I had my takedown done in 2013. In 2021 I had an infection in the jpouch that turned septic and I spent 5 days on a vent. So I know when some thing is wrong. I called GI Wednesday and he just said it’s a stomach bug or virus. Thursday at work my legs were so weak and still water diarrhea. Called GI said go to ER. All the cultures or still not back. Just waiting. Has anyone experienced this constant water for 5 days. Weak aching legs, and butt tight across tail bone.
Replies sorted oldest to newest
I’ve experienced watery BMs for several days in a row on several occasions. The first time I tested positive for SIBO. A course of antibiotics helped me. The others times it occurred I did not bother getting tested, but courses of abx again got rid of it.
I don’t recall having the other symptoms you described.
The weakness & tightness may be dehydration and electrolyte imbalance.
That’s what I thought! Results at ER said I was well hydrated. Dr texted me this morning all cultures have been negative so far, but he called me in an antibiotic in case there were any false negatives. Said it could be proctitis. We as pouchers know our bodies and when some thing is wrong. Something is not right.
thank you for answering!
Did the doctor test for C. diff?
Yes c-diff was negative. I’m sorry you have to take those antibiotics especially Flagyl. Dr telling me to take immodium but I won’t touch it. It was masking symptoms and I almost died of Sepsis in 2021.
Hey @Hoping,
Have you tried plain old psyllium powder before meals? It slows my guts down and thickens the stool. The stool gets watery at times even with the psyllium, That happens to me with certain foods and when things are really stressful, but doesn't necessarily mean pouchitis for me.
No! I have never heard of psyllium powder! Where can I find it?
The most common brand of psyllium is Metamucil, but there are others (e.g. Konsyl). I take it twice a day with breakfast and dinner, following the package directions. Psyllium is available as powder (coarse or smooth), capsules, and wafers. I don’t recommend capsules, since they didn’t mix adequately with stomach contents for me.
I like psyllium husk powder that is plain and I look for organic. I don't want a bunch of other stuff in there, like sugars that they have in the mixes like metamucil. I have really noticed a difference when there are sugars and crap mixed in with the psyllium because it feels kinda yucky. The psyllium by itself, powdered, mixed with water and gulped down immediately before it gets thick, is clean feeling.
Here's a good one: https://www.iherb.com/pr/front...er-16-oz-453-g/31080
Thank you both so very much! Good information! Finding out what others do is great. I hate going to ER and nobody knows what a jpouch is much less ever even heard of it. It’s like this deep dark secret. Makes my want to Scream!!!!
@Hoping posted:Thank you both so very much! Good information! Finding out what others do is great. I hate going to ER and nobody knows what a jpouch is much less ever even heard of it. It’s like this deep dark secret. Makes my want to Scream!!!!
I hear and second all of this. Let's all scream together!!
1 2 3. AAAAHHHHHH!!!!! lol!😂
AAAAHHHHHH!!!!! (I missed the countdown by an hour, but still.)
Except, those of us are regulars here, are in on the secret! (And happy to share it!)
Seriously, I can’t imagine my life without this site and people.
For Hoping: I used to chuckle years ago when in the hospital and the newbie doctors would rotate in to check me out. They all wanted to see my pouch. Uh. That would be a no can do. It's inside me. They had no idea what a j-pouch was.
@roseviolet posted:For Hoping: I used to chuckle years ago when in the hospital and the newbie doctors would rotate in to check me out. They all wanted to see my pouch. Uh. That would be a no can do. It's inside me. They had no idea what a j-pouch was.
I went to a new GI doc once. When I told her I had a j-pouch her eyes got all glittery and fiendish and she wanted to scope it (regular colonoscopy style) so bad...I never went back. Scary!!
I love the info y’all share! I know they want to see it?? I’m like really? It just irritates me! I need to take it more lightly. I’m SO stressed at work right now. I wonder if that started it. The vancomycin is helping. If not then I get the nice semi-colonoscopy😬
And don’t you love it when you are scheduling a scope and the nurse starts trying to give all the stuff to drink?? I’m like nope don’t need that. 😂
According to my GI doc, pouch scopes are totally different than colonoscopies. They don't even use the same equipment.
@Sara Marie posted:I hear and second all of this. Let's all scream together!!
Damn… I missed the scream…
@Ryan138 posted:Damn… I missed the scream…
You can scream any time and know that at least one of us is screaming with you. 