Been a long while since I've participated on this forum. Even forgot the username and whatever email I'd had back then. Last year I thought I had a burst blood vessel in my left eye as it would normally look but after a couple days it started to get very painful. Still ignoring it for a couple days after but soon the pain was very sharp, deep. The eye was looking worse and a nodule or bump was starting to show.
Went to the eye doctor and was diagnosed with uveitis. I didn't respond to liquid steroid eye drops so I was sent to a rheumatologist / eye doctor here in Portland, Oregon at the Casey Eye Institute. It took Prednisone ( oral ) meds to knock it back and I was put back on Imuran. These meds I had a long history with during the UC days so I was taken back a bit knowing that the immune system had once again caused me problems. I'm one year on now and still on Imuran as I'm sure I will be for the foreseeable future. No further troubles with the Uveitis at this point but the other inflammation problems are still on going.
As far as the j-pouch I've had no issues at all after the first two years of adjustment
and the normal situations that come from living with it daily. I do have other inflammation issues that I now know comes from or is related to the immune system issues that started with UC back in the day. I do have and will share with others here what worked for me during my 3 step surgeries as it was very helpful to me getting help here on this forum.
Mark
At some point I'm sure the Doctor will try and bring me off the Imuran and see how it goes. If I need to stay on it ... well .. guess it'll have to do.