NYC GooglerThank you Jan, I don't know how long I've witnessed your calming and informed presence on this forum but I'm guessing you have to be at least 127 years old. I'm hoping you'll outlive me as I don't know what I'd do without you. Cheers, I'm off to take a hit of Pepto. [ more ]
tulsamomThank you Scott. I really don’t drink and have never had liver numbers abnormal. Still, I will use only what is necessary only for as long as it is. [ more ]
Scott FTylenol is very safe in the usual doses (e.g. extra strength). The higher doses can be risky if you drink alcohol or have liver disease (whether you know it or not). [ more ]
tulsamomThank you for that information. I wasn't aware about the dosages of Tylenol. [ more ]
BorislavHello @Len78 Hello I read now my history (epicrisis about octomber i was in hospital 02.10.2024) and was wrote that i have Fundic gland Polyps 4 polyps size 0.2mm small.. i read that fundic gland polyps are because i drink for acids medicaments proton pump inhibitor (ppi) - Nexium is because i drink i make more polyps and are this polyps like adenoma what is the diffrent beetwen them and says that i have hyperplastic polyps in pouch what is this meaning of hyperplastic? three years i check... [ more ]
Len78Borislav, I’m a fellow FAP member your dr should be removing those polyps not telling you they’re ok polyps increase in size and quantity with our disease I’m facing a total gastrectomy for carpeting in the stomach and I too have some polyps in the duodenom the greater the polyp in size the more likely it is to become dysplastic honestly I’d be shopping for a new gastrointerogist one who agrees that he should be proactive as progressive with your polyps fap disease is a monster by the way... [ more ]
BorislavAnd he says in ampullla hater not have polyps only around ampulla vater [ more ]
Jan DollarI have been on Remicade since 2016 (on biosimilar Inflectra since 2018). I would not second guess your choices. Skyrizi was not even available when I started Remicade and I had failed other biologics. There just is more data with Remicade because it has been around so long. So, I may wind up on Skyrizi at some point. I just started with a new GI and we talked about the newer biologics. But, he’s of the notion of sticking with what works. He even said he is not inclined to mess with my meds... [ more ]
ytcrockpotHi Jan, May I ask how long you’ve been on remicade? My doctor gave me choice between remicade & Skyrizi. I’ve seen a few posts stating remicade is working very well for inflammation & pouchitis. I chose skyrizi because it seems to have less side effects, but maybe I shouldn’t be looking at that and look for something that actually might work better for me. Thanks, Yvonne [ more ]
chili123So, if I have chronic inflammation in the terminal ileum, how can they tell if I have more issues farther up? My gi doctor, who is new for me and also new in her practice, had a lot of blood tests done and stool sample.....and all were pretty good...2 were just over normal.....stool was 56 and normal was up to 50....so I was sure that my biopsies would be okay. [ more ]
Jan DollarHow about Benefiber? Mixes clear and you can put it in water or anything. No taste. No grit. Metamucil always gave me a ton of gas and diarrhea. I guess I am sensitive to it. [ more ]
Deb CIf my math is correct it would take 10 of the Kirkland capsules to equal 1 teaspoon of Konsyl psyllium powder. [ more ]
Jan DollarDitto on the above in regard to acute vs chronic kidney disease. I am also one with chronic mild kidney disease. Yeah, I trend toward dehydration, mostly out of laziness. Plus, I also have type 2 diabetes. My primary has put me on low dose losartin (an angiotensin II receptor blocker) and Jardiance (SGLT2 inhibitor) to help protect kidney function and prevent further damage. My renal function has improved somewhat . I try to actively keep my fluids up, but I am still lazy. Jan [ more ]
SpookyHello! Good to see some familiar faces! I don't mean to be a stranger, I should pop in more often! I'm mostly doing well, with the occasional health hiccups that I've come to expect after almost 20 years without a colon. How are you doing? Thanks so much for the info. I thought it was odd that the eGFR would fluctuate nearly 20 pts either way (I couldn't find much online about rates varying at all, other than to say they decline with age) , but hydration could certainly explain it. I... [ more ]
LjzYIke’s! Had not heard that BCIR not being done anymore nor did I hear that regarding K pouch. I think Dr Dietz is last I heard doing k pouch. Really makes me hope J pouch redo goes well if in fact this is the case. [ more ]
PouchomarxJust be aware the BCIR isnt really performed any longer. Even the kpouch is hard to find a surgeon these days. [ more ]
