My pouch has not been anchored for the last 5yrs...the anchoring sutures let go and I don't feel like going back to O.R. to have it reattached (will be done with Dr C's recommendations for my French Laporoscopy surgeon) but I need to plan it for one of these days...
That said, my pouch goes into 'torsion' every now and then...it twists around itself (think:neck of a baloon being twisted)and the first symptom is that my tube does not go in strait but usually has to curve upwards and to the left towards my bellybutton. (occasionally to the right but that is rare)...the side effect of the torsion is that when full my stoma can leak stool or gas, cramp, pain and needs more frequent emptying...were hoping that it would scar into place but it hasn't.
I had to fly home for an emergency recently and the flight was misery with my pouch twisted and not emptying properly and I was very bloated and uncomfortable.
When I got home, by the 2nd night I was miserable so I took the Swiss ball (the huge Yoga inflatable ball) up to my room and lay down on it to work my back, rolling from side to side a bit, back and forth for about 1/2hr...Then suddenly my stomach felt like I had dropped in an elevator or rollercoaster...and I got nauseous and had to throw up...
I emptied my pouch and surprise...my tube went strait in...no twists, no curves....and stayed that way all week...no pouch problems at all...I had a happy pouch the whole trip...this is the f=st time in ages that my stoma is strait again....(hope that it stays that way)
Youppiii!
Sharon
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