Hi, I'm Chase and I'm 14. Up until recently I suffered from UC. I'd been having symptoms for about 5 months and didn't say anything, before I had to be hospitalized on account of my heart rate being 230 bpm (this was unrelated to my UC, I had a heart condition that they discovered at this time as well). It was then that I told doctors about my symptoms. I got 2 units of blood in the ER (my rbc count was at 5.8, normal levels are about 15) and spent a few days in the hospital before they sent me home on Prednisone. Steroids didn't help me, so I had to go back to the hospital. They tried giving me a biologic, Remicaid, and it seemed to work, so they sent me home. I got worse and again and ended up having to go back a third time. They tried Remicaid again, but it had no effect on me (this is all in the time period of about a month and a half). I was told that there weren't a lot of options left other than surgery. So the Peds surgeons took me in for surgery later that week. It was the first of three operations. The first would be to remove my colon, the next to contruct a J-Pouch, and the final to take down the ileostomy.
I'm about six weeks post-op from the first surgery, and I feel great. But I remember that it took a good couple weeks at first for me to not be in pain, and I only had one little incision in my belly button! It's only about a week until my second operation. The doctors told me this time there are going to more incisions, and that this surgery is the biggest of all three. Does anyone know what kind of recovery time I can be expecting from this surgery? What kind of pain?