J-Pouch ForumsGeneral Discussion
Topics
Sorted by last update
J-Pouch ForumsGeneral Discussion
I take Ferralet. It's an iron supplement by prescription. It's expensive, but I need it because ordinary iron supplements give me stomach problems (and I'm low on iron otherwise). [ more ]
I have a chronic low ferritin since my J-pouch surgery in 2011. At first we tried iron tablets and I was not able to sustain the ferritin levels doing that , so about 3-4 years ago, we tried iron infusion via IV, which works wonderfully. My GI doctor monitors my ferritin level every 4 months or so. If it is low, I get a transfusion of iron. I have only needed the iron transfusion about once a year, which is good. I didn't know about the low magnesium levels, but interestingly I take... [ more ]
Am glad that your chiropractor was able to help you by providing that magnesium tip!! --Rose-- [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
If it bulges out when the pressure inside increases, for example when doing push-ups or lifting the legs when lying stretched out on the back, then it is likely to be a hernia. A doctor should have a look at it. Mine said that my hernia along way of my center scar is big enough so it won't trouble me. It just looks weird on such occasions when it bulges out. I don't want another surgery with artificial tissue being inserted as long as I don't have problems. But smaller hernia are more... [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
❤️
I seem to absorb powders mixed in liquid the best when it comes to supplements, I think because they get absorbed quickly and I'm a quick transit person. I'm getting some powdered greens just because of that. Not sure it'll do any good but we'll see!! I eat cooked veggies. They seem to digest easier. Raw shoot right through, though less since I've been ingesting the psyllium (powdered of course, in water) before every meal. I don't find much based in science about what the bodies of... [ more ]
Hi Roseviolet, thank you, but I don’t take fruits and vegetables by Balance of Nature. I take Pure by KaraMD. I like them because they combine fruit and vegetables in one capsule. never thought about researching them. Good to know. So I did, at “Best health supplement reviews for informed shoppers”. Everything seems to be in order. They offer a free return policy as well. i really don’t have any issues with my lab work (always in normal range) and I feel pretty good considering I have a... [ more ]
See all 9 replies...
J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsGeneral Discussion
Check out this website, they offer many different ways to get help paying for Stelara while on Medicare https://www.janssencarepath.co...stelara/cost-support [ more ]
Hi..by any chance is medicare covering the 8 week injections? I was told by medicare that the infusion is medical so it will be covered by after that, stelara injections are considered pharmaceutical drug & and my copay foreach injection would be $4500.00. There is no way I would ever be able to pay every 8 weeks that copay. I, too, have worked and did so much to keep my j pouch...but not sure how much more fight I have. Thank you for your reply & pray the stelara treatments keep you... [ more ]
Hi, you should be approved for Stelara, I have Medicare and was recently approved for the infusion. I got my infusion through the NYU IBD clinic, they were ones that worked with Medicare to get me approved. I’ve had my pouch for 41yrs, I’ve worked too hard to ever go back to an illeostomty. Good luck, hope you get approved and start feeling better [ more ]
See all 3 replies...
J-Pouch ForumsK-Pouch Korner
I agree that Dr Dietz is amazing. He created my K and has been helping me try to hold on to it. I’m seeing him next week to review my options. I love him and his team. However, I am getting tired of having to halt my life and run to Cleveland for emergency issues with this pouch. I love my K when it works. But the unpredictable issues that land me in the hospital every 18-24 months are causing major anxiety. Im wondering if I need to just give up and get a more stable Brooke that my medical... [ more ]
P.S. I failed to mention that my k pouch revision was performed by Dr.Dietz at university hospital in Cleveland. He is a very affable surgeon, very bright with wonderful surgical outcomes. R Boyer M.D. [ more ]
I was diagnosed with ulcerative colitis in 1967 and recieved a curative Brooke ileostomy in 1970. I then recieved a k pouch in 1979. I did well until I had a slipped valve. Dr Deitz at university hospital performed a k pouch revision in 8/18/22.When I woke up after surgery he told me I had Krohn disease based on his operative evaluation. A biopsy confirmed Krohns disease. Fortunately I have no symptoms consistent with Krohns disease. Good luck to all of you. Sincerely,Robert L. Boyer M.D. ... [ more ]
See all 4 replies...
J-Pouch ForumsHelp! Need advice now!
