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J-Pouch ForumsGeneral Discussion
11 month post take down, still struggling
BrigitteBrigitte
Brigitte Thank you all for the advice. Greatly appreciated! [ more ]
girlunky I've noticed now that it's fully summer, if I get dehydrated I have more problems emptying. I also need to drink considerably more water than before surgery, since so much is lost without the colon. Obviously way more when I am exercising in the heat, but more all the time. And you may want to add electrolytes to some of that water, especially if you are in a warm climate. [ more ]
Cb2009 Sorry you are having these problems. I’m only 4 months out but I am the same. If not liquid, I have to strain and push and I get so sore, and usually even then I still don’t feel empty. My surgeon has been less than helpful and I also don’t have a gi right now so I understand what you are going through! The only thing I have found that helps is instead of straining, which for me usually comes morning and night but during the day I’m fine, I use a warm tap water enema. Approved by my surgeon. [ more ]
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J-Pouch ForumsPouchitis
Remicade Failed For Pouchitis/Crohn's - What's Next?
CTBarristerCTBarrister
lholdem Also does anyone have the link to the aforementioned Columbia webinar? [ more ]
lholdem Reading through this thread and thinking I might bookmark it for talking points for my next GI appointment. My Dr thinks I have Chron’s due to inflammation above the pouch but I am loathe to go back on immunosuppressants. I have never been inflammation-free but have felt quite well overall. If my pouch seems to get too upset I feel I can usually bring it back under control with diet and rest. So it seems I have that ongoing “friendly inflammation” that was mentioned? My previous GI would... [ more ]
HappyGilmore This is a useful article that shows a lot of options: https://journals.sagepub.com/d...77/17562848211023376 Also this one (“Clinical guidelines for the management of pouchitis”), see the diagram on page 6. btw, have you tried doxycycline antibiotic? It works for me. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Pouchitis or something worse?
ValenValen
tulsamom Valen, you’re just beginning your life. I hope you find some breathing exercises or mindfulness techniques, or something else that works for you. If you can do that now, you will be doing way better than most of us. Anyone else have some suggestions? I think we could all use some! [ more ]
Valen @tulsamom Yeah, stress i killer on my pouch. In my most ‘stress-free’ times my pouch worked like a charm and I never even though about it. Correctly in med school and it’s a pretty heavy load to carry. Any advice on how to handle that stress? I’m only 18 and this is the first time I’ve experienced the stress of a career or college. I’ve been through way tougher things (I almost died from UC for gods sakes!) but this college anxiety is killer to say the least! [ more ]
tulsamom It sounds like what happened to me when I get super stressed. When the stress goes away everything goes back to normal. But that length of time is too long. I agree with Scott about dehydration. And when I was having a similar situation that wouldn’t resolve at 12 days I asked for Cipro. Fixed it right up. Maybe a little too well. But I don’t even know why Cipro works. But I’m glad I thought of it because my skin was shredded. Good luck!! [ more ]
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J-Pouch ForumsHelp! Need advice now!
Burning, stinging, low volume liquid output
O OscarThePouch
OscarThePouch So, I probably panicked. It did sound consistent with an anal fissure. The symptoms have fully resolved themselves. It took about 7 days. My doctor told me she would have wanted to take labs and a stool test if the burning/stinging got worse but luckily I didn't have to go through all that. I think it was either eating Sichuan pepper or cake that did me in, combined with being in a hyper-stressful/emotionally triggering environment. I was back visiting the town where I lived when I was first... [ more ]
SteveG Have you looked up the symptoms of an anal fissure? It sounds like that may cause such burning and stinging you describe. If such a fissure is located inside the anal channel, it burns if an undigested piece of food (like nut pieces) gets stuck in there. If so, you could try to flush it out with a strong water jet (bidet or shower). Or carefully examine with a finger and a non irritating gel like petrolatum. When I had such a fissure, I could tolerate it during daytime when I was busy, but... [ more ]
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J-Pouch ForumsK-Pouch Korner
I’m tied to the toilet…
R readann
readann Thank you, unfortunately, I don't have Facebook. [ more ]
kaydbird the k-pouch facebook group is very active, if you're on facebook try posting there you'll get a lot more responses. [ more ]
readann Thank you! partly that is due to gas -- there is maybe 100ccs of fluid, but as soon as I put in the catheter, a huge gas burst comes out. It gets better in the afternoona nd evening, it's just the morning. Thank you for the response! I wish this board was more active. [ more ]
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J-Pouch ForumsGeneral Discussion
Leakage - any suggestions?
