it’s been a year and two, almost 3 months and I still have these terrible pains where I freeze and can’t move and have to squeeze my spinchter together to avoid accidents sometimes... has anyone had these issues this long after post take down.. I’ve tried gas x , Metamucil, immodidium, antispasmodic -dicyclomine, Cipro, pretty much everything. No matter what I eat nor drink I still have the same cramps. Also my stool is ALWAYS diaharea no matter how much fiber I intake...
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KC, when you call it “diarrhea,” do you mean that it’s pure liquid, or just that the stool is soft? Does your cramping seem to be gas-related (relieved by a big fart on the toilet, for example), or is your pouch just sensitive when it starts to fill? I get cramping if I wait too long to use the toilet- is it possible you’re just waiting too long?
Have you had a pouchoscopy? It would help to know if your doctor thinks you have pouchitis. Sometimes Flagyl works better than Cipro.
It’s all liquid, sometimes if I don’t drink enough water it will thicken but a little bit that is the only time it does. And sometimes it is relieved by relieving gas but most of the time I will sit on the toilet and not be able to produce a BM no matter how liquid my stool is , other times I may get the gas out. But it happens ALL the time pretty much.
Oh and I don’t think I wait too long bc I may have have cramps sometimes and not have any urge or be able to produce anything until I wait hours later
I think you might have c.diff. I was about as far out as you are from having my last j-pouch surgery when my GI did a pouch scope and also tested my stool for c.diff. I had it and had a tough time getting rid of it. I was also diagnosed with cuffitis at the same time.
I had c.diff when I had my colon and they said it was brought on by taking Cipro. I can't take it anymore,
As Scott suggested you need to see your GI. Hope you are feeling better soon.
I’ve never had c diff, idk what that even is. Haha I have had pouchitis numerous times.. I was just in the ER and had a scope done in April and was told that my j pouch is really narrow but that’s about it . It wasn’t my surgeon who performed it tho.. I called them today bc he wants me to continue thru him since I’ve had so many issues. So I see him Thursday, I may as well have never had the 3 surgeries done lol.
Google it up as it is nasty. You can do a stool sample and test through any doctor. My GI just did it during a scope. In the past my primary doctor tested me for it. This was when I still had my colon and things got worse after Cipro. Some medical professionals don't think colonless people can get it but they are wrong. There's many a topic on here with us discussing it.