❤️
On the travel trips, I am sure it is too late, but I do what the others have suggested and I also chew pepto bismol tablets several times a day because it seems to calm my intestines down, especially in gas production, which is what can make bathroom urgency an issue for me. As for rehydration needs, I use something called Vitalyte when I go backpacking. It has elecrolytes but is not as strong tasting as gatorade or some of the other electrolyte formulas. During the work day (not traveling)... [ more ]
Thank you so much for both replies. 💕 [ more ]
See all 12 replies...
J-Pouch ForumsGeneral Discussion
❤️
Hi, I have had a S Pouch since 2001. 2 step surgery 2 months apart. My surgery was done in Omaha. no real issues til about 3 yrs ago. Have had 2 blockages since. Changed my diet, drinking more fluids … so far so good. I am 65 yo. My husband and I have been married 41 yrs, no kids, just cats. I was diagnosed with ulcerative colitis in 1999, and failed the medication treatment available at that time. My mom also had ulcerative colitis, diagnosed when she was 52, she had a traditional ileostomy... [ more ]
See 1 reply...
J-Pouch ForumsGeneral Discussion
ILex themselves are sold out of the tubes and the tub. They stated they would not see more in until after Xmas.. ridiculous [ more ]
I just saw the 8oz jar for $76 on walmart.com, wen I ordered my tubes. The $s r all ovr the place, even $86 4 a jar. [ more ]
jar is $83.99 on walmart site.. that price is ridiculous.. When Edgepark carried it, they would run through my insurance and i paid like $15. they stopped carrying it like 2 years ago.. [ more ]
See all 11 replies...
J-Pouch ForumsGeneral Discussion
Thank you for the clarification [ more ]
LoveLife: Tylenol is not an NSAID. It is an analgesic, which means it alleviates pain. You can do a search to confirm this fact. Paul: Be very careful if you choose to use NSAIDS. I was using oral NSAIDS for migraines and they caused bleeding ulcers. Years later, was also given IV NSAIDS by mistake by medical professional and got bleeding ulcers again, this time requiring blood transfusions. You might not be as sensitive to them as I. [ more ]
Tylenol is not an NSAID. It is a pain reliever but not an anti-inflammatory. There's no pouch-related reason to avoid Tylenol. [ more ]
See all 7 replies...
J-Pouch ForumsHelp! Need advice now!
I am late to this thread but to answer the OP's question, most if not all meds get absorbed in the small intestine. Paxlovid is causing me the most horiible diarrhea ever. I am literally crying and bleeding almost constantly. Is there anything to do? [ more ]
Dehydration is pretty horrible. Is the gut stuff caused by the paxlovid? Out of the friends I have who got COVID, the one who took antivirals has been sick the longest. Weird, huh? No one went to the hospital....yet. [ more ]
Reducing symptoms does reduce the chance of hospitalization, so that makes no sense. [ more ]
See all 6 replies...
J-Pouch ForumsHelp! Need advice now!
Thank you. I will go to the doctor tomorrow and ask about Tylenol. [ more ]
Hello, I’m so sorry for your discomfort. I have arthritis in my thumb and feet plus lower back pain. When my GI Doc said no more Aleve I tried Tylenol. 1000mg 2x daily. It took a little bit before I got relief from it, but I did. I now try to only take 500mg 2x daily. I have also used Voltaren gel, without much relief. Curious to hear about Magnesium from others Best of luck to you! [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
Really, never thought about that. i take all supplements (vitamins) in soft gel form, I was told years ago that tablets (especially coated ones) won’t dissolve for a jpoucher. always learning something new. [ more ]
I try to get a brand with very small tablets as I sometimes had a feeling that the stuff to fill up the capsules causes me digestive issues. [ more ]
Check your insurance and pharmacy/mail order for loperamide pricing. Capsules are much, much less expensive than tablets on my plan so I make certain that my provider writes the script for this form of loperamide that costs less. [ more ]
See all 10 replies...
J-Pouch ForumsHelp! Need advice now!
