you hear it helps with pouch issues? I had never heard that, and like I said, was using it for something else and it appears to be helping. I feel like most of the change is how my rectum feels. I just don't feel that urgency like I used to. Today I was walking and I felt like I had to go and I waited for another 45 minutes and could have waited longer. [ more ]
maey2462 @Disneynut I just started taking Collagen also...praying to see a difference in my skin and pouch also. Can i ask what brand you are using? [ more ]
ytcrockpot ❤️
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J-Pouch ForumsHelp! Need advice now!
loop ileostomy
L ljk
Former Member It is not up to your husband to decide whether you get a permanent stoma. He is not the one who is suffering. He is not a doctor. How can he be the one to decide on such an important health issue? I am sorry to say this, but it needs to be said. There is still a long section of your bowel after your current stoma that is not being used, and if you end up getting a permanent stoma, you would use all of that section and would not have a short bowel. Then you can have a good quality of life... [ more ]
Jaydog Just stay strong. This pandemic wont last forever and when its over go get yourself fixed up [ more ]
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J-Pouch ForumsHelp! Need advice now!
Surgery for blockage
U UCfree2012
jenners My advice is to go slower with getting to the solid foods than the hospital puts in front of you. I have had 3 surgeries (j pouch, reverse ostomy, emergency resection) and headed into a 4th (stricture at top of jpouch). They always do like clear fluids, then full fluids than solid foods. I feel like a bit of extra time in the "smush" realm is really really helpful. Apple sauce, soups, oatmeal... I saw the guy next to me eat a big plate of the hospital food like 2 days after intestinal... [ more ]
maddie18 Hi Yes, I have been through this too many times since myo surgery in 1986. But only once I went in to surgery thto repaire the blockage. The surgery will help for sure. Let me know if you have any more questions.... Good luck. [ more ]
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J-Pouch ForumsGeneral Discussion
Loperamide packaging limits
MR Matt R
Kangaroo You're welcome! It wasn't available last week. Any amount of pills over 24 hasn't been available for a long time. I was really excited to see it! I didn't see any bottles with 200 pills which was what I used to buy. [ more ]
Matt R Thanks, Kangaroo. I swear that wasn't available a week ago when I looked, but it is, now. [ more ]
Kangaroo I just ordered a bottle of loperamide from Amazon that has 96 pills for $15. It doesn't appear there are any limits of number of bottles you can buy. [ more ]
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J-Pouch ForumsGeneral Discussion
PSC
G GraceB
GraceB Still Standing Thank you for your response. My Gastro Dr. is in NYC. My travel time is about 1 hour 45 minutes into the city. MT Sinai Hospital. I have my blood work taken from my GP. I did ask my GP to fax my results to my Gastro . I will keep my appt. in August. With everything going on in the city I have been questioning whether to go in or not. I am sorry to hear that your brother past away. Thank you for your input. Grace [ more ]
Still Standing I would still go for the scan. It just shows if there are any changes to your liver that the doctor needs to be aware of. Kind of like a routine check up. A good thing with PSC especially. I have PSC also. Although my liver enzymes have been good for a number of years now, I've had periodic scans, ultrasounds, and biopsies on it to make sure it stays in healthy condition. I will admit I'm a bit more paranoid than some about keeping my liver in good working order. My brother died of... [ more ]
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J-Pouch ForumsGeneral Discussion
Doctors in Grand Rapids, Michigan
G grandmaof1
grandmaof1 Thank you so much. [ more ]
Still Standing I love my GI and he's in Grand Rapids, MI: Dr. Benny Kieff. The problem is that he is so good that I'm not sure he's taking new patients. I've heard a lot of the other doctors with him are good too, but I don't have personal experience with any of them. Look up Spectrum Health Medical Group Gastroenterology. They are on E. Paris Ave. in G.R. very easy to get too! [ more ]
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J-Pouch ForumsGeneral Discussion
Why does an end ileostomy work better than loop???
FM Former Member