RHolt@iitm500, thanks for your honest response and describing your approach. I have a younger brother who had 90% of his colon removed (sigmoid remaining) due to Lynch syndrome and colon CA (we have that in our family) and he is gay. He has some mental health issues and I am not sure he will be in a relationship again, however, it is good to know that it is possible, even with a J-pouch, to be the receptive partner if he ever met the right understanding, caring person. I really appreciate you... [ more ]
ittm500I’m very open about all of this so happy to answer questions. I started with smaller dildos and worked my way up. Half the battle is learning how to control your muscles and relax. It wasn’t until after 2 years of trying (keep in mind this was also several years after the actual surgery, so it was fully healed) I finally cracked the code and figured out what worked to relax. I just exhale and pretend the breath is going all the way down and out my butt lol. I don’t think any of it was about... [ more ]
BubbapupHow far are you post surgery. If it’s still in the first few months it will get better. But I’m 8 years out and I get butt burn all the time, to the point where I see blood on the toilet paper from my irritated skin. I use calmoseptine cream, have a bidet, use wipes at work, but I still get it. It’s just something i deal with now. I also try to take medicine and added fiber to decrease output. It sucks though. But maybe some changes like that might help a little. Hang in there! [ more ]
Former MemberAMEN!!!!! If you get it at cvs and sign up for extracare , you get coupons!!!! Yeah i miss spicy food haha, i use mild hot sauce now. Can you tolerate mild??? [ more ]
LjzYes- that was a typo. Yes, I put little in anus without any issues. The ointment with the 3 ingredients was meant to be inserted in anus to promote healing too. [ more ]
Sara MarieThank you! I may try that out sometime! I usually use Calmoseptine like Lauren does, but I have wondered if there is anything better because the Calmoseptine comes off when you poop and wipe. When you said "up into Amy's" I imagine you were using speech to text and you actually said "up into the anus". Is that correct? So you put it a little ways in there. Good to know that isn't irritating. I'm so glad you have healed. Yay! And thanks for the tip! I get a sore or itchy butthole from so many... [ more ]
LjzThose are the 2 products. No sting- thankfully! Had initially used Convatec Stomadhesive but it stung. Initially did 60/40% but I reduced amount of paste. Mixed well. Good luck! I push a dab up into Amy’s and also put plop right at anus. It doesn’t harden as much as Ilex did but best of anything I’ve tried. I do have rectal cuff but had tear and ulcerations inside and around opening. They have healed! [ more ]
Len78Sorry I’m 5 feet 5 tall and 200 pounds that sentence should have read [ more ]
Len78hi Jan, Diarrhea as a day to day and more frequent trips than just what a jpouch brings wo gastrectomy are some of my fears uncertsin transit time and winding up needing pull ups due to dumping syndrome comming on are also fears no one has answers, surgeon doesnt know how it will affect me post colectomy and living with jjpouch not having a stomach I want to be able to go shopping for clothing and food on my own after recovery which takes 6 months to a year ill have b12 issues and require... [ more ]
David DaveThank you so much for your response. I am also just finding out about the sacral nerve stimulators, I haven't talked to a doctor about those yet; but, I'm reading more about them. dave [ more ]
Jan DollarArtificial sphincters have been around for at least a couple of decades, mostly for urinary incontinence. My dad had one for urinary incontinence following prostate surgery. It was successful for him. But, urinary incontinence is different than fecal incontinence. There are a litany of complications, but the main one is erosion through the internal walls. They are always coming up with new designs. I hope the surgeon has some good options for you. A while back I read about sacral nerve... [ more ]
nocolonstillrollingbbHey! Fellow colonic inertia haver here. J-pouch saved my life. Thank you for spreading awareness about this condition - never met anyone else with it! [ more ]
Former Member@Former Member Thank-you! You are so right! Its a damn shame that doctors do not follow common sense! What doctor would think to leave a unused colon/rectum with a ileostomy??? Crazy as hell! @SeattleJane My birthday was yesterday so I spent it with my dad in the hospital, we are going to celebrate this week!!!My dad was in the hospital for two weeks!!! He finally was released from the hospital today!!! We are home now together!!! He has home health because he is going to be on antibiotics... [ more ]
liza_sThanks for the replies! Yes I use pysillum husk. I worry the risk isn’t worth us considering an injury could disable me from my job as a chef. What alternatives are there to cipro besides flagyl? I’m happy to try flagyl as I don’t drink and I don’t remember having bad side effects when I have taken it before. [ more ]
