Vasculitis

I've never heard that vasculitis was a long-term effect of this surgery. If you don't get any answers, PM Jan Dollar and she may be able to give some information. Doesn't sound like it's any fun to go through.

Looking it up it says that the cause is poorly understood but that there's usually an immune component. And it says that treatment is directed toward stopping the inflammation and suppressing the immune system, i.e., prednisone and immune suppression drugs.

Are you having effects of it now? Or is it something that comes and goes and keeps on giving?

kathy

Boy, I've never heard of this as a result of colectomy or j-pouch surgery. It is autoimmune related, so perhaps what they mean is that it is related to your autoimmune disease (IBD) that led to your surgery, as autoimmune diseases can tend to cluster; NOT that it was directly related to the surgery itself.

There have been a few members here with vasculitis. As, I am sure you know, it is pretty rare. Here is a link with more information for you that you may find helpful:

http://www.rheumatology.org/pr...tions/vasculitis.asp

Jan

Thank youJan

Hi Kathy

Thanks for your reply. I have had to take prednisone twice but both times the dose was only 15mg and I was on it it for about three months. My case isn't an extremely serious one but it's painful enough so that I am unable to go to work or spend time with my two girls.

Presently I am doing okay and am not on any steroids. I am presently taking sopositories though because the doctor did say that could be due to an infection of the small portion of the large intestine attached to the jpouch.

All in all, it is confusing and I just hope it doesn't happen again. Thanks for the support.
SN