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My experience in 22 years is I only have nighttime leakage with the J Pouch when the pouchitis is not under control. If you don't have pouchitis it likely will not be an issue.
In the three months since takedown, I've had leakage exactly twice.
The first time was the day after takedown, in the hospital, before my bowels were fully awake. This did not appear to be primarily stool, but rather other fluids that I assume were surgery related. It did not repeat.
A week or so ago, when I woke in the morning and went to the restroom, there was a very small amount of formed stool in my underwear. It wasn't enough to wake me, and I wasn't even aware of it until I dropped my drawers. I had some righteous gas that morning, so my best guess is that I let loose a fart in my sleep. Farting off the toilet is not a skill I currently possess, but if I don't snack too late at night, evacuate fully right before bed, I generally can sleep until 7 am or later without needing to get up these days.
Most nights, I eat a small serving of yogurt, the really, really good kind, not the basic supermarket stuff, usually plain, sometimes with a small bit of honey, just before heading to bed. This seems to slow the overnight gas production, and I figure the protein is good for me and whatever probiotic beasties survive the journey through the system don't hurt.
This site is fantastic as a resource for the range of what can go wrong, and for individual experiences and strategies. You can't get useful statistics here, though, unless you run into someone who's read a published study and quotes it. Folks with no issues (i.e. the majority) don't spend much time on support sites. That being said, I only have leakage when pouchitis is poorly controlled.
I don't know about the 10% but leakage is a continuing problem for me. I have had my j-pouch for almost 7 years and do not have pouchitis, however my rectal cuff does show inflammation when I am scoped. I wear a pad for protection every night. I have been using Tylenol #3 before bed which helps but lately seems to be less effective. I am currently trying to get paragoric (opium tincture) but am having trouble with my pharmacy filling the prescription. (hopefully this will be resolved soon). One other thing I recommend you take every day is the probiotic VSL#3DS.
Good luck!
This is my fear as well. getting reconnected this monday. fingers crossed!
I've had my pouch for nearly 10 years now and the last time that I remember having any leakage was about 9 years ago, occasionally have to empty during the night but that entirely depends on what I've eaten, or drunk
Thanks for the replies.
ATX Guy - interesting that you can eat yogurt right before bed and still sleep through most of the night. That's great. I have a lot of gas production at night, fills up my bag, so maybe the yogurt might be a trick for me, too. Is yogurt usually something that can cut down on gas production?
dg tracy - I totally get the fear. I am sending you positive thoughts and wishes for your takedown surgery on Monday. I am hoping that you have a really positive result and speedy recovery!
I am only nine months out of surgery but I've never had leakage. I did attempt to 'pass gas' once and discovered it wasn't indeed gas!...wouldn't call it leakage though.
Empty stomach = gas production in my world.
Had illeo removed 7 years ago. Have had pouch leakage since. I use guards for men which have been me. .very successful for me. Occasionally accidents do happen. Balmex has been my choice for skin irritation. Wore ostomy for 5 months, Had 7 accidents during that period but once I was doing all changes myself, had no accidents. I would think very hard wearing an ostomy vs the J-pouch. Have tried many things, non seemed to have much success. Hang in there. Don't give up.
I've had my pouch since 2007 and have never had leakage. I would say go for the takedown
I have had my jpouch for 17 years. I have occasional minor leakage. Artificial sweetners created bad leakage. Too many vegetables especially cabbage or leafy greens at dinner. Leakage never soils my bed and its just usually dampness and not actual waste.