What is my medical condition?

In Canada a person with a j-pouch can be considered having a disability in that they may or do need to spend more time than others dealing with their bowel functions. I’m not big on the "disabled" designation but if it gets me a few bucks off my tax bill I'll take it.

thanks for answering MH but you missed my point,what is the name given to our condition ? is it simply that we still suffer from UC!!

Hi Stephen,
I would just put the technical name for the actual procedure. I don't know where you had surgery, or exactly what you had done to have your pouch created (differing "techniques" will have different names), but for me it is considered a Mucosal Proctectomy with Ileoanal Anastomosis and pouch creation. It is not that you still suffer from UC, it's just you still experience differing levels of function due to your altered anatomy.

I went on disability (in the States) during my surgeries and I actually consulted with a lawyer friend who helped me navigate how to word it, and to know exactly what they were looking for. At the time (10 years) it seemed weight loss was a big factor. They also sent me to a psych consult before I was approved. I don't know the procedure is in the UK.

Good luck!

Colleen

I live in italy and after the operation my family doctor asked x a visit of the medical commission and they gave me the 80% handicap and they give me a small (very)social pension.As x the name I would say that I have an internal hostomy.If they asked x more then you can say you are a poucher,and explain it.ciao

You still have the UC diagnosis. They have removed your colon but you still have the disease. I just went went through getting social security disability in the U.S. You also have a j-pouch dysfunction I am guessing. For example I have chronic cuffitis in the remaining UC tissue at my rectal cuff. I don't know how they do it there but they requested medical records from all of my doctors. The medical records then supported my claim.

I also have other autoimmune problems and included them all in my claim. Fibromyalgia, GERD, hypoactive thyroid, and so and so on, should be listed as well as any non autoimmune problems.

Maybe you could start a new thread and put something like need advice for UK disability claim.
Good Luck