J JonB
CTBarrister Same with me when I was on Cipro. The only reason to start at a lower dosage would be to control side effects. In the past I took as much as 1000 mg Cipro and 1000 Flagyl daily, to control pouchitis symptoms. But I didn't have any side effects, other than sun sensitivity from the Cipro. [ more ]
Pouchomarx every time i was prescribed Cipro its been 500mg twice a day for 7-10 days [ more ]
Taranus-saurus Cipro is 250mg twice per day [ more ]
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J-Pouch ForumsGeneral Discussion
Probiotics
MIKEEYMIKEEY
Pouchomarx When I saw Dr Shen, I was told probiotics are not suggested for the pouch as they are intended to work in the large intestines. I was told they can increase risk of getting SIBO as well. [ more ]
MIKEEY Thank you so much, I think you are right, [ more ]
New577 I try and take all medicines/supplements during the day. I only take Imodium at bedtime. i found that even taking flomax at bedtime caused some minor leakage, so I just avoid taking anything that will cause potential issues. just one of the many things I have learned about my body over the last 13 months. [ more ]
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J-Pouch ForumsGeneral Discussion
Smoking
A Adam21
Pouchomarx is it the nicotine that is the issue? what about smoking marijuana ? [ more ]
Sara Marie There is a chain on this forum about someone who uses nicotine patches to help treat pouchitis, I think, meaning nicotine can be beneficial, especially if the origin of the trouble that caused you to need a pouch was ulcerative colitis. I used to be a regular smoker and now I'm just an occasional social smoker. I have found alcohol to be irritating to the pouch and that usually accompanies the social smoking, so I'm unsure about the effects of smoking without drinking. [ more ]
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J-Pouch ForumsPouchitis
Pouchitis - Pain
K karine
HappyGilmore I have the same problem when my pouchitis flares up badly. Try doxycycline as an alternative antibiotic: it worked for me. See my post. [ more ]
SteveG Have you tried using a bidet / shower after a BM? If it is an anal fissure, then it should get better if you can remove something that has got stuck in the fissure that way. [ more ]
karine Thanks for the answer Scott, the pain is constant but it's x10 when I defecate. I'm so used to having soft stools and with the cortisone treatment it makes it harder which also equals to more pain...I also find it sounds like anal fissure but the specialist I seen barely looked at me or said a single thing to me except - take Steroids for 6 weeks see if that helps, it sounds like pouchitis.. I love the sitz bath idea. Will definitely do that!! [ more ]
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J-Pouch ForumsK-Pouch Korner
Need a tip for the public bathrooms
R readann
readann Great idea with " I put a bit of toilet paper in the bowl and that keeps splashing to a minimum. " Thtank you! I actually bought a little collapsible bowl today to use in private bathrooms to put in my kit that maybe I can put on the counter or in the sink to easily stand. [ more ]
kaydbird I always stand to empty my pouch I don't like to sit, though I have done so (mostly in public bathrooms) I have not tried sitting backwards, that sounds weird. My husband even had a special little stool build to my specifications for use at home and I empty into a little bucket. I will also kneel in front of toilets if its not a public restroom (like a friend's house). I prefer to stand in stalls, a lot depends on how low the toilet is. I put a bit of toilet paper in the bowl and that keeps... [ more ]
readann Thank you for all your tips! It definitely helps to have advice from others and it must have been an adventure for you at the beginning. I wish this forum was more active. My stoma nurse said to sit backwards, but I don't know. I am going to buy a collapsible bowl and put it in the sink as standing is much easier for me. It seems like the only solution. [ more ]
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J-Pouch ForumsGeneral Discussion
prilosec
N Nara
tf I have been on Gerd meds for years. I have had to change several times due to side effects after time (Nexium) and some non effective. The Dr's say u shouldn't be on these for long term and took me off and I had terrible heartburn again. So they had me take Pepcid which is less harmful but too many breakthroughs. I am back on Omeprazole and they wanted it to be only a month or two, it's over 1 yr again. I don't think I can get off it. It's a double edge sword. I need to feel good in the... [ more ]
Connie Gildersleeve I’ve been taking the prescription generic Nexium for over a year, 40 mg twice a day. So far it does seem to be helping me. I have to get pre-authorization for this every year by my insurance company. It cast me $74.00 for 90 days. [ more ]
Nara Thank you Scott for your prompt reply [ more ]
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J-Pouch ForumsHelp! Need advice now!
