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Hey All,
Last month I was having issues emptying so I drank A WHOLE LOT of grape juice. That is over now and I haven't had grape juice in a few weeks due to mouth/tongue sores. My mom told me it was probably do to the acid from the grape juice. But in the back of my mind I was thinking about how my GI always asks me if I have tongue or mouth sores. My then mouth sores/ pain went away.
The thing is, I have been having intense tomgue pain. It's kind of like when you bite or maybe burn your tongue, but it doesn't go away. I don't understand because I haven't drank any grape juice in weeks. The pain on my tongue is so irritating sometimes I can hardly sleep or swallow. I realize it may be NOTHING HAVING TO DO WITH MY J POUCH. But I always hear about how pouchers and people with IBD have tons of random issues, and I know the tongue can tell of something else going on, especially for us.
I read online that the tongue pain can have to do with infection and certaim deficiencies. I have no idea. Any thoughts? My tongue feels like its been cut or burned ans it hurts to swallow at times and is irritating when I sleep. When I looked at my tongue from the grape juice, it appeared to ahvw white "dots" or marks" and I had sores which I get from time to time that are now gone. Now I have small red dots that are really annoying that hurt. They stand out against my tongue and are small.
I know I shouldn't freak out, I'm just really sick of my tongue hurting UGH
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I never got canker sores on my tongue until a couple a months ago. My doctor told me that I will always have UC, but now it will manifest itself itself in other ways. He said if my sores were herpes, then he could give me an Rx, but since they were not, then there was nothing he could do for me.

The sores do take about 5 days to go away.
This needs to be reported to your doctor. It could be UC related and might mean you have a flare of pouchitis, or it could be something unrelated to what is going on with your pouch. I highly doubt it has anything to do with the grape juice. If anything, the high sugar content would have more of an impact, not acid. It could be a case of thrush (yeast infection) which would require treatment.

One thing for sure, this is not normal!

Jan Smiler
I've been getting canker sores since second grade (I'm 33). Hate them. My GI would always ask about them too. I had one on the left side of my tongue that just cleared up, it lasted over a week. A couple days ago, got another on the right side, it hurts like hell to talk, drink, chew, even just to have my tongue sit in my mouth like normal hurts.
The ironic thing for me is that during my 10 month uncontrollable flare preceding my surgery last year, canker sores were the only symptom I didn't have! Anemia, constant fatigue, nausea from the meds, incontinence, horrible arthritis....but ahhhh to be able to speak and chew freely without pain, ha ha!
Hope yours clears up soon.
Katie
Could it be bacterial overload or Thrush?
I have a vague memory of my tongue looking 'cracked' or split in long lines going back from the tip to the base...it looked like dried mud after a rainstorm.
It happened a couple of times when I was a teen and then never again...I also used to get 'cat tongue' kind of bumpy and dry...but that was due to antibiotics...A weird reaction.
Not sure at all what it is that you have but I agree with Jan, you must tell your doctor.
It could be a manifestation of something totally different but it needs checking.
Sharon

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