Former Member I cannot believe that happened! And the fact that it caused your blocakages too, you must have been depressing and painful. And hahaa, I do not think you are a pain- you are an IBD Warrior, You have been through a lot and you are still making it. You are a joy not a pain. [ more ]
Mysticobra It just happened. I do not blame my surgeon for anything. She was very competent and had a good teacher and fellow surgeons with many years of experience. It just happened. Remember. It was a temporary ileo. They go sideways in all kinds of directions. I had a good surgeon. She put up with me and if someone can do that it's a feat in itself. (ask my wife lol) Cause I'm a pain. R. [ more ]
Former Member How in the world did you get a twisted bowel? Seems like the surgeon did the J-pouch wrong. [ more ]
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J-Pouch ForumsGeneral Discussion
Not pouchitis, nightly severe incontinence
C clouwho2
clouwho2 Thanks for the thoughts and ideas. I’ll run some of these by my doctor And try some on my own (those I can do without contacting a dr first). I’ve been on flagyl during my previous 3 pregnancies. I had some success with flagyl and amoxicillin surprisingly. My dr now wants me on a minimal amount for obvious reasons. as for depends - unfortunately my incontinence isn’t just a little. I wake up to almost a full bowel movement 3-5 times a night. I have to change clothing entirely and often... [ more ]
Scott F When one antibiotic alone stopped working for me, adding a second one did the trick. Neither Cipro nor Flagyl have completely green lights during pregnancy or breast feeding, but lowering the dose might help your situation while managing the risk. Bentyl is okay during pregnancy, but I’m not convinced it’s likely to help. [ more ]
Safado I have incontinence at night pretty regularly. I have to wear Depends in order to sleep. I've been doing this for years so it's become normal for me. However, I notice that I am not incontinent when I do the following: - Regularly taking Metamucil - Metamucil has done wonders for me in helping give my stool more form. - Take imodium before bed - I can usually get through the entire night on only one imodium depending on what I ate that day. - This one is difficult for me - Don't eat anything... [ more ]
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J-Pouch ForumsGeneral Discussion
Bleeding after dilation
A Andreita
Andreita Yep candle for me too. [ more ]
Safado I have seen blood like you are talking about even after wiping but it doesn't happen very often. I don't usually see it two days in a row. If I did, I would call my surgeon just to make sure there's not something I should be aware of. That's good you're able to dilate everyday. I was for a while but then it started getting really uncomfortable and so I'm trying to just do it once a week. I would love to be able to get back to dilation everyday since I felt a lot better when I was able to do... [ more ]
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J-Pouch ForumsPouchitis
Rectal spasms
K katenet
Scott F Eric, if you’re still taking the Imodium this is probably a good time to discontinue it for at least a week, to see how things go. I’d also suggest starting the search for a new physical therapist, since that seemed to help you, and stopping may have allowed things to worsen. Good luck! [ more ]
EricWalsh82 Thank you. I'll continue to do more research, speak to my doctor and update the thread. You're assistance has been so kind, much appreciated [ more ]
katenet No apologies Its very important to get relief. I am not sure what that is but I can tell you RECTIV provided immediate relief. I can also say that I used lidocaine cream as well. I think the rectiv.com website might have a coupon. For me it was the rectal pressure and straining is the worst thing you can do. It can also be an anal fissure which feels like shards of glass passing through. Its unlikely that its constipation just inability to empty the pouch due to the nerves and the muscles... [ more ]
See all 15 replies...
J-Pouch ForumsWomen's Health & Pregnancy
Staying hydrated during pregnancy
S SZ
Charlie1026 I was having similar problems staying hydrated during my current pregnancy. I am late to this post but drinking Pedialtye seems to pull me our of dizzy spells! [ more ]
Jaypea Please see your OB or family physician or gastroenterologist. Make sure your electrolytes are are all normal before consuming too much water. Even though you tend towards dehydration and don’t have a colon there is a phenomenon known as “water intoxication”. perhaps you need to drink a solution that includes salt and sugar? Have you tried chewing gum or sugar free candies?You need to keep that precious baby safe and you need to stay well balanced. Wash your hands! [ more ]
