Tell me about pizza Jpouchers!

what are you eating so far? im 11 days out and im not even passed rice n toast yet. am i to cautious?

Go for it. Just have a small slice though and see how it goes. I had pizza a week after takdown and I was fine with it. Everyone is different...you won't know til you try it. Enjoy!

Don't eat too much of it. I made the mistake of doing that the last time I dined on thin crust cheese pizza with a small piece of garlic bead and water. I had the laws of physics join me that meal only to tell me "did you really think you could eat that much pizza minus 5 feet of your colon? You should have learned there's no beating the laws of physics by now. Sorry you lose." That whole meal reminded me how long ago my surgeon warned me how I'd become more dependent on my sphincter muscle after my J Pouch surgery was finished.

Ease into it, especially at first.

I'd start off with something plain, no toppings other than cheese.

(FYI, I eat pizza now with no problems whatsoever! There are just certain toppings that are a no-no for me)

I've eaten alot. cereal with whole milk, turkey, meatloaf, salisbury steak, chicken, pudding, rice, donuts, deli sandwiches without veggies, corn dogs, gatorade, rootbeer, chicken dumpling soup, canned peaches, pears, apples, mac n cheese, whole and mashed potatoes.

If that's what you have eaten so far then I don't think you will have trouble with a slice of pizza.

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I've eaten alot. cereal with whole milk, turkey, meatloaf, salisbury steak, chicken, pudding, rice, donuts, deli sandwiches without veggies, corn dogs, gatorade, rootbeer, chicken dumpling soup, canned peaches, pears, apples, mac n cheese, whole and mashed potatoes.

dear lord. whats wrong with me. im scared to death to add things yet. had some peach last week and paid dearly someone encourage me to take some chances here. colitis has me fearing most foods...

you should be fine. eat a small piece bland toppings. if you want to combat too much acid get a tiny amount of baking soda in some water after. cuts the acidity.

I waited six weeks before I tried anything other than a soft, bland, boring diet. Then....just a very small portion of one new thing at a time. Waited to see how "it did" before including it again. On down the road all foods have worked for me. It just took awhile.

I was eating pizza in the hospital!

JenniferG,

You beat me to it! I ate pepperoni pizza in the hospital too. I was told to order more than I could eat and to just have a few bytes of what I ordered. One time, after breakfast a Resident lifted up the food covering to see what I ate, and smiled at me. It was like they were monitoring my food as well as my fluids.

Tinned peaches come through clearly identifyable where as skinless fresh ones don't....can't imagine why. Would have thought tinned ones which are effectively cooked by the heat of the canning process would be easier to digest. Had a very bad experience with dried apples, making my partners museli, why oh why didn't I consider they swell up inside.

Pizza is my best go-to food! I have issues if I eat past 6-6:30pm. Pizza is my only exception. I can eat it and sleep without fear. :-)

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Posted Oct 7, 8:45 PM Hide Post
I've eaten alot. cereal with whole milk, turkey, meatloaf, salisbury steak, chicken, pudding, rice, donuts, deli sandwiches without veggies, corn dogs, gatorade, rootbeer, chicken dumpling soup, canned peaches, pears, apples, mac n cheese, whole and mashed potatoes.

If you've eaten all of that, a slice of pizza is no issue. Just make sure you CHEW, CHEW, CHEW and drink plenty of fluid (water).

I had cheese pizza at the hospital!

I love me some pizza. I've been known to eat half a large pepperoni pizza and an entire bag of crazy bread in one sitting. I usually have to get up once the night I do so, but it's worth the deliciousness.

so why is it that i cant eat a thing 2 weeks after takedown? i been eating toast crakers rice etc. but im scared to death to add anything. tried peanut butter and it wrecked me had panara soup broth with the bagget bread soaked in it and screwed me. what the heck is going on?

chasingtime,

Don't beat yourself up. For whatever reasons there are, some people adjust faster than others but eventually we all end up in the same place. Two weeks out is very new. You will be eating all your favorites before you know it. It just may take you more in the time of months than weeks.

