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J-Pouch ForumsHelp! Need advice now!
Dr. Bo Shen Insurance
T Taichitwin
Scott F The degree to which a particular health insurance policy is restrictive about who you can see varies a lot - it has nothing to do with the health insurance marketplace. I get my insurance through the marketplace, but I chose a Blue Cross plan with a broad, national network (that’s more expensive, unfortunately). Hopefully at the next open enrollment period you might have more flexible insurance options available. I know this doesn’t help much now, but it’s worth tucking away for later. In... [ more ]
Former Member I think the answer above is the best. I would try the answer above. If that does not work, then definitely do not lose hope. If you ever need Dr. Shen's email, let me know. I am not sure if he can help on this matter or not but let me know. Keep us updated, good luck [ more ]
CTBarrister Jacob, I have fought this same issue previously over another Pouch expert, and I find it odd that they have put the burden on you and your GI to determine that "there is no one in network and in my city qualified to deal with my chronic issues related to my J-Pouch", when they should have the burden of stating who in network has such experience. When I ran into this issue in 2009, and my Connecticut insurance company pulled the plug on a New York City pouch expert (a Shen type in his day but... [ more ]
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J-Pouch ForumsGeneral Discussion
Jpouch
F Francesca2020
Former Member You are welcome my dear!!! Whenever I get depressed, I think about the things I am grateful for, that always picks me up whenever I am down, I think that might help you too with every bad memory, replace it with a good memory or good thoughts and grateful things Oh good, thanks! I always love it whenever people keep me posted Good luck!!!! [ more ]
Francesca2020 Thankyou! I'm glad someone does ! Haha jk doing my best. My new thought process "is why not me " better me than someone else. Not 100% sure what day next week. But asap. I'll keep you posted 😀 [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
Vsl
K kubrider
mamaswans I take VSL #3 on a prn basis. My gastroenterologist frequently has samples that he generously gives me when i need them. It is terribly expensive, but is the best solution in my experience to calm a cranky j-pouch and get it back to "normal". Don't be afraid to ask for samples! [ more ]
Scott F CareFirst BlueCross has moved the location for their policy statement supporting the coverage of VSL #3 DS in the maintenance of an ileal pouch. It looks like it’s now best approached from this link: https://provider.carefirst.com.../medical-policy.page Click on the “Medical Policies” button and search for “Probiotics,” and select the Probiotics document from the list (of two). I think the site really wants you to agree to the disclaimer that sometimes shows up. Insurance companies aren’t... [ more ]
Scott F "Natural " sources of probiotics tend to have bacterial strains that are largely killed by the acidity of the stomach. "Manufactured" probiotics tend to select strains more likely to survive the journey to the pouch. Or so I've read. [ more ]
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J-Pouch ForumsGeneral Discussion
Fiber
AP Al P
Scott F Experimentation with fiber is very useful for folks to find out what works best for them. Psyllium is actually 70% soluble fiber and 30% insoluble fiber. Here’s some more detail from a Mayo publication: ”Fiber is classified as soluble or insoluble. Soluble fibers are more fermentable and may cause gas. Insoluble fibers move through the digestive system largely intact, and that can increase stool bulk. Most fiber supplements are exclusively soluble or insoluble fiber. For example, FiberCon... [ more ]
Former Member I tried All-bran cereal from Kellogg’s a few days ago, and it dropped my frequency significantly. I ate a 1.5 cup bowl with milk, and I heated the cereal in the microwave for a minute, as I usually do with harder cereals. However, I read here on this forum that all-bran gave some pouchers terrible obstruction! So be careful! I guess I did not have issues because I heated it like instant oatmeal, and it was easy to chew. One member said that their Dr recommended only 1/3 cup a day. So, I ate... [ more ]
Former Member ❤️
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J-Pouch ForumsHelp! Need advice now!