Jpouch prostate cancer treatment
foges11foges11
foges11 SteveG, thanks for the note and information. Here is the link to the Link to clinical.gov site . Correct high scores and previous surgeries disqualifies at this time. [ more ]
New577 Steve I looked up the treatment and it seems to be a first line treatment. There is a current FDA trial going on for PCa, and it excludes men with prior surgery and high Gleason scores. thank you so much for the information. It’s good to know the researchers continue to try and develop new and innovative ways for cancer treatment. if there is a non surgical/non radiation treatment out there I would be interested, in case the future does not bode well for my prostate. [ more ]
SteveG I heard about a new cancer therapy called "NanoTherm" (see magforce.com). But it is still subject to studies (also for the treatment of prostate cancer in the US). And I do not know if it is applicable after prostatectomy, they speak of "focal treatment of solid tumors". [ more ]
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J-Pouch ForumsGeneral Discussion
Gravy
C Chook2
Chook2 Ha ha yes it tastes better cooked.I wonder if the baking soda in the self raising flour may help the guts. [ more ]
Scott F I don’t know if you’re cooking this gravy, but in any case flour really ought to be cooked before eating. [ more ]
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J-Pouch ForumsGeneral Discussion
Fiber One Cereal
Y ytcrockpot
AMB I think that while there's no silver bullet, all the fiber options work to some degree or other. I've been starting the day with oatmeal to which I add chia seed pudding: basically chia seeds that have soaked up unsweetened almond milk and a splash of pure maple syrup overnight. The Chia adds about 10g fiber to oatmeal's 3. I sometimes add some banana. It's loaded with calcium among other nutritional benefits. I do one dose of Konsil during the day. Have Metamucil wafers for when I'm not... [ more ]
iHateColitis Anyone else try this? I’m curious why this would work better than psyllium. [ more ]
Former Member ❤️
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J-Pouch ForumsGeneral Discussion
ciprofloxacin question
J JHendrix
Bubba1028 My doc said it wasn’t a hard rule that you couldn’t take it within 2 hrs of calcium. I mean, it’s better that you take it so whenever works best for you. I ran into that problem with an antibiotic and my vitamins but I take meds morning noon and night. I can’t be worrying all the time (shrugs) [ more ]
JHendrix Thanks Scott. (And interesting theory. I'll go along with it!). I'm taking it 2x a day. One during the night and the other midafternoon so there is a several hour gap if time. [ more ]
Scott F I take my Cipro at bedtime to steer clear of dairy/calcium - that also why I experimented with once-daily dosing, and confirmed that it worked fine for me. If you’re allowing a couple of hours of gap you’re likely to get good absorption of the Cipro - sources seem to vary regarding how much of a gap to allow. I had the speculative thought that I may not care about Cipro absorption if I’m using it to treat a problem within the gut (heck, I might prefer less absorption), but there’s not a... [ more ]
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J-Pouch ForumsGeneral Discussion
Nightime sleep
Brad LoomanBrad Looman
Brad Looman Haven't tried the pepto but I will keep that in mind - thank you [ more ]
AMB I sympathize. Not sure I'd have gone this route if someone had told me I'd never sleep through the night again. I use a Garmin now to keep track of how frequently I'm up and how much sleep I do get. I follow many of the same protocols of others here and am able to string together enough good sleep on either end of waking to function normally. Though it's not the same as the 8 end to end hours I used to get before the surgery I've also tried Pepto Bismol at bedtime at the advice of my... [ more ]
Chook2 I've started going to the gym and find I sleep so much better.I still get up once or twice but straight back to sleep. [ more ]
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J-Pouch ForumsGeneral Discussion
chia seeds
L loser
ytcrockpot Thanks for posting this, I’m gonna give it a try. I’ve tried both separately, they work for a while then stop, I’ve been the chia & flax seed route, I feel like I’ve done it all in my 40+ years of j-pouch. [ more ]
Susan 1000 Ok, this is years later, and I truly hope your issues are solved by now. Just in case it might help, I’m including something I posted earlier today: Having a JPOUCH means you must learn to manage it, or life is a misery. Banatrol Plus and psyllium have really helped me. The Banatrol Plus comes with a one tablespoon scoop. What I have learned about my JPouch is that one scoop of Banatrol Plus, and two scoops of original formula KONSYL (psyllium) mixed with about 4-5 ounces of ice water will... [ more ]
loser Yes. Matter fact I finally got a prescription in for supporities. There again its like cipro for me, after awhile it stops working. Chia seeds sure don't give me energy. Thats why I'm trying to find things to get back on track. Again I'm tired,back hurts and sluggish. So I'm trying to eat healthier again. I'm having trouble w/old habits coming back. So having this discomfort I can't find things that are making my pouch/backside worse. [ more ]
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J-Pouch ForumsHelp! Need advice now!