AMBI took Cipro for probably most of the first year or two. Had tendon strain and pain but no rupture. Thank goodness. It certainly slows your output down but can also firm stool up to the point where it causes more harm than good for some. To get off Cipro I was put in Tinidazole for a while which is a next generation Flagyl with fewer side effects. Now I am on Rifaximin 550 TID which has been the best for my "floppy pouch" issue. I'm very happy to be off Cipro. Have you tried psyllium husk? [ more ]
CTBarristerI took it for almost 20 years, almost continuously, and never had tendon issues. Cipro does photosensitize your skin so if you go out in the sun you will burn much faster than you normally would, meaning use a lot of sunblock. Other than the photosensitizing of skin, the one other side effect of Cipro taken long term is being prone to fungal (yeast) infections and viral (warts) in your skin. Especially at higher dosages. I found those side effects are counteracted by rotating onto other... [ more ]
Len78Thanks Jan!! my instructions said have a light dinner at the bottom not clears all day the day before. At 3 I had a spoke two slices of cheese and some precut salami Genoa because of different input from like 5 different nurses one said stopping eating wasn’t necessary today the day before I’ll do my enemas tommorrow pouchoscopy morning but the dr wanted the mag citrate too abd I’m post trans anal mucosectomy 4/17/24 I thought not having a rectal cuff anymore I could get away with just... [ more ]
Len78Thank you I’ve been given different opinions and instruction from 5 different nurses some said two enemas only either fleet contained or warm tap watered but the latest is to do the msg cutrate which I started on at 6 about 39 mins ago my time i confessed to the staff I ate a few slices of Genoa salami two precut slices of cheese and a entire apple all at 3 pm today dr relayed to staff member to tell me to do the mag citrate 10oz bottle im on the 3rd sip of it at 650 tonight/soon 2nd may... [ more ]
Jan DollarI always do clear liquids and a bottle of mag citrate the day before. My new GI ordered the standard sigmoid prep with clear liquids, Miralax, and mag citrate but that is overkill. I guess it all depends on your own transit times. Jan [ more ]
Jan DollarThe reason you don’t need the saline (Fleet) enema is because it is hypertonic (concentrated) to pull water from the colon to stimulate evacuation. We do not need that, just the rinsing. It is the container that we need, and rinse till clear. It does not stay in long enough to really matter one way or the other. I have been doing the mag citrate, but it does not bother me, and I do actually wind up expelling some retained solids that way. Jan [ more ]
Len78Update: callled gastros office the magnesium citrate is not necessary for my flex sig the nurse checking off my instructions made a error those were the of instructions I’m to do two warm tap water enemas and have a ight dinner about 5 pm Wednesday the 9th eve of day before scope the 10th bottom line check with your dr because the instructions could be wrong they stopped assigning mag citrate over a year ago at the facility I use so I’m only doing two tap water enemas on the 10th in the very... [ more ]
Jan DollarI had an incisional hernia repair about year after my j-pouch surgery when I was about 41. It was not as complicated as yours. However, it was supposed to be an ambulatory surgery and I wound up being kept overnight. I had a mesh repair. I don’t remember any serious issues with it. I did have a seroma that needed draining, but otherwise it was pretty much a nothing burger compared to my j-pouch and the litany of complications from that. As far as your age goes, your overall health is more... [ more ]
Former MemberAwesome!!! Please let me know how that goes!!!! I am praying for you. [ more ]
Former MemberYeah same with me as well, I tried to reduce trips as well but have not been successful either. But maybe that is suppose to be our baseline and I think that is pretty healthy for us if were not having any other issues. [ more ]
Former MemberDAMN! That is pretty fast! I am surprised your transit time is faster than mine, especially since I do not eat animals. You must be taking care of your body [ more ]
PalsDoug, I’m sorry to hear that. I did not read everyone’s answer but Rifaximin is for you. It will help. [ more ]
Cb2009I haven’t been tested. I have had it before. But I did do almost 3 weeks of Vancomycin as the first one I tried. So hopefully if it was that, that would have taken care of it. But it didn’t help at all. [ more ]