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J-Pouch ForumsGeneral Discussion
J-Pouch friendly antidepressants?
J J9Pouch
colonelius I'm on Strattera (atomoxetine) for depression and attention problems. I took wellbutrin for a few months--the time release didn't get absorbed and then when I switched to tablets I had pretty vicious anxiety, way too much. Strattera definitely works for me, one a day is ideal (prescribed two). EXCEPT it causes some constipation and now I'm worried that's rekindling a fistula issue I had about 18 months ago. Curious if anyone here has had fistula/urinary/perianal issues on these meds? [ more ]
RondaC I take effexor. Make sure your antidepressant is not timer released. Our digestive system does not work well with time release medicine. I am prescribed 2 a day but normally 2 can get by with just one in the morning. I have no problems with effector with side effects [ more ]
May I take Wellbutrin SR 2x a day and Lexapro in the morning. I have a past history of panic attacks, general and social anxiety which was pretty much history until I had an unexpected episode of acute kidney failure a few years ago that left me with a PTSD like level of anxiety and panic attacks. I have Xanax as needed for that though I don't take it often at all. Over the years I took quite a few different ADs (along with Xanax regularly during my severe panic attack/agoraphobic years, and... [ more ]
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J-Pouch ForumsOstomy & Skin
Fat bellies and iliostomy
E egk
Bubba1028 They have a bunch of stuff you can get to help with the seal, if that’s what you’re worried about. I had my ostomy site near my belly button which made it difficult bc of the curve of the stoma site. Similar to if you had a curvy mid section. I told my doc that it was hard to get a good deal and she suggested this putty stuff that I could order Through the ostomy company- sorry, I don’t remember the name. It helped a lot. It was pliable at first but I used a hairdryer when changing the bag... [ more ]
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J-Pouch ForumsGeneral Discussion
Possible Blockage
A AWalkingTestimony
Former Member Do you think your constipated??? [ more ]
Scott F If I suspected a blockage I wouldn’t take laxatives. They have the potential to increase pressure in an already overstretched gut. The blockages J-pouchers get aren’t usually from hardened stool, so approaches designed to soften stool generally won’t help. I’d only go to the ER if I needed hydration or if it were starting to look like I might need surgery to clear a complete small bowel obstruction. [ more ]
Former Member Try laxatives first- magnesium citrate, 2 bottles. If that does not help, go to ER [ more ]
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J-Pouch ForumsGeneral Discussion
Pouchogram Prep
KennyJG44KennyJG44
KennyJG44 Seemingly worked just fine. The procedure was a wild ride... Had to speak up a few times, but it's done. Is it common to feel very crampy/bloated for the whole day after? [ more ]
Scott F That prep should do the trick. You might want to repeat the (warm) water enema until what comes back is reasonably clear. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Basic anal abscess/fistula questions...
TL TONY LAVICTOIRE
egk for whatever it's worth, sitz baths are fine but if you have a true fistula it can be life threatening. i have three setons to drain active fistulae, and after the second seton i was so tired of being cut up that i decided to see if i could muscle through the pain. took 2 days to go to ER. the morning of the 2d day, my perenium had swollen to the size of ping pong balls. i had sepsis and had to be hospitalized for 4 days on all kinds of nofun iv drugs. i don't mess around with them anymore. [ more ]
Pouchomarx With my first pouch I had a leak at the tip of the jpouch. My GI, Dr Bo Shen at Cleveland Clinic tried an experimental procedure with fibrin glue to close the leak but it failed. I eventually had to have a pouch redo as I had other issues as well. [ more ]
