Hey all. I had my j-pouch surgery in September this year. The first month was a nightmare of pretty much going to the toilet at least once every two hours.
However, after seven weeks I was in much better shape. Amazingly my stool was nearly always well formed - not far off normal stools and rarely causing me issues in passsing. There was some issues with gas and some nights were a lot worse than others. But i was taking no more than 3 immodium a day and sometimes just one. Doctors agreed i was doing great.
However... 2 weeks ago i had terrible diarrhoea for the best part of two days and since then i have had no more hard stools. Everything is like my old stoma discharge and often its very diarrhoea-ey. I have episodes where i really need to dash to the loo - sometimes three or four times in a hour. The acid is destroying my bum too.
I am not eating or drinking anything different.
Has anyone else had a similar experience, particularly with the change of consistency in stool? Did it ever come back to formed or formed-ish as its killing me how it is atm.
I feel like i have gone backwards so quickly having had such a good start.
Not being able to enjoy a day out as im not sure if an episode will strike is very sad for me. And yes, i know it's early days. Hoping for some light.
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