Liquid stools for 11 days
T tulsamom
tulsamom Thank you so Much! [ more ]
AMB Cipro absolutely does it for me. And quickly. 500 twice a day was prescribed, a course of 14 days, for my symptoms related to mucosal prolapse and corresponding bacterial overgrowth. I repeated that dose. I found it best to ease off rather once symptoms were under control rather than stop suddenly. Recently added it back at night, and currently on 250 at bedtime. I also take Rifaximin as maintenance. But it actually seems to soften the stool. [ more ]
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J-Pouch ForumsGeneral Discussion
Thoughts on leg cramping?
ElmerFuddElmerFudd
ElmerFudd Hmmm... yeah. I don't think they regularly check for B-12 in my daughter's blood work. We started having her take additional magnesium, potassium, and calcium and it hasn't completely eliminated the issue but has helped. She also switched to Inflectra (bio-similar for Remicade) and should be stopping her Colazol end of week, so hopefully any absorption issues will resolve. But I might suggest testing her B-12. Thanks! [ more ]
HDMan Thanx Ceew it is good to know what has helped others. It's been in the high 90's for the last week or so and I've struggled with hydration and cramping too. [ more ]
ceew I had leg cramps really bad and a friend told me she started taking B12 supplements. I take it now before bed and rarely have leg cramps anymore. [ more ]
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J-Pouch ForumsGeneral Discussion
Covid and anti TNFs (Hyrimoz)
SaffSaff
Saff Thanks both. I take them for other non-pouch issues @Sara Marie so hopefully you wont need it. I finally got through to the docs and they also suggested deferring the dose until I recover @Scott F -thanks for you input. [ more ]
Scott F Anti-TNF medications are a subgroup of biologic medications. For J-pouchers they are used for stubborn inflammation-related GI issues. For example, if my antibiotics (for chronic pouchitis) stopped working I’d try to find an effective biologic, and some folks switch even before antibiotics stop working. No one really knows for sure what to do about them during an active Covid-19 infection, but I’d probably delay my dose for 10-14 days. [ more ]
Sara Marie I have never been offered anti TNF meds for my j-pouch issues. Should I look into this? What are the side effects? Sorry you have COVID. I hope you get some answers to your questions. [ more ]
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J-Pouch ForumsK-Pouch Korner
How many times do you empty per day?
R readann
LadyTay97 At home I kneel in front of the toilet because of my postnasal drip I have a lot of gas and I think this contains things (spatter) better. I have rarely emptied my pouch in a public restroom but when I have I would stand. [ more ]
LadyTay97 I flush once every time I empty my pouch. [ more ]
readann Thanks, Kim! I start that in two weeks. Hopefully as i clamp over these two weeks I can help my pouch adequately grow. [ more ]
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J-Pouch ForumsGeneral Discussion
Osteoporosis and pouch
MB Mountain Baker
Sara Marie Thank you! I also have issues with dairy. I wonder if it's just the milk/lactose or if that extends to the bones of the cow? I also am experimenting with collagen powder. I don't seem to have a skin allergy to cow leather, so I assume I'm ok with other cow parts, but who knows? [ more ]
ytcrockpot My allergies are egg and intolerance to dairy. I take a multivitamin “Naturelo One Daily multivitamin for women and Andrew Lessman Ultimate Calcium intensive care with vitamins D3 & K2MK-7 120. This combination seems to work for me. I can not take probiotics, it has the total opposite effect on me [ more ]
Sara Marie What are the vitamin D and calcium supplements that work for you? What are the allergens you deal with? I think I have a problem with dairy and many supplements (including the revered VSL#3 probiotics) are dairy-based. [ more ]
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J-Pouch ForumsGeneral Discussion
Total adhesion blockage
BK Bill K
Bill K Yes. I eat 2 Metamucil wafers every morning. I am getting tested for c diff as the hospital was full and I had to share a bathroom with 12 other people. That was a real nightmare when my bowels decided to wake up and all the contrast was ready to come out. I have been taking Imodium before each meal and bedtime. My gastro dr. Has told me to stop Imodium for now as she thinks I’m not fully evacuating due to formed bowels. [ more ]