Number of toilet trips
ToniToni
ytcrockpot Totally agree with Scott, 4-6x a day for a well pouch, lucky if you go less. In my younger days I went about 2-4x a day with no meds, that was over 30yrs ago lol. finding a gastro that specializes in the pouch is a big help, but hard to find. I would travel the country (which I did) if it meant finding the right help for my pouch. [ more ]
lclassen I'm about 10+. Let's put it this way... I never go to the bathroom without pooping! My GI says that I have had a "less than desirable" outcome to my surgery. I don't have chronic pouchitis or cuffitis. Just had my pouch-oscopy this month and everything looked great! Don't need to have another one for 3 years! [ more ]
AWalkingTestimony On average for myself I usually go about 5 to 8 times on a bad day and 3 to 5 on good days. Like @Scott F I also take Psyllium fiber capsules and Imodium(only when I need to) to slow things down. After my surgery I was going around 10 to 15 times a day but things got better over time. I have only had my JPouch for a year and 2 months. Never had accidents. [ more ]
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J-Pouch ForumsGeneral Discussion
Dental Health Tips :)
FM Former Member
Pouchomarx NOT GETTING DENTURES,,LOL, already invested a lot of money in my teeth. Braces at 35 years old and have perfect teeth. and no gum or bone disease. [ more ]
Former Member Did you brush with a hard tooth brush back then or did you brush your teeth over 2 minutes??? A soft toothbrush is always recommended over hard toothbrush. Brush time is usually recommended at 2 minutes. I am sorry to hear all of that as well! I could not imagine paying for all of that! Would you like to get dentures instead??? [ more ]
Pouchomarx I have bad gum recession. I do not have gingivitis or periodontal disease. Periodontist said usually with as much gum recession most have gingivitis or periodontal disease but I have neither. He said the recession could be from aggressive brushing over the years or could be hereditary. I know my dad had full dentures by age of 40 so I am guessing its that. I had 4 teeth done 5 years ago and it was horribly expensive. I followed up today and he said I have 10 teeth that need done or I may... [ more ]
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J-Pouch ForumsHelp! Need advice now!
2 years post-op pain...
K KB1804
Former Member Sorry you are in pain!! Hope you get better! Yeah, I agree with you 100%. A lot of people have had problems with certain exercises on here, especially involving core. I hope everything gets better dear. I think you maybe need to get checked out by your gastro. I would make an appointment, especially if you do not feel better soon. Please keep me updated I personally do not do much core exercises anymore. I only do about 10 situps and then I stop. That seems to not cause me anymore problems... [ more ]
KB1804 No, this was caused by some light core exercises. I’ve had no pain/gas issues recently other than this. I am still in a lot of pain, with cramping and reflux and I have not eaten at all today. [ more ]
Former Member I have experienced that before around my scars area before. I believe mine was pressure pain from gas and overeating. Whenever I over ate, I would feel that pain. I increased my water intake and ate little less and everything went fine. Are you overeating? Are you drinking enough water? And are you eating gassy foods??? [ more ]
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J-Pouch ForumsGeneral Discussion
Has anyone been diagnosed with perioral dermatitis/small intestine bacteria overgrowth?
B BridgetB
Former Member Glad you are okay honey!!! Maybe you should not use masks at all, just a opinionated suggestion. [ more ]
BridgetB UPDATE: Thank you to everyone for replying. I finally got a dermatological diagnosis and it is, in fact, a form of eczema (caused by friction and moisture due to mask-wearing). I saw 2 other clinic doctors prior to the dermatologist and perioral dermatitis was on the differential, but it turns out, it's not that, and 2 days on the correct topical treatment has pretty much cleared it up - there's some discoloration but that will fade over time. I have been advised to wear barrier cream under... [ more ]
tf Hi, I have been dx with siob & was put on Rifaximin: is a broad-spectrum nonabsorbed rifamycin antibiotic with an excellent safety profile, a lack of drug interactions, and minimal effect on the intestinal microbiome. This gut-selective antimicrobial is currently approved. It's very expensive & tried a few times. I tried a herbal formula of this for over a yr. (Can't remember the name). It did help. When I get a lot of gas & bloating I can tell it's back. Diet is key. Also, I... [ more ]
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J-Pouch ForumsGeneral Discussion
Vivomixx alternative
drone3drone3
Former Member I have experience with natural probiotics, I am not sure if that counts for an answer but I hope it does. I eat Oatmeal for a prebiotic and Greek Yogurt for a probiotic, I never had pouchitits either. Some people on here take Align, you can get it at a grocery story, I see it at Target all the time. Sometimes its even on sale for a MAD good price! I hear Kefir drinks are good for you too [ more ]
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J-Pouch ForumsGeneral Discussion
How is the jpouch redo done
A Andreita
Maggie4 Hello, Adrina, good morning! How exciting that this is coming up for you, just wonderful - with an amazing doctor. Would you be able to ask him, or someone on his team, your questions, and then post the answers here for us to learn? I am sure he/they can give you your options. I'm so happy for you!! [ more ]
Former Member ❤️
Former Member I do not have experience in this but I just wanted to say: I know you have been suffering a lot lately, I hope everything works out! I just wanted to let you know you have been in my thoughts and prayers. Please keep me updated how things turn out, Good luck with everything! [ more ]
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J-Pouch ForumsHelp! Need advice now!
