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Hello,

I had major surgery, reconstruction j-pouch, 7 years ago. Original surgery was in 1984.

I have the following symptoms, and hopefully someone can give some advice on how to make my situation a little better:

1. An abundance of gas to the point where I feel like I have  partial obstruction. I can still have a BM and such, but not a comfortable feeling

2. At times, the odor from BM is atrocious. I  don't know why, but have been tested for c-difficile and results have been negative (I did have c-difficile two years ago)

3. Could it be some form of pouchitis? PErhaps an inbalance of bacteria / candida?  I can no longer tolerate Cipro / Flagyl as I have bad tendons

4. At times I feel nausea but not any way close to vomiting

5. I have trouble passing gas in a seated position (like on the toilet). At times I have same issue passing stool. I can pass gas quite easily if I lay flat on my stomach or even on my side in the prenatal position (knees bent near my chest)

My diet has not changed for the last 10 years. My weight has been constant for the last years (although I am too heavy->e.g. fat)

Any discomfort is between belly button and rib cage. Tapping on stomach indicates a build up of gas on the right side just below rib cage.

Don't get me wrong. Living like this is so much better than living with a bag, so I am grateful that I can still do everything I want.

Any suggestions would be greatly appreciated.

Thanks!

Solomin

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Hi, Solomin. Has your doctor considered SIBO (small intestinal bacterial overgrowth)? That would explain the excessive gas. SIBO is normally treated by a longish course of an antibiotic, usually rifaximin or doxycycline. Doxycycline took care of it very well for me.

Your problem doesn’t sound much like pouchitis to me. A chronic partial blockage might also cause the sort of discomfort you’re describing, but not usually excessive gas. Cipro can cause the tendon problems that concern people, but as far as I know Flagyl doesn’t have any tendon-related side effects reported.

Good luck!

Scott F

Hi Scott,

Thanks for the info - Cipro does cause tendon issues, and Flagyl does not. I can no longer tolerate this drug either.

I would not be surprised if I have SIBO, but it is challenging getting in touch with my doctor especially during the pandemic. Her secretary does not like me in any way (and I even gave her a cash present following my surgery) and probably does not pass on messages. She claims that she does not communicate with her boss for weeks at a time, which sound ridiculous.

In any case, hopefully my doc with call me back one day.

Thanks,

Solomin

S

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