I'm confused on this? Is your cuffitis asymptomativ and that's wHy they are not treating it with Canasa or anucort? I just had my sso on pouch advancement for chronic cuffitis and will post results after.

i guess he thinks it is non symptomatic..thats why i questioned him as to maybe that causing my issues..but he reccommeded nothing other than preparation h as i said..

my worst,debilitating symptoms without antibiotics makes me dead meat.. but with them the worst is gone..so i think because i respond to antibiotics which is not for cuffitis treatment he still maintains we go with bacteria overgrowth...and as i recall now years ago i had all treatment for cuffitis canasa and so on by the surgeon i went to before dr. shen and it did nothing for my worst symptoms..until i stayed on antibiotic continually..(but rotating because the antibiotic became less effective but when recycled worked again..)

i really incourage you to go to c.c or mayo at this point if you can make it happen.. the reason being they just have more jpouch patients as i mentioned on another thread..dr.shen has 1700 right now.. and surgeons know how to operate thats what they do..

please let us know how test goes..i will keep update going..

do you have bleeding?symptoms for pouchitis,cuffitis and bacteria overgrowth appears to have similar possible symptoms..i would not be surprise if i also had ips also which gets thrown into mix..

but i would try everything i could before i had surgery again...

best
rebe

what is test you took and what is pouch advancement?

Rebecca,

I had the IBD seriology test to try and rule out UC versus crohn's and it came back UC. Pouch advancement surgery is when the remove the cuff due to cuffitis and basically detach the pouch and drop it down and hand sew it to your anal muscles.

I also take antibiotics daily for my pouch and rapidly decline without them. They have no impact on the cuffitis. Right now I am on cortifoam which seems to be doing nothing for the cuffitis and also actually seems to irritate it more.

Pouch advancement surgery is a very scary procedure as you may or may not end up with another temp ostomy and if they cannot advance the pouch or do a pouch redo, you lose your pouch.

I found cortifoam completely useless for cuffitis and for the bottom part of things even with UC. Way better succes with canasa supp... used LOTS like 3 times aday and rowasas. I think it was rowasa that got my cuffitis tamed down after about 3weeks of twice a day usage.

I agree with Liz. Cortifoam just aggravates my cuffitis and I am no back to three canasa suppositories a day....