Pouchitis and/or Cuffitis
G grandmaof1
SteveG Might your pain be related to an anal fissure? I had one several years ago, it causes pain after going to the toilet if something gets stuck in the fissure. I thought it was pouchitis / cuffitis for several weeks, until I finally found out. With a fissure it helps to clean the anal region with water (shower), not only toilet paper. Pushing is usually not a good idea. If you are constipated, have you tried psyllium husk added to a meal with enough water? [ more ]
Boda My daughter had similar symptoms and it was cuffitis with a stricture. It was difficult to go and felt like a pushing a bowling ball out. It was due to inflammation. They did a scope and found it. They stretched it and used some sort of shot on it and it hasn’t come back. [ more ]
MJC I never have a fever with pouchitis and have had the same symptoms you are experiencing. Do you still see your Colo-Rectal surgeon or just your Gastro? I would call and get in sooner than 2 weeks! Good Luck. [ more ]
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J-Pouch ForumsGeneral Discussion
Functional medicine
MN Minnesota Nice
Jan Dollar Remicade has a similar adverse effect profile as Humira or any other biologic, so if those adverse effects are the primary worry, switching to another biologic will not be a solution. I have been dealing with UC and its adverse effects since 1972. I truly believe that there is no “natural” method of management that is long lasting. I actually thought I had wished my UC away with positive thinking after an initial severe pancolitis attack when I was 15. Of course, I was on steroids and that... [ more ]
Former Member Maybe Remicade might possibly be the next step along with probiotics possibly. Hope everything works out [ more ]
ytcrockpot @Minnesota Nice one of my doctors is similar to a functional medicine doc. He thinks outside the box, when I think most regular doctors don’t. Diet is a very big thing when it comes to Jpouches although a regular doctor just doesn’t go down that road, they usually send you to a nutritionist, I don’t find nutritionists help at all, I no what I can & can’t eat 40yrs into this and now the only med left for me is a biologic, it’s not something I’m looking forward to, but do hear they help. [ more ]
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J-Pouch ForumsGeneral Discussion
8 week update. First day back in the gym
J Jaydog
dd ❤️
Jaydog It's been great. I've always liked lifting. It feels great to be back. Whether you join a gym or do resistance training I would say if you feel good then do it. Working out is great for your body and mind. I work out 4 days a week for about an hour or hour and a half per workout. For me that's about the only time I'm truly alone. No phone. I'm off the grid just listening to headphones and it's great. [ more ]
Former Member Jaydog how is the gym going?I'm thinking of joining one but I see the new thing is resistance bands that you can attach to doors or garage roofs for very cheap prices. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Remicade treatment
Mema 1Mema 1
Former Member Your welcome and okay sounds good! Good luck [ more ]
Mema 1 Thanks, Lauren, appreciate your answer. One of the problems was that my doctor was on vacation and hadn't gotten back to me and I couldn't reach anyone else. I did speak to the nurse in the infusion center and she felt it was okay to wait. [ more ]
Former Member This is a really good question!!! Definitely! I would recommend asking whoever prescribed you the medication. I would hate for someone to tell the wrong advice and then something happens. Definitely ask the doctor ASAP [ more ]
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J-Pouch ForumsGeneral Discussion
Natural Probiotics
CTBarristerCTBarrister
Former Member I am 6 years in and I do not take probiotic (pills), buts its not a bad idea. [ more ]
CTBarrister I tried this product today, Chobani pineapple turmeric probiotic beverage. Tasty! Slightly tart not sweet, has a little apple cider vinegar in it but you can't really taste it and doesn't have the vinegary taste of kombucha: https://www.chobani.com/produc.../pineapple-turmeric/ [ more ]
SteveG I have some natural yoghurt without any additives every morning, with fresh fruit slices, ground linseed and some nuts. The yoghurt you buy contains still some natural sugar (lactose). (If you produce your own SCD style yoghurt with a yoghurt maker you can see the difference, that tastes really sour.) But luckily I can tolerate lactose in small amounts. I'm not sure if probiotic meds are beneficial to me. I have one with 20 different bacteria stems at the moment and try to evaluate the... [ more ]
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J-Pouch ForumsGeneral Discussion