TONY LAVICTOIRE Thanks everyone for you feedback! Pouchomarx, it does seems odd I feed that the physician could diagnose a tract by feel but I can tell myself that something hard like a track is happening down there...But I’d sure prefer it to just be a hémorroïdes... LORI726, I’m sorry you had- and perhaps still have- to deal with fistulaes and abscesses. I heard of Fibrin Glue injection - or other plug treatment - that’s not invasive and proven to work somehow. I sure hope that a seton isn’t my only... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Chronic pain and body stiffness
C chillville
Maverick Plus I'm like KC1126: I saw a rheumatologist and was put on meds. Iron pills upset my stomach so my pcp put me on Ferralet (with a prescription). It's kind of expensive, so I hope you have insurance now. Do see a rheumatologist, that is your best bet. [ more ]
egk I had this too. It started when I was on high doses of prednisone, before i got my j-pouch, and lasted for 20 years. it mostly (but not totally) went away, eventually, when i changed my diet and lost 20 pounds. it also got better with biologics. i saw rheumotologists, but they couldn't diagnose through the normal tests and never really helped me. [ more ]
jan15 What meds are you taking? [ more ]
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J-Pouch ForumsGeneral Discussion
Inflammatory Airway Disease, As Well As Inflammatory Bowel Disease
CTBarristerCTBarrister
CTBarrister It's not Crohn's, its autoimmune disorders which causes both the inflammatory bowel disease and the inflammatory airway disease. Like you I have had sinus surgery. I find that the steroid nasal spray helps, but like you, doesn't eliminate the issue. Anyway, in my case they are calling it non allergic chronic rhinitis, and it seems to be mostly under control at this point. [ more ]
egk i have a chronic productive cough that about half my doctors have said is related to crohn's and the rest say it isn't. i use a budesonide nasal rinse that helps a lot, but hasn't eliminated it. inhalers don't help at all. during my last seton surgery my surgeon said i need to get it taken care of becuase i coughed during the whole operation, but nothing really seems to work. diagnose is chronic middle airway obstruction and sinus drainage. i've had 6 sinus surgeries to widen the sinus... [ more ]
CTBarrister So I wanted to finally close the loop on this thread. All the inhalers I was given did not work, but I was finally given 2 nasal sprays that did work- Fluticasone Propionate Nasal Spray, which is a steroid anti-inflammatory, and Azelastine HC1 Nasal Spray, which is an antihistamine. I take 1 spray of each, up each nostril, morning and night. My final diagnosis from the pulmonologist is non allergic chronic rhinitis , although I have only had it since April 2019. If I do not take the sprays I... [ more ]
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J-Pouch ForumsHelp! Need advice now!
recovery for temp. ileo
duck11duck11
KC1126 Yes and Yes! I sent you a message. Hope you're doing okay! [ more ]
David W My recovery wasn’t horrible. I also had an open surgery. I was in the hospital for six days with no complications. My hospitalization wasn’t bad. They used an epidural for pain management for about three days, which I really liked. When I got home, I took pain meds every night for about a week or two for pain from the incision. I didn’t need them during the day. You want to be careful of what you eat for about 6 months. Unfortunately, a blockage soon after surgery is possible. I had one a... [ more ]
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J-Pouch ForumsPouchitis
Efficacy of Antibiotics waning
F FreeAtLast
milo I am afraid of antibiotics. I know they are very bad for a person, however, I need them for when I get pouchitis, so Cipro works great for me. This could be because I now, after 8 years of suffering on a near-daily basis, have found what works best for my body and I only have to use it a couple of times a year or so. The first 8 years with my pouch was a nightmare. I thought I would never be well. I eat only the very most strict of diets. But, I found I needed to experiment or die. I now eat... [ more ]
Jmarc My doc has me rotate between cipro and flagyl every 90 days. Works pretty well. VSL#3 did not work at all and, yes, very expensive. Pharmacist once questioned why I would be using probiotic and antibiotic at same time and said “it made no sense”. Once again, it goes to show that we are all different and there are very few right or wrong answers [ more ]
