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Hi. I unfortunately got COVID, but I guess some people tell me I am lucky it took me 4.5 years to finally get it. I don't know if lucky is the word I'd use...

It has been pretty horrendous and 7 days later even though the fever is gone and the body aches have passed and the cough is much less -- and I finally don't need OTC meds to be in this state -- I still feel incredibly weak and I'm still testing very positive for the virus and I can barely sleep and my appetite is terrible. I have lost 10 pounds in 7 days and it's not good.

And of course, I am worried it will come for my pouch. So far it's been quiet but COVID is a little terrorist and seems to like hitting new body systems by surprise attack, just to keep you on edge. And then when you get better you still have to keep looking over your shoulder forever. The inflammatory response seems to just move through me like a creeping fog. (My body also has this weird sensation, almost a cooling feeling, and a weird taste in my mouth that actually reminds me uncannily of how I felt after being discharged from a UC flare hospital trip on 60 mg/day of prednisone. I'm not on prednisone at all, though, and vow never to be unless I'm literally dying.)

Has anyone had pouchitis issues after having covid that stopped responding to the usual things that took care of it? Did anybody have Crohns-in-the-pouch emerge after having COVID-19? Any other issues come up that you think might have been related to having COVID but otherwise everything had been under control before? Did you end up with long-COVID and wonder if it's because of your overactive immune system?

I asked my doctor about taking Paxlovid but she did not want to give it to me unless I was a lot sicker, or old, or with pre-existing respiratory issues, because the diarrhea caused by Paxlovid might be very harmful to me.

I tried really really really really hard not to get COVID because I knew it would put me in this spot but here we are. Can't run from it forever I guess.

Tags: COVID, Paxlovid, pouch, inflammation, impact, Crohns-in-the-pouch

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I did not notice COVID affecting the pouch at all, but my body didn't react that strongly to the strain-it just felt kind of like a weird cold because I also experienced a cooling sensation, kind of like a river flowing through my upper respiratory system..and it was kind of pleasant, oddly. The last time I was exposed (my husband got it and we did no separating/quarantining) I didn't get it.

Not sure if it is related, but I have been taking a supplement called "Immy" which is supposed to help your immune system and gut health. My pouch has been pretty happy since I started that except an occasional yeastiness, which I have always had since pre-pouch. Could be a coincidence that I didn't get COVID, though.

SM

I'm so exhausted from keeping up with all the natural treatments I should or should not be trying. It took me so long to get stable on the regimen of stuff that I'm on. Probiotics worked for me for a while but eventually I had to go back to daily Flagyl because the results were too inconsistent.

I talked to my psychiatrist yesterday about sleep and long term covid stuff and he was like "If you think it's going to happen to you it will."

Thanks, man. For a psychiatrist he seems to not understand how anxiety works. I can't just choose not to worry about bad things happening and telling me that I have to stop worrying or bad things will happen just makes the anxiety worse. I swear to god this law of attraction stuff is just as poisonous as the political crap.



If I could "just stop worrying" I would not have anxiety as a diagnosis. It's enough to make me want to change providers.

O
Last edited by OscarThePouch

Another psychiatrist seems like a good idea. That one seems incompetent. How awful to have to hear that from him. I agree he doesn't understand anxiety. The way he thinks is outmoded and it blames the person for their anxiety. He must not have had any professional development training recently, like in the last 20 years??!! I agree with the poison. And we're all having increased anxiety in the US right now. Federal elections are stressful, and way worse since DT/45 got involved and brought out the worst in so many people. I don't remember them ever being so awful or people being so mean to each other before him.

I know it can be exhausting to worry about what sorts of "natural" things to take. I have to wait until I'm stable to try things out or I can't tell what hurts and what helps. I wasn't really recommending that you take "Immy". I just associate it with not getting COVID that second time my husband got it, unlike the first time. But correlation ≠ causation, like the scientists like to say! Who knows if it's even related?

SM

That's actually the opposite question that I'm asking.



I already have COVID. I wanted to know what impact COVID has on the pouch, not the effect of IBD on COVID risk. Like, can COVID trigger an autoimmune response that brings your colitis back, or causes crohns in your pouch that you didn't have before? Does it stop antibiotics from being effective to control pouchitis?

O
Last edited by OscarThePouch

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