Taking lomotil for years

My experience with lomotil is after taking for a few years, stops working. 

CR, what do you mean by diarrhea? 3-4 stools per day is fewer than average for a J-poucher. 

I just use Lomotil at bedtime, and I rarely have to interrupt my sleep.

I am with Scott. Even if it is liquid, 3-4 BMs a day is great frequency with  j-pouch. You can thicken your output with soluble fiber and diet choices.

Jan

Thanks for advice. I needed to talk with ppl who have a jpouch😀

3-4 per day- that’s awesome! I’m still up around 15x per day and I’m 4 months post takedown.

How long has everyone been on Lomotil? Not sure how’s long I should expect to be need it. 

I’ve been on it since 2004.  My surgeon told me it would be about three years for recovery.  It is. It does get better ; the first year was the worst, but u r alive.  After 6 months , I went back to work.  My company was kind enough to let me choose my schedule.  Eventually I went back full time.

Good to know. Yea I already feel like the surgery was worth it. Even though I’m still going a lot, it was life changing. I don’t have the same type of urgency, no accidents, no pain, no prednisone! If I can continue to avoid the obstructions, I’ll be all set. I don’t have to see my surgeon for another year, or unless something goes wrong. 

Glad to hear things are getting better for you. 

You are already doing  better than when I had mine.  Mainly cuz u don’t have to see surgeon for a year.  That’s great!  Hoping it will continue so well!  Keep it up. It is worth it.  Guess we really don’t need to hang on those colons!!!🤣

3-4 count your blessings

Ally cat !  You’ve been thru the wringer!!!!!! I’ve had pouchitis a few times but not much lately. I added exercise to my routine and that must be what helps me. Then I go off proper diet and eat chocolate!i pay for it so back to yougurt, bananas, blueberries  . I tolerate Raisin Bran and oatmeal. Good luck Allycat, after so much trouble