Thanks for your help [ more ]
Straining can cause blood to gather in the belly. But I don't know if that's enough to have your heart rate increase like that. I experienced that straining could cause me circulatory problems because of a lack of blood in the head, especially if I was low at weight with too much diarrhea. It may help to breathe deeply instead of straining, to support digestive movement. That works easier if you don't take too much loperamide during daytime. Another point is Scott's advice to stay well hydrated. [ more ]
The keys to a bowel movement without significant straining are stool consistency and proper muscular control. Stool should be unformed, roughly the consistency of pudding. It's usually straightforward to get to that point by avoiding bowel slowers, adding the right amount of fiber supplementation, and drinking plenty of water. Muscular control comes naturally for some, but for others it must be learned. One simple thing that I've found helpful is to try to pee without pooping most of the... [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsPouchitis
I think a stool consistency problem is better handled with psyllium (or other soluble fiber) than a bowel slower. [ more ]
It worked fairly quickly for me except for my last/current long term pouchitis. Be careful with it though! I was on it for almost 3 months and a couple months later I ended up with a severed Achilles from it. Cipro weakens tendons, usually the Achilles. Had surgery to repair/reconnect the Achilles and 2 years later my foot is still not right. [ more ]
For those of us with pouchitis, it noticeably reduces pain and some other symptoms within a day or two. But I’m not sure if it will solve a consistently problem. For that, try loperamide/ general diarrhoea medicine. [ more ]
See all 5 replies...
J-Pouch ForumsGeneral Discussion
@jrws I take 500 mg of Cipro and 250 mg of Flagyl, all at bedtime. I was being glib, but the Cipro side effect of greatest concern to me (combination of likelihood and severity) is tendon rupture, and the Flagyl side effect of greatest concern to me is peripheral neuropathy. Luckily I’ve been spared both so far, after 14 years of Cipro and about 7 years of Flagyl. [ more ]
I have been trying 1 Tablespoon Metamucil in water before breakfast and dinner and it is working great. Can’t believe it took 19 years to find it😳 Not sure what Konsyl is but I’ll look it up. I too have been taking Cipro for 9-10 years I do once per day unless trouble comes along then I do nicotine patch first then try a second dose of Cipro if the patch doesn’t work but do far so good. My Dr first tried Flagyl but that made me knees seriously wonky, Cipro no….. knock on wood. [ more ]
Scott, thanks for your reply. So glad to hear you are doing well.! Did you mention the "...Tendon Rupture in my peripheral nerves" because you're on Cipro? How many are you taking a day? I thought that's what Cipro can do long-term. I'm on it once a day now, Unless things get worse and then I always go to two. I hope that doesn't happen to me either. I'm going for my first Remicade infusion tomorrow. [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsHelp! Need advice now!
I agree. Thank you. I’ll pass this on to my sister. [ more ]
You can try gastro health they used to be gastroenterology associates of south broward. since they are very hard to book, I would take whomever is available the quickest. they are all very good for this aspect of treatment. i would not leave this to an internist. [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
I'm 18 years out and alcohol irritates my guts, especially beer. The least irritating are rice wine and vodka. Gin burns holes through me. I could drink anything when I had a colon (except when UC flared up). My pouch is super picky. My small intestine never wanted to be a colon. [ more ]
I use Aperol even with really good Champagne (which sometimes it too dry for me) and it is delicious. [ more ]
3 months is not that far out. After a couple of years you should be able to drink most alcohol no problem. Red wine is the only thing that remained a problem for me, due to the tannins. [ more ]
See all 23 replies...
J-Pouch ForumsGeneral Discussion
Thanks Lablover, Scott, It's so hard to see her going through this journey...and so unfair...I would like for my experience to be useful but it this case it is not! Any help is greatly appreciated...I will find out but here they use Remicade from what I have heard...As for the Chemo , I know that it is a class of drug and not just one so Yes, I will ask. Thanks [ more ]
“Chemo” covers a lot of territory, from horrific infusions that can damage the heart to a series of pills that rarely cause much trouble. Can you find out what medications they are planning? Has her hepatitis resolved (partially or completely)? What biologic was she on? They vary a lot, and it’s unlikely, I think, that they would *all* cause hepatitis. I chose the colectomy when I couldn’t get off of steroids and still felt like crap much of the time. Steroids are the one IBD drug class that... [ more ]
I can't add anything..but, hands on her back. Wow [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
Here’s the final slide I selected from the talks. It spells out the ways 1-, 2-, and 3-stage J-pouch procedures are broken down. Legend TAC: Total Abdominal Colectomy DLI: Diverting Loop Ileostomy IPAA: Ileal Pouch Anal Anastomosis TPC: Total Proctocolectomy [ more ]
There were three very useful “general interest” slides about pouchitis during this morning’s session. I’ve attached them here for folks who might find them interesting or useful. [ more ]
❤️
See all 12 replies...