JJA I’m a different case, because rotating antibiotics some doesn’t work and immuran alone doesn’t work, but both together do. Flagyl worked well for me for years, but then I had a bad bout of side effects and neither flashy nor Cipro were effective anymore. I rotate Xifaxan and Levoquin every 2 weeks. I think Levo works a little better than Xifaxan, but I rotate in the Xifaxan to preserve the effectiveness of the Levo. Someday I will probably have to switch to biologics, but I’m holding off as... [ more ]
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J-Pouch ForumsPouchitis
Cipro
D DJJ2019
milo Cipro works well for me. I have used it for 14 years. I hate using antibiotics so this really is the only one I will take unless I have some dangerous disease. Nowadays, 95% of the time, I only have to take two doses and I am cleared up. Lickity split. [ more ]
DJJ2019 Thanks both. I actually use Levofloaxcin vs Cipro, but I really only tried Cipro once. I think sometimes my pouchitis gets too out of hand and I really need to with Flagyl and Levofloxacin, Levaquin. However, I'm hoping this is a mild case or just leftover from my last bout a few weeks ago, and can be fixed with just Levaquin this time. [ more ]
Still Standing I can't do Flagyl due to the fact is makes me nauseous. I am usually given Levofloxacin for pouchitis. So far it works well for me. [ more ]
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J-Pouch ForumsGeneral Discussion
Seltzer problem?
junebenjuneben
Jfill21 Same here. I really miss a beer once in a while—just not worth it later [ more ]
Scott F Do you ordinarily drink seltzer? I tend to avoid carbonated beverages, because the gas is a nuisance. The more gas I have the more often I need to use the toilet, not really to empty my pouch, but simply to (mostly) fart. [ more ]
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J-Pouch ForumsGeneral Discussion
How many scars do you all have from proctocolectomy?
FM Former Member
Kangaroo I had 2 drains after laparoscopic surgery. They caused a ton of pain. Fortunately, I didn't have them for the second (final) surgery. [ more ]
Winterberry I have three battle scars: a long scar starting above my belly button, down toward my lower regions. An oval shaped scar on my right side where my temporary stoma was, and a round scar where the drain was to help release surgical fluid. For those heading into surgery, the drain is shaped like a bulb and is called a JP pouch -- Jackson Pratt pouch, and is inserted into your abdomen during surgery. It kind of hangs from your body, filling with fluid and some blood, to keep you healthy. You can... [ more ]
Former Member Oh wow, I learned a handful information. The drain looks pretty serious! And yeah I had a NG tube before due to blockages- it was horrifying! And why I had my urinary catheter removed, it did not hurt me at all for some reason, it actually felt good to me. [ more ]
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J-Pouch ForumsPouchitis
Not sure if this is pouchitis or not
J jdmhonda47
SteveG It's difficult to jugde from your symptoms what's bugging you. Yellow / light colourd stool may be a sign of bile fluid missing, and fatty stool can be very aggressive. That would explain the problems with the hash browns, they are quite fatty. Perhaps you should have checked that there are no gallstones or an obstruction of the biliary tract, but that's just a guess. On the other hand eating bitter stuff can stimulate the digestion juices. Steve [ more ]
Scott F It’s sometimes very hard to tell, but it’s best if you can distinguish between a full pouch that won’t empty vs. a (mostly) empty pouch that feels full. This is easiest to figure out if you *sometimes* produce enough output that you can be pretty sure that your pouch is empty, at least for a while. [ more ]
jdmhonda47 Thanks Scott same here , when I stand I feel a urgency to go more , it’s definitely odd , my fever hasn’t passed 98.5 so not a fever I just feel warm overall :/ . Appreciate the feedback will call the doctor in the morning and most likely go get looked at or get sent to the walk-in for an X-ray . [ more ]
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J-Pouch ForumsGeneral Discussion
Has anybody gotten hospitalized for Dehydration since getting a J-pouch?
FM Former Member
Former Member Most j-pouchers do. I get up overnight to poop too. Maybe try naps when you can. I am glad were okay though, our treatment plan is way better than active UC. [ more ]
Former Member Yet I still suffer from fatigue and episodes of my sleep pattern being disturbed; hence, sleeping when I should be awake or awake when I should be sleeping; otherwise life with a J pouch is absolutely wonderful. [ more ]
Former Member Sounds like a perfect regimen! [ more ]