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For whatever reasons there are, some people adjust faster than others but eventually we all end up in the same place.

that is good to hear! i feel like i am behind compared to others, but i guess it's not good to be comparing.
chasing time, no matter what i ate for the first month, it ran through me and screwed me too. it wasn't until like 8 weeks or so where i felt like my body was actually tolerating food, and not until month 3 where i started expanding outside low residue. it's frustrating and maddening, but should get much better for you in the coming weeks.

thank you. i tried beano yesterday to see if it would cut down on my gas/bloating and i think because its an enzyme it just ended up at my anus and made butt burn worse. usually my butt burn is tolerable but last night i was in excruciating pain. make sense? any gas reduction tips. to be honest this feels like colitis again except i can hold it and theres no blood. i know people say it will feel that way but my brain cant wrap around feeling better in time. i feel hopeless some days and thurday morning we drive home to ny from florida. dilaudid will get me through. it really slows me down and lifts my spirits but i dont like using it. this is a special circumstance...

I was eating pizza right after my surgery with no issues... I now eat pizza at least once per week and never find it to be a problem food...

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I was eating pizza right after my surgery with no issues... I now eat pizza at least once per week and never find it to be a problem food...

bragger

right now im dealing with surgical pain the open wound and the normal bowels issues 2 weeks out. ive also taken on depression and anxiety from this disease so im not seeing the light yet. is life fun after all this suffering? i have a great wife family and friends that im grateful for but i cant picture me any different than when i was in the throws of colitis.

chasingtime and fq - I am about 5 months out and still having some problems. Not where I was but still battling. Walking, watching tv and lots of sitz baths are the key. The more I eat the more I go, still. Patience is the only way. I have had other surgeries in the past and you heal from them. This was a certainly different from all the others. Gutted is the word I use for my surgeon! It just takes lots of time to heal this one!
Roberta

if i remember correctly, beth156 has had her pouch for 15 years...that's a LONG time!!! we are nowhere near that. i am sure things will change quite a bit in that time. we are all different though. there are days where having a j-pouch reminds me of colitis (without the blood, pain), but mostly because of the frequency. also i still have a bit of urgency and yes, lots of burn. i'm not sure about helping the gas, because there was SO MUCH GAS for me right after takedown that really time just helped to ease it. maybe smaller meals, chewing food well, pepto/gas-x, oh...taking LOTS of walks helped me with the gas pains. i took Cipro for a few weeks that helped settle things down. maybe yogurt/probiotics might help, or they could help later. i took almost 3 sitz baths a day in the first couple months. spent long nights in the bathroom. went through Calmoseptine like it was goin' outta style! did all kinds of tricks and tips for my arse that seemed to offer temporary relief. got a bidet, sprayed my butt in the shower, rubbed oil on it, soaked it in yogurt, sat in baths, called upon the j-pouch genies.... i felt like my butt was a kitchen / baking project! i still use calmoseptine, but take less baths now.

now in month 3-4, i feel much better energy-wise, so it is easier to handle these issues. when you have surgery recently, and are still recovering / exhausted / in pain, then dealing with the j-pouch adaptation and quirks on top of that are enough to make you batty! it was really hard, but i tried to get my mind off my pouch (ok actually that was impossible), but i tried to get fresh air and other distractions, like TV. Looking back, I should have done more of that, as my friends had suggested, but i was miserable and did not see the point. now i see how those things would probably have helped, because whether i liked it or not, i was simply going to have to wait a bit longer for my body to adjust. so instead of keeping a little busier with other distractions, i lay in bed and cursed my pouch!!! i don't think that helped my recovery much. be sure to take lots of walks and hang in there! this surgery was so complex and bigger than open-heart surgery, so i guess we need to be very patient. even at 4 months out, i have to remind myself that it has NOT even been 1 year yet, so hopefully still more improvements to come! i also had complications early on (like stricture), so i followed up with my doctors almost weekly. hope you feel better soon!

Roberta, i think we posted at the same time i agree - lots of time and patience! at 5 months out now, you can look back and remember how things were worse and how things are getting better now, right??

I used Super Digestive Enzymes vs beano. They are in clear capsules and work much better than beano. I don'e need them anymore but they really helped me out. I didn't start taking them until 2-3 months as that's when I found out about them.

There are a couple of good threads on here where we discussed the brand names etc. I've used a couple of different brands and couldn't tell the difference. Some of you might want to do a search and find that thread.

fq - Yes it is better than it was, for sure! You just have to hang in there like everyone has said.

Roberta