J-Pouch ForumsHelp! Need advice now!
J-Pouch ForumsHelp! Need advice now!
❤️
J-Pouch ForumsPouchitis
Low dose Cipro does not work for me, and I take 1000 mg a day. As soon as I try to lessen, pouchitis comes back with a vengeance. If you can boost your dosage, that might help. I've been on Cupro/this dosage for nearly one year and it made a HUGE difference after 3 years of hell (pouch in 2020). [ more ]
I take Xifaxin for my pouchitis when it appears. Thankfully, it is not often now. Previously ( a few years ago) I had 2-3 bouts per year. This medicine is not cheap in the U.S.A. I purchase with a Rx from a Canadian pharmacy. My J-pouch is 21 years old. [ more ]
If I’m reading this right then Flagyl alone might do the trick for you. It’s also possible that the Cipro dose is just too low, but I think I’d try Flagyl alone at the dose that worked for you in combination. If that doesn’t work I’d retry the original effective dose sets of both. IMO the time to try reducing the dosage is when things are great - that way you can tell if the dose has gotten too low. [ more ]
See all 6 replies...
J-Pouch ForumsGeneral Discussion
Hi! here is a 2021 paper reviewing the trials on adult/children treatment with enteral therapy ( liquid diet) which show high %s of success. Modulen is what they refer to as polymeric diet. Review of exclusive enteral therapy in adult Crohn’s disease | BMJ Open Gastroenterology And here is a 2019 paper on an effort to create a food based diet based on Modulen Treatment of Active Crohn's Disease With an Ordinary Food-based Diet That Replicates Exclusive Enteral Nutrition - PubMed (nih.gov)... [ more ]
I looked up the ingredients, and this seems like something a person would not take long term, but it might bring a starving person back to life. The first ingredient is glucose syrup. And cow milk is after that, which causes intestinal upset in a lot of people. It sounds like it would make me feel very very bad and increase inflammation because of the sugar and milk. [ more ]
Hi! I stared Modulen 2 days ago. There seems to be very good evidence for the use of Modulen in Crohns and UC for endoscopic remission, so like everything else we try that are being used for Crohns and UC, this is also worth trying I think. How did it go for you? [ more ]
See all 3 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsGeneral Discussion
Hi - I’ve had the pouch since 2010 with chronic pouchitis and tenesmus. My doc and I went off use with Ativan .5 - and that does seem to help . She wrote for .5 3x a day but I don’t need unless really bad. I have made myself rso oil (Rick Simpson oil) cannabis suppositories / I tried to get the highest cbd content but the rso oil is a special blend used to treat cancer with higher doses. I use cocoa butter and the rso oil - heat them up and mold into suppositories and use as little as... [ more ]
My use of AbsorbPlus is primarily to maintain nutrition while giving my pouch a rest from pouchitis. Prior to my jpouch I would use the shakes when in a UC flare to calm my bowel. [ more ]
@Jfill21 Could you please explain how AbsorbPlus helps with diarrhea? Thanks [ more ]
See all 18 replies...
J-Pouch ForumsHelp! Need advice now!
