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Hi everyone,
My surgical consult is Thursday May 7th. I have been in misery and pain dealing with my severe UC for going on 4 months.  I'm at my breaking point and just trying to hold on until surgery.  How long from the time of your consult was it before your operation?  I'm trying to get an idea of how much longer I'm going to have to fight.
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For me it was a period of 3-4 months, the reason being my surgeon told me no way he would cut me until I lost 10 pounds (he was very particular about this), and then when I lost that weight, there were scheduling issues, due to his then immense demand as perhaps the pre-eminent J Pouch surgeon in NYC, and quite possibly the entire USA (this was 1992; unfortunately Dr. Gelernt passed away in 1996).

 

In those several months, I deteriorated badly, and while the operation was ostensibly elective, Dr. Gelernt later admitted to me that my colon was dissolving in his hands when he removed it, and the surgery could not have waited any longer.  I was on a very high dosage of Prednisone at that time and it was not blunting the progress of the disease.

Last edited by CTBarrister

My surgery was in April of 1989 and I remember being on 60 mg. of Prednisone and other stuff for u.c. and the surgeon needed to wait about 2 months until they could taper me down off of preds.  But then all kinds of crazy stuff happened to me, mostly because of was on preds for 10 years and on very high doses so my ability to fight off infection and to heal well just didn't happen.  Hang in there...it may seem like forever when you are not feeling well and you just want to start feeling better.

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