VSL Prescription Denied
Jill RJill R
Scott F CareFirst BlueCross has moved the location for their policy statement supporting the coverage of VSL #3 DS in the maintenance of an ileal pouch. It looks like it’s best approached from this link: https://provider.carefirst.com.../medical-policy.page Click on the “Medical Policies” button and search for “Probiotics,” and select the Probiotics document from the list (of two). I think the site really wants you to agree to the disclaimer that sometimes shows up. Insurance companies aren’t bound... [ more ]
Scott F If you don't go beyond the insurance company-managed appeals then you're unlikely to succeed. Ultimately I caused CareFirst BlueCross to develop a fairly liberal policy wrt VSL #3 DS. The key language is: "VSL#3-DS®, available by prescription only as a medical food, may be considered medically necessary for the dietary management of an ileal pouch and ulcerative colitis. Non-prescription probiotics are available over-the-counter (OTC) and are not covered." If you're interested in the whole... [ more ]
Janiep ❤️
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J-Pouch ForumsHelp! Need advice now!
Jpouch contrast ct scan
J Jess623
Former Member J pouch redos are definitely possible but it depends on the situation of course, i do not know your exact situation but never lose hope. I hope everything will work out and please keep us updated I am sorry for everything you are going through [ more ]
Scott F Pouches can definitely be made again, depending on the cause of the first pouch’s failure. It sounds, though, like you might just have a simple stricture. These can be a significant nuisance, and sometimes repeated dilations are needed, but they don’t generally require a pouch re-do. [ more ]
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J-Pouch ForumsPouchitis
Cipro vs ?
A Almac
Former Member Yeah Cipro has a tendency of thickening up stool. I Definitely increase water intake as much as possible. I think that can possibly help your situation, also moving around as much as possible. [ more ]
Scott F If the Cipro (and rifaximin) are just making the stool too thick to pass comfortably, perhaps they would work acceptably if you took some steps in advance and during treatment to offset that effect. Some possibilities include 1) drinking lots more water, and maybe adding grape juice, 2) stopping all bowel slowers (Lomotil and Imodium) if you take them, 3) tinkering with fiber dose (it’s often recommended for constipation) or stopping it, 4) adjusting your diet to reduce/avoid binding foods. [ more ]
CTBarrister Tinidazole was a core antibiotic in my rotation. However unlike you I tolerated all of them well and they all worked well on symptoms before I finally went on Remicade and put antibiotics in my rear view mirror. I believe tinidazole is in the same antibiotic family as flagyl aka metronidazole. BTW Bentyl is an anti-spasmodic, not an antibiotic. [ more ]
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J-Pouch ForumsHelp! Need advice now!
diversion colitis type discharge with pouch
J JHendrix
Former Member Glad to hear all of that!!! I think we all panic prematurely at some point in our lives, totally normal [ more ]
JHendrix I didn't end up speaking with the doctor as the discharge disappeared as quickly as it began. It was very unusual but has returned to 'normal'. Who knows. I panicked prematurely...not the 1st time! [ more ]
Former Member Could possibly be pouchitis; that fistula sounds very suspect, I hope its not Crohns. What did the gastro say??? [ more ]
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J-Pouch ForumsGeneral Discussion
Scar Tissue and Chronic Obstructions
R Rachel95
Former Member Your welcome and I am sorry to hear that honey! Maybe you should talk to your gastro/ colon surgeon at this point and see what advice they offer. That is what i would do if my preventative methods ever failed me. [ more ]
Rachel95 Thanks Lauren!! I used to be able to prevent obstructions that way but it seems that I’m chronically partially obstructed at all times these days no matter what (getting enough water always helps tho!). I’d love to know if you or anyone has tried therapies alternative to surgery to help break up scar tissue? I can’t seem to get rid of this partial obstruction (going on two years with it and it’s miserable haha). [ more ]
Former Member I am sorry you have suffered greatly! Obstruction preventatives that i take: Drink water: before, during, and after every meal. Chew Chew Chew and eat slowly! And move around as much as you can, that keeps everything moving. [ more ]
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J-Pouch ForumsGeneral Discussion
How diagnose Crohn's for sure?