jan15this could help stoma nurses explain to potential k and bcir patients. it doesn't fill in the pro and con details, but that's why we help each other on this site! btw, i use a fr 34, which is denser, as he explains. it enables me to enlarge the holes. be well, jan [ more ]
emmeJust to add: A very informative video clip, from the BCIR community with reviews of Marlen and Medena straight and curved catheters. https://bcircatheter.com/video/ [ more ]
cindy greeleyThank you for the post and very informative information on study regarding pouchitis. It’s comforting to know this work continues for people with a pouch and we’re not forgotten. Certainly not many of us out there that live with J-pouches, as we are in the minority. But quite thankful I have one and a quality of life 15 years later! [ more ]
cindy greeleyRe: Lecture on pouchitis and mention of a product to help with overnight incontinence [ more ]
SteveGThe first 3 applications should be infusions at the doctor's, with a higher dosage (600 mg) than the injector, which is used afterwards in 8 week intervals (at home). [ more ]
ytcrockpotThank you so much for this reply, it gives me less worries and some hope! I just received my approval From the insurance for that on body injector. It’s very interesting, I watch the video on it. [ more ]
Still StandingI'm currently on Skyrizzi and have been since March of this year. I don't have any major side effects that I'm aware of. We'll know more how it is working when they scope after a year from when I started it. I also take Budesonide and Imuran beside the Skyrizzi. The on body injector is different from just getting a shot, but you'll get the hang of it pretty quick. (It takes 5 minutes to inject the medicine.) I wish there was a magic formula that fixed us all without chemicals and side... [ more ]
Sara MarieDone. Are you saying that many people make super starch and that particular search result that I found was for a bad company? [ more ]
Kushami@Sara Marie , could you please remove the link to the company that you posted? There was a court action lodged against this company alleging inflated claims for its particular version of this product, and I would hate anyone to click through, believe the hype, and spend a lot of money on this because of a thread that I started. Superstarch is a legitimate product in its own right (not "just cornflour") but it appears that this company may have exaggerated its benefits to athletes for sales... [ more ]
Rachel IsobelThank you Scott, I have today spoken with the specialist nurse, updating her on my current predicament. The outcome from this conversation is that I will have to wait until my next scheduled scopes to see my consultant. She will try to ensure that this happens before the end of November, although she couldn’t guarantee this. [ more ]
Scott FRachel, why not make an appointment ASAP with your GI? I’d suggest letting them know that it’s somewhat urgent. If you have developed a pouch outlet stricture the GI might be able to improve things with a finger. If it’s something else then you can at least get the process started of working out what’s going on. I hope things get better soon! [ more ]
Rachel IsobelHi Scott Thank you for your response. When I had the polyp removed in April there was no obstruction and my pouch looked healthy. Currently I can insert the catheter approximately one inch with no difficulty, then I have to try and manipulate it in any further. I do this by pinching it together and pushing it very gently and slowly a mm at a time. Once it is in a few inches I can then move it more freely. Regarding emptying, years ago when I used a catheter it would slide in quickly and... [ more ]
Scott FAre you really saying that you can’t poop at all? I assume that by atropine you actually mean Lomotil (diphenoxylate with atropine). MiraLax might be helpful, but just resuming the psyllium might also help. [ more ]
Bill AThank you for your reply. I stopped taking atropine and psyllium hush a few weeks ago with constipation.. Gas has stopped but not able to pass BM . No pain of blockage. Very hydrated. Exercise regularly. Unsure of what to do. Will try Miralux. [ more ]
HazelHi! Im from Maine also and had Dr. Schoetz, the worlds best colon rectal surgeon! I have a flex/sig scheduled later this month with Dr. Marc Branda. He’s very good. I’ve been seeing him locally for a while now - got a little tired of driving to the Lahey Clinic, although I do miss seeing the doctors there. I don’t have much to say at this point just happy to hear from someone from Maine and having the same surgeon in common. I had my surgery in 1996, so It’s been awhile. Regards, Hazel [ more ]
SeattleJane@CTBarrister What a nightmare for you and your family for your father to die from a complication of cardiac catheterization, I'm so sorry. I appreciate the time you took to explain exactly how the endoscopist approached your dilation. At this point in time, I do not know either the width of the stricture or the approach my G/I doc will take to dilate. From my current symptoms, and from having scoped me 6 months ago and seen narrowing at that time that she dilated, she is reasonably certain I... [ more ]
