Private Message Chuckus. He's our resident FAP expert. If he can't answer your questions he can direct you to a site that might.

kathy

Hi my name is courtney I am 23 years old and was your son's age when I had my first surgery If you have any questions I would be happy to help you if I can.

I am a 27 y/o female just recently diagnosed with FAP and no family history of it that we know of. Courtney28, any insight you can offer would be great! LilMoe03, my heart breaks for your son- This has been such a hard thing for me at 27, I can't imagine at 9. Praying for his fast recovery.

I have a few questions. First of all since surgery ....this is what has happened to my son. Its neen 7 months since surgery. He was on diapers for 4 mo ths cause he had 9 to 16 bm a day. Then he decided to use underwear but still had many accidents. He was on 8 immodium a day. Drinking metamucil and questran light. His problem is he dont like walkin or moving at all fr bed or sittin postions because he feels.pressure in his bottom. This is what holds him back from returning to school since sept 12. He started home school.with instructor and always tired ,moody n sleepy. They cancelled that and now im tryin do it it myself but he always angry. Says he rather be dead and hates his life. Now one of his dr thinks he has depression. The butt pressure GI thought he had pouchitis amd he only had a fisture and gave him calmoseptine and changed his meds to cholestipol 10 a day. 12 loperamide a day and 3 metamucil capsules a day. Seems to help but he still have accidents mostly sleepin n naps and he says he dont feel when its goin to happen. He just farts from what ibhear n poops himself. The walkin n playin he dont it for months now . He walks like a stick n u see fear. What is goin on ?

It's pretty common to have accidents for a few months after surgery, it takes time for the bodies muscle to adapt to how things work now. it will be a while before he will get use to this but in time he should be able to control it. if he is having trouble you see if you can get him to join a group of other people who have gone through what he has. That is the most helpful thing, to have someone else who knows what you are going through. If he seems scared to pplay it could just be he is afraid to be to active and not be able to control his bm's

I am a 22 year old guy who has been diagnosed with FAP (at age 19) and undergone my j pouch surgery two and a half years ago. I had problems with needing to frequently use the bathroom and not knowing when I would have to go, but as time passed I begun to feel better. I would assume that because your son is younger it is a bit more difficult for his muscles to adapt. If you or your son would like to talk to me you can email me at christopherrimmele@gmail.com I know its a very tough burden, but it will get better.

Hello.

I'm just seeing this and will get into this tomorrow........I've been away, tending to family matters.

i have f.a.p and had my first surgery when i was 20 in 2000.message me if you would like.