P Prescott
Former Member Maybe he should keep the ostomy for now until everything is factual. I will agree with the pill test. I do trust the Prometheus kit a lot. I had both tests done and that came back Ulcerative Colitis for both. Maybe he should get both done and see how the results come back. Hope this helps. I would trust the Doctors opinions more better though. What are you current plans now??? [ more ]
Scott F Crohn’s can sometimes be diagnosed with certainty, but it’s often hard to be sure. The pathologist is the most reliable source of information here, but I can’t tell from your post how confident the pathologist was in the Crohn’s diagnosis. You could ask for a second pathological opinion from a GI pathologist (the subspecialty is called “Gastrointestinal Pathology”). You may get some push-back, since second opinions in pathology are uncommon. Many (perhaps most) surgeons in the US won’t do... [ more ]
CTBarrister He could have another Doctor view/analyze the films. Yes, I have had my J Pouch for close to 29 years. What they are calling Crohn's developed 15 years after, whether that is due to backsplash stool from the J Pouch or a self contained inflammation pattern within the ileum has never really been established and probably does not matter. I am taking Remicade and it responds well to it. The J Pouch is fine; the inflammation at the pouch inlet and in the ileum is more resistant to treatment, but... [ more ]
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J-Pouch ForumsHelp! Need advice now!
Anal Abscess? What happens now!
F feirs1
Former Member I agree to definitely find a specialist for this. Since you do have concerns, maybe you should possibly get a second opinion to make you feel better if you do not like your doctor's suggestion. Hope this helps! [ more ]
feirs1 Thank you for the note. I am talking to a colo-rectal surgeon. Praying that it isn't a fistula. Waiting on MRI results, I feel completely fine now after what I thought was a really bad hemorrhoid so this is all coming as a shock. I am terrified of the surgery both from a recovery and concerns over incontinence. Any perspective on these two since it sounds like you had surgery? [ more ]
Jaypea I have had several abscesses following my j-pouch. Please make sure you see a colo-rectal surgeon if you are going to have it surgically managed. I had one abscess turn into a fistula but I am completely healed now and have not had an abscess for over a year. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Intestinal pain and recommendations for Chicago drs
B beckysmom
Former Member I would look up gastro/ colon surgeons in the area on google and look at the reviews if you have not found a doctor yet. [ more ]
beckysmom Dear Feeleyd and Woogy, thank you both so much for your responses. I will pass this on to my daughter. Feeleyd, thank you, she has been able to teach from home and is very afraid of going to the drs/hospital, I will let her know it is all handled well. Best to both of you! [ more ]
woogy I also see Dr. Hanauer at Northwestern. He's a great doctor. My surgeon for my pouch was Dr. Scott Strong also with Northwestern. Another fantastic doctor. And the teams they work with are also very helpful. Good luck. [ more ]
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J-Pouch ForumsGeneral Discussion
Re: But burn after jpouch surgery?
J JoeJoe
Former Member Convatec sensi cream helped but did not take it away, it made it tolerant, that was my best friend at the time!!!! You will probably get use to everything over time. I found that drinking salt water helped my butt burn tremendously. AND WIPES!!!! [ more ]
JoeJoe Thank you! [ more ]
Meatball I forgot to mention since using Metamucil, I can eat anything I want and it has no affect when it comes out the other end, whether it's salads, hot spicy food, anything at all. It's made all the difference in the world! [ more ]
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J-Pouch ForumsPouchitis
Anyone on Humira? Please share your experience with the weekly injections.
Melissa (MCJ)Melissa (MCJ)
Melissa (MCJ) Hi, I'm so sorry I didn't get back to you sooner. Thanks so much for all your tips. I do some of them, but icing before and after is a good suggestion and massaging afterwards. Also have around 7-9 bms in 24 hours and no leaking at night anymore, so that's great. Be well. [ more ]
pouchmonkey Hi Melissa! I also have the red, itchy injection sites. I’ve been on humira for a year & here are a few tricks that help-let the pen sit out for 15-30 mins to warm up so the medicine isn’t like thick gel or it is definitely painful. You can I’ve the skin before & after the injection, which also helps. Make sure to move the site around, switch legs & areas, & pinch the skin up with one hand, inject with the other. Also, after the injection, take a towel & massage the area. [ more ]
SteveG Yes, I'm injecting it myself. That's much easier than the Remicade infusions some years ago. Hopefully Humira keeps helping you. Perhaps at that last injection you hit an unfavorable spot. [ more ]
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J-Pouch ForumsGeneral Discussion
Pelvic floor disorder (uterine prolapse) - caused by j-pouch surgery?