Scott F Two weeks seems like a long time for things to settle down, so C. diff is a possibility to consider (and a hospital is a good place to find it). Cipro would be a terrible choice for someone with C. diff, and it usually works very quickly if pouchitis is the problem. Have you tried psyllium? [ more ]
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J-Pouch ForumsGeneral Discussion
Platelet count high and EBC high
smrdaz4lifesmrdaz4life
Scott F It’s not a normal (or common) consequence of J-pouch surgery. Do you know if they were high before your surgery? Does your doctor have an opinion about what’s going on? You don’t say how high they are, and that can make a difference. Normal ranges of labs tests provide useful guidance, but they aren’t god-given. My WBC and eosinophils always run high, perhaps related to autoimmunity, though I wouldn’t describe the values as very high. [ more ]
smrdaz4life Sorry not EBC but White Blood Count [ more ]
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J-Pouch ForumsGeneral Discussion
E Coli, C Diff
A Alaine
Alaine Thanks for the info, hopefully it will be the end of this. [ more ]
Scott F C. diff is quite unpleasant. It’s possible that whatever antibiotic was used for the E. coli made you more susceptible to C. diff. A lot of folks have reported it here, so it’s not rare, but most J-pouchers don’t get it. It can be hard to eradicate, so I hope yours disappears without putting up a fight. [ more ]
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J-Pouch ForumsGeneral Discussion
Issues with COVID vaccination?
ljh824ljh824
Sara Marie ....so I just had both a COVID booster and a shingles shot on one day and I felt pretty weird. When I was nearly fully recovered about a day and a half later, I got leakage at night. This is a kind of clear substance, not poop, but it's a bit smelly, and just a little bit comes out and it immediately wakes me up. It doesn't stain my bedclothes and isn't enough to get on the sheet since I wake up right away. I assume it's some sort of pus and associate it with pouchitis. Usually it follows a... [ more ]
Sara Marie Oh no! I'm sorry. Have you ever read Jini Patel's "Listen to Your Gut"? It has helped me a lot with trying out things to keep the illness at bay and manage my gut issues much more effectively. It was recommended by another person in this group. I'm learning about so many things from that book and from this group. I hope the Remicade helps! [ more ]
ljh824 Well, it's official. After another scope, looks like I have Crohn's. Not sure if the vaccine just exacerbated things, or it was just coincidence. Lovely. Doc is going to put me on Remicade. Hopefully it will provide relief. 20+ years of UC, J-pouch, now Crohns. Someone up there doesnt like me. [ more ]
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J-Pouch ForumsGeneral Discussion
Gas Problems
PA Paul Alba
Sara Marie It's so good to read what individuals experience with their pouch. I also have never had pouchitis officially diagnosed, but I know what "itis" means and if things feel inflamed and there are other symptoms of mild infection like the fever, etc., I can guess that must be it or near it. When I have soreness in the pouch area or anal area but no other symptoms, I have found that drinking a small amount of aloe gel or juice in water a few times a day really helps soothe and heal the tissue. I... [ more ]
Kushami Symptoms of pouchitis for me include greenish or yellowish output that’s more liquid than usual and smells different, increased frequency, aching muscles, feeling a bit feverish, and abdominal cramps. I’m not an expert and I’ve never had it diagnosed officially as it was always mild and went away within a week. I would get it two or three times a year. [ more ]
LauraLee Thank you for the info. In my case my JPouch hardly function correctly without antibiotics regarding consistency. I usually deal with watery diarrhea about 10 times a day. I would be ok with that but the gas elimination is the awful part. I noticed sometimes I bend over, I have urges to pass gas or doing #2. It works, but sometimes it doesn’t. [ more ]
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J-Pouch ForumsK-Pouch Korner
What was your clamping schedule?
