Sorry should say ostomy

As far as I know, the biggest downside to a perm ileostomy is social -- not health related. I think that's the biggest question to ask

Lindsay, you're not offering much background. The response is different if you've thoughtfully attempted to deal with the possible causes (e.g. untreated pouchitis) vs. hoping it will get better with time. You're certainly describing a miserable situation.

Hi Scott sorry I don't have pouchitis I have major bowel spasms more so in the evening to the point where sometimes I lose control this has affected my sleep leaving me miserable, causing my arthritis to flare and and poor concentration and so forth I have tried everything from taking Tylenol 3, lomatil not eating dinner and nothing seems to help. It's has been going on for years and I am at the end of my rope. My gi doc wants me to wait and try more options but I am not sure i can cause my quality of life is terrible. As a family we love to fish, camp, quad, etc and I am not able to participate as much just wanted to know if anyone has had similar situations or any suggestions?

You don't mention trying antispasmodics, like Levsin or Bentyl. They work differently than opiates and the opiate-like bowel slowers, lomotil and Imodium.

Jan