genreinagenreina
genreina Hi! I'm so sorry you're dealing with this. I ended up having several appointments with physical therapists, which did help (insurance was a problem, but eventually got that taken care of). Part of my problem seemed to be that I had virtually no core strength, which also led to lower back issues. But also, the article linked in @duck11 's post was very helpful, both for me and the physical therapist, to understanding what was happening. Learning exercises to get those muscles to relax, and to... [ more ]
Kh1988 Hi there! I was wondering whatever happened with your prolapse? Do you still have it or did you have surgery? I have had my jpouch for almost two years but one year out from surgery I developed a bladder prolapse out of nowhere. I had been straining some and I think that’s why it happened. It bothers me so much bc I have difficult defecation with my jpouch. It is hard for my to empty out. I take miralax 2 times a day to have a bm. Now I almost feel like the bladder prolapse is in the way of... [ more ]
genreina Thank you so much for this! I've printed the article and will mention a pelvic floor physiotherapist; hopefully one or the other will get me some help. Good luck to you also! I hope your PFD continues to improve. [ more ]
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J-Pouch ForumsGeneral Discussion
What did you feed your pouch on Super Bowl Day???!!!
FM Former Member
Former Member I have not drank since my J-pouch surgery, I do not plan on it either. Only special stuff goes inside Emmie Be careful with that stuff Ryan [ more ]
Ryan138 It went much better this time....last time not so good....I have only had 2 beers since July and the first time was so bad I was scared to try.....but it was ok and tasted great [ more ]
Former Member I see your a foodie too! Lol I remember you telling me that lol. How did your pouch handle the beer??? [ more ]
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J-Pouch ForumsHelp! Need advice now!
Why am I Losing Weight?j
R rhemac
Former Member Maybe you are absorbing less because you are getting older? Just a theory. [ more ]
Scott F When you tried Metamucil did it really have no effect on your stool consistency? What dose were you using? I’m starting with Metamucil because it works in a very simple, mechanical way. Not everyone likes the effect, but it would be strange to not get an effect at all. Also: do you know how many calories you’re consuming in a day? [ more ]
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J-Pouch ForumsHelp! Need advice now!
Total Colectomy Links to Depression
CL Christopher Louie Szabo
tulsamom I wish I could take them again. You all are reminding me of why I try them again every year. It’s about that time again. 😂 in the olden days, they did make a difference. But each one pooped out after a while and I’d have to switch. That happens with some people. Since 2013 I haven’t been able to take them because of severe side effects. It’s been a much tougher life since then. [ more ]
Former Member Yeah me too Meatball they took me off lexapro for a week and I turned into a crying mess again .but as soon as I started again I became content. [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
X-rays in underwear
T TCM
Former Member I think each situation might be different. I have taken many X-rays while my underwear was on and some with a hospital gown, some even with bra on I believe. II have never been naked though, that would be creepy lol. I believe I have had doctors position me as well when it came to radiology work. I know things can be highly uncomfortable but I would just get everything done to make sure everything is okay. Of course if there is something skecthy going on, definitely speak up and use your... [ more ]
CTBarrister Jaypea, I understand you are in the healthcare profession but I am 57 years old, have been a "professional patient" most of my life, and never had to have a "chaperone" in the room until the episode I described above. It's very simple: if a doctor is telling me he or she doesn't trust me as a patient, or else can't trust himself or herself, I do not want to be their patient. I do have the choice of going elsewhere, and I exercised that choice. [ more ]
Jaypea X-rays without a simple gown and only briefs is unacceptable. Had she needed to position you more correctly she could have asked you to raise the gown above your hips. Having a chaperone is quite common. As a nurse in a pediatric ER I was often asked to accompany a male physician into the cubicle when he was examining a female patient on her own. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Fissure
K kentuckyboy
nicole s ❤️
