If all is well, I'm due for takedown surgery during the next few months, the hospital which will perform the surgery is a 4 hour journey by train.
How difficult will my journey be, in regard to toilet visits ?
I don't relish the idea of using a toilet on the train at anytime, certainly don't fancy using it more than once; all the more so, as during my last train journey in First Class the toilet had blocked and overflowed.
BMs during my journy home is something which has never occurred to me but when reading that others on here have urgency and 10 or more BMs after takedown, now I'm concerned ?
Replies sorted oldest to newest
I have never been afraid to use a bathroom on a train, in a gas station, restaurant, or anywhere else. If it concerns you don't eat the morning of discharge and you should be fine.
Sue
Sue
I'm not afraid to use public toilet on a train or anywhere else for that matter, I'd just rather not.
Toilets on trains are unisex here in the Uk, the vast majority of public toilets are not and Male toilets are rarely the cleanest of enviroments, especially in comparison to female toilets, it's another world.
On a 4 hour train Journey, I don't fancy having to clean the previous users mess before I'm able to use the toilet, never mind cleaning it 3 times or more, especially if there's an element of urgency.
Yes, the predicament does concern me, that's why I posted the question on a web forum.
I live about 2 hours away from where I had my reversal. I was very nervous like you before I left. They discharged me the day I had my first bowel movements and didn't know what to expect but I was lucky and didn't experience any urgency on my way home. I made sure that when I was discharged that I went to the bathroom immediately before I left just to make sure. Good luck with the take down. I had my take down about 3 months ago and am completly happy with my decision!
I've been lucky since my first BM with my J-pouch it has been very controlled and no urgency, I can wait hours from the time that I think that I need to go and then actually having to find a restroom. I hope that you have the same luck as I have had.
How about stopping halfway home and finding a place to eat and use the restroom or stay overnight in a hotel and making it a 2 day trip? Is that an option for you?
How about stopping halfway home and finding a place to eat and use the restroom or stay overnight in a hotel and making it a 2 day trip? Is that an option for you?
Thanks for all the very helpful suggestions and opinions.
Cutting the journey in half, not something I plan to do but if necessary, suppose I could but then it's hanging around at a railway station for 45 mins for the next train, might as well just stay on the train.
If BMs are to an extent I must leave the train, I won't fancy exploring unfamiliar surroundings, not knowing where toilets are.
Staying in a hotel sound logically but unfortunately if BMs are excessive, that too will be an arduous task.
It's only since reading forum post and members reporting of 10 or more BM and urgency after takedown did I begin to worry and remembering a different life, one with a UC flare up.
I guess, using not the cleanest toilet on the train is not a nice thought right now, if I got to go and it's a hole in the ground, I got to go and I'm going to use it.
Thanks
I had a hard time with all the bumps and potholes along the way (about 2 hrs from Boston to Maine). I won't sugar coat it, it made my insides feel like they were moving around. We stopped once and I had a hell of a time going. I was an unlucky one who was plagued with urgency and incontinence from the beginning, and it's taken me a while to figure out my new plumbing. I wore a diaper on the way home just in case.
I will say that my bms were very infrequent for the first few days bc of how little I was eating. A few bites of cereal would fill me up.
Good luck to you
Katie
I will say that my bms were very infrequent for the first few days bc of how little I was eating. A few bites of cereal would fill me up.
Good luck to you
Katie