I have no idea what they did! It was 2004. If they told me anything about it, it was while I was super drugged up from the drugs they gave me, so there would be no way I would remember. [ more ]
The risks also depend on whether you had a stapled procedure, which leaves in a rectal cuff that can occasionally become malignant, versus a hand-sewn procedure, which sometimes removes essentially the entire rectal cuff. [ more ]
Ok, well that sounds like a good idea since I had colon cancer, but it was never recommended to me for that! Anyone know of a J-pouch specialist in TX? [ more ]
See all 12 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsPouchitis
This is just so crazy, been taking advil off & on for years My gastro said that Advil could potentially cause pouchitis. we don’t realize how much OTC meds can affect us. Wow I had no idea [ more ]
Well, I guess I'll just have to settle for not knowing unless I get hooked up with a J-pouch specialist. Anyone know of one in Austin, TX? Houston, Dallas, or San Antonio would also be OK. [ more ]
I’m not sure how you could know that your pouch is inflamed and irritated without a pouchoscopy. Whatever you’re experiencing is something real, of course, but if it clears up by itself it’s most likely not pouchitis/pouch inflammation, though the probiotics you take might affect a mild pouchitis. Pouches can do all kinds of things that aren’t pouchitis. [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
Thanks Much [ more ]
Hi Eric. I blend 1/2 cup milk with protein powder first then add about 1/2 -2/3 cup yogurt, 1/2 banana & whatever else -- sometimes a spoon of peanut butter or a bit of frozen kale. If I use chia it'd be in pudding form (soaked overnight in almond milk). Frozen fruit tends to have more water than fresh banana, so if you like the shake thick, start with less milk. A tip is to slice ripe bananas and freeze. About 1/4 banana blended in gives it great texture. [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
I noticed the middle of my abdomen sometimes showing the movements of my bowel after my last big surgery in 2017, where I had a total obstruction. It looked strange and a bit scary, and I wondered why I hadn't seen it before. In fact it is a hernia, the abdominal wall has not closed completely after the incision of that 2nd big surgery. I didn't do anything about it because by GI doc said it is big enough so nothing will get stuck there. Treating it would mean another surgery with insertion... [ more ]
You're right! First, congratulations on your take-down and healing of the fistulas. Sounds like things in that area are moving slowly because it's a narrow spot. I've come to understand that narrowing of the area at the location of the stoma closure is very common. There are two surgical approaches to the take-down, end-to-end and side-to-side, both susceptible to some version of this problem. If you search "obstruction" or "stricture" on the site you'll find many descriptions of people with... [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
J-Pouch ForumsPouchitis
Thank you! My doctor thinks mine may be autoimmunity but I had not heard that before about pouchitis. [ more ]
Pouchitis can be caused by a bacterial imbalance (not really an infection), poor blood supply, a true infection (e.g. C. difficile), medications, and probably autoimmunity. [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
My rear end always has to be above my stomach before passing wind, my routine is I lay on the arm of my couch with my legs in the air, then I can feel all the gas go to my pouch. I also have to do this seconds before I go to the toilet, I lay down in the bathroom floor, wait for the same rumble and quickly sit on the toilet. As for the fibre problem I don't really have a problem with it. I pretty much eat what I want, with the only expectation been chocolate on empty stomach or spicy food [ more ]
Have you solved the how much fiber problem? If so tell me what you do. I too don’t think my pouch is completely emptying. Has anyone done the get on all fours making sure you rear end is higher than your stomach? The Thery is that way gas goes go the top and when you empty you’ll know it because that last thing you hear is gas escaping [ more ]
❤️
See all 7 replies...
J-Pouch ForumsFAP Forum
❤️
I have 3 adult children and I would agree they are desensitized, and sadly one is a hypochondriac. He has wasted thousands on testing year after year and he’s only 30. [ more ]
My kids (now young adults) seem to be very desensitized. I have had so many ER visits and hospitalizations over the years since they were young children, that they don't seem to have any reaction or worry whenever a medical incident happens to me. It is a bit insulting but I tell myself it is "normal" to them or maybe a kind of emotional defense that they developed over the years. [ more ]
See all 2 replies...
J-Pouch ForumsGeneral Discussion
Occasional blood on the TP is typically from a hemorrhoid or peri-anal irritation. An internal problem (e.g. cuffitis) will more often put blood in the toilet bowl than on the TP. [ more ]
Ben S. I had J-Pouch surgery 2010. I lost 40lbs and have pain. You had yours before me. Thats wonderful, that your surgery went well. Yes, I see blood sometimes especially when I eat something that doesn't agree with me. Marinara and spice might be your problem. I know some people do very well, I am not one of them. I have to tell you that when I found this sight, it was the best thing that happened to me. I learned about many problems that I had from this sight. I would call my Drs. to see... [ more ]
Hey Ben, congrats in being a 25 yr successful poucher! where have you been hiding? I am always glad to hear of a successful poucher! my only real consistent blood occurs if my cuffititis is flaring. I have had some one off red blood on toilet paper, but only from a hemorrhoid or other peri anal irritation. while I would not panic, it’s something to mention to your GI so they can check it out on your next scope (assuming you still get a pouchoscopy). [ more ]
See all 3 replies...
J-Pouch ForumsHelp! Need advice now!
