Due to years of UC trial and error with every drug/injection/infusion, I had a total colectomy with an ileostomy and a J pouch built in Sept. '16. Thankfully, cancer of my appendix was discovered that I never would have known until it was too late. Dec. '16 after J pouch healed I had spleen, gall bladder and half adrenal gland also removed followed by a chemo wash of the abdomen. The stoma was closed and J pouch activated.
It is now late Aug '17 and I still have terrible incontinence issues and 20+ bathroom trips daily. I eat 5-7 small meals daily. No fresh fruit, veggies, salads for over a year. I take liquid Imodium, Lomotil, Metamucil, Octreotide monthly injections. My docs say give it more time but I'm getting very frustrated because I'm otherwise healthy and 'young' for my age. I know reverting back to an ileostomy is a permanent decision, but what can anyone tell me about the K pouch - and what is BCIR?
Thanks for any help or suggestions.
