Totally normal honey!

Try not to get it wet for a while, wrap it in the shower.

Do you plan on celebrating every anniversary of your surgeries???

Mine took a bit to heal, leaked pus occasionally or would get puffy like there was fluid build up. My surgeon took a look and cauterized it in office. Took about 30 seconds and then I healed right up. I think it's fairly normal to have some drainage for a bit.

Not normal

had an major leak at takedown site and emergency surgery at 300 am Thursday

it’s Friday night, I am alive, off the ventilator and lucky to not have a permanent osteomy nor sepsis.

surgeon does not know what went wrong the first time

I literally had poop pouring out of me.

I am in icu with a 5 tubes draining all kinds of stuff,

I hope I live thru this.

@New577 posted:

Not normal

had an major leak at takedown site and emergency surgery at 300 am Thursday

it’s Friday night, I am alive, off the ventilator and lucky to not have a permanent osteomy nor sepsis.

surgeon does not know what went wrong the first time

I literally had poop pouring out of me.

I am in icu with a 5 tubes draining all kinds of stuff,

I hope I live thru this.

OH HONEY!!!!!! I AM SORRY TO HEAR THAT!!!!!!!!!!!! MY PRAYERS ARE WITH YOU!!! ARE YOU OKAY NOW????!?!?!!!

@New577 This sounds very tough - I’m sorry you have to deal with it. Good luck!

Eric, so sorry you're going through this.  Sending positive, healing thoughts. 

@New577 I’m so sorry to hear about your struggles right now. That really stinks. Sending you lots of good thoughts for rapid healing and sustaining strength. We’re rooting for you!

So sorry to hear this. I am new here, but am thinking about you.

Oh my, so sorry to hear this! Hope you are feeling better soon!

So sorry to hear about this. Sending positive thoughts your way for the speediest recovery possible.

It’s Sunday night

alive and in icu

being pumped with everything they can thrown at me

small Intestine resected and jpouch still intact

no food yet

will have to start over again and hope no further perforations occur

@New577 posted:

It’s Sunday night

alive and in icu

being pumped with everything they can thrown at me

small Intestine resected and jpouch still intact

no food yet

will have to start over again and hope no further perforations occur

Hope you are going to be okay love!! Keeping you in my prayers

What a scary turn of events! You will survive this. It may not sound like it, but you are lucky that this major leak found its way through your wound. Better than building up inside. You are in the right place and they are going to get you well. Sure, it is a huge setback. Stuff happens. One thing for sure, this did not happen because of something you did or didn’t do.

Take care and chin up. Things will get better!

Jan

Update 05/25

out of icu,in regular room.  Continue to receive iv antibiotics, fluids and food.  
I am eating solid foods, in small amounts.

Will be here a few more days. Jpouch is working again and likes to be drained  often.

so here we go with jpouch startup 2.0.

surgeon assures me that fistula was removed and bowel resection resolved.

we shall see…….

Wow, I'm so glad you're okay. How scary!

Update 6/3

i am home from the hospital. 14 days of IV antibiotics to cure the sepsis. 7 more days of oral antibiotics at home. Thank you for all the well wishes.

i am grateful to be alive and in one piece. I did not receive a temporary osteomy after the perforation and really grateful for that as well.

Now I begin Takedown 2.0 and get used to the jpouch. I did pretty good in the hospital.

pouch likes to fake me out when I am on the toilet. As soon as I wipe more comes out. So for me, patience is required, and I just have to sit and relax till the pouch is fully empty.

eric

@New577 posted:

Update 6/3

i am home from the hospital. 14 days of IV antibiotics to cure the sepsis. 7 more days of oral antibiotics at home. Thank you for all the well wishes.

i am grateful to be alive and in one piece. I did not receive a temporary osteomy after the perforation and really grateful for that as well.

Now I begin Takedown 2.0 and get used to the jpouch. I did pretty good in the hospital.

pouch likes to fake me out when I am on the toilet. As soon as I wipe more comes out. So for me, patience is required, and I just have to sit and relax till the pouch is fully empty.

eric

So happy you are okay honey!!!!! I cannot wait for your new journey

So it’s Saturday night and my anus is on fire.

Apparently, they prescribed Augmentin as an oral antibiotic for my last 7 days of therapy. It’s has torn up my digestive track after 2 doses. Called surgeon and he advised me to discontinue antibiotics as 15 days of iv infusion antibiotics in hospital should have killed any infection from from the perforation.

ok peeps, how do get rid of this major butt/anal burning I am having as I await this horrible antibiotic to leave my body

thanks,

Wow I just read all of these events!!!! I’m so sorry your dealing with all of this on top of a new j pouch!!!! Here to jpouch 2.0, you got this!!! Are you able to soak in a low bath below your incisions sites for your bottom?! This always seems to help me with the burning.

@New577 posted:

So it’s Saturday night and my anus is on fire.

Apparently, they prescribed Augmentin as an oral antibiotic for my last 7 days of therapy. It’s has torn up my digestive track after 2 doses. Called surgeon and he advised me to discontinue antibiotics as 15 days of iv infusion antibiotics in hospital should have killed any infection from from the perforation.

ok peeps, how do get rid of this major butt/anal burning I am having as I await this horrible antibiotic to leave my body

thanks,

Diaper rash cream- calmoseptine.

The hospital should have diaper rash cream, Convatec Skin barrier cream, they should have that, ask the ostomy nurse.