I am good now, I think I just need some pot or valium lol, Im such a planner and I need to realize that my body has acceptable operating ranges. [ more ]
I hope you're feeling better, but if it gets really bad, ER might make sense. j-pouchers often end up with some stricture around the loop (temporary) ostomy take-down site that can result in obstruction or partial obstruction. The surgical approaches to taking down the ostomy vary, but both ways they do it can result in some narrowing at that spot Not sure if you're in the same boat. Nausea and abdominal pain can indicate some partial obstruction. It's important to drink plenty of water or... [ more ]
See all 2 replies...
J-Pouch ForumsPouchitis
J-Pouch ForumsGeneral Discussion
I believe it is possible to remove the leftover rectum, as a pouch redo surgery. It could be that they left too much of the rectum, which UC can continue to attack. You would again have to have 2 surgeries. Remzi at NYU is the best surgeon for a pouch redo. At least he can give you a consultation. [ more ]
Hello KR I'm at a point after 33 yrs as a j poucher to go ahead and get as much info from surgeon at Cleveland clinic to get the facts on how removing the j pouch will be done. I just don't think I can keep on being a j poucher the struggles are exhausting me. Being a current breast cancer patient biologics are too risky right now for me. I was on entyvio for 2 yrs after my mastectomy but eventually body wasn't responding to it & pouchitis & 5 chronic bleeding ulcers on pouch are... [ more ]
KR, I just had an appointment with my surgeon to plan next steps if one last attempt to deal with my sinus tract doesn’t work. It is a very difficult decision. In many ways much harder then the original surgery as I’m not critically ill. The original surgery wasn’t really a choice. Now, I can still work full time, yada yada, so it feels like “should I just stick it out for one more procedure, and another?” Where does it end? You’re tough for putting up with it for so long. I’m only 14 months... [ more ]
See all 8 replies...
J-Pouch ForumsGeneral Discussion
Yeah, it was in the area where the stoma used to be. Hopefully, tomorrow we will find out. [ more ]
Lablover... Praying that the biopsy is clear. And thankful, too, that they didn't need to mess with the small intestine. Please keep us updated. 😊 [ more ]
Update: DH was operated on today. It was done laproscopically. thank goodness they didn't have to go in the small intestine, so the small mass was just above it, taken out and will be biopsied. [ more ]
See all 7 replies...
J-Pouch ForumsGeneral Discussion
I agree with talk therapy... It has helped me immensely. I stress about my job sometimes, too. And you're right... It's not worth it. Remember that you and your health are far more valuable than a job. 😊 Praying that you will find the right balance that will keep you healthy - both mentally and physically. [ more ]
Thank you. I just moved from my rectal surgeon to a new gastro. I’m also going to see if our healthcare includes talk therapy. It sucks that I’ve worked all my life and I’m hoping I can keep my job until March 2023 when I’ll be 65. So much for a social contract with employers. [ more ]
Sounds like you might benefit from talking to someone. Do you have anyone to talk to? You do have a lot going on.. [ more ]
See all 4 replies...
J-Pouch ForumsPouchitis
Join Us!
Founder, Creative Director & Web Master
William J. Johnson
bjohnson@j-pouch.org
Bill Johnson founded the J-Pouch Group in 1997.
After a life long battle with Ulcerative colitis, Bill finally had his colon removed and was given an ostomy in 1993. A failed attempt for a j-pouch and then many surgeries to get back his health gave Bill the motivation to create a web site dedicated to giving support to patients who have had or are considering j-pouch surgery.
Forum moderator and advisor
Jan Dollar R.N.
General Disclaimer
- This ileoanal web site is designed for educational purposes only and is not engaged in rendering medical advice or professional services. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.
Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors. This includes, but is not limited to, translations into foreign languages, mass archival as on a CD-ROM and inclusion in commercially published compilations (books).
Confidentiality
Confidentiality of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site. The J-Pouch Group Web site owners undertake to honor or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.
The Crohn's & Colitis Foundation of America,
Philadelphia, Delaware Valley chapter, is located at
521 Bustleton Pike, Feasterville, PA, 19053.
Tel: 215-396-9100
National CCFA headquarters are at,
396 Park Avenue South, 17th floor
New York, New York 10016-8804
Tel: 212-685-3440 800-343-3637
Already a member? Sign In
