Friends,
I told you all in another post that my (almost) 14 year-old daughter has received an indeterminate colitis diagnosis. It is likely UC, but there was microscopic inflammation in the esophagus and stomach so the officially declared it indeterminate.
She has had symptoms for about 6 months (bleeding), and in that time has been having really bad leg cramping. She plays soccer (dual-rostered with her club - meaning two teams, and is also now playing for her school), and this leg cramping has made playing somewhat miserable for her.
She describes this as cramping primarily in her calves, and sometimes in her hamstrings. She says it's like those muscles "clench" - like you would think of with muscle spasms. Watching her play, while she's in motion she seems to do better but when she stops, it's painful.
I know with my j-pouch and my other daughter's j-pouch, we get more leg and foot cramps - but I don't recall having issues with this when I had UC.
Her potassium levels are in the low-normal range, and we have given her Gatorade, bananas, etc. to deal with any potassium shortfall. And it may help.
Anyway - I wanted to see if you all or your kids ever had similar issues and if so, what you did to resolve it?
Thank you!