Do most of you go for yearly pouchoscopy even if all is well?
Do jpouchers with mucosectomy still have an increased risk for cancer?
Do most of you go for yearly pouchoscopy even if all is well?
Do jpouchers with mucosectomy still have an increased risk for cancer?
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It can happen, but it's rare. I don't think it's useful or accurate to describe it as an "increased risk," even without a mucosectomy.
I don't get a yearly scope. Some folks do. If you have familial polyposis or prior cancer or HGD yearly screening might be more advisable.
I have pouchoscopy / endoscopy every six months because of a small cancer that was removed and I got my j pouch. The six month scope is just to be safe, and I'm told will continue for a few years, then it can be once a year, then every few years. It's the first line of defence for me. I can't know what's going on inside, even when I feel perfectly well as I did before they found cancer. Could you get a pouchoscopy once a year, or every other year? What does your doctor / surgeon think?
Was down to every two years for my flexi sig and had my last check up a couple of weeks ago. Wants me to go back in 12 months, maybe due to small ulcer in the pouch and wants to keep an eye on it.
Had my first pouchoscopy and will need to return in about a year as long as things go well. So far, no real issues, just a little inflammation in the rectal cuff. I'm hoping as time goes by it will be every two years.
I got my jpouch in 2001 and other than my final takedown surgery which was about 3 months later, I've never even been back to the doctors for a check up. Other than occasional pouchitis ( no doc visit - just figured it out myself and changed my activities/ food intake for a couple of days), I've stayed clear of anyone in a white coat.
i got my jpouch at 19 january 2017 first pouchoscopy is near 28 september 2017
dunno for risk me to i am with mucosectomy but dont know
There's another thing to consider, separate from how often the inside of the pouch ought to be inspected. We often hear from folks who are in trouble, but don't have a gastroenterologist, and won't be able to find (and see) one for 4-6 weeks or more. I strongly recommend that J-pouchers have an ongoing relationship with a good gastroenterologist, even if you (together) agree that pouchoscopy can be skipped when there are no symptoms.
I'm doing "well" on antibiotics and immuran. My doc wants to scope me every 3 years if haven't been seen for any "issues" prior.
I do not, but this is one of those issues where "the jury is still out," though it also depends somewhat on your pre-op diagnosis and your current pouch function. There are some surgeons who believed that we all need annual scopes given that there is a evidence of increased risk of cancer in retained cuff. Also, if your pre-op diagnosis was colon cancer or dysplasia, then yearly scopes are something yo may want to entertain. Certainly as well, if you are having issues with your pouch - eg pouchitis, polyps, ulcers, cuffitis, etc - then you will probably need to be scoped more often.
On the other hand, there are physicians who feel it's unnecessary to scope that often unless the patient is having problems with the pouch. Scopes are, after all, an invasive procedure.
At one point, I was having a bleeding issue so I was scoped every 6 months. Currently my pouch function is good and my last couple of scopes have been "perfect" so I'm now on a 2-3 year schedule unless my surgeon feels I need one sooner.
At the end of the day, it's probably best to discuss the issue with your own surgeon and go from there.
Both of my past two GI docs believe annual scopes are warranted if there is a presurgical diagnosis of dysplasia (low or high grade) and/or a history of inflammation of Pouch. They believe annual scopes are automatic if it's one or the other and my current GI believes in more than annual if there is a treatment change (e.g. Remicade) for the inflammation, in order to assess the effectiveness of the treatment. If these things do not apply annual scopes may not be warranted.