R readann
LadyTay97 Thank you so much for the information. I appreciate it. [ more ]
readann I was hoping soon but today the resident told me I have to start the clamping here. I am surprised as the stoma nurse never mentioned that. I am ready to go home soon as I have severe nausea and I’m not sleeping and would rather deal with that at home. But apparently I’ll be here until at least next Wednesday or Thursday. ladyTay, the purpose of the clamping is similar to what you are saying to grow the pouch in the last two weeks the catheter is in. I’m not sure why we do it this way, but... [ more ]
jan15 hum, wonder why the difference. I think starting to clamp after two weeks will help you once the 24/7 tube is out. maybe stoma nurse knows if this is the way they have alway proceed. when out of hospital? j [ more ]
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J-Pouch ForumsGeneral Discussion
Pouchoscopy prep- burning
B Bubba1028
Bubba1028 Omg I replaced the enemas with water like you said the the burning was almost unbearable when it came out. Horrible. I’m laying down now and it’s still on fire. I bet something is going on up there. I have got to tell him. [ more ]
Bubba1028 I haven’t even gotten that far yet. I’ll do that, but should it still be burning already? [ more ]
CTBarrister Don't use Fleet enemas. Empty the contents and replace with water and you will not have any issues [ more ]
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J-Pouch ForumsK-Pouch Korner
New kock pouch, sudden complication. Please help!
R readann
readann Thanks, Jan! You’re amazing! [ more ]
jan15 my stoma does bleed a bit but nothing to worry about. mine also drips and produces much mucus. I do use nursing pad, which is less than 25$ a year (target brand). there are reusable pads. don't know of medical ones that insurance covers. the medical ones/insurance covered, for sex, are bulky. ask stoma nurse. you can ask the stoma nurse as I simply can't recall, but possible you are producing more mucus because stoma, valve and everything else is still very tender. It took weeks, into two... [ more ]
readann Thanks, Jan! Luckily, my electrolytes have been regularly tested for years, so now is no different. I drink a lot of electrolytes and eat salt! Great too though! Especially since I take a lot of drugs to speed motility. after I’m discharged I’ll followup with the stoma nurse shortly after to come back and get the catheter removed and learn how to intubate. She told me I can contact her any time with questions. Through all my surgeries, my hospital (NOT community) stoma nurses have been... [ more ]
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J-Pouch ForumsFAP Forum
Whipple Surgery after previous Pancreas Sparing Duodenectomy
MF Mike FAP PSD
Sara Marie Well, that's better news than seeing a mass. I hope someone will comment who knows about/has experience with the Whipple surgery. [ more ]
Mike FAP PSD In last scopes at CC had high grade dysplasia in upper GI and pouch. They will look for cancer during surgery but CT scan did not detect any mass. [ more ]
Sara Marie I had to look up the Whipple Surgery. It sounds so sweet, like someone should be telling you not to squeeze the Charmin, but when you read up, it sounds scary. Is there cancer? [ more ]
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J-Pouch ForumsGeneral Discussion
VSL#3DS
G GraceB
Sara Marie I think so! For me, organic psyllium husk powder (I always say "organic" because the non-organic is markedly different and doesn't work as well for me) works to slow down my guts, which allows for more establishment of good flora by the use of probiotic foods & supplements. Here's an analogy: In my neighborhood I used to know my neighbors, and now with the horrible economy in Austin, TX, it's impossible for normal people to afford to live in my hood (or any place within a hundred miles). [ more ]
lclassen Along the same lines, is there any value in pre-biotics taken with a probiotic? [ more ]
Scott F There are really two different things being talked about here. Basic, reasonably priced probiotics, both natural (in food) and in capsule form, are very likely good to some degree for the balance of bacteria in the colon. J-pouchers don't have colons, of course, so it's more of a leap to suppose that they are useful for us, but they might be. Quite separately, very high doses of probiotic bacteria, originally under the name VSL #3, have been shown in J-pouchers to decrease the frequency of... [ more ]
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J-Pouch ForumsGeneral Discussion
Gastrocolic Reflex or something else?
ValenValen
Valen @New577 Yeah, I had that exact thought of my body like ‘emptying out’ which is why I’m going so frequently. When I’m on my menstrual cycle everything gets really backed up. Yes, I go 2-3 times a day normally, but it’s always been great for me and I’ve never experienced any ‘bad effects’, for lack of a better word. Just kind of annoyed at this new switch up. This jpouch loves to keep me on my toes! [ more ]
New577 Hi, I have had some similar but not identical experiences. First off, if your going 2x/day, that seems like a very low amount to me. I go 4-6 times per day and I consider that a very good day for me. there are some days when I eat less than the day before, its seems like my BMs are very large and frequent. It seems like I am purging several days of food. It’s weird. I try not to worry about changes unless it’s going to affect my QOL. Try to get back to your normal routine, you know, the one... [ more ]
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Join Us!

Founder, Creative Director & Web Master

William J. Johnson
bjohnson@j-pouch.org

Bill Johnson founded the J-Pouch Group in 1997.

After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.

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