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ok, so I am sitting at a baby's baptism (hubby's family) in a garden in the country in a place that I have never been before and I turn to speak with the lovely older gentleman on my left...he turns out to be the baby's great-grandfather and we start talking families etc...and he mentions that his wife passed away last year....so we talk about what and why...'you know, she had a pouch, not one on the outside but the inside kind that she had to empty with a tube...'
Well I almost fell off of my chair.
This is the first time in 33yrs that I have met a fellow k poucher (or in this case the widower of) and in France of all places!
We talked for quite a while and he reassured me that she died with a very healthy k pouch...I am still in utter shock..she had had her pouch for over 30ys, one or the first ones in France...Too bad, I would have loved to meet her and talk with her...it would have been a pleasure.
Small world.
Sharon
Original Post
It's a small world. One of my family members, very refined man fom Guatemala was having a conversation with a long time friend. These men are about 70 or so give or take. And my family member mentioned to his friend I was getting a BCIR done and my story, etc. His friend lifted up his shirt and pointed to his stoma and said " I have had the BCIR for 20 years!"

I found that out right when I was having surgery. Makes me wonder who has what now when I talk to them since it's never always a subject ones brings up.

I was hoping to meet people with pouches, just to compare gut stories in person but I only know one person in TExas with the BCIR. We chat on the phone from time to time.

there is a cool site called "Meet UP" and you can form meet up groups to try to get people together with similar interests.

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