For those who got the Jpouch due to colon cancer and not UC/Chrons, are you experiencing complications as well like pouchitis, chronic pouchitis, cuffitis, and all the other potential complications that can come with the Jpouch? I am just curious to know if it is the UC/Chrons patients that do worse or what.
Replies sorted oldest to newest
Or FAP too for that matter (or anything really other than UC/Chrons)
I am not in that group, but most definitely pouchitis is mostly seen in those with IBD, particularly the chronic or relapsing types.
Jan
Jan
Although my Jpouch is still new (just had my takedown March 7th), I am in the group with colon cancer and FAP, and so far, no problems such as pouchitis, etc. *knock on wood!*
About 10% of FAP j-pouchers have at least one bout of pouchitis within 10 years vs. 50% of IBD patients.
"The incidence of pouchitis is markedly different between patients with UC and FAP. In UC the quoted incidence varies from 20% to 50% between studies [Hahnloser et al. 2007; Romanos et al. 1997; Stahlberg et al. 1996]. In FAP the incidence of pouchitis is much lower than in UC and varies from 0% to 11% [Barton et al. 2001; Nyam et al. 1997; Kartheuser et al. 1996; Fazio et al. 1995; Dozois et al. 1989]"
Full article here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3002591/
"The incidence of pouchitis is markedly different between patients with UC and FAP. In UC the quoted incidence varies from 20% to 50% between studies [Hahnloser et al. 2007; Romanos et al. 1997; Stahlberg et al. 1996]. In FAP the incidence of pouchitis is much lower than in UC and varies from 0% to 11% [Barton et al. 2001; Nyam et al. 1997; Kartheuser et al. 1996; Fazio et al. 1995; Dozois et al. 1989]"
Full article here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3002591/
Pouchitis sucks. 
I lost my colon due to high grade dysplasia. First surgery was Nov. 2, second was Dec. 28th. I've had a very mild case of pouchitis one time that three days of Cipro took care of, but have had no other issues, other than just getting used to it at the very beginning. I LOVE my pouch and am so thankful that the initial surgeon I saw (I was ready to have a permanent ileostomy) asked me to get a second opinion before he did my surgery. I DID have UC, but it was very well controlled with my medication, I never had flares. Feel free to let me know if you have additional questions.
It is very rare. Shen at CC said I would most likely never have it. I have FAP.
Also other things can seem like pouchitis. I was mis-diagnosed with pouchitis for a year! I had C.diff and I also have small bowel bacteria overgrowth, has to be managed with diet.
Also other things can seem like pouchitis. I was mis-diagnosed with pouchitis for a year! I had C.diff and I also have small bowel bacteria overgrowth, has to be managed with diet.
I got my pouch due to rectal cancer, and am two full years post-takedown, and no problems to speak of once I got over the initial adjustment period. I asked my surgeon about pouchitis at one point, and he said I probably wouldn't have a problem with it because I retained most of my colon...FAP/UC folks tend to have more colon removed.
I have j pouch due to cancer and am having issues like bloody stools. In process of diagnosis is I have pouchitis, cuffitis, etc. FIrst scope showed pouch inflamation. Using Cortifoam now, but not helping. getting ready to go back for 2nd scope.
G'day Pkitty,
I have had my j pouch now for around 4 years, lucky I have, had no complications,taken nearly all this time for it to settle. Had rectal cancer, most of rectum and sigmoid colon removed. I Seem to be doing alright, clear so far, next colonoscopy it in 27 days time
Regards
Bob
I have had my j pouch now for around 4 years, lucky I have, had no complications,taken nearly all this time for it to settle. Had rectal cancer, most of rectum and sigmoid colon removed. I Seem to be doing alright, clear so far, next colonoscopy it in 27 days time
Regards
Bob
I've got FAP and I'm about three months out, but so far so good with the pouch!