Mrs PHello, I’ve been on Entyvio since March of this year. I did experience some fatigue initially after my first infusion but it hasn’t been as bad after the following infusions. I did not have the body aches that you’re describing. I do have body aches, due to my age! Hahaha. I take Tylenol which helps. All the best to you [ more ]
CTBarristerThis is nothing more than a marketing technique, a way to get business for advanced endoscopists. And steer patients away from unnecessary surgeries they may be getting sold on by colorectal surgeons. Nothing Dr. Shen describes in that article is new, other than the term he is using for it. Excising polyps and dilating strictures have been treatments that are NOT new developments. What has changed is that GIs routinely did these procedures and many still want to- or else have referred their... [ more ]
Sara MarieYeah, it seems like he is still very invested. I liked that he preferred the less invasive approach, though I didn't like the analogy. People should never be discouraged from biking if we want a better world! [ more ]
Len78Meant that mucosectomy doesnt take away the polyps inside my pouch only had cuff atz zone addressed [ more ]
Len78Hi Scott, thank you very much . So with my pouch having been moved she hand sewn I have a new anastomosis being the atz was removed with the associated length 5 cm cuff. I’ve always had polyps in my jpouch but I’m sure if surgeon felt negative about saving my pouch and the mucosectomy itself he wouldn’t have persued it in the 1st place i don’t at an ostomy there’s no more tinkering with the pouch after this but the procedure first take away te jpouch polyps what I had done thanks and I think... [ more ]
Scott FI’m pretty confident that your procedure would have eliminated any polyps at the old anastomosis. Your new anastomosis should be less prone to polyp formation. You can confirm this in a couple of weeks when you go for your pouchoscopy. [ more ]
JPouch2017In my experience being pregnant twice before my pouch and once after this is a symptom I had with all three. It sounds like it is just your body’s reaction to pregnancy (yay! lol) with all three of mine I had to be constantly munching on something or I’d get incredibly nauseas. It was particularly bad in the beginning. I hope your symptoms level off soon! But if they don’t, don’t let it stress you. Trust your body is asking for what it needs… it takes a LOT of energy to grow a whole human! [ more ]
LjzYes!! Thanks for sharing that! I will definitely call- and my husband will call and I will call again to request it! I did before but never got through nor did they answer emails. Would be wonderful if Ilex became available again! I too have found Kens compound to be similar to Ilex but because the stomadhesive burns I was using maybe 20% of that with 80% of the Cerave which is nice and thick. I will try the alchohol free convatec paste right away but very thankful to ken for finding that... [ more ]
hiyakatHi @ken31cay and everyone, I've been an iLex user for 25 years, and unfortunately, Medline (who now owns iLex) has stopped producing it. I called them, and while they suggested trying "Remedy," I found it doesn’t compare to iLex in terms of consistency or effectiveness. The representative told me she will let management know. If you miss iLex as much as I do, please consider calling Medline to express your support for bringing it back . The more of us who reach out, the more likely they are... [ more ]
KarmenI’m going to try and order these catheters. Freezing my marlen is working but I want one that I don’t have to go to the freezer to go to the bathroom. 😂 [ more ]
Former MemberOh great!!!! I am excited for you to start the journey of getting better!!! I hope you can enjoy New York too [ more ]
tulsamomDr Remzi saw the cause of the jpouch growing up in the abdomen as a restriction near the bottom. So first surgery to create ostomy and let pouch and surrounding tissues heal and rest for 6 months. Then at 6 months- surgery number 2 - he will remove the restriction in the mesorectum and will either reduce jpouch to normal size or create a new one. At 9 months from first surgery, Oct 24, he will hook the restored jpouch back up and close ostomy. Much more extensive and disturbing situation... [ more ]
Former MemberWhy are you getting a temp for 9 months? [ more ]
Former MemberThank-you for psting this!!! I posted that years ago, I am glad you reposted it so other people can see it and new people can see it! one girl on here told me she uses a step stool. [ more ]
Former MemberYes! I agree!!! Thank God!!! Its nice to have people that can empathetically relate!!! And we learn soo much from peoples stories on here!!! Forreal!!! [ more ]
