kathy
tom - have you tried imodium or metamucil in the evening before going to bed? If so, have you noticed any difference?
kathy
kathy
Tom since waking up and going to the restroom while trying to sleep is part of the norm with a pouch, certain foods can lead to more sleep. After all this time though, I still have problems managing my intake. Since that annoys me, I take one Benadryl before I go to sleep. What that Benadryl does is put me back to sleep faster after I wake up and relieve myself. So far I've seen no side effects from it either.
kathy, im in more trouble when i try to eliminate imodium. metamucil im scared of because fiber gives me gas and when i have the unproductive nigh time bms its the gas that causes me the most agony. will the gas stop? would metamucil even though it causes gas guarantee the gas will come out easily. im scared to death to experiment after the wheat tore me up last night. white rice products only. come on father time. move me ahead quicker 
I could not tolerate Metamucil either. Some people are sensitive to the mild purgative effect of psyllium and the gas causing effects. I had better luck with Citrucel (methycellulose). It is more inert. Less gas and cramping, and did a good job of thickening.
Jan
Jan
Tom, every part of your digestive system is ajusting to the newness of this pouch. The sensations you are feeling in that area is not only nevers, muscles, etc., healing from the surgery, but all of it trying to figure out what to do, and so is your brain. You will come to know what means go, what means gas, what means nothing and will eventually go away. I remember having spasms in my rectum (like a knife being shoved in there) for a long period after surgery. I does go away. 4 weeks is brand, brand new.
Tom,
The following is in one of my files but it will not let me include it on an attachement.
I NEED TO AVOID FOODS AND LIQUIDS THAT INCLUDE THE FOLLOWING: MOST DAIRY PRODUCTS, HIGH FIBER FOODS SUCH AS WHOLE GRAINS AND WHOLE WHEAT and CORN
I TRY MY BEST TO EAT FOODS THAT ARE GLUTEN FREE OR WHEAT FREE WHEN I CAN. I ALSO COOK WITH OLIVE OIL QUITE FREQUENTLY AND CAN HAVE TOMATO SAUCE
SOME OF THESE FOODS CONTAIN SOME FIBER SO I DO HAVE A SMALL AMOUNT WITHOUT ANY SIDE EFFECTS IN ADDITION, IF THE LEAST INGREDIENTS HAS MILK, I CANnot TOLERATE it (i.e. cake)
DAIRY PRODUCTS: MILK, SOY MILK, WHEY, ANYTHING MADE WITH CREAM SAUCE OR CREAM BASED, CHEESE PIZZAS, ALL TYPES OF CHEESE EXCEPT THOSE NOTED, SCRAMBLED EGGS AND FRENCH TOAST OR PANCAKES MADE WITH MILK. I CAN HAVE RICE MILK (SOY MILK PRODUCES KINDEY STONES FOR ME, PARMESAN OR OTHER TYPES OF GRATED CHEESE, BUTTER OR MARGARINE, AND EGGS. YOU CAN BUY YOUR OWN PANCAKE MIX AT THE STORE OR TRY THE HEALTH FOOD STORE SO LONG AS THE MIX DOES NOT INCLUDE MILK.
HIGH FIBER FOODS: RICE - WILD RICE, BROWN RICE, SPANISH RICE, CEREALS SUCH AS ALL BRAND CEREALS, OATMEAL, SHREDDED WHEAT, GRITS, MILLET, WHOLE GRAIN CERALS, BUCKWHEAT, BULGUR OR CRACKED WHEAT AND BARLEY. I CAN HAVE WHITE RICE, RICE KRISPIES, CHEERIOS.
HOT SPICES: BY "HOT" I MEAN INGREDIENTS THAT HAVE HOT PEPPERS SUCH AS CHILI PEPPERS, CAYENNE PEPPERS AND ANY FOODS THAT CONTAIN THEM. I CAN HAVE SALT, BLACK PEPPER, BASIL, BAY LEAVES, GARLIC, OREGANO, ETC.
