It’s been a rough year. My daughter was DX with UC and PSC in January 2017. Her UC was mild. The next 6 months she was on 5 different meds and 3 colonoscopies later her UC was now Severe she could no longer live with her colon or rectum. The colonectomy took place in July 2017 and let down October 2017. Blockage occurred first of November and shortly after that was the diagonis of pouchitis. She was on antibiotics for a month which helped and also stopped all lactos. Dr put her on Welchol to help with the urgency as lomodal no longer works. But now she has stomach pain and bathroom 5 minuets after she eats. Of course we will call Dr, but has anyone else’s been thru this??
Thank you from a UC mom!