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J-Pouch ForumsGeneral Discussion
Will Coke or Diet Coke help clear up partial bowel blockage?
WC Wesley Crusher
Wesley Crusher Pancreatitis is all new to me too. It's been annoying when I eat solid foods, that's it so far. I've had it for about a week. [ more ]
JHendrix I don't know much if anything about pancreatitis but at least hopefully the diagnosis will provide you with a remedy for your discomfort. Please keep us posted. [ more ]
Wesley Crusher I had a test done today and discovered bowel blockage isn't the problem. I have pancreatitis. Next week they will do a biopsy on my pancreas. I wonder how common pancreatitis is with j-pouches? I am missing my gallbladder too. [ more ]
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J-Pouch ForumsGeneral Discussion
Was your J-pouch surgery 2 step or 3 step surgery?
FM Former Member
CTB23 3 steps in 9 mos. [ more ]
Downtownfan I had colon removed in December 2017 (cancer fear, plus I have PSC), jpouch built in June of 2018, and takedown in December of 2018. So I had a year of the bag, with a change in stomas halfway through. Not a fun year, as after the first two surgeries I had major blockages and had to go back to the hospital for NG tube joy (4 days, then 2 days). About 5 weeks in hospital in total. Then in November of 2019 I had hernia surgery too. Ugh. Ok now, but still lots of tough days. [ more ]
Former Member Did they remove your rectum in the first surgery??? I hear some people keep it until surgery number 2 [ more ]
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J-Pouch ForumsPouchitis
Kidney Stones
R Rocket
Banditgurl Thank you Debbie That makes sense. [ more ]
DG78 Hi Banditgurl, I don't see how a 5 mm stone could cause a bowel blockage. Even if a fistula formed between the urinary tract and bowel and allowed to stone to pass into your intestines, a 5 mm stone would not be large enough to cause a blockage in the bowel, unless you had constrictions that caused the opening to be less than 5 mm. It would possibly get stuck in one of the catheter openings though! I highly doubt the two are related. Good luck to you. Debbie [ more ]
DG78 ❤️
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J-Pouch ForumsGeneral Discussion
Fistula?
S Solomin
Aimc So sorry you didn't find out what's going on. Hopefully you will continue to feel better. Aimee [ more ]
Solomin Unfortunately, I did not find out what is going on, although my symptoms have decreased slightly (less discomfort), but still painful burning and constant feeling to have to have a BM. [ more ]
Aimc Solomin, did you find out what's going on with you? Really does sound like c diff! [ more ]
See all 6 replies...
J-Pouch ForumsWomen's Health & Pregnancy
Pain from scar tissue during pregnancy
LG little greeny
susbo Hi there! I didn't have the pain described by a couple of you with either of my 2 j-pouch pregnancies, but I think it totally makes sense that it could be from abdominal scar tissue. Hopefully it does get better over time. I don't think my scars look particularly different from either pregnancy- they just stretched out and then went back to "normal." I had both my babies via IVF because of scar tissue and am also planning a third. [ more ]
little greeny @SZ it is an older thread but I believe most of us are still here. My J pouch baby I wrote the post about turned three last week! I’ve since had another J pouch baby and am planning a third. My second j pouch baby was completely pain free so I credit my first for breaking up my scar tissue (and allowing me to get pregnant a second time without IVF). My scar went back to normal after both were delivered (once my uterus shrunk). Both my babies were vaginal deliveries so I didn’t acquire new... [ more ]
SZ Thanks everyone for sharing your experience! It is my first baby at 37. We’re pretty excited! [ more ]
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William J. Johnson
bjohnson@j-pouch.org

Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

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General Disclaimer

 

This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.


Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).

Confidentiality

Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.

 

CCFA

The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100


National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440    800-343-3637

 

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  • Graham Lerwill
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