I'm sorry you have to wait so long for the removal surgery. I am assuming you do not live in the USA. Could this latest problem move you up to an earlier surgery date? 

I had my j-pouch removed and am doing much better than I ever did with it.

Great to hear you are doing well, were you in hospital long? My gastro keeps saying that quality of life would be much better off without.

Thanks for reply! 

I was in the hospital a week but think it was first estimated at 5 days. If you are not living your normal or close to normal life then you should seriously consider it. I can go out to kunch with friends again.  An example of something simple that I was too sick to do that before the surgery.

Saw surgeon today, said no pouchitis but ulceration-ischaemic with pouch prolapse. Going to remove skin tags and Botox fissure next month. I'm so tired, next June seems so far away to have pouch removal surgery �� Anyone else with pouch prolapse? 

I wish you didn't need to suffer for a year. It sounds bad. Can this get you moved up on the waiting list? If you haven't done it already you might want to start a new topic about prolapses.