My 15 year old daughter had her final take down surgery in April 2010. Her j pouch has seemed very successful and she has not really experienced any problems except she has had a few occasions where she gets abdominal pain and cramping in the evening- which eventually leads to vomitting. This has happened 5 times in the last few months. We think it is probably food related- possibly lactose intolerance? Would love input from others.
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I have the opposite problem of your daughter. I can't vomit anymore ever since I got my J Pouch, it hasn't happened once. If I do feel nauseated it's horrible. I've wound up in the hospital a few times when that's happened. I keep away from stuff that will get me nauseated anyhow, such as alcohol. Lactose intolerance in my case just leads to more diarrhea, it's a horrible combination with a J Pouch. Although I'm making progress and can drink stuff like dairy milk now without feeling symptoms of Lactose intolerance.
It certainly sounds like it could be lactose intolerance. She could try cutting out dairy for a week or so and see what happens.
I get coconut milk products and cook with it too. See if that switch helps. I even make coconut butter out of the oil. Tastes really good too, especially when you pop popcorn in it.
JPouch Mom -- I've had my pouch for 16 years now (wow! I can't believe it's been that long!) and I get nauseous if my pouch is full. I know it sounds weird, but there is a direct correlation for me. It happens a lot during the night. If I wake up feeling nauseous, I will realize that I need to empty my pouch. I'm certainly not saying that this is what is happening to your daughter, but if it is consistently happening at the same time of day, perhaps it's because of having a full tummy from dinner? Just something to think about. Know that even after 2+ years, there is always a bit of tweaking/adjusting that needs to take place. I can tell you that it's all been worth it for me. Godo luck.
What you describe sounds like partial obstruction. Pain and vomiting could be because the stomach content can't go anywhere. This can be cause by inflammation, scar tissue or strictures. I would suggest you search for this on this website and see if it sounds like what your daughter is experiencing. Good luck to you both.
I appreciate the input. My daughter had wondered if it could be from being too full. I have considered obstructions, etc. because we've dealt with them in the past but she is still passing stool normally while these episodes take place,so I didn't think that was it.I will definitely look into it. I had her surgery date wrong as well-it's only been a year, not two, so I know there's still adjustments to be made. She struggled with numerous complications prior to the final take down- its so great to only have some minor issues to deal with!