Former MemberWow your j-pouch was botched by Dr. Remzi??? Damn!!! I never heard not one complaint by him. Thank-you for sharing this, I always thought he was perfect. [ more ]
KarmenI just have to say thank god we have this site to turn to. It’s so good to have people who have what you have and can give helpful hints! I’m not a unicorn. [ more ]
Former MemberYeah doctors treat us like shit! I am sorry you went through that hon. A lot of doctors lack empathy [ more ]
nocolonstillrollingbbOh it's bad lmao. I've gotten c diff twice, wasn't taught infection protocol, had to fight them to prescribe c diff specific antibiotics, was refused stool tests, oh my goodness it's been terrible. I could do an entire 10 page post about the way I've been neglected by doctors lmao [ more ]
roxzI just finished 21 days of Flagyl and the swelling is mostly gone, but there is still a hard tubelike lump that occasionally drains pus, thankfully not stool. Sometimes it burns, sometimes it hurts or itches. MRI in 3 days will be interesting if they see anything going on. Like everytime I finish antibiotics I fear everything will come back with a vengence. [ more ]
ShannaleeShortly after my anastomosis/j-pouch surgeries in 2000 I developed a recto-vaginal fistula, so I had stool coming out my vagina for several years. Just as I was coming to grips with having to wear a tampon 24/7, I had a pain that literally felt like my organs were being re-arranged. Next thing I knew, no more! I believe God healed me. You really need a relationship with the Lord to get through this. He loves you! I still have struggles, sometimes more than others. Like lately, I’ve been... [ more ]
Sideshow BobCheck with your Gyn, even if just a phone call. MRI is pretty accurate in detecting fistulas. [ more ]
Jpouch86thank you AllyKat. I appreciate the info and the dr referral. I hope you're feeling better soon! [ more ]
AllyKatI have floppy pouch. I needed a resection to fix the issue. And at the same time my bio drug stopped working. I’ve been pretty sick. I went to Dr Schen for a second opinion. He actually misdiagnosed me. He wanted to put those clips in. After talking to my GI and surgeon I refused and now glad I did. Go see Dr Milsom at Cornell. He’s very experienced in floppy pouches. And My GI is Dr Scherl at the IBD center. Message me if you even want to use my name. [ more ]
Jpouch86Hi all - I'm new to this group and I'm sorry to see that there are so many unsatisfactory outcomes here. I had a j-pouch procedure for UC done in 1986 and have had pretty much every complication over time - pouchitis, obstructions, fistula. About a month ago, after being unable to pass much of anything, I was diagnosed with a "floppy pouch". Dr Shen at Columbia did a scope and inserted some bands but there's really been no improvement in my situation. Like many of you, I'm miserable - just... [ more ]
Jpouch86Hi all - I'm new to this group and I'm sorry to see that there are so many unsatisfactory outcomes here. I had a j-pouch procedure for UC done in 1986 and have had pretty much every complication over time - pouchitis, obstructions, fistula. About a month ago, after being unable to pass much of anything, I was diagnosed with a "floppy pouch". Dr Shen at Columbia Presbyterian in NYC did a scope and inserted some bands but there's really been no improvement in my situation. Like many of you,... [ more ]
AllyKatI’m have this now. I’ve had 4 conservative surgeries and next week I’m having a resection. They found a long loop that needs to be shortened and scar tissue. what have you done for your issue? thanks, I know this post is old but if you see it please respond. I’m extremely nervous. [ more ]
Former MemberDo you think you might need a pouch redo??? [ more ]
Former MemberI have not talked to you or scott for years. I am not going to respond to you or Scott anymore. This is my last response. Leave me alone. [ more ]
CTBarristerHaving someone tell you that you are posting nonsense when you are isn't being rude, it's being real. [ more ]
Former MemberI am not going to waste my time reading all of this. Just please leave me alone, you and Scott have been nothing but rude to me for years. I want you two to leave me alone! [ more ]
After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.
Forum moderator and advisor Jan Dollar R.N.
General Disclaimer
This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.
Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).
Confidentiality
Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.
CCFA
The Crohn's & Colitis Foundation of America, Philadelphia, Delaware Valley chapter, is located at 521 Bustleton Pike, Feasterville, PA, 19053. Tel: 215-396-9100
National CCFA headquarters are at, 396 Park Avenue South, 17th floor New York, New York 10016-8804 Tel: 212-685-3440 800-343-3637
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .
