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...and don't say "the stork!" Big Grin

My step 1 surgery is this Tuesday. I know nothing about where my ostomy supplies will come from. Mail order? Local? Will the ostomy nurse school me about that?

Is there anything "ostomy supply" related that I could get the jump on now? Or, just wait for the nurse to guide me?

- Clueless in Indy

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As far as supplies go... Nothing needs to be preordered, my ostomy nurse was nice enough to do my first order for me :-) but they'll try different appliances (bags, barrier rings/creams, wafers, etc) on you to see what suits you best... The only advice I would give is maybe check out some YouTube videos on changing the appliances and just do as much research as possible... That's how I got the head jump on my ostomy nurse... She was shocked at how much I knew... After one brief lesson... I was giving her possible suggestions for a better seal of the bag lol good luck on this journey your embarking on... It WILL have its ups and downs so definitely be prepared and this site is an awesome referral tool... I wouldn't of gotten through my surgeries without Jpouch.org. Again, good luck :-)
K
I did no research in advance... you're going to have to learn one way or another, I see no reason to worry about it before you have to!

The hospital will send you home with enough supplies to last you for at least a couple of weeks. After that a nurse (it was a visiting home nurse for me, sometimes it will be the ostomy nurse at your hospital) will help you make your first order. Some people always do their orders through their nurses, others just do that initial order through the nurse and then have instructions on how to "renew" each month, usually by calling the mail order pharmacy.
P
Make sure you try different kinds and even brands if necessary if the first one doesn't seem to fit you right. It is going to feel weird and it won't hurt to try a different kind. There are some with belts that seem weird at first and I ended up liking that kind the best. The reason I suggest this is whatever kind you pick out you will probably be stuck with after you leave the hospital.
TE Marie

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