BREADS: WHEAT WHOLE-WHEAT BREADS OF ANY KIND, RYE BREAD, BRAND MUFFINS, BAGELS, WHOLE WHEAT PASTA AND WHOLE GRAIN CRACKERS. I CAN HAE ENGLISH MUFFINS, WHITE BREAD, PASTA AND SALTINE CRACKERS. WHITE BREAD OR TOAST, ROLLS, CROISSANTS
VEGETABLES: RAW VEGETABLES OF ANY KIND, PEPPERS, BROCCOLI, CAULIFLOWER, CORN, PEAS, CELERY, SPINACH, CABBABGE, MASHED POTATOS (IF IT INCL MILK), YAMS, SWEET POTATOS, RAW ONIONS. I CAN HAVE ARTICHOKES, CARROTS, EGGPLANT, PARSNIPS, TOMATOS (YELLOW TOMATOS), FRIED ONIONS BAKED POTATO, STRING BEANS, ZUCHINI
FRUIT -FRESH: APPLES, PEARS, GRAPES, BANANAS, (UNLESS THE FOOD IS BAKED OR COOKED (LIKE IN APPLE PIES), ALL DRIED FRUIT. I CAN HAVE WATERMELON, STRAWBERRIES, LEMON, MOST JAMS MOST CANNED FRUITS, & JELLIES, CRANBERRY SAUCE
MEAT: I USUALLY AVOID THE HARD TYPES OF MEAT TO CHEW LIKE STEAK. AVOIDE FATTY MEATS SUCH AS HAM, SALAMI. I CAN HAVE HAMBURGERS, CHICKEN, TURKEY, PORK (EXCEPT HAM AVOID FATTY MEATS SUCH AS HAM, SALAMI,BACON, PORK ROLL, ETC)ROAST BEEF.
FISH: ALL SHELL FISH SUCH AS SHRIMP, LOBSTER AND CLAMS (SHELL FISH PRODUCES KIDNEY STONES FOR ME. I CAN HAVE COD, SALMON, FLOUNDER, WHITE FISH, TILAPIA AND TROUT
FOODS / DRINK: FOODS AND DRINKS THAT CAUSE BLOATING OR GAS ISUCH AS BEANS, SODA, BEER, THE VEGGIES NOTED. I CAN HAVE BOTTLED WATER, POWERADE MOST TEAS AND COFFFEE
SOUPS: SOUPS THAT ARE CREAM BASED OR INCLUDE INGREDIENTS LISTED LIKE LOBSTER BISQUE OR NEW ENGLAND CLAM CHOWDER. I CAN HAVE FRENCH ONION (without the cheese)
CHICKEN NOODLE, WEDDING SOUP BASED SPICES AND VEGETABLES (examples would be LOBSTER BISQUE,
SAUCES / OIL MILK BASED CREAM SAUCE, CLAM SAUCE . I CAN HAVE TOMATO SAUCE AND OLIVE OIL
DESERTS MILK OR ICE CREAM, PUDDING, CAKES SUCH AS CHEESE CAKE, CANNOLIS, PUMPKIN PIE, CREAM BASED OR ANYTHING WITH HIGH QUANITYOF MILK, CREAM AND/OR CHEESE. I CAN HAVE SORBET, PIES SUCH AS APPLE, BLUE BERRY, LEMON MERINGUE, JELLO, ANGEL FOOD CAKES AND COOKIES.
SNACKS POPCORN, NUTS, CHUNKY EANUT BUTTER, DORITOS, FRITOS. I CAN HAVE PEANUT BUTTER, BAKED POTATO CHIPS, PRETZALS RICE ICE CREAM (CAN NOT HAVE SOY ICE CREAM BECAUSE OF KIDNEY STONES)
Rocket
The following is in one of my files but it will not let me include it on an attachement.
I NEED TO AVOID FOODS AND LIQUIDS THAT INCLUDE THE FOLLOWING: MOST DAIRY PRODUCTS, HIGH FIBER FOODS SUCH AS WHOLE GRAINS AND WHOLE WHEAT and CORN
I TRY MY BEST TO EAT FOODS THAT ARE GLUTEN FREE OR WHEAT FREE WHEN I CAN. I ALSO COOK WITH OLIVE OIL QUITE FREQUENTLY AND CAN HAVE TOMATO SAUCE
SOME OF THESE FOODS CONTAIN SOME FIBER SO I DO HAVE A SMALL AMOUNT WITHOUT ANY SIDE EFFECTS IN ADDITION, IF THE LEAST INGREDIENTS HAS MILK, I CANnot TOLERATE it (i.e. cake)
DAIRY PRODUCTS: MILK, SOY MILK, WHEY, ANYTHING MADE WITH CREAM SAUCE OR CREAM BASED, CHEESE PIZZAS, ALL TYPES OF CHEESE EXCEPT THOSE NOTED, SCRAMBLED EGGS AND FRENCH TOAST OR PANCAKES MADE WITH MILK. I CAN HAVE RICE MILK (SOY MILK PRODUCES KINDEY STONES FOR ME, PARMESAN OR OTHER TYPES OF GRATED CHEESE, BUTTER OR MARGARINE, AND EGGS. YOU CAN BUY YOUR OWN PANCAKE MIX AT THE STORE OR TRY THE HEALTH FOOD STORE SO LONG AS THE MIX DOES NOT INCLUDE MILK.
HIGH FIBER FOODS: RICE - WILD RICE, BROWN RICE, SPANISH RICE, CEREALS SUCH AS ALL BRAND CEREALS, OATMEAL, SHREDDED WHEAT, GRITS, MILLET, WHOLE GRAIN CERALS, BUCKWHEAT, BULGUR OR CRACKED WHEAT AND BARLEY. I CAN HAVE WHITE RICE, RICE KRISPIES, CHEERIOS.
HOT SPICES: BY "HOT" I MEAN INGREDIENTS THAT HAVE HOT PEPPERS SUCH AS CHILI PEPPERS, CAYENNE PEPPERS AND ANY FOODS THAT CONTAIN THEM. I CAN HAVE SALT, BLACK PEPPER, BASIL, BAY LEAVES, GARLIC, OREGANO, ETC.
BREADS: WHEAT WHOLE-WHEAT BREADS OF ANY KIND, RYE BREAD, BRAND MUFFINS, BAGELS, WHOLE WHEAT PASTA AND WHOLE GRAIN CRACKERS. I CAN HAE ENGLISH MUFFINS, WHITE BREAD, PASTA AND SALTINE CRACKERS. WHITE BREAD OR TOAST, ROLLS, CROISSANTS
VEGETABLES: RAW VEGETABLES OF ANY KIND, PEPPERS, BROCCOLI, CAULIFLOWER, CORN, PEAS, CELERY, SPINACH, CABBABGE, MASHED POTATOS (IF IT INCL MILK), YAMS, SWEET POTATOS, RAW ONIONS. I CAN HAVE ARTICHOKES, CARROTS, EGGPLANT, PARSNIPS, TOMATOS (YELLOW TOMATOS), FRIED ONIONS BAKED POTATO, STRING BEANS, ZUCHINI
FRUIT -FRESH: APPLES, PEARS, GRAPES, BANANAS, (UNLESS THE FOOD IS BAKED OR COOKED (LIKE IN APPLE PIES), ALL DRIED FRUIT. I CAN HAVE WATERMELON, STRAWBERRIES, LEMON, MOST JAMS MOST CANNED FRUITS, & JELLIES, CRANBERRY SAUCE
MEAT: I USUALLY AVOID THE HARD TYPES OF MEAT TO CHEW LIKE STEAK. AVOIDE FATTY MEATS SUCH AS HAM, SALAMI. I CAN HAVE HAMBURGERS, CHICKEN, TURKEY, PORK (EXCEPT HAM AVOID FATTY MEATS SUCH AS HAM, SALAMI,BACON, PORK ROLL, ETC)ROAST BEEF.
FISH: ALL SHELL FISH SUCH AS SHRIMP, LOBSTER AND CLAMS (SHELL FISH PRODUCES KIDNEY STONES FOR ME. I CAN HAVE COD, SALMON, FLOUNDER, WHITE FISH, TILAPIA AND TROUT
FOODS / DRINK: FOODS AND DRINKS THAT CAUSE BLOATING OR GAS ISUCH AS BEANS, SODA, BEER, THE VEGGIES NOTED. I CAN HAVE BOTTLED WATER, POWERADE MOST TEAS AND COFFFEE
SOUPS: SOUPS THAT ARE CREAM BASED OR INCLUDE INGREDIENTS LISTED LIKE LOBSTER BISQUE OR NEW ENGLAND CLAM CHOWDER. I CAN HAVE FRENCH ONION (without the cheese)
CHICKEN NOODLE, WEDDING SOUP BASED SPICES AND VEGETABLES (examples would be LOBSTER BISQUE,
SAUCES / OIL MILK BASED CREAM SAUCE, CLAM SAUCE . I CAN HAVE TOMATO SAUCE AND OLIVE OIL
DESERTS MILK OR ICE CREAM, PUDDING, CAKES SUCH AS CHEESE CAKE, CANNOLIS, PUMPKIN PIE, CREAM BASED OR ANYTHING WITH HIGH QUANITYOF MILK, CREAM AND/OR CHEESE. I CAN HAVE SORBET, PIES SUCH AS APPLE, BLUE BERRY, LEMON MERINGUE, JELLO, ANGEL FOOD CAKES AND COOKIES.
SNACKS POPCORN, NUTS, CHUNKY EANUT BUTTER, DORITOS, FRITOS. I CAN HAVE PEANUT BUTTER, BAKED POTATO CHIPS, PRETZALS RICE ICE CREAM (CAN NOT HAVE SOY ICE CREAM BECAUSE OF KIDNEY STONES)
Rocket
Tom,
I do cheat a little with what I previoulsy mentioned. Moderation is key.
Rocket
I do cheat a little with what I previoulsy mentioned. Moderation is key.
Rocket
Hello
I've had a pouch for just over ten years. I've done lots of things since and been to a lot of places. Whilst my pouch doesn't always behave itself, the lingering memories of most of the places I've been to and things I have done have been of those places and achievements, not what my pouch was doing at the time.
That's all you need to know. Now go and enjoy life..
I've had a pouch for just over ten years. I've done lots of things since and been to a lot of places. Whilst my pouch doesn't always behave itself, the lingering memories of most of the places I've been to and things I have done have been of those places and achievements, not what my pouch was doing at the time.
That's all you need to know. Now go and enjoy life..
rocket, thanks so much for the list and thanks to you all for the encouraging words. do you guys ever find yourself being funny silly happy excited like you were before colitis/j-pouch? i cant see me there at all but i hang on to your experiences. last night was the worst. again a good day then cement butt at night with unreal bloating to top it off. gonna cut back on the imodium. wish dilauded had an anti spasm effect because its slowing warming calming effect is dreamy. id live on it for a bit but dont want both that and imodium backing me up even worse plus coming off dilauded is hellish. ive done it 5 times now...
Tom,
You're welcome. Other posters here have said that it helps if you lie down and put a heating pad on your belly. It does bring comfort.
Funny/Silly???????????? Have to agree with that about myself and my kids have told me that numerous times. I laugh at myself sometimes. Laughter is very good medicine and it doesn't cost a cent.
Hang in there and try to stay as positive as you can.
I see you are in NY. Are you ready for the storm that they are calling Frankenstorm?
Rocket
You're welcome. Other posters here have said that it helps if you lie down and put a heating pad on your belly. It does bring comfort.
Funny/Silly???????????? Have to agree with that about myself and my kids have told me that numerous times. I laugh at myself sometimes. Laughter is very good medicine and it doesn't cost a cent.
Hang in there and try to stay as positive as you can.
I see you are in NY. Are you ready for the storm that they are calling Frankenstorm?
Rocket