i have it and when i had any surgery to do with the j pouch my AS always subsided (the pain) and would come back a month to a couple months later. 

 

Signs of AS... i dont really know how to describe it because the pain can be the same as sleeping wrong or a knot etc.... but my pain is usually in both hips usually most substantial near the piriformis muscle on my left cheek. sometimes i need my cane to help me walk but not as often anymore. a prescription of naproxen 500mg i think it was usually helped to knock most of the pain out but it would return if i didnt keep taking it. sometimes equate brand naproxen sodium helps. i just bought some liquid gels yesterday to try and help now.

Yup, I agree with it all...add a horrible 'hip pain' that is not really the hip but the sacroiliac joint in my case...

I take naroxin 440mg/morning and something stronger at night...When it gets too hard to handle I up the doses of naproxin to 1000mg.

In my case the pain radiates over the check and down the leg (sciatic nerve) and makes it hard to walk, move from sitting to standing or back and feels better with moderate physical activity (walking, swimming, climbing, yoga, pilates...)but feels like hell in the mornings when I get up (feel around 99 in the morning and 60 in the afternoon).

If you have it you feel it.

I agree that I always feel better for about a month post op (don't know why) and then the pain comes back.

PT can help, chiropractic too and some suggest acupucture but basically it is anti-inflamatories and eventually cortisone or biologics (ask Jan about those).

Shaorn

My daughter's had spondylitis pain since 5. She has sacroiliitis. Hers was unilateral to only the right side. She would have flares and remissions during her early years. Currently, Humira has both it and her indeterminate colitis in remission.

110% all of this. I'm trying to stay away from biologics though, at the very least i may go prednisone soon

You can't use prednisone long term for AS. Destroys the joints (avascular necrosis). Other than NSAIDs, sulfasalazine, and methotrexate, biologics are all that are left. 

 

I use NSAIDs and prednisone short term for flares, but take biologics for maintenance. I also get steroid joint injections when appropriate. Recent research is showing that early intervention helps slow the progression of joint damage.

 

Jan

 

methotextrate is not a biologic?

No, methotrexate is a DMARD (disease modifying anti-rheumatic drug). It is considered to be in the same class as sulfasalazine and steroids, in regard to treatment of inflammatory arthritis. Biologics include Enbrel, Remicade, Humira, Simponi, Cimzia, and a few others. They are all given by injection. Remicade is the only one that needs to be given by IV infusion.

 

http://www.spondylitis.org/Lea...eatment#.Vf8631pHarU

 

Jan

i didnt know that. Thanks. metho is a needle still right?

Methotrexate can be given orally, subcutaneously, or IV (in cases of chemotherapy regimens).

My daughter takes a low dose orally with her Humira to decrease antibody buildup. It's an immunomodulator.

nice. thanks