Former Member I know asking for a doctor's help can be dreading and I am sorry for that, sometimes life is not fair unfortunately. I would much rather you ask your doctor, I have faith you can find the strength to ask him for his help. Keep us updated, hope you feel better [ more ]
Scott F There are medications that can help resolve anal fissures (nitroglycerin, diltiazem, verapamil). Sitz baths can help. Keeping stool from getting too firm can help. Definitely ask your doctor. If what you have is external then it wouldn’t be an anal fissure, but your doctor might still be able to help. [ more ]
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J-Pouch ForumsGeneral Discussion
Covid questions
GrannyJ64GrannyJ64
Lisa H I am recently recovered from Covid. I don’t think I’ve been that sick in a very long time. Difficulty breathing, constant dry cough, fever, aches, migraine-like headache. I was fine for the first nine days and then almost overnight the symptoms appeared. I went to an urgent care center where they’ve been treating hundreds of patients. They put me on a medrol dose pack, z-pack, inhaler, and cough pills - benzonatate. There were a few times that I was close to going to the ER. It took another... [ more ]
tf Hi, I was dx with UC in 98 very bad case and after take down and Jpouch in 2013 I still have UC, IBD. My immune system is not 100% and I don't take drugs except for Lomotil prn and Hyoscyamine prn. My primary Dr who I just seen said that I should put on form immunocompromised because I am. I take my vitamins and exercise and do I need to stay strong. The fact is I still am not because I lack nutrient and the more u put in the more comes out no matter what for me anyway. I think your age is... [ more ]
Sos ❤️
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J-Pouch ForumsPouchitis
Joint Pain associated with Pouchitis symptoms
JPouch_2016JPouch_2016
GrannyJ64 Jpouch_2016 I wanted to share with you that magnesium will for sure make you have to go to the bathroom more. So maybe try stopping it to see if that makes a difference. [ more ]
JPouch_2016 Pouchmonkey - Thank you for sharing your experience. This is interesting info. Was the bacterial growth in your gut? For me, I thought it might have something to do with low K levels, but blood work showed my levels were normal. I will mention your experience w/ my doctor, maybe they can give me an antibiotic or suggest something else. Have you tried probiotics? If so did you find that it helped? [ more ]
pouchmonkey I had a lot of aches & body pain-mostly back & neck, & was going to PT & getting trigger point injections for a year, had also gone on humira & my Dr’s PA put me on Xifaxan (expensive antibiotic) after I developed a sensitivity to Flagyl...& the body pain disappeared...he said it was a bacterial growth & im looking at changing the diet to try to avoid sugars & other carbs (already GF). Best of luck to you, hope you feel better soon! [ more ]
See all 10 replies...
J-Pouch ForumsOstomy & Skin
Anal skin irritation
E Eniak1980
Former Member I find as a guy the travel bidet with the small angled spout is best .I also find the travel bidets are easier to clean as they do get splash on them and you can put warm water in them and that feels great I also bought a one size fits all toilet seat bidet that didn't fit and I don't know how easy to keep them clean .the travel bidet is easy clean,warm water if you don't have an electrician and cheap [ more ]
Nancita @Chook- I ordered my sudocrem from Walmart (I’m in Seattle Washington - USA) under $12 and delivered in 3 days! Active ingredient is zinc oxide w/ some lanolin. Very nice but honestly you could buy the zinc and add lanolin and make it your self. But I’ll use it. Very mild effective and smells nice. On to water cleansing 💦 To further reduce butt burn. I now use water! For those who can’t add a bidet to their toilet, like me, I recommend Tushy’s travel Bidet! I bought a Pink one and it’s... [ more ]
Tony DeLorenzo Dear Eniak1980, We have identical medical issues. I'm always dealing with anal skin irritation. I've found that the best (non-irritating) wipes are Target's Fragrance-free. I take out about 25 at a time rinse them in warm water and ring-out any remaining chemicals. I've tried every wipe on the market and these are the best. After using the softest toilet paper that I can find, then I use the moist wipes, and then let it dry for a couple of minutes, and then cover the irritated area with... [ more ]
See all 21 replies...
J-Pouch ForumsGeneral Discussion
COVID-19
melissa111melissa111
CTBarrister Several people (at least 3) discussed their experience with Covid in this thread, and your other questions were also addressed in this thread by numerous posts: https://www.j-pouch.